Erschienen in:
04.05.2021 | Editorial
Introduction to special section: Living with Incurable Cancer: Addressing Gaps in Cancer Survivorship
verfasst von:
Maryam B. Lustberg, Martha Carlson, Larissa Nekhlyudov
Erschienen in:
Journal of Cancer Survivorship
|
Ausgabe 3/2021
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Excerpt
These manuscripts offer insight into how researchers and clinicians seek to improve the lives of people living with incurable cancers. The lack of funded research is a disappointment but not a surprise, and it reveals the need for people living with incurable cancer to be loud voices in this realm. While cancer survivorship is defined as starting upon diagnosis, inclusion of patients like me—in research, program offerings, discussions—has not yet matched that definition. We are not automatically included in any of it. Sometimes, I’ll hear that survivorship research is important for those with incurable cancer because more people are living longer, but the fact is that everyone, even those survivors not beating the survival odds, deserves to have their needs seen and addressed. It’s time to leave behind the arguments I’ve heard as someone living with metastatic cancer—that people with incurable cancer are inevitably going to die soon, are physically incapacitated, have too many problems that make including them too difficult, and that the pay-off is less evident because there are fewer of us. This special section of the Journal of Cancer Survivorship is a promise, a signal that alongside the research that improves survival there are talented and generous researchers engaged in making sure the whole person is seen. …
