Skip to main content
Erschienen in: Journal of Medical Systems 4/2016

01.04.2016 | Education & Training

Online Patient Education for Chronic Disease Management: Consumer Perspectives

verfasst von: Khin Than Win, Naffisah Mohd. Hassan, Harri Oinas-Kukkonen, Yasmine Probst

Erschienen in: Journal of Medical Systems | Ausgabe 4/2016

Einloggen, um Zugang zu erhalten

Abstract

Patient education plays an important role in chronic disease management. The aim of this study is to identify patients’ preferences in regard to the design features of effective online patient education (OPE) and the benefits. A review of the existing literature was conducted in order to identify the benefits of OPE and its essential design features. These design features were empirically tested by conducting survey with patients and caregivers. Reliability analysis, construct validity and regression analysis were performed for data analysis. The results identified patient-tailored information, interactivity, content credibility, clear presentation of content, use of multimedia and interpretability as the essential design features of online patient education websites for chronic disease management.
Anhänge
Nur mit Berechtigung zugänglich
Literatur
1.
2.
Zurück zum Zitat Win, K. T., Implementing patient accessible health information site for diabetes management. 1790–1797, 2010. Win, K. T., Implementing patient accessible health information site for diabetes management. 1790–1797, 2010.
3.
Zurück zum Zitat Mollaoğlu, M., and Beyazit, E., Influence of diabetic education on patient metabolic control. Appl. Nurs. Res. 22(3):183–190, 2009.PubMedCrossRef Mollaoğlu, M., and Beyazit, E., Influence of diabetic education on patient metabolic control. Appl. Nurs. Res. 22(3):183–190, 2009.PubMedCrossRef
4.
Zurück zum Zitat Koivunen, M., Hätönen, H., and Välimäki, M., Barriers and facilitators influencing the implementation of an interactive Internet-portal application for patient education in psychiatric hospitals. Patient Educ. Couns. 70(3):412–419, 2008. doi:10.1016/j.pec.2007.11.002.PubMedCrossRef Koivunen, M., Hätönen, H., and Välimäki, M., Barriers and facilitators influencing the implementation of an interactive Internet-portal application for patient education in psychiatric hospitals. Patient Educ. Couns. 70(3):412–419, 2008. doi:10.​1016/​j.​pec.​2007.​11.​002.PubMedCrossRef
6.
Zurück zum Zitat Casebeer, L., Allison, J., and Spettell, C. M., Designing tailored Web-based instruction to improve practicing physicians’ chlamydial screening rates. Acad. Med. 77(9):929, 2002.PubMedCrossRef Casebeer, L., Allison, J., and Spettell, C. M., Designing tailored Web-based instruction to improve practicing physicians’ chlamydial screening rates. Acad. Med. 77(9):929, 2002.PubMedCrossRef
7.
Zurück zum Zitat Kelders, S. M., Kok, R.N., Ossebaard, H. C., Van Gemert-Pijnen, J. E. W. C., Persuasive system design does matter: a systematic review of adherence to web-based interventions. J. Med. Internet Res. 14(6), 2012. Kelders, S. M., Kok, R.N., Ossebaard, H. C., Van Gemert-Pijnen, J. E. W. C., Persuasive system design does matter: a systematic review of adherence to web-based interventions. J. Med. Internet Res. 14(6), 2012.
8.
Zurück zum Zitat Ellis, S. E., Speroff, T., Dittus, R. S., Brown, A., Pichert, J. W., and Elasy, T. A., Diabetes patient education: a meta-analysis and meta-regression. Patient Educ. Couns. 52(1):97–105, 2004.PubMedCrossRef Ellis, S. E., Speroff, T., Dittus, R. S., Brown, A., Pichert, J. W., and Elasy, T. A., Diabetes patient education: a meta-analysis and meta-regression. Patient Educ. Couns. 52(1):97–105, 2004.PubMedCrossRef
9.
Zurück zum Zitat Singh, N., Armstrong, D. G., and Lipsky, B. A., Preventing foot ulcers in patients with diabetes. JAMA 293(2):217–228, 2005.PubMedCrossRef Singh, N., Armstrong, D. G., and Lipsky, B. A., Preventing foot ulcers in patients with diabetes. JAMA 293(2):217–228, 2005.PubMedCrossRef
10.
Zurück zum Zitat Allen, M., Iezzoni, L. I., Huang, A., Huang, L., Leveille, S. G., Internet-based coaching to improve patient-clinician communication in primary care. AMIA Annu. Symp. Proc. Annu. Symp. Proc/AMIA Symp. 861, 2007 Allen, M., Iezzoni, L. I., Huang, A., Huang, L., Leveille, S. G., Internet-based coaching to improve patient-clinician communication in primary care. AMIA Annu. Symp. Proc. Annu. Symp. Proc/AMIA Symp. 861, 2007
11.
Zurück zum Zitat Dolor, R. J., Yancy, W. S., Jr., Owen, W. F., Matchar, D. B., Samsa, G. P., Pollak, K. I., Lin, P.-H., Ard, J. D., Prempeh, M., McGuire, H. L., Batch, B. C., Fan, W., and Svetkey, L. P., Hypertension Improvement Project (HIP): study protocol and implementation challenges. Trials 10:13, 2009.PubMedPubMedCentralCrossRef Dolor, R. J., Yancy, W. S., Jr., Owen, W. F., Matchar, D. B., Samsa, G. P., Pollak, K. I., Lin, P.-H., Ard, J. D., Prempeh, M., McGuire, H. L., Batch, B. C., Fan, W., and Svetkey, L. P., Hypertension Improvement Project (HIP): study protocol and implementation challenges. Trials 10:13, 2009.PubMedPubMedCentralCrossRef
12.
Zurück zum Zitat Ullrich, P. F. J. M. D., and Vaccaro, A. R. M. D., Patient education on the internet: opportunities and pitfalls. Spine 27(7):E185–E188, 2002.PubMedCrossRef Ullrich, P. F. J. M. D., and Vaccaro, A. R. M. D., Patient education on the internet: opportunities and pitfalls. Spine 27(7):E185–E188, 2002.PubMedCrossRef
13.
Zurück zum Zitat Levin-Zamir, D., and Peterburg, Y., Health literacy in health systems: perspectives on patient self-management in Israel. Health Promot. Int. 16(1):87–94, 2001.PubMedCrossRef Levin-Zamir, D., and Peterburg, Y., Health literacy in health systems: perspectives on patient self-management in Israel. Health Promot. Int. 16(1):87–94, 2001.PubMedCrossRef
14.
Zurück zum Zitat Azar, M., and Gabbay, R., Web-based management of diabetes through glucose uploads: Has the time come for telemedicine? Diabetes Res. Clin. Pract. 83(1):9–17, 2009.PubMedCrossRef Azar, M., and Gabbay, R., Web-based management of diabetes through glucose uploads: Has the time come for telemedicine? Diabetes Res. Clin. Pract. 83(1):9–17, 2009.PubMedCrossRef
15.
Zurück zum Zitat Jeste, D. V., Dunn, L. B., Folsom, D. P., and Zisook, D., Multimedia educational aids for improving consumer knowledge about illness management and treatment decisions: a review of randomized controlled trials. J. Psychiatr. Res. 42(1):1–21, 2008.PubMedCrossRef Jeste, D. V., Dunn, L. B., Folsom, D. P., and Zisook, D., Multimedia educational aids for improving consumer knowledge about illness management and treatment decisions: a review of randomized controlled trials. J. Psychiatr. Res. 42(1):1–21, 2008.PubMedCrossRef
16.
Zurück zum Zitat Wise, M., Han, J. Y., Shaw, B., McTavish, F., and Gustafson, D. H., Effects of using online narrative and didactic information on healthcare participation for breast cancer patients. Patient Educ. Couns. 70(3):348–356, 2008.PubMedPubMedCentralCrossRef Wise, M., Han, J. Y., Shaw, B., McTavish, F., and Gustafson, D. H., Effects of using online narrative and didactic information on healthcare participation for breast cancer patients. Patient Educ. Couns. 70(3):348–356, 2008.PubMedPubMedCentralCrossRef
17.
Zurück zum Zitat Gustafson, D. H., Hawkins, R. P., Boberg, E. W., McTavish, F., Owens, B., Wise, M., Berhe, H., and Pingree, S., CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int. J. Med. Inform. 65(3):169–177, 2002.PubMedCrossRef Gustafson, D. H., Hawkins, R. P., Boberg, E. W., McTavish, F., Owens, B., Wise, M., Berhe, H., and Pingree, S., CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int. J. Med. Inform. 65(3):169–177, 2002.PubMedCrossRef
18.
Zurück zum Zitat Weinert, C., Cudney, S., and Hill, W., Retention in a computer-based outreach intervention for chronically ill rural women. Appl. Nurs. Res. 21(1):23–29, 2008.PubMedPubMedCentralCrossRef Weinert, C., Cudney, S., and Hill, W., Retention in a computer-based outreach intervention for chronically ill rural women. Appl. Nurs. Res. 21(1):23–29, 2008.PubMedPubMedCentralCrossRef
19.
Zurück zum Zitat Bass, S. B., Ruzek, S. B., Gordon, T. F., Fleisher, L., McKeown-Conn, N., and Moore, D., Relationship of Internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute’s Cancer Information Service. J. Health Commun. 11(2):219–236, 2006.PubMedCrossRef Bass, S. B., Ruzek, S. B., Gordon, T. F., Fleisher, L., McKeown-Conn, N., and Moore, D., Relationship of Internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute’s Cancer Information Service. J. Health Commun. 11(2):219–236, 2006.PubMedCrossRef
20.
Zurück zum Zitat Nahm, E.-S., Blum, K., Scharf, B., Friedmann, E., Thomas, S., Jones, D., and Gottlieb, S. S., Exploration of patients’ readiness for an eHealth management program for chronic heart failure: a preliminary study.[see comment]. J. Cardiovasc. Nurs. 23(6):463–471, 2008.PubMedCrossRef Nahm, E.-S., Blum, K., Scharf, B., Friedmann, E., Thomas, S., Jones, D., and Gottlieb, S. S., Exploration of patients’ readiness for an eHealth management program for chronic heart failure: a preliminary study.[see comment]. J. Cardiovasc. Nurs. 23(6):463–471, 2008.PubMedCrossRef
21.
Zurück zum Zitat Heart Failure Society Of A, Executive summary: HFSA 2006 comprehensive heart failure practice guideline. J. Card. Fail. 12(1):10–38, 2006.CrossRef Heart Failure Society Of A, Executive summary: HFSA 2006 comprehensive heart failure practice guideline. J. Card. Fail. 12(1):10–38, 2006.CrossRef
22.
Zurück zum Zitat Bussey-Smith, K. L., and Rossen, R. D., A systematic review of randomized control trials evaluating the effectiveness of interactive computerized asthma patient education programs. Ann. Allergy Asthma Immunol. 98(6):507–516, 2007.PubMedCrossRef Bussey-Smith, K. L., and Rossen, R. D., A systematic review of randomized control trials evaluating the effectiveness of interactive computerized asthma patient education programs. Ann. Allergy Asthma Immunol. 98(6):507–516, 2007.PubMedCrossRef
23.
Zurück zum Zitat Booth, A. O., Nowson, C. A., and Matters, H., Evaluation of an interactive, Internet-based weight loss program: a pilot study. Health Educ. Res. 23(3):371–381, 2008.PubMedCrossRef Booth, A. O., Nowson, C. A., and Matters, H., Evaluation of an interactive, Internet-based weight loss program: a pilot study. Health Educ. Res. 23(3):371–381, 2008.PubMedCrossRef
24.
Zurück zum Zitat Elliott, J. O., Charyton, C., and Long, L., A health literacy assessment of the National Epilepsy Foundation Web site. Epilepsy Behav. 11(4):525–532, 2007.PubMedCrossRef Elliott, J. O., Charyton, C., and Long, L., A health literacy assessment of the National Epilepsy Foundation Web site. Epilepsy Behav. 11(4):525–532, 2007.PubMedCrossRef
25.
Zurück zum Zitat Maarop, N., and Win, K. T., Understanding the need of health care providers for teleconsultation and technological attributes in relation to the acceptance of teleconsultation in Malaysia: a mixed methods study. J. Med. Syst. 36(5):2881–2892, 2012. doi:10.1007/s10916-011-9766-2.PubMedCrossRef Maarop, N., and Win, K. T., Understanding the need of health care providers for teleconsultation and technological attributes in relation to the acceptance of teleconsultation in Malaysia: a mixed methods study. J. Med. Syst. 36(5):2881–2892, 2012. doi:10.​1007/​s10916-011-9766-2.PubMedCrossRef
28.
Zurück zum Zitat Kaptein, M., Markopoulos, P., de Ruyter, B., and Aarts, E., Personalizing persuasive technologies: explicit and implicit personalization using persuasion profiles. Int. J. Hum. Comput. Stud. 77:38–51, 2015. doi:10.1016/j.ijhcs.2015.01.004.CrossRef Kaptein, M., Markopoulos, P., de Ruyter, B., and Aarts, E., Personalizing persuasive technologies: explicit and implicit personalization using persuasion profiles. Int. J. Hum. Comput. Stud. 77:38–51, 2015. doi:10.​1016/​j.​ijhcs.​2015.​01.​004.CrossRef
29.
Zurück zum Zitat O’Connor, D. B., Warttig, S., Conner, M., and Lawton, R., Raising awareness of hypertension risk through a web-based framing intervention: does consideration of future consequences make a difference? Psychol. Health Med. 14(2):213–219, 2009.PubMedCrossRef O’Connor, D. B., Warttig, S., Conner, M., and Lawton, R., Raising awareness of hypertension risk through a web-based framing intervention: does consideration of future consequences make a difference? Psychol. Health Med. 14(2):213–219, 2009.PubMedCrossRef
30.
Zurück zum Zitat Alley, S., Jennings, C., Plotnikoff, R. C., Vandelanotte, C., My activity coach - using video-coaching to assist a web-based computer-tailored physical activity intervention: a randomised controlled trial protocol. BMC Public Health.14. doi:10.1186/1471-2458-14-738, 2014. Alley, S., Jennings, C., Plotnikoff, R. C., Vandelanotte, C., My activity coach - using video-coaching to assist a web-based computer-tailored physical activity intervention: a randomised controlled trial protocol. BMC Public Health.14. doi:10.​1186/​1471-2458-14-738, 2014.
31.
Zurück zum Zitat Spittaels, H., De Bourdeaudhuij, I., Brug, J., and Vandelanotte, C., Effectiveness of an online computer-tailored physical activity intervention in a real-life setting. Health Educ. Res. 22(3):385–396, 2007.PubMedCrossRef Spittaels, H., De Bourdeaudhuij, I., Brug, J., and Vandelanotte, C., Effectiveness of an online computer-tailored physical activity intervention in a real-life setting. Health Educ. Res. 22(3):385–396, 2007.PubMedCrossRef
32.
Zurück zum Zitat Ezendam, N., Noordegraaf, V., Kroeze, W., Brug, J., and Oenema, A., Process evaluation of FATaintPHAT, a computer-tailored intervention to prevent excessive weight gain among Dutch adolescents. Health Promot. Int. 28(1):26–35, 2013.PubMedCrossRef Ezendam, N., Noordegraaf, V., Kroeze, W., Brug, J., and Oenema, A., Process evaluation of FATaintPHAT, a computer-tailored intervention to prevent excessive weight gain among Dutch adolescents. Health Promot. Int. 28(1):26–35, 2013.PubMedCrossRef
33.
Zurück zum Zitat Kim, H.-Y., Park, H.-A., Min, Y. H., and Jeon, E., Development of an obesity management ontology based on the nursing process for the mobile-device domain. J. Med. Internet Res. 15(6):56–66, 2013. Kim, H.-Y., Park, H.-A., Min, Y. H., and Jeon, E., Development of an obesity management ontology based on the nursing process for the mobile-device domain. J. Med. Internet Res. 15(6):56–66, 2013.
34.
Zurück zum Zitat Klausen, S. H., Mikkelsen, U. R., Hirth, A., Wetterslev, J., Kjaergaard, H., Sondergaard, L., and Andersen, L. L., Design and rationale for the PREVAIL study: effect of e-Health individually tailored encouragements to physical exercise on aerobic fitness among adolescents with congenital heart disease-a randomized clinical trial. Am. Heart J. 163(4):549–556, 2012. doi:10.1016/j.ahj.2012.01.021.PubMedCrossRef Klausen, S. H., Mikkelsen, U. R., Hirth, A., Wetterslev, J., Kjaergaard, H., Sondergaard, L., and Andersen, L. L., Design and rationale for the PREVAIL study: effect of e-Health individually tailored encouragements to physical exercise on aerobic fitness among adolescents with congenital heart disease-a randomized clinical trial. Am. Heart J. 163(4):549–556, 2012. doi:10.​1016/​j.​ahj.​2012.​01.​021.PubMedCrossRef
35.
Zurück zum Zitat Leveille, S. G., Huang, A., Tsai, S. B., Allen, M., Weingart, S. N., and Iezzoni, L. I., Health coaching via an internet portal for primary care patients with chronic conditions: a randomized controlled trial. Med. Care 47(1):41–47, 2009.PubMedCrossRef Leveille, S. G., Huang, A., Tsai, S. B., Allen, M., Weingart, S. N., and Iezzoni, L. I., Health coaching via an internet portal for primary care patients with chronic conditions: a randomized controlled trial. Med. Care 47(1):41–47, 2009.PubMedCrossRef
36.
Zurück zum Zitat Glasgow, R. E., Boles, S. M., McKay, H. G., Feil, E. G., and Barrera, M., The D-Net diabetes self-management program: long-term implementation, outcomes, and generalization results. Prev. Med. 36(4):410–419, 2003.PubMedCrossRef Glasgow, R. E., Boles, S. M., McKay, H. G., Feil, E. G., and Barrera, M., The D-Net diabetes self-management program: long-term implementation, outcomes, and generalization results. Prev. Med. 36(4):410–419, 2003.PubMedCrossRef
38.
Zurück zum Zitat Mitchell, J. A., Fun, J., and McCray, A. T., Design of genetics home reference: a new NLM consumer health resource. J. Am. Med. Inform. Assoc. 11(6):439–447, 2004.PubMedPubMedCentralCrossRef Mitchell, J. A., Fun, J., and McCray, A. T., Design of genetics home reference: a new NLM consumer health resource. J. Am. Med. Inform. Assoc. 11(6):439–447, 2004.PubMedPubMedCentralCrossRef
39.
Zurück zum Zitat Schulz, P. J., Rubinelli, S., Mariotti, G., and Keller, N., Meeting the ranging of informational needs of chronic low back pain sufferers: conceptual design and rationale of the interactive website ONESELF. Disabil. Rehabil. 31(25):2118–2124, 2009. doi:10.3109/09638280902943231.PubMedCrossRef Schulz, P. J., Rubinelli, S., Mariotti, G., and Keller, N., Meeting the ranging of informational needs of chronic low back pain sufferers: conceptual design and rationale of the interactive website ONESELF. Disabil. Rehabil. 31(25):2118–2124, 2009. doi:10.​3109/​0963828090294323​1.PubMedCrossRef
41.
Zurück zum Zitat Thakurdesai, P. A., Kole, P. L., and Pareek, R. P., Evaluation of the quality and contents of diabetes mellitus patient education on Internet. Patient Educ. Couns. 53(3):309–313, 2004.PubMedCrossRef Thakurdesai, P. A., Kole, P. L., and Pareek, R. P., Evaluation of the quality and contents of diabetes mellitus patient education on Internet. Patient Educ. Couns. 53(3):309–313, 2004.PubMedCrossRef
42.
Zurück zum Zitat Marton, C., Understanding the health information needs of British internet users seeking health information online and their perceptions of the quality of the internet as a source of health information. J. Hosp. Librariansh. 15(2):175–188, 2015. doi:10.1080/15323269.2015.1015092.CrossRef Marton, C., Understanding the health information needs of British internet users seeking health information online and their perceptions of the quality of the internet as a source of health information. J. Hosp. Librariansh. 15(2):175–188, 2015. doi:10.​1080/​15323269.​2015.​1015092.CrossRef
43.
Zurück zum Zitat Oinas-Kukkonen, H., and Harjumaa, M., Persuasive systems design: key issues, process model, and system features. Commun. Assoc. Inf. Syst. 24(1):28, 2009. Oinas-Kukkonen, H., and Harjumaa, M., Persuasive systems design: key issues, process model, and system features. Commun. Assoc. Inf. Syst. 24(1):28, 2009.
44.
Zurück zum Zitat Ream, E., Blows, E., Scanlon, K., and Richardson, A., An investigation of the quality of breast cancer information provided on the internet by voluntary organisations in Great Britain. Patient Educ. Couns. 76(1):10–15, 2009.PubMedCrossRef Ream, E., Blows, E., Scanlon, K., and Richardson, A., An investigation of the quality of breast cancer information provided on the internet by voluntary organisations in Great Britain. Patient Educ. Couns. 76(1):10–15, 2009.PubMedCrossRef
45.
