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Erschienen in: Quality of Life Research 6/2020

30.01.2020

Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic

verfasst von: Jane O’Bryan, Melissa Scribani, Kimberly Leon, Nancy Tallman, Christopher Wolf-Gould, Carolyn Wolf-Gould, Anne Gadomski

Erschienen in: Quality of Life Research | Ausgabe 6/2020

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Abstract

Purpose

To address a critical gap in the existing Health-Related Quality of Life (HRQOL) literature by quantifying and describing HRQOL among transgender and gender expansive (TG/GE) youth at a rural gender clinic and comparing the HRQOL of these youth to age-stratified United States (U.S.) population standards.

Methods

This cross-sectional study includes results of the baseline HRQOL assessment of 141 TG/GE patients enrolled in the Gender Wellness Center (GWC) Pediatric Patient Registry. HRQOL was assessed using the Child Health Questionnaire-Child Form 87 (CHQ-CF87; ages < 18) and the Short Form-36 (SF-36v2; ages 18–21). Mean subscale scores were compared to the most current U.S. population standards available.

Results

On all but one of the CHQ-CF87 subscales, TG/GE youth scored significantly lower than 2015–2016 U.S. general population youth and youth with two chronic conditions. On the SF-36v2, TG/GE youth scored significantly higher than 2009 U.S. standards on all physical health domains but lower on all but one of the mental health domains.

Conclusions

Cross-sectional HRQOL data from a registry of TG/GE youth indicate significantly poorer mental health measures as compared with the U.S. general population. Longitudinal assessments are needed to evaluate whether HRQOL improves with gender-affirming care. Future studies should aim to identify sociocultural factors at the intersection of rurality and health that contribute to diminished HRQOL among rural TG/GE youth.
Literatur
2.
Zurück zum Zitat Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment. Quality of Life Research, 11(2), 135–144.CrossRefPubMed Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment. Quality of Life Research, 11(2), 135–144.CrossRefPubMed
3.
Zurück zum Zitat Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA,273(1), 59–65.CrossRefPubMed Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA,273(1), 59–65.CrossRefPubMed
5.
Zurück zum Zitat Röder, M., Barkmann, C., Richter-Appelt, H., Schulte-Markwort, M., Ravens-Sieberer, U., & Becker, I. (2018). Health-related quality of life in transgender adolescents: Associations with body image and emotional and behavioral problems. International Journal of Transgenderism,19(1), 78–91. https://doi.org/10.1080/15532739.2018.1425649.CrossRef Röder, M., Barkmann, C., Richter-Appelt, H., Schulte-Markwort, M., Ravens-Sieberer, U., & Becker, I. (2018). Health-related quality of life in transgender adolescents: Associations with body image and emotional and behavioral problems. International Journal of Transgenderism,19(1), 78–91. https://​doi.​org/​10.​1080/​15532739.​2018.​1425649.CrossRef
8.
9.
11.
Zurück zum Zitat Achenbach, T. M., & Rescorla, L. A. (2003). Manual for the ASEBA school-age forms and profiles. Burlington, VT: University of Vermont Research Center for Children, Youth, & Families. Achenbach, T. M., & Rescorla, L. A. (2003). Manual for the ASEBA school-age forms and profiles. Burlington, VT: University of Vermont Research Center for Children, Youth, & Families.
22.
Zurück zum Zitat Ozata Yildizhan, B., Yuksel, S., Avayu, M., Noyan, H., & Yildizhan, E. (2018). Effects of gender reassignment on quality of life and mental health in people with gender dysphoria. Turk Psikiyatri Dergisi,29(1), 11–21.PubMed Ozata Yildizhan, B., Yuksel, S., Avayu, M., Noyan, H., & Yildizhan, E. (2018). Effects of gender reassignment on quality of life and mental health in people with gender dysphoria. Turk Psikiyatri Dergisi,29(1), 11–21.PubMed
23.
Zurück zum Zitat Naeimi, S., Akhlaghdoust, M., Chaichian, S., Moradi, Y., Jesmi, F., Zarbati, N., et al. (2019). Quality of Life changes in Iranian patients undergoing female-to-male transsexual surgery: A prospective study. Archives of Iranian Medicine,22, 71–75.PubMed Naeimi, S., Akhlaghdoust, M., Chaichian, S., Moradi, Y., Jesmi, F., Zarbati, N., et al. (2019). Quality of Life changes in Iranian patients undergoing female-to-male transsexual surgery: A prospective study. Archives of Iranian Medicine,22, 71–75.PubMed
28.
Zurück zum Zitat Agarwal, C. A., Scheefer, M. F., Wright, L. N., Walzer, N. K., & Rivera, A. (2018). Quality of life improvement after chest wall masculinization in female-to-male transgender patients: A prospective study using the BREAST-Q and Body uneasiness test. Journal of Plastic, Reconstructive & Aesthetic Surgery,71(5), 651–657. https://doi.org/10.1016/j.bjps.2018.01.003.CrossRef Agarwal, C. A., Scheefer, M. F., Wright, L. N., Walzer, N. K., & Rivera, A. (2018). Quality of life improvement after chest wall masculinization in female-to-male transgender patients: A prospective study using the BREAST-Q and Body uneasiness test. Journal of Plastic, Reconstructive & Aesthetic Surgery,71(5), 651–657. https://​doi.​org/​10.​1016/​j.​bjps.​2018.​01.​003.CrossRef
34.
Zurück zum Zitat Landgraf, J., Abetz, L., & Ware, J. E. (1996). The CHQ user’s manual. Boston, MA: The Health Institute, New England Medical Center. Landgraf, J., Abetz, L., & Ware, J. E. (1996). The CHQ user’s manual. Boston, MA: The Health Institute, New England Medical Center.
36.
Zurück zum Zitat Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care,30(6), 473–483.CrossRefPubMed Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care,30(6), 473–483.CrossRefPubMed
37.
Zurück zum Zitat Ware, J., Kosinski, M., Bjorner, J., Turner-Bowker, D., Gandek, B., & Maruish, M. (2007). Development user's manual for the SF-36v2® Health Survey. Lincoln, RI: Quality Metric Incorporated. Ware, J., Kosinski, M., Bjorner, J., Turner-Bowker, D., Gandek, B., & Maruish, M. (2007). Development user's manual for the SF-36v2® Health Survey. Lincoln, RI: Quality Metric Incorporated.
Metadaten
Titel
Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic
verfasst von
Jane O’Bryan
Melissa Scribani
Kimberly Leon
Nancy Tallman
Christopher Wolf-Gould
Carolyn Wolf-Gould
Anne Gadomski
Publikationsdatum
30.01.2020
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 6/2020
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02430-8

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