Background
Methods
Study design
Study location
Study population
Study criteria
Follow-up structure
PRO instruments
Have you since last consultation: | ||
---|---|---|
Noticed swollen lymph nodes? | Yes: | No: |
Had infections that demanded antibiotic treatment? | Yes: | No: |
Experienced the same symptoms as last time you were ill from your blood disease? | 0 (No) 1 2 3 4 5 6 7 8 9 10 (Yes) | |
Do you feel ill from your blood disease? | 0 (No) 1 2 3 4 5 6 7 8 9 10 (Yes) |
Patient acceptance
Statistical analyses
Results
Patient adherence
Characteristic | Total |
---|---|
N | 80 |
Female | 38 |
Male | 42 |
Age, y; median | 68 |
Age range, y | 28–82 |
Diagnosis | |
FL | 29 |
DLBCL | 14 |
CLL | 17 |
MZL | 10 |
WM | 5 |
LPL | 3 |
MCL | 1 |
HL | 1 |
Number of visits to a physician, median (range) | 1 (0–4) |
Number of nurse consultations, median (range) | 1 (0–4) |
Time since diagnosis, y; median (range) | 4.4 (1.1–20.2) |
Time since last treatment, y; median (range) | 3.4 (1.3–16.3) |
Follow-up interval, months | |
2–3 | 34 |
4–5 | 25 |
6 | 21 |
Number of treatment lines | |
1 | 48 |
2 | 4 |
> 2 | 4 |
No previous treatment (watch and wait) | 24 |
Nurse-led telephone consultations
Patient acceptance
Questions | Number of respondents | Responses, N (%) | