Fig. 3
Patient reported outcome questionnaire. a General evaluation of preoperative and postoperative appearance as well as general experience of treatment. Q1. How would you rate head deformity experienced before the operation? Answers: A: not obvious 9.5%, B: little obvious 4.8%, C: obvious 9.5%, D: very obvious 38.1%, E: extremely obvious 38.1%. Q2. How would you rate the postoperative head shape compared to before the operation? Answers: A: much better 57.1%, B: better 42.9%, C: same 0%, D: worse 0%, E: much worse 0%. Q3. Based on your current knowledge and experience, would you choose this treatment again? Answers: A: yes, in any case 76.2%, B: yes 14.3%, C: eventually 0%, D: no 0%, E: not at all 9.5%. b Q4. How would you rate your/the current head shape /of your child? Answers: A: excellent 10.5%, B: very good 47.4%, C: good 26.3%, D: acceptable 15.8%, E: inacceptable 0%. Q5. Has ever someone mentioned your / your child’s head shape after the operation? Answers: A: never 62.5%, B: almost never 18.8%, C: sometimes 12.5%, D: frequently 6.3%, E: almost always 0%. Q6. How would you evaluate your/ the scar on your / child’s head? Answers: A: excellent 33.3%, B: very good 19%, C: good 28.6%, D: acceptable 14.3%, E: inacceptable 4.8%. Q7. Has ever someone mentioned to you the noticeable scar on your / child’s head? Answers: A: never 33.3%, B: almost never 19%, C: sometimes 28.6%, D: frequently 19%, E: almost always 0%. c Q8. When someone mentioned to you your/child’s head shape, which part of the head did they address? Answers: A: frontal region, no 90.5%, yes 9.5%; B: temporal region, no 100%, yes 0%; C: orbital region, no 85.7%, yes 14.3%; D: convexity, no 71.4%, yes 28.6%; E: multiple areas, no 100%, yes 0%. Q9. If you would have a chance to correct your child’s head shape, which part would you change? Answers: not at all – frontal: 76%, temporal: 79%, orbital: 86%, convexity: 76%, occipital: 76%; rather no – frontal: 14%, temporal: 21%, orbital: 0%, convexity: 5%, occipital: 14%; eventually – frontal: 5%, temporal: 0%, orbital: 0%, convexity: 5%, occipital: 0%; rather yes – frontal: 5%, temporal: 0%, orbital: 10%, convexity: 10%, occipital: 0%; definitely – frontal: 0%, temporal: 0%, orbital: 5%, convexity: 5%, occipital: 10%. d Q10. Does your child have headache? Answers: none: 66.7%, little: 9.5%, sometimes: 14.3%, frequently: 9.5%, always: 0%; Does your child have scar pain? Answers: none: 81%, little: 4.8%, sometimes: 9.5%, frequently: 4.8%, always: 0%; Does your child have any limitation in daily activities? Answers: none: 76.2%, little: 4.8%, sometimes: 4.8%, frequently: 9.5%, always: 4.8%. e Q11. How strenuous would you rate the hospital experience for yourself? Answers: none 28.6%, little 38.1%, stressful 9.5%, very 9.5%, extremely 14.3%. Q12. How strenuous would you rate the hospital stay for your child? Answers: none 4.8%, little 52.4%, stressful 23.8%, very 9.5%, extremely 9.5%