Background
Methods
Setting and subjects
Qualitative data analysis
Results
Themes in Nephrologists
Reaction to chronic kidney disease (29 segments) | Definition of code | Number of occurrences |
---|---|---|
Chronic Kidney disease difficult to understand | When patient diagnosed with chronic kidney disease, they do not understand all aspects | 7 |
Denial reaction to chronic kidney disease | When patient diagnosed with chronic kidney disease, they go into denial | 6 |
Shock reaction to chronic kidney disease | When patient diagnosed with chronic kidney disease, they go into shock | 6 |
Restricted in lifestyle due to chronic kidney disease | When patient diagnosed with chronic kidney disease, they realize they will have restricted lifestyle | 4 |
Death is a risk from chronic kidney disease | When patient diagnosed with chronic kidney disease, they realize that death is a risk | 3 |
Fear reaction to chronic kidney disease | When patient diagnosed with chronic kidney disease, they have fear | 2 |
No reaction to chronic kidney disease | When patient diagnosed with chronic kidney disease, they have no reaction | 1 |
Differences in race (22 segments)
|
Definition of code
|
Number of occurrences
|
Af Am have more experiences | African Americans have more experiences with chronic kidney disease | 5 |
Af Am have more chronic kidney disease | African Americans have higher prevalence of chronic kidney disease | 4 |
Af Am see conditions as out of control | African Americans see effects of chronic kidney disease as out of their control | 2 |
Af Am have more diabetes | African Americans have higher prevalence of diabetes | 2 |
Af Am have more high blood pressure | African Americans have higher prevalence of hypertension | 2 |
Af Am ask less questions | African Americans ask less questions of their physicians | 2 |
Caucasians ask more questions | Caucasians ask more questions of their physicians | 2 |
Af Am trust in God | African Americans talk about trusting in God more to physicians | 2 |
Af Am have less anxiety | African Americans have less anxiety relating to kidney disease | 1 |
Thoughts on dialysis (20 segments)
|
Definition of code
|
Number of occurrences
|
Fear of dialysis | Patient has fear of dialysis | 17 |
Dialysis helps chronic kidney disease | Patient thinks that dialysis helps treat chronic kidney disease | 3 |
Types of treatment (19 segments)
|
Definition of code
|
Number of occurrences
|
Dialysis is a treatment for chronic kidney disease | Dialysis is a treatment for chronic kidney disease | 7 |
Transplant is a treatment for chronic kidney disease | Transplant is a treatment for chronic kidney disease | 5 |
Older home remedies as treatments for chronic kidney disease | Older home remedies are treatments for chronic kidney disease | 4 |
Drinking water helps chronic kidney disease | Drinking water is a treatment for chronic kidney disease | 2 |
Healthy diet helps chronic kidney disease | Healthy diet is a treatment for chronic kidney disease | 1 |
Reaction to treatment (14 segments)
|
Definition of code
|
Number of occurrences
|
Patient does not want treatment | Patient does not want chronic kidney disease treatment | 12 |
Patient compliant with treatment | Patient is compliant with chronic kidney disease treatment | 2 |
Thoughts on God (11 segments)
|
Definition of code
|
Number of occurrences
|
God helps situation | God can help the situation | 6 |
God not responsible | God does not help situation but is not responsible for chronic kidney disease | 3 |
God is in control | God does not help or hinder the situation but is in control of outcomes | 2 |
Causes of kidney disease (11 segments)
|
Definition of code
|
Number of occurrences
|
Unsure of causes of chronic kidney disease | Patient is unsure of causes of chronic kidney disease | 4 |
Blood pressure causes chronic kidney disease | Patient believes that hypertension causes chronic kidney disease | 2 |
Diabetes causes chronic kidney disease | Patient believes that diabetes causes chronic kidney disease | 2 |
Genetics causes chronic kidney disease | Patient believes that genetics causes chronic kidney disease | 1 |
Too much protein causes chronic kidney disease | Patient believes that eating too much protein is a cause of chronic kidney disease | 1 |
Poor diet causes chronic kidney disease | Patient believes that poor diet is a cause of chronic kidney disease | 1 |
Information source (7 segments)
|
Definition of code
|
Number of occurrences
|
Experience gave information | Patient got information on chronic kidney disease from personal experiences with family members or career | 4 |
Internet gave information | Patient got information on chronic kidney disease from the Internet | 3 |
Reasons for treatment non-compliance (7 segments)
|
Definition of code
|
Number of occurrences
|
Patient not aware of treatment | Patient is non-compliant with treatment because unaware of what is available | 2 |
Patient does not like treatment | Patient is non-compliant with treatment because they do not like the treatment | 2 |
Handicap reason for non compliance | Patient is non-compliant with treatment because they are handicap | 1 |
Lack of intelligence reason for non compliance | Patient is non-compliant with treatment because lacks basic intelligence for every-day life | 1 |
God will treat | Patient is non-compliant with treatment because believes God will treat | 1 |
Sign of chronic kidney disease (5 segments)
|
Definition of code
|
Number of occurrences
|
No symptoms of chronic kidney disease | Patient has no symptoms for chronic kidney disease | 3 |
Nausea is a sign of chronic kidney disease | Patient has nausea as a symptom of chronic kidney disease | 1 |
Pain is a sign of chronic kidney disease | Patient has pain as a symptom of chronic kidney disease | 1 |
Chronic kidney disease occurrence (5 segments)
|
Definition of code
|
Number of occurrences
|
Af Am have more chronic kidney disease | African Americans have higher prevalence of chronic kidney disease | 3 |
Lower education level have more chronic kidney disease | Lower education population has higher prevalence of chronic kidney disease | 2 |
Transplant thoughts (3 segments)
|
Definition of code
|
Number of occurrences
|
Transplant is magic cure | Patient thinks that transplant is a magic cure for chronic kidney disease | 2 |
Unsure of transplant | Patient is unsure of benefits of transplant in chronic kidney disease | 1 |
Home dialysis (3 segments)
|
Definition of code
|
Number of occurrences
|
Home dialysis intimidating to patients | Patients are intimidated at the thought of home dialysis | 3 |
Information availability (1 segment)
|
Definition of code
|
Number of occurrences
|
Lack of information | Patient does not have access to information | 1 |
Most prevalent themes
Reaction to CKD
Differences in race
Thoughts on dialysis/fear of dialysis
Types of treatment
Reaction to treatment
Thoughts on God
Causes of CKD
Other facets discussed in the focus groups
Nurses focus groups
Themes
Reaction to chronic kidney disease (53 segments) | Definition of code | Number of occurrences |
---|---|---|
Unsure of chronic kidney disease | Patient is unsure of disease | 20 |
Denial reaction to chronic kidney disease | Patient is in denial after diagnosis | 18 |
Accepting of chronic kidney disease | Patient is accepting of diagnosis | 5 |
Patients don’t try to prevent | After diagnosis, patients admit they aren’t trying to prevent disease | 3 |
All patients different in reaction | Patient reacts differently after diagnosis | 3 |
Fear reaction to chronic kidney disease | Patient is afraid after diagnosis | 2 |
Depression reaction to chronic kidney disease | Patient is in depression after diagnosis | 1 |
Shock reaction to chronic kidney disease | Patient is in shock after diagnosis | 1 |
Thoughts on dialysis (44 segments)
|
Definition of code
|
Number of occurrences
|
Fear of dialysis | Patient has fear of dialysis | 13 |
Unsure of dialysis | Patient is unsure of dialsysis | 8 |
Dialysis helps | Patient thinks dialysis helps treat chronic kidney disease | 8 |
Patient does not like dialysis | Patient does not like dialysis | 8 |
Shock of dialysis | Patient is in shock at dialysis treatment prescription | 7 |
Information availability (38 segments)
|
Definition of code
|
Number of occurrences
|
Lack of information | Patient lacks information about disease | 38 |
Compliance to treatment (30 segments)
|
Definition of code
|
Number of occurrences
|
Patient non-compliant to treatment | Patient is non compliant to prescribed treatment | 25 |
Patient compliant to treatment | Patient is compliant to prescribed treatment | 5 |
Information source (28 segments)
|
Definition of code
|
Number of occurrences
|
Information from experience | Patient got information from personal experience | 15 |
Information from family | Patient got information from family | 4 |
Information from physician | Patient got information from physician | 4 |
Information from other patients | Patient got information from other patients with kidney disease | 3 |
Information from Internet | Patient got information from Internet | 2 |
Transplant thoughts (27 segments)
|
Definition of code
|
Number of occurrences
|
Unsure of transplant | Patient is unsure of transplant | 12 |
Transplant risky | Patient thinks transplant is risky | 10 |
Transplant helps | Patient thinks transplant helps kidney disease | 5 |
Reasons for non-compliance (26 segments)
|
Definition of code
|
Number of occurrences
|
God will heal | Patient thinks God will heal and no need for medicinal treatment | 12 |
Patient doesn’t want treatment | Patient doesn’t want treatment | 6 |
Lack money for treatment | Patient lacks money for treatment | 5 |
Medicine won’t work in Af Am population | Patient thinks medicine won’t work in African American population | 3 |
Thoughts on God (25 segments)
|
Definition of code
|
Number of occurrences
|
God will heal | Patient thinks God will heal | 12 |
God not responsible | Patient does not think God is responsible for kidney disease | 7 |
Trust in God | Patient trusts God | 6 |
Types of treatment (22 segments)
|
Definition of code
|
Number of occurrences
|
Dialysis is treatment for chronic kidney disease | Patient thinks dialysis is a treatment for chronic kidney disease | 9 |
Transplant is a treatment | Patient thinks transplant is a treatment for chronic kidney disease | 7 |
Home remedy is treatment | Patient thinks that home remedies can treat chronic kidney disease | 5 |
Medication treatment for chronic kidney disease | Patient thinks medication is a treatment for chronic kidney disease | 1 |
Cause of chronic kidney disease (20 segments)
|
Definition of code
|
Number of occurrences
|
Unsure of causes of chronic kidney disease | Patient is unsure of causes of chronic kidney disease | 6 |
Blame others for chronic kidney disease | Patient blames others for chronic kidney disease | 4 |
Stress causes chronic kidney disease | Patient thinks stress causes chronic kidney disease | 3 |
Genetics causes chronic kidney disease | Patient thinks genetics causes chronic kidney disease | 3 |
Blood pressure causes chronic kidney disease | Patient thinks high blood pressure causes chronic kidney disease | 2 |
Diabetes causes chronic kidney disease | Patient thinks diabetes causes chronic kidney disease | 2 |
Reasons for compliance (12 segments)
|
Definition of code
|
Number of occurrences
|
Socialization with treatment | Patient complies with treatment for socialization | 8 |
Waiver for treatment | Patient gets a fee waiver for treatment | 4 |
Support network (9 segments)
|
Definition of code
|
Number of occurrences
|
Lack support network | Patient lacks support | 5 |
Good support network | Patient has good support | 4 |
Sign chronic kidney disease (7 segments)
|
Definition of code
|
Number of occurrences
|
Swelling is sign of chronic kidney disease | Swelling is a symptom of chronic kidney disease | 2 |
Tired is sign of chronic kidney disease | Being tired is a symptom of chronic kidney disease | 2 |
No symptom for chronic kidney disease | Symptoms are hard to see in chronic kidney disease | 2 |
Nausea is sign of chronic kidney disease | Nausea is a symptom of chronic kidney disease | 1 |
Home dialysis (6 segments)
|
Definition of code
|
Number of occurrences
|
Home dialysis intimidating | Patient thinks home dialysis is intimidating | 6 |
Who urged treatment (1 segment)
|
Definition of code
|
Number of occurrences
|
Family urges treatment | Family of patient urges treatment | 1 |