Zurück zum Zitat George, D., Stanley, M. F., and Stuart, M. S., Considerations for the design of a Web-based clinical monitoring and educational system for elderly patients. J. Am. Med. Inform. Assoc. 8(5):468, 2001.CrossRef George, D., Stanley, M. F., and Stuart, M. S., Considerations for the design of a Web-based clinical monitoring and educational system for elderly patients. J. Am. Med. Inform. Assoc. 8(5):468, 2001.CrossRef
47.
Zurück zum Zitat Kim, H. A., Bae, Y. D., and Seo, Y. I., Arthritis information on the Web and its influence on patients and physicians: a Korean study. Clin. Exp. Rheumatol. 22(1):49–54, 2004.PubMed Kim, H. A., Bae, Y. D., and Seo, Y. I., Arthritis information on the Web and its influence on patients and physicians: a Korean study. Clin. Exp. Rheumatol. 22(1):49–54, 2004.PubMed
48.
Zurück zum Zitat Rezailashkajani, M., Roshandel, D., Ansari, S., and Zali, M. R., A web-based patient education system and self-help group in Persian language for inflammatory bowel disease patients. Int. J. Med. Inform. 77(2):122–128, 2008.PubMedCrossRef Rezailashkajani, M., Roshandel, D., Ansari, S., and Zali, M. R., A web-based patient education system and self-help group in Persian language for inflammatory bowel disease patients. Int. J. Med. Inform. 77(2):122–128, 2008.PubMedCrossRef
49.
Zurück zum Zitat Doupi, P., and van der Lei, J., Design and implementation considerations for a personalized patient education system in burn care. Int. J. Med. Inform. 74(2–4):151–157, 2005.PubMedCrossRef Doupi, P., and van der Lei, J., Design and implementation considerations for a personalized patient education system in burn care. Int. J. Med. Inform. 74(2–4):151–157, 2005.PubMedCrossRef
50.
Zurück zum Zitat van Weert, J., van Noort, G., Bol, N., van Dijk, L., Tates, K., and Jansen, J., Tailored information for cancer patients on the Internet: effects of visual cues and language complexity on information recall and satisfaction. Patient Educ. Couns. 84(3):368–378, 2011.PubMedCrossRef van Weert, J., van Noort, G., Bol, N., van Dijk, L., Tates, K., and Jansen, J., Tailored information for cancer patients on the Internet: effects of visual cues and language complexity on information recall and satisfaction. Patient Educ. Couns. 84(3):368–378, 2011.PubMedCrossRef
51.
Zurück zum Zitat Tirlapur, S. A., Leiu, C., and Khan, K. S., Quality of information on the internet related to bladder pain syndrome: a systematic review of the evidence. Int. Urogynecol. J. Pelvic Floor Dysfunct. 24(8):1257–1262, 2013. doi:10.1007/s00192-013-2091-1.CrossRef Tirlapur, S. A., Leiu, C., and Khan, K. S., Quality of information on the internet related to bladder pain syndrome: a systematic review of the evidence. Int. Urogynecol. J. Pelvic Floor Dysfunct. 24(8):1257–1262, 2013. doi:10.​1007/​s00192-013-2091-1.CrossRef
52.
Zurück zum Zitat D’Alessandro, D. M., Kreiter, C. D., Kinzer, S. L., and Peterson, M. W., A randomized controlled trial of an information prescription for pediatric patient education on the Internet. Arch. Pediatr. Adolesc. Med. 158(9):857–862, 2004. doi:10.1001/archpedi.158.9.857.PubMedCrossRef D’Alessandro, D. M., Kreiter, C. D., Kinzer, S. L., and Peterson, M. W., A randomized controlled trial of an information prescription for pediatric patient education on the Internet. Arch. Pediatr. Adolesc. Med. 158(9):857–862, 2004. doi:10.​1001/​archpedi.​158.​9.​857.PubMedCrossRef
53.
Zurück zum Zitat Ajzen, I., Fishbein, M., Understanding attitudes and predicting social behaviour. 1980. Ajzen, I., Fishbein, M., Understanding attitudes and predicting social behaviour. 1980.
54.
Zurück zum Zitat Zhang, P., Dran, G. M. V., Small, R. V., Barcellos, S., A Two-Factor Theory for Website Design. Paper presented at the Proceedings of the 33rd Hawaii International Conference on System Sciences-Volume 6 - Volume 6, 2000. Zhang, P., Dran, G. M. V., Small, R. V., Barcellos, S., A Two-Factor Theory for Website Design. Paper presented at the Proceedings of the 33rd Hawaii International Conference on System Sciences-Volume 6 - Volume 6, 2000.
55.
Zurück zum Zitat Oinas-Kukkonen, H., A foundation for the study of behavior change support systems. Pers. Ubiquit. Comput. 1–13, 2012. Oinas-Kukkonen, H., A foundation for the study of behavior change support systems. Pers. Ubiquit. Comput. 1–13, 2012.
56.
Zurück zum Zitat Van den Borne, H. W., The patient from receiver of information to informed decision-maker. Patient Educ. Couns. 34(2):89–102, 1998.PubMedCrossRef Van den Borne, H. W., The patient from receiver of information to informed decision-maker. Patient Educ. Couns. 34(2):89–102, 1998.PubMedCrossRef
57.
Zurück zum Zitat Becker, H. S., Doing things together: selected papers. Northwestern University Press. 1986. Becker, H. S., Doing things together: selected papers. Northwestern University Press. 1986.
58.
Zurück zum Zitat Feng, C. C., The Catholic University of A, Influence of Health Beliefs, Gender, Income, and Family/social Support on Compliance with Hypertensive Therapeutic Regimens Among Chinese Immigrants in the United States. The Catholic University of America. 2009. Feng, C. C., The Catholic University of A, Influence of Health Beliefs, Gender, Income, and Family/social Support on Compliance with Hypertensive Therapeutic Regimens Among Chinese Immigrants in the United States. The Catholic University of America. 2009.
59.
Zurück zum Zitat Hochbaum, G. M., Public participation in medical screening programs: a socio-psychological study. US Department of Health, Education, and Welfare, Public Health Service, Bureau of State Services, Division of Special Health Services, Tuberculosis Program. 1958. Hochbaum, G. M., Public participation in medical screening programs: a socio-psychological study. US Department of Health, Education, and Welfare, Public Health Service, Bureau of State Services, Division of Special Health Services, Tuberculosis Program. 1958.
60.
Zurück zum Zitat Costello, A., Osborne, J., Best practices in exploratory factor analysis: four recommendations for getting the most from your analysis. Pract. Assess. Res. Evaluation. 10(7). doi:citeulike-article-id:9766246, 2005. Costello, A., Osborne, J., Best practices in exploratory factor analysis: four recommendations for getting the most from your analysis. Pract. Assess. Res. Evaluation. 10(7). doi:citeulike-article-id:9766246, 2005.
61.
Zurück zum Zitat Bickmore, T., and Giorgino, T., Health dialog systems for patients and consumers. J. Biomed. Inform. 39(5):556–571, 2006.PubMedCrossRef Bickmore, T., and Giorgino, T., Health dialog systems for patients and consumers. J. Biomed. Inform. 39(5):556–571, 2006.PubMedCrossRef
63.
Zurück zum Zitat Bock, B. C., Hudmon, K. S., Christian, J., Graham, A. L., and Bock, F. R., A tailored intervention to support pharmacy-based counseling for smoking cessation. Nicotine Tob. Res. 12(3):217–225, 2010.PubMedPubMedCentralCrossRef Bock, B. C., Hudmon, K. S., Christian, J., Graham, A. L., and Bock, F. R., A tailored intervention to support pharmacy-based counseling for smoking cessation. Nicotine Tob. Res. 12(3):217–225, 2010.PubMedPubMedCentralCrossRef
64.
Zurück zum Zitat Prochaska, J. O., Butterworth, S., Redding, C. A., Burden, V., Perrin, N., Leo, M., Flaherty-Robb, M., and Prochaska, J. M., Initial efficacy of MI, TTM tailoring and HRI’s with multiple behaviors for employee health promotion. Prev. Med. 46(3):226–231, 2008.PubMedPubMedCentralCrossRef Prochaska, J. O., Butterworth, S., Redding, C. A., Burden, V., Perrin, N., Leo, M., Flaherty-Robb, M., and Prochaska, J. M., Initial efficacy of MI, TTM tailoring and HRI’s with multiple behaviors for employee health promotion. Prev. Med. 46(3):226–231, 2008.PubMedPubMedCentralCrossRef
65.
Zurück zum Zitat Yoon, J., Malin, J. L., Tao, M. L., Tisnado, D. M., Adams, J. L., Timmer, M. J., Ganz, P. A., and Kahn, K. L., Symptoms after breast cancer treatment: are they influenced by patient characteristics? Breast Cancer Res. Treat. 108(2):153–165, 2008.PubMedCrossRef Yoon, J., Malin, J. L., Tao, M. L., Tisnado, D. M., Adams, J. L., Timmer, M. J., Ganz, P. A., and Kahn, K. L., Symptoms after breast cancer treatment: are they influenced by patient characteristics? Breast Cancer Res. Treat. 108(2):153–165, 2008.PubMedCrossRef
66.
Zurück zum Zitat Vila, N., and Kuster, I., Consumer feelings and behaviours towards well designed websites. Inf. Manag 48(4–5):166–177, 2011.CrossRef Vila, N., and Kuster, I., Consumer feelings and behaviours towards well designed websites. Inf. Manag 48(4–5):166–177, 2011.CrossRef
67.
Zurück zum Zitat Ammann, R., Vandelanotte, C., de Vries, H., and Mummery, W., Can a website-delivered computer-tailored physical activity intervention be acceptable, usable, and effective for older people? Health Educ. Behav. 40(2):160–170, 2013.PubMedCrossRef Ammann, R., Vandelanotte, C., de Vries, H., and Mummery, W., Can a website-delivered computer-tailored physical activity intervention be acceptable, usable, and effective for older people? Health Educ. Behav. 40(2):160–170, 2013.PubMedCrossRef
68.
Zurück zum Zitat Fico, G., Gaeta, E., Arredondo, M. T., and Pecchia, L., Analytic hierarchy process to define the most important factors and related technologies for empowering elderly people in taking an active role in their health. J. Med. Syst. 39(9):1–7, 2015. doi:10.1007/s10916-015-0300-9.CrossRef Fico, G., Gaeta, E., Arredondo, M. T., and Pecchia, L., Analytic hierarchy process to define the most important factors and related technologies for empowering elderly people in taking an active role in their health. J. Med. Syst. 39(9):1–7, 2015. doi:10.​1007/​s10916-015-0300-9.CrossRef
69.
Zurück zum Zitat Camerini, L., Camerini, A.-L., and Schulz, P. J., Do participation and personalization matter? A model-driven evaluation of an Internet-based patient education intervention for fibromyalgia patients. Patient Educ. Couns. 92(2):229–234, 2013. doi:10.1016/j.pec.2013.04.007.PubMedCrossRef Camerini, L., Camerini, A.-L., and Schulz, P. J., Do participation and personalization matter? A model-driven evaluation of an Internet-based patient education intervention for fibromyalgia patients. Patient Educ. Couns. 92(2):229–234, 2013. doi:10.​1016/​j.​pec.​2013.​04.​007.PubMedCrossRef
70.
Zurück zum Zitat Gremeaux, V., and Coudeyre, E., The Internet and the therapeutic education of patients: a systematic review of the literature. Ann. Phys. Rehabil. Med. 53(10):669–692, 2010.PubMedCrossRef Gremeaux, V., and Coudeyre, E., The Internet and the therapeutic education of patients: a systematic review of the literature. Ann. Phys. Rehabil. Med. 53(10):669–692, 2010.PubMedCrossRef
72.
Zurück zum Zitat Lee, C.-j., Gray, S. W., and Lewis, N., Internet use leads cancer patients to be active health care consumers. Patient Educ. Couns. 81:S63–S69, 2010.PubMedPubMedCentralCrossRef Lee, C.-j., Gray, S. W., and Lewis, N., Internet use leads cancer patients to be active health care consumers. Patient Educ. Couns. 81:S63–S69, 2010.PubMedPubMedCentralCrossRef
73.
Zurück zum Zitat Nahm, E. S., Blum, K., Scharf, B., Friedmann, E., Thomas, S., Jones, D., and Gottlieb, S. S., Exploration of patients’ readiness for an ehealth management program for chronic heart failure: a preliminary study. J . Cardiovasc. Nurs. 23(6):463–471, 2008.PubMedCrossRef Nahm, E. S., Blum, K., Scharf, B., Friedmann, E., Thomas, S., Jones, D., and Gottlieb, S. S., Exploration of patients’ readiness for an ehealth management program for chronic heart failure: a preliminary study. J . Cardiovasc. Nurs. 23(6):463–471, 2008.PubMedCrossRef
74.
75.
Zurück zum Zitat Coulson, N. S., and Shaw, R. L., Nurturing health-related online support groups: Exploring the experiences of patient moderators. Comput. Hum. Behav. 29(4):1695–1701, 2013.CrossRef Coulson, N. S., and Shaw, R. L., Nurturing health-related online support groups: Exploring the experiences of patient moderators. Comput. Hum. Behav. 29(4):1695–1701, 2013.CrossRef
76.
Zurück zum Zitat Heart Failure Society of A, Section 8: disease management in heart failure. J. Card. Fail. 12(1):e58–e69, 2006.CrossRef Heart Failure Society of A, Section 8: disease management in heart failure. J. Card. Fail. 12(1):e58–e69, 2006.CrossRef
77.
Zurück zum Zitat Oinas-Kukkonen, H., Räisänen, T., and Hummastenniemi, N., Patient relationship management: an overview and study of a follow-up system. J Healthc. Inf. Manag. JHIM 22(3):24–29, 2008.PubMed Oinas-Kukkonen, H., Räisänen, T., and Hummastenniemi, N., Patient relationship management: an overview and study of a follow-up system. J Healthc. Inf. Manag. JHIM 22(3):24–29, 2008.PubMed
78.
Zurück zum Zitat Cabana, M. D., and Le, T. T., Challenges in asthma patient education. J. Allergy Clin. Immunol. 115(6):1225–1227, 2005.PubMedCrossRef Cabana, M. D., and Le, T. T., Challenges in asthma patient education. J. Allergy Clin. Immunol. 115(6):1225–1227, 2005.PubMedCrossRef
79.
Zurück zum Zitat Hong, Y., Peña-Purcel, N. C., and Ory, M. G., Outcomes of online support and resources for cancer survivors: a systematic literature review. Patient Educ. Couns. 86(3):288–296, 2012.PubMedCrossRef Hong, Y., Peña-Purcel, N. C., and Ory, M. G., Outcomes of online support and resources for cancer survivors: a systematic literature review. Patient Educ. Couns. 86(3):288–296, 2012.PubMedCrossRef
80.
Zurück zum Zitat Goessens, B. M. B., Visseren, F. L. J., de Nooijer, J., van den Borne, H. W., Algra, A., Wierdsma, J., and van der Graaf, Y., A pilot-study to identify the feasibility of an Internet-based coaching programme for changing the vascular risk profile of high-risk patients. Patient Educ. Couns. 73(1):67–72, 2008.PubMedCrossRef Goessens, B. M. B., Visseren, F. L. J., de Nooijer, J., van den Borne, H. W., Algra, A., Wierdsma, J., and van der Graaf, Y., A pilot-study to identify the feasibility of an Internet-based coaching programme for changing the vascular risk profile of high-risk patients. Patient Educ. Couns. 73(1):67–72, 2008.PubMedCrossRef
81.
Zurück zum Zitat Heinrich, E., de Nooijer, J., Schaper, N. C., Schoonus-Spit, M. H. G., Janssen, M. A. J., and de Vries, N. K., Evaluation of the web-based Diabetes Interactive Education Programme (DIEP) for patients with type 2 diabetes. Patient Educ. Couns. 86(2):172–178, 2012.PubMedCrossRef Heinrich, E., de Nooijer, J., Schaper, N. C., Schoonus-Spit, M. H. G., Janssen, M. A. J., and de Vries, N. K., Evaluation of the web-based Diabetes Interactive Education Programme (DIEP) for patients with type 2 diabetes. Patient Educ. Couns. 86(2):172–178, 2012.PubMedCrossRef
83.
Zurück zum Zitat McKay, H. G., Glasgow, R. E., Feil, E. G., Boles, S. M., and Barrera, M., Internet-based diabetes self-management and support: initial outcomes from the diabetes network project. Rehabil. Psychol. 47(1):31–48, 2002.CrossRef McKay, H. G., Glasgow, R. E., Feil, E. G., Boles, S. M., and Barrera, M., Internet-based diabetes self-management and support: initial outcomes from the diabetes network project. Rehabil. Psychol. 47(1):31–48, 2002.CrossRef
84.
Zurück zum Zitat Kim, S., Mouradian, W. E., Leggott, P. J., Schaad, D. C., and Shaul, C., Implications for designing online oral health resources: a review of fifty-six websites. J. Dent. Educ. 68(6):633–643, 2004.PubMed Kim, S., Mouradian, W. E., Leggott, P. J., Schaad, D. C., and Shaul, C., Implications for designing online oral health resources: a review of fifty-six websites. J. Dent. Educ. 68(6):633–643, 2004.PubMed
86.
Zurück zum Zitat Yamout, S. Z., Glick, Z. A., Lind, D. S., Monson, R. A., and Glick, P. L., Using social media to enhance surgeon and patient education and communication. Bull. Am. Coll. Surg. 96(7):7–15, 2011.PubMed Yamout, S. Z., Glick, Z. A., Lind, D. S., Monson, R. A., and Glick, P. L., Using social media to enhance surgeon and patient education and communication. Bull. Am. Coll. Surg. 96(7):7–15, 2011.PubMed
87.
Zurück zum Zitat Doupi, P., and Van Der Lei, J., R(x) medication information for the public and the WWW: quality issues. Med. Inform. Internet Med. 24(3):171–179, 1999.PubMedCrossRef Doupi, P., and Van Der Lei, J., R(x) medication information for the public and the WWW: quality issues. Med. Inform. Internet Med. 24(3):171–179, 1999.PubMedCrossRef
88.
Zurück zum Zitat Morrison, L. G., Yardley, L., Powell, J., and Michie, S., What design features are used in effective e-health interventions? A review using techniques from Critical Interpretive Synthesis. Telemed. J. e-Health 18(2):137–144, 2012. doi:10.1089/tmj.2011.0062.PubMedCrossRef Morrison, L. G., Yardley, L., Powell, J., and Michie, S., What design features are used in effective e-health interventions? A review using techniques from Critical Interpretive Synthesis. Telemed. J. e-Health 18(2):137–144, 2012. doi:10.​1089/​tmj.​2011.​0062.PubMedCrossRef
90.
Zurück zum Zitat Smith, C. E., Cha, J., Puno, F., Magee, J. D., Bingham, J., and Van Gorp, M., Quality assurance processes for designing patient education web sites. Comput. Inform. Nurs. 20(5):191–200, 2002.PubMedCrossRef Smith, C. E., Cha, J., Puno, F., Magee, J. D., Bingham, J., and Van Gorp, M., Quality assurance processes for designing patient education web sites. Comput. Inform. Nurs. 20(5):191–200, 2002.PubMedCrossRef
91.
Zurück zum Zitat Kim, P., Eng, T. R., Deering, M. J., and Maxfield, A., Published criteria for evaluating health related web sites: review. Br. Med. J. 318(7184):647–649, 1999.CrossRef Kim, P., Eng, T. R., Deering, M. J., and Maxfield, A., Published criteria for evaluating health related web sites: review. Br. Med. J. 318(7184):647–649, 1999.CrossRef
92.
Zurück zum Zitat Doupi, P., and van der Lei, J., Design considerations for a personalised patient education system. Stud. Health Technol. Inform. 95:762–767, 2003.PubMed Doupi, P., and van der Lei, J., Design considerations for a personalised patient education system. Stud. Health Technol. Inform. 95:762–767, 2003.PubMed
93.
Zurück zum Zitat DeGuzman, M. A., and Ross, M. W., Assessing the application of HIV and AIDS related education and counselling on the Internet. Patient Educ. Couns. 36(3):209–228, 1999.PubMedCrossRef DeGuzman, M. A., and Ross, M. W., Assessing the application of HIV and AIDS related education and counselling on the Internet. Patient Educ. Couns. 36(3):209–228, 1999.PubMedCrossRef
Metadaten
Titel
Online Patient Education for Chronic Disease Management: Consumer Perspectives
verfasst von
Khin Than Win
Naffisah Mohd. Hassan
Harri Oinas-Kukkonen
Yasmine Probst
Publikationsdatum
01.04.2016
Verlag
Springer US
Erschienen in
Journal of Medical Systems / Ausgabe 4/2016
Print ISSN: 0148-5598
Elektronische ISSN: 1573-689X
DOI
https://doi.org/10.1007/s10916-016-0438-0

Weitere Artikel der Ausgabe 4/2016

Journal of Medical Systems 4/2016 Zur Ausgabe