Background
Methods
Setting
Nurse navigator (NN)
Participants
N | 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | 13 | 14 | 15 | 16 | 17 | 18 | 19 | 20 | 21 | |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Age | 76 | 65 | 56 | 43 | 37 | 68 | 63 | 70 | 37 | 79 | 54 | 66 | 61 | 59 | 79 | 36 | 46 | 55 | 69 | 70 | 71 | |
Marital status | Live with partner most days | x | x | X | x | x | x | x | x | x | x | x | x | x | x | x | ||||||
Live with partner a few days a week | x | x | x | |||||||||||||||||||
Live alone | x | x | ||||||||||||||||||||
Place of residence | Town | x | x | X | x | x | x | x | x | x | x | x | x | x | x | |||||||
Countryside | x | x | x | x | x | x | x | |||||||||||||||
Diagnostic phase | Diagnosed | x | x | x | x | x | x | x | x | x | x | |||||||||||
Diagnostic phase | x | x | x | x | x | x | x | x | x | x | x | |||||||||||
Diagnosis (suspicion of) | Ovarian cancer | x | x | x | x | x | x | x | x | x | x | |||||||||||
Uterine cancer | x | x | x | x | x | x | ||||||||||||||||
Cervical cancer | x | x | x | x | x |
Data
Trajectory | Outpatient | In-hospital | Outpatient |
---|---|---|---|
Interviews
| (Interview at discharge) | Interview 3 months | |
after inclusion | |||
Background data
| Observation | ||
for interview
| Diary | (Diary) | (Diary) |
Analysis
Ethics
Results
Trust in healthcare professionals
"Physicians themselves are calm and explain…he did not make me [totally confused]… so…it was not necessary [to use the NN]. All the time I felt they were very caring and I had confidence in the situation…I will talk to my good general practitioner later.""(At discharge)"
Trust in a closely related healthcare professional
"I have not used [the NN] because I have my children…[one of whom is a healthcare professional and] she has followed me through this. (At discharge)""[The “closely related healthcare professional”] has been a good girl…When…I had any questions she immediately went to the computer…[This made me] comfortable (I:mm)…I trusted the doctors… I did exactly as the [they] said. (Three months after enrolment in the study)"
"It ended in a complete mess and if others experience what I did (I: yes) then they are just a bunch of lousy patients who don’t bother to come when they’re supposed to.""I never talked to [the NN]…instead…Mostly I have talked to my good [“closely related healthcare professional”] (I: yes) when…I had a question…she knows nearly as much as the others in the system.""(Three months after enrolment in the study)"
Distrust (or guarded trust) in healthcare professionals
"Then Circus Hospital Authority starts up… nothing ever goes as the way it should and no times that fit…hope they don’t fall over each other…It’s all very well the doctor being busy…but I bloody well think it’s not good enough that he doesn’t call and say…if you need me, I’m right here. I have heard nothing. I find that scary. (At discharge)""Doctors… come and go as they see fit… they come and say their bit and then they leave again (yes) they can go as far as to turn their back on you at the same time, I mean . . really! . . (I: Has anybody done that?). No, I don’t think [doctors at the hospital] did, but I have seen others previously.""(Three months after enrolment in the study)"
Trust in the NN
"The NN was, in fact, quite nice … she was able to tell me more … and she explained things, so I really trusted her (ok) … it was before treatment … and everything was uncertain (yes), so I got the opportunity to ask some questions (ok), and I actually remember that she said that she had 25 years of experience; she had seen some things, and they would result in such and such … and that I should take it easy and so on (yes) … and I was much relieved (yes), really … [the NN] had a professional attitude …""(Three months after enrolment in the study)"