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Journal of Genetic Counseling

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01.06.2010 | Original Research

Interest and Beliefs About BRCA Genetic Counseling Among At-Risk Latinas in New York City

verfasst von: Katarina M. Sussner, Lina Jandorf, Hayley S. Thompson, Heiddis B. Valdimarsdottir

Erschienen in: Journal of Genetic Counseling | Ausgabe 3/2010

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Abstract

Background: Latinas are less likely to use genetic services (counseling and testing) for hereditary breast and/or ovarian cancer risk compared to other ethnic groups. Meanwhile, little is known about barriers to genetic counseling among Latinas at increased risk of inherited breast cancer. Methods: A two-phase pilot study was conducted to examine interest, barriers and beliefs about BRCA genetic counseling among at-risk Latinas in New York City and explore the potential for developing a culturally-tailored narrative educational tool for use in future studies. Phase 1 included quantitative telephone interviews (N = 15) with bilingual participants with a personal diagnosis at a young age and/or family history of breast and/or ovarian cancer. Quantitative results informed development of a narrative prototype educational presentation viewed by a subset of participants (N = 10) in Phase 2 focus groups. Results: Despite barriers, including lack of awareness/knowledge, concerns related to learning cancer risks of family members, and concerns about cost/health insurance, participants reported positive attitudes, beliefs and interest in learning about BRCA genetic counseling. Further, significant increases in knowledge were demonstrated from pre-post presentation (p = 0.04). Conclusion: There is an unmet need to educate at-risk Latinas about BRCA genetic counseling. Culturally-tailored educational materials including narratives may increase knowledge about BRCA genetic counseling among this underserved group. The effectiveness of these approaches should be tested in future research with larger samples.

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Titel: Interest and Beliefs About BRCA Genetic Counseling Among At-Risk Latinas in New York City
verfasst von: Katarina M. Sussner
Lina Jandorf
Hayley S. Thompson
Heiddis B. Valdimarsdottir
Publikationsdatum: 01.06.2010
Verlag: Springer US
Erschienen in: Journal of Genetic Counseling / Ausgabe 3/2010
Print ISSN: 1059-7700
Elektronische ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-010-9282-4

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Interest and Beliefs About BRCA Genetic Counseling Among At-Risk Latinas in New York City

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