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Erschienen in: Maternal and Child Health Journal 4/2016

01.04.2016

Prevalence and Losses in Quality-Adjusted Life Years of Child Health Conditions: A Burden of Disease Analysis

verfasst von: Benjamin M. Craig, John D. Hartman, Michelle A. Owens, Derek S. Brown

Erschienen in: Maternal and Child Health Journal | Ausgabe 4/2016

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Abstract

Objectives To estimate the prevalence and losses in quality-adjusted life years (QALYs) associated with 20 child health conditions. Methods Using data from the 2009–2010 National Survey of Children with Special Health Care Needs, preference weights were applied to 14 functional difficulties to summarize the quality of life burden of 20 health conditions. Results Among the 14 functional difficulties, “a little trouble with breathing” had the highest prevalence (37.1 %), but amounted to a loss of just 0.16 QALYs from the perspective of US adults. Though less prevalent, “a lot of behavioral problems” and “chronic pain” were associated with the greatest losses (1.86 and 3.43 QALYs). Among the 20 conditions, allergies and asthma were the most prevalent but were associated with the least burden. Muscular dystrophy and cerebral palsy were among the least prevalent and most burdensome. Furthermore, a scatterplot shows the association between condition prevalence and burden. Conclusions In child health, condition prevalence is negatively associated with quality of life burden from the perspective of US adults. Both should be considered carefully when evaluating the appropriate role for public health prevention and interventions.
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Literatur
1.
Zurück zum Zitat Bumbalo, J., Ustinich, L., Ramcharran, D., et al. (2005). Economic impact on families caring for children with special health care needs in New Hampshire: The effect of socioeconomic and health-related factors. Maternal and Child Health Journal, 9(2), S3–S11. doi:10.1007/s10995-005-4350-3.CrossRefPubMed Bumbalo, J., Ustinich, L., Ramcharran, D., et al. (2005). Economic impact on families caring for children with special health care needs in New Hampshire: The effect of socioeconomic and health-related factors. Maternal and Child Health Journal, 9(2), S3–S11. doi:10.​1007/​s10995-005-4350-3.CrossRefPubMed
4.
Zurück zum Zitat Quach, J., Oberklaid, F., Gold, L., et al. (2014). Primary health-care costs associated with special health care needs up to age 7 years: Australian population-based study. Journal of Paediatrics and Child Health, 50(10), 768–774. doi:10.1111/jpc.12649.CrossRefPubMed Quach, J., Oberklaid, F., Gold, L., et al. (2014). Primary health-care costs associated with special health care needs up to age 7 years: Australian population-based study. Journal of Paediatrics and Child Health, 50(10), 768–774. doi:10.​1111/​jpc.​12649.CrossRefPubMed
7.
Zurück zum Zitat Child and Adolescent Health Measurement Initiative (2012). “2009/10 NS-CSHCN: Health conditions and functional difficulties.” Data resource center, supported by cooperative agreement 1-U59-MC06980-01 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Available at www.childhealthdata.org. Revised 01/27/2012. Child and Adolescent Health Measurement Initiative (2012). “2009/10 NS-CSHCN: Health conditions and functional difficulties.” Data resource center, supported by cooperative agreement 1-U59-MC06980-01 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Available at www.​childhealthdata.​org. Revised 01/27/2012.
8.
Zurück zum Zitat Gold, M. R., Siegel, J. E., Russell, L. B., & Weinstein, M. C. (Eds.). (1996). Cost-effectivenss in health and medicine. New York: Oxford University Press. Gold, M. R., Siegel, J. E., Russell, L. B., & Weinstein, M. C. (Eds.). (1996). Cost-effectivenss in health and medicine. New York: Oxford University Press.
9.
Zurück zum Zitat Stabile, M., & Allin, S. (2012). The economic costs of childhood disability. Future of Children, 22(1), 65–96.CrossRefPubMed Stabile, M., & Allin, S. (2012). The economic costs of childhood disability. Future of Children, 22(1), 65–96.CrossRefPubMed
10.
Zurück zum Zitat Kuo, D. Z., Cohen, E., Agrawal, R., et al. (2011). A national profile of caregiver challenges among more medically complex children with special health care needs. Archives of Pediatrics and Adolescent Medicine, 165(11), 1020–1026.CrossRefPubMedPubMedCentral Kuo, D. Z., Cohen, E., Agrawal, R., et al. (2011). A national profile of caregiver challenges among more medically complex children with special health care needs. Archives of Pediatrics and Adolescent Medicine, 165(11), 1020–1026.CrossRefPubMedPubMedCentral
12.
Zurück zum Zitat Szilagyi, P. G. (2012). Health insurance and children with disabilities. Future of Children, 22(1), 123–148.CrossRefPubMed Szilagyi, P. G. (2012). Health insurance and children with disabilities. Future of Children, 22(1), 123–148.CrossRefPubMed
13.
Zurück zum Zitat Viana, M. C., Gruber, M. J., Shahly, V., et al. (2013). Family burden related to mental and physical disorders in the world: Results from the WHO World Mental Health (WMH) surveys. Revista Brasileira de Psiquiatria, 35(2), 115–125.CrossRefPubMed Viana, M. C., Gruber, M. J., Shahly, V., et al. (2013). Family burden related to mental and physical disorders in the world: Results from the WHO World Mental Health (WMH) surveys. Revista Brasileira de Psiquiatria, 35(2), 115–125.CrossRefPubMed
15.
Zurück zum Zitat Fryback, D. G., & Lawrence, W. F, Jr. (1997). Dollars may not buy as many QALYs as we think: a problem with defining quality-of-life adjustments. Medical Decision Making, 17(3), 276–284.CrossRefPubMed Fryback, D. G., & Lawrence, W. F, Jr. (1997). Dollars may not buy as many QALYs as we think: a problem with defining quality-of-life adjustments. Medical Decision Making, 17(3), 276–284.CrossRefPubMed
16.
Zurück zum Zitat World Health Organization (WHO) Essential medicines and health products information portal. Introduction to Drug Utilization Research 2003. World Health Organization (WHO) Essential medicines and health products information portal. Introduction to Drug Utilization Research 2003.
17.
Zurück zum Zitat Griebsch, I., Coast, J., & Brown, J. (2005). Quality-adjusted life-years lack quality in pediatric care: A critical review of published cost-utility studies in child health. Pediatrics, 115(5), E600–E614. doi:10.1542/peds.2004-2127.CrossRefPubMed Griebsch, I., Coast, J., & Brown, J. (2005). Quality-adjusted life-years lack quality in pediatric care: A critical review of published cost-utility studies in child health. Pediatrics, 115(5), E600–E614. doi:10.​1542/​peds.​2004-2127.CrossRefPubMed
21.
Zurück zum Zitat Secnik, K., Matza, L. S., Cottrell, S., et al. (2005). Health state utilities for childhood attention-deficit/hyperactivity-disorder based on parent preferences in the United Kingdom. Medical Decision Making, 25(1), 56–70. doi:10.1177/0272989x04273140.CrossRefPubMed Secnik, K., Matza, L. S., Cottrell, S., et al. (2005). Health state utilities for childhood attention-deficit/hyperactivity-disorder based on parent preferences in the United Kingdom. Medical Decision Making, 25(1), 56–70. doi:10.​1177/​0272989x04273140​.CrossRefPubMed
22.
Zurück zum Zitat Ungar, W. (2010). Economic evaluation in child health. Oxford: Oxford University Press. Ungar, W. (2010). Economic evaluation in child health. Oxford: Oxford University Press.
26.
Zurück zum Zitat Mulhern, B., Bansback, N., Brazier, J., et al. (2014). Preparatory study for the revaluation of the EQ-5D tariff: Methodology report. Health Technology Assessment, 18(12), 1–191. doi:10.3310/hta18120.CrossRefPubMed Mulhern, B., Bansback, N., Brazier, J., et al. (2014). Preparatory study for the revaluation of the EQ-5D tariff: Methodology report. Health Technology Assessment, 18(12), 1–191. doi:10.​3310/​hta18120.CrossRefPubMed
27.
28.
Zurück zum Zitat Prieto, L., & Sacristan, J. A. (2003). Problems and solutions in calculating quality-adjusted life years (QALYs). Health and Quality of Life Outcomes,. doi:10.1186/1477-7525-1-80. Prieto, L., & Sacristan, J. A. (2003). Problems and solutions in calculating quality-adjusted life years (QALYs). Health and Quality of Life Outcomes,. doi:10.​1186/​1477-7525-1-80.
29.
Zurück zum Zitat Lenert, L., & Kaplan, R. M. (2000). Validity and interpretation of preference-based measures of health-related quality of life. Medical Care, 38(9), 138–150. Lenert, L., & Kaplan, R. M. (2000). Validity and interpretation of preference-based measures of health-related quality of life. Medical Care, 38(9), 138–150.
30.
Zurück zum Zitat Torrance, G. W. (1987). Utility approach to measuring health-related quality of life. Journal of Chronic Diseases, 40(6), 593–603.CrossRefPubMed Torrance, G. W. (1987). Utility approach to measuring health-related quality of life. Journal of Chronic Diseases, 40(6), 593–603.CrossRefPubMed
31.
Zurück zum Zitat Craig, B. M., Brown, D. S., Reeve, B. Valuation of Child Behavioral Problems from the Perspective of US Adults. Medical Decision Making (in press). Craig, B. M., Brown, D. S., Reeve, B. Valuation of Child Behavioral Problems from the Perspective of US Adults. Medical Decision Making (in press).
33.
Zurück zum Zitat Bloom, B., Jones, L. I., Freeman, G. (2013). Summary health statistics for U.S. children: National Health Interview Survey, 2012. Bloom, B., Jones, L. I., Freeman, G. (2013). Summary health statistics for U.S. children: National Health Interview Survey, 2012.
34.
Zurück zum Zitat Ladapo, J. A., Neumann, P. J., Keren, R., et al. (2007). Valuing children’s health: A comparison of cost-utility analyses for adult and paediatric health interventions in the US. PharmacoEconomics, 25(10), 817–828.CrossRefPubMed Ladapo, J. A., Neumann, P. J., Keren, R., et al. (2007). Valuing children’s health: A comparison of cost-utility analyses for adult and paediatric health interventions in the US. PharmacoEconomics, 25(10), 817–828.CrossRefPubMed
35.
Zurück zum Zitat Ungar, W. J. (2011). Challenges in health state valuation in paediatric economic evaluation are QALYs contraindicated? PharmacoEconomics, 29(8), 641–652.CrossRefPubMed Ungar, W. J. (2011). Challenges in health state valuation in paediatric economic evaluation are QALYs contraindicated? PharmacoEconomics, 29(8), 641–652.CrossRefPubMed
37.
Zurück zum Zitat Baxter, A. J., Brugha, T. S., Erskine, H. E., et al. (2014). The epidemiology and global burden of autism spectrum disorders. Psychological Medicine,. doi:10.1017/s003329171400172x. Baxter, A. J., Brugha, T. S., Erskine, H. E., et al. (2014). The epidemiology and global burden of autism spectrum disorders. Psychological Medicine,. doi:10.​1017/​s003329171400172​x.
40.
Zurück zum Zitat Zhong, W., Finnie, D. M., Shah, N. D., et al. (2014). Effect of multiple chronic diseases on health care expenditures in childhood. Journal of Primary Care & Community Health,. doi:10.1177/2150131914540916. Zhong, W., Finnie, D. M., Shah, N. D., et al. (2014). Effect of multiple chronic diseases on health care expenditures in childhood. Journal of Primary Care & Community Health,. doi:10.​1177/​2150131914540916​.
43.
Zurück zum Zitat Gortmaker, S. L., Walker, D. K., Weitzman, M., et al. (1990). Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents. Pediatrics, 85(3), 267–276.PubMed Gortmaker, S. L., Walker, D. K., Weitzman, M., et al. (1990). Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents. Pediatrics, 85(3), 267–276.PubMed
Metadaten
Titel
Prevalence and Losses in Quality-Adjusted Life Years of Child Health Conditions: A Burden of Disease Analysis
verfasst von
Benjamin M. Craig
John D. Hartman
Michelle A. Owens
Derek S. Brown
Publikationsdatum
01.04.2016
Verlag
Springer US
Erschienen in
Maternal and Child Health Journal / Ausgabe 4/2016
Print ISSN: 1092-7875
Elektronische ISSN: 1573-6628
DOI
https://doi.org/10.1007/s10995-015-1874-z

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