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The online version of this article (doi:10.1186/1477-7525-10-16) contains supplementary material, which is available to authorized users.
The authors declare that they have no competing interests.
CAY and CAC conceived the review of the requests submitted to MAPI Research Trust, participated in its design and coordination, and drafted the manuscript. KC and MPE reviewed the draft papers. All authors read and approved the final manuscript.
The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership. This is the copyright holder of the instrument who will control its access (distribution and reproduction), its adaptation or modification, and its translation. Copyright is a means to protect the integrity of an instrument. The ownership of an instrument should be defined in the beginning between all parties involved, and each step of the instrument's life, including distribution, should be anticipated for purpose of copyright.