Ausgabe 12/2023
Inhalt (21 Artikel)
A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults
Rachel Milte, Digisie Jemere, Kiri Lay, Claire Hutchinson, Jolene Thomas, Joanne Murray, Julie Ratcliffe
Psychosocial factors associated with j-pouch surgery for patients with IBD: a scoping review
Quincy E. B. Hanna, Dean A. Tripp, Madelaine Geirc, Lauren Gnat, Paul Moayyedi, Michael Beyak
The early years: hirschsprung disease and health-related quality of life
Fern Ee Caryn Koo, Man Ching Esther Chan, Sebastian K. King, Misel Trajanovska
Change in health-related quality of life and functional disability over time post-concussion in youth
Robyn Recker, Enas Alshaikh, Archana Kaur, Keith Owen Yeates, Jingzhen Yang
Association of body mass index from childhood to mid-adulthood with health-related quality of life in mid-adulthood
Jing Tian, Leigh Blizzard, Julie A. Campbell, Seana Gall, Terence Dwyer, Alison Venn
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
Heather L. Gelhorn, Stephen Maher, Helene Sapin, Jiat Ling Poon, Kristina Boye
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Hasnat Ahmad, Julie A. Campbell, Ingrid van der Mei, Bruce V. Taylor, Qing Xia, Ting Zhao, Andrew J. Palmer
Development and evaluation of the Norwegian Fatigue Characteristics and Interference Measure (FCIM) for stroke survivors: cognitive interviews and Rasch analysis
Ingrid Johansen Skogestad, Anders Kottorp, Petra Larsson, Therese Marie Moen, Caryl L. Gay, Christine Råheim Borge, Anners Lerdal
Validation of the bowel urgency numeric rating scale in patients with Crohn’s disease: results from a mixed methods study
Marla C. Dubinsky, Laure Delbecque, Theresa Hunter, Gale Harding, Larissa Stassek, Richard E. Moses, James D. Lewis
Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis
Jia-Yun Chen, Yuan-Chen Wang, Hui-Jun Xi, Hong Tao, Qi Zhao, Meng-Ting Yu, Lei Xin, Liang-Hao Hu, Qian He, Wen-Bin Zou, You-Qing Peng
Impaired health-related quality of life in the HCV cure era: who is concerned? (ANRS CO22 HEPATHER French cohort)
Patrizia Carrieri, Marc Bourlière, Vincent Di Beo, Clovis Lusivika-Nzinga, Clémence Ramier, Saskia Antwerpes, Camelia Protopopescu, Jean-Marc Lacombe, Stanislas Pol, Hélène Fontaine, Abbas Mourad, Fabrice Carrat, Martin Duracinsky, Fabienne Marcellin, Laurent Alric, Delphine Bonnet, Océane Camou, Fabien Zoulim, Marianne Maynard, François Bailly, Bénédicte Poumaroux, Miroslava Subic, François Raffi, Eric Billaud, David Boutoille, Maeva Lefebvre, Elisabeth André-Garnier, Paul Cales, Isabelle Hubert, Clémence Canivet, Françoise Lunel, Jérôme Boursier, Tarik Asselah, Nathalie Boyer, Nathalie Giuily, Corinne Castelnau, Giovanna Scoazec, Stanislas Pol, Hélène Fontaine, Lucia Parlati, Emilie Rousseaud, Anaïs Vallet-Pichard, Philippe Sogni, Victor de Ledinghen, Juliette Foucher, Jean-Baptiste Hiriart, Paul Hermabessière, Marie Irlès-Depé, Marc Bourlière, Si Nafa Si Ahmed, Valérie Oules, Rania Kibeche, Albert Tran, Rodolphe Anty, Eve Gelsi, Régine Truchi, Dominique Thabut, Saloua Hammeche, Joseph Moussali, Xavier Causse, Barbara De Dieuleveult, Brahim Ouarani, Damien Labarrière, Magali Jeulin, Nathalie Ganne, Véronique Grando-Lemaire, Pierre Nahon, Séverine Brulé, Lucie Del Pozo, Caroline Jezequel, Audrey Brener, François Habersetzer, Thomas F. Baumert, Lawrence Serfaty, Pauline Simo-Noumbissie, Alexandre Bolle, Jean-Pierre Bronowicki, Mouni Bensenane-Oussalah, Vincent Haghnejad, Sébastien Daude, Sarah Hadj-Rhouma, Georges-Philippe Pageaux, Dominique Larrey, Magda Meszaros, Sophie Metivier, Christophe Bureau, Thibault Morales, Jean Marie Peron, Hélène Larrue, Thomas Decaens, Marie-Noelle Hilleret, Charlotte Costentin, Bleuenn Brusset, Agnès Bonadona, Ghassan Riachi, Odile Goria, Fatima Paris, Hélène Montialoux, Vincent Leroy, Giuliana Amaddeo, Anne Varaut, Mélanie Simoes, Rachida Amzal, Slim Fourati, Olivier Chazouillières, Tony Andreani, Bénédicte Angoulevant, Azeline Chevance, Jean-Charles Duclos Vallée, Audrey Coilly, Rodolphe Sobesky, Alina Pascale, Benjamin Buchard, Armand Abergel, Maud Reymond, Chanteranne Brigitte, Léon Muti, Vincent Di Martino, Claire Geist, Guillaume Conroy, Raphaëlle Riffault, Isabelle Rosa, Camille Barrault, Laurent Costes, Anne Wampach, Véronique Loustaud-Ratti, Paul Carrier, Maryline Debette-Gratien, Christine Silvain, Valentin Rolle, Valérie Roumy, Astrid Guyot d’Asnières de Salins, Philippe Mathurin, Guillaume Lassailly, Elise Lemaitre, Valérie Canva, Sébastien Dharancy, Alexandre Louvet, Anne Minello, Marianne Latournerie, Thomas Mouillot Léa Lerosey, Théophile Gerster, Dominique Roulot, Zahia Ben Abdesselam, Louis D’Alteroche, Coralie Fleurent, Charlotte Nicolas, Laure Elkrief, Anaïs Jaillais, Denis Ouzan, Jérôme Gournay, Caroline Chevalier, Isabelle Archambeaud, Isabelle Portal, Thông Dao, Moana Gelu-Simeon, Marie-Josée Lafrance, Lucie Catherine, Fabrice Carrat, Frederic Chau, Céline Dorival, Isabelle Goderel, Clovis Lusivika-Nzinga, Jonathan Bellet, Jessica Chane-Teng, Grégory Pannetier, Jérôme Nicol, Carole Cagnot, Anaïs Boston, Laura Nailler, Guillaume Le Meut, Cécile Moins, Elise Landry, Alpha Diallo, Ventzislava Petrov-Sanchez, Marc Bourlière, Jérôme Boursier, Fabrice Carrat, Patrizia Carrieri, Elisabeth Delarocque-Astagneau, Victor De Ledinghen, Céline Dorival, Hélène Fontaine, Slim Fourati, Chantal Housset, Dominique Larrey, Pierre Nahon, Georges-Philippe Pageaux, Ventzislava Petrov-Sanchez, Stanislas Pol, Mathias Bruyand, Linda Wittkop, Fabien Zoulim, Jessica Zucman-Rossi, Cécile Brouard, Frederic Chau, Isabelle Goderel, Clovis Lusivika-Nzinga, Jonathan Bellet, Jessica Chane-Teng, Grégory Pannetier, Jérôme Nicol, Marianne L’hennaff, Michèle Sizorn, Anaïs Boston, Alpha Diallo, Carole Cagnot, Alice Bousselet, Mireille Caralp
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
Muhammad Mustafa Humayun, Marie-Josée Brouillette, Lesley K. Fellows, Nancy E. Mayo
Profiles of subjective well-being among people living with HIV during the COVID-19 pandemic
Marcin Rzeszutek, Ewa Gruszczyńska
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
Tracey A. Brickell, Megan M. Wright, Jamie K. Sullivan, Nicole V. Varbedian, Corie E. Tippett, Anice M. Byrd, Louis M. French, Rael T. Lange
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Estefany Saez-Clarke, Amy K. Otto, Sarah Prinsloo, Akina Natori, Richard W. Wagner, Telma I. Gomez, Jewel M. Ochoa, Shelley S. Tworoger, Cornelia M. Ulrich, Cassandra A. Hathaway, Anita R. Peoples, Michael H. Antoni, Julienne E. Bower, Lorenzo Cohen, Frank J. Penedo
Comparative effectiveness of verbal instruction versus video-based education (VIVid) among family caregivers for improving the quality of life in advanced head and neck cancer patients receiving palliative care in Eastern India: a randomized controlled trial
Sri Priya Narayanan, Sumita Mohanty, Bidhu Kalyan Mohanti, Hemamalini Rath, Shrikant Atreya, Archana Rout, Shilpa Mahapatra
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Caroline M. Potter, Michele Peters, Maureen Cundell, Rupert McShane, Ray Fitzpatrick
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Elisa Stragapede, Danielle Petricone-Westwood, Sarah Hales, Jacqueline Galica, Sophie Lebel
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
Jake R. Thompson, Hong Fu, Robyn P. M. Saw, Kerry A. Sherman, Victoria Beedle, Victoria Atkinson, Frances Boyle, Niamh A. O’Sullivan, Linda K. Martin, Iris Bartula
Health-related quality of life and associated factors in elderly individuals with dyslipidemia in rural Northern China
Yage Du, Liuqing Yang, Yu An, Ying Song, Yanhui Lu
Feasibility of self-reported health related quality of life assessment with older people in residential care: insights from the application of eye tracking technology
Rachel Milte, Matthew Crocker, Kiri Lay, Julie Ratcliffe, Brendan Mulhern, Richard Norman, Rosalie Viney, Jyoti Khadka