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01.04.2014 | Original Article

“I can’t do this, it’s too much”: building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers

verfasst von: Carla Treloar, Rebecca Gray, Loren Brener, Clair Jackson, Veronica Saunders, Priscilla Johnson, Magdalena Harris, Phyllis Butow, Christy Newman

Erschienen in: International Journal of Public Health | Ausgabe 2/2014

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Abstract

Objectives

Social inclusion theory has been used to understand how people at the margins of society engage with service provision. The aim of this paper was to explore the cancer care experiences of Aboriginal people in NSW using a social inclusion lens.

Methods

Qualitative interviews were conducted with 22 Aboriginal people with cancer, 18 carers of Aboriginal people and 16 health care workers.

Results

Participants’ narratives described experiences that could be considered to be situational factors in social inclusion such as difficulties in managing the practical and logistic aspects of accessing cancer care. Three factors were identified as processes of social inclusion that tied these experiences together including socio-economic security, trust (or mistrust arising from historic and current experience of discrimination), and difficulties in knowing the system of cancer treatment.

Conclusions

These three factors may act as barriers to the social inclusion of Aboriginal people in cancer treatment. This challenges the cancer care system to work to acknowledge these forces and create practical and symbolic responses, in partnership with Aboriginal people, communities and health organisations.

Arthurson K, Jacobs K (2004) A critique of the concept of social exclusion and its utility for Australian social housing policy. Aust J Soc Issues 39(1):25–41

Atkinson A, Hills J (1998) Exclusion, employment and opportunity. LSE STICERD Research Paper No. CASE004. Centre for Analysis of Social Exclusion, London

Australian Bureau of Statistics and Australian Institute of Health and Welfare (2008) The health and welfare of Australia’s Aboriginal and Torres Strait Islander peoples 2008. Canberra, ABS and AIHW (ABS Cat. No. 4704.0; AIHW Cat. No. IHW 21)

Australian Institute of Health and Welfare (2011) The health and welfare of Australia’s Aboriginal and Torres Strait Islander people, an overview 2011. AIHW, Canberra

Center to Reduce Cancer Health Disparities. “Patient Navigation research program”. http://crchd.cancer.gov/pnp/pnrp-index.html. Retrieved Accessed 16 Nov 2011

Commission of the European Communities (1993) Background Report: Social Exclusion—Poverty and Other Social Problems in the European Community, ISEC/B11/93. Office for Official Publications of the European Communities, Luxembourg

Commonwealth of Australia (2009) Closing the gap on indigenous disadvantage: the challenge for Australia. Commonwealth of Australia, Canberra

Couzos S, Murray R (2007) Aboriginal primary health care: an evidence-based approach. Oxford University Press, South Melbourne

Cunningham J, Rumbold A et al (2008) Incidence, aetiology, and outcomes of cancer in Indigenous peoples in Australia. Lancet Oncol 9:585–595PubMedCrossRef

Davidson P, Page K (2012) Research participation as work: comparing the perspectives of researchers and economically marginalized populations. Am J Public Health 102(7):1254–1259PubMedCentralPubMedCrossRef

Farmer P (1997) Social scientists and the new tuberculosis. Soc Sci Med 44(3):347–358PubMedCrossRef

Garvey G, Cunningham J et al (2011) Reducing the burden of cancer for Aboriginal and Torres Strait Islander Australians: time for a coordinated, collaborative, priority-driven, Indigenous-led research program. Med J Aust 194(10):530–531PubMed

Hunter B (2008) Indigenous social exclusion: insights and challenges for the concept of social inclusion. Social Inclusion Down Under Symposium, University of Melbourne, The Brotherhood of St Laurence

Hunter B, Jordan K (2010) Explaining social exclusion: towards social inclusion for Indigenous Australians. Aust J Social Issues 45(2):243–265

Kowal E, Paradies Y (2010) Enduring dilemmas of Indigenous health: recognising the tensions inherent in all efforts to bring about change in Indigenous health outcomes. MJA 192(10):599–600PubMed

Linda Burhansstipanov L, Bad Wound D et al (1998) Culturally relevant “Navigator” patient support the native sisters. Cancer Pract 6(3):191–194CrossRef

Loppie C, Wien F (2005) Our journey: first nations experience of navigating cancer care. Cancer Care Nova Scotia, Halifax

Marmot M (2003) Understanding social inequalities in health. Perspect Biol Med 46(3):S9–S23PubMedCrossRef

Mechanic D, Meyer S (2000) Concepts of trust among patients with serious illness. Soc Sci Med 51:657–668PubMedCrossRef

Newman C, Butow P et al (2008) Cancer and Aboriginal people in Australia: a review of the literature. Crit Public Health 18(1):65–75CrossRef

Norris R (2001) Australian Indigenous Employment Disadvantage: What, why and where to from here? J Econ Social Policy 5(2): Article 2

Norris R (2011) The more things change… the origins and impact of Australian Indigenous economic exclusion. Brisbane, Post Pressed

Saunders P, Naidoo Y et al (2008) Towards new indicators of disadvantage: deprivation and social exclusion in Australia. Aust J Soc Issues 43(2):175

Shahid S, Finn L et al (2009a) Understanding, beliefs and perspectives of Aboriginal people in Western Australia about cancer and its impact on access to cancer services. BMC Health Serv Res 9(132):1–9

Shahid S, Finn L et al (2009b) Barriers to participation of Aboriginal people in cancer care: communication in the hospital setting. Med J Aust 190(10):574–579PubMed

Shahid S, Bleam R et al (2010) If you don’t believe it, it won’t help you”: use of bush medicine in treating cancer among Aboriginal people in Western Australia. J Ethnobiol Ethnomed 6:1–22CrossRef

Shahid S, Finn L et al (2011) ‘Nowhere to room … nobody told them’: logistical and cultural impediments to Aboriginal peoples’ participation in cancer treatment. Aust Health Rev 35:235–241PubMedCrossRef

Thorne S (2008) Interpretive description. Left Coast Print, Inc, Walnut Creek

Thorne S, Reimer Kirkham S et al (2004) The analytic challenge in interpretive description. Int J Qual Methods 3(1):1–15

Ward P, Meyer S, et al (2011) Complex problems require complex solutions: the utility of social quality theory for addressing the Social Determinants of Health. BMC Pub Health 11:630

Wells K, Battaglia T et al (2008) Patient navigation: state of the art, or is it science? Cancer 15(113):8

Whop L, Valery P et al (2012) Navigating the cancer journey: a review of patient navigator programs for Indigenous cancer patients. Asia-Pac J Clin Oncol 8(4):e89–e96PubMedCrossRef

Wilkinson R (1999) Putting the picture together: prosperity, redistribution, health and welfare. In: Marmot M, Wilkinson R (eds) Social determinants of health. Oxford University Press, Oxford

Zhao Y, Dempsey K (2006) Causes of inequality in life expectancy between Indigenous and non-Indigenous people in the Northern Territory, 1981–2000: a decomposition analysis. Med J Aust 184(10):490–494PubMed

Titel: “I can’t do this, it’s too much”: building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers
verfasst von: Carla Treloar
Rebecca Gray
Loren Brener
Clair Jackson
Veronica Saunders
Priscilla Johnson
Magdalena Harris
Phyllis Butow
Christy Newman
Publikationsdatum: 01.04.2014
Verlag: Springer Basel
Erschienen in: International Journal of Public Health / Ausgabe 2/2014
Print ISSN: 1661-8556
Elektronische ISSN: 1661-8564
DOI: https://doi.org/10.1007/s00038-013-0466-1

Springer Medizin

Abstract

Objectives

Methods

Results

Conclusions

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