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01.03.2013

Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer

verfasst von: Cheryl L. Cox, Deborah A. Sherrill-Mittleman, Barth B. Riley, Melissa M. Hudson, Lauren J. Williams, Wendy M. Leisenring, Margie G. Zacher, Les L. Robison

Erschienen in: Journal of Cancer Survivorship | Ausgabe 1/2013

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Abstract

Purpose

Examine the construct validity, stability, internal consistency, and item–response performance of a self-report health needs assessment for adult survivors of childhood cancer.

Methods

A 190-item mailed survey was completed by 1,178 randomly selected (stratified on age, diagnosis, time since diagnosis) Childhood Cancer Survivor Study participants (mean age, 39.66 [SD 7.71] years; time since diagnosis, 31.60 [SD 4.71] years). Minorities and rural residents were oversampled at a 2:1 ratio.

Results

The final instrument included 135 items comprising nine unidimensional subscales (Psycho-emotional, Health System Concerns, Cancer-Related Health Information, General Health, Survivor Care and Support, Surveillance, Coping, Fiscal Concerns, and Relationships). Confirmatory factor analysis (n = 1,178; RMSEA = 0.020; 90 % CI = 0.019–0.020; CFI = 0.956; TLI = 0.955) and person–item fit variable maps established construct validity. Across subscales, Cronbach’s alpha was 0.94–0.97, and the 4-week test–retest correlations were 0.52–0.91. In a Rasch analysis, item reliability was 0.97–0.99, person reliability was 0.80–0.90, and separation index scores were 2.00–3.01. Significant subscale covariates of higher need levels included demographics, diagnosis, and treatment exposures.

Conclusions

The Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ) is reliable and construct-valid, has strong item–response properties, and discriminates need levels.

Implications for Cancer Survivors

The CCSS-NAQ potentially can be used to: (1) directly assess adult childhood cancer survivors’ self-reported health-related needs, (2) identify individuals or subgroups with higher-level needs, (3) inform prevention and direct intervention strategies, and (4) facilitate prioritization of health-care resource allocation.

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Titel: Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer
verfasst von: Cheryl L. Cox
Deborah A. Sherrill-Mittleman
Barth B. Riley
Melissa M. Hudson
Lauren J. Williams
Wendy M. Leisenring
Margie G. Zacher
Les L. Robison
Publikationsdatum: 01.03.2013
Verlag: Springer US
Erschienen in: Journal of Cancer Survivorship / Ausgabe 1/2013
Print ISSN: 1932-2259
Elektronische ISSN: 1932-2267
DOI: https://doi.org/10.1007/s11764-012-0249-3

Springer Medizin

Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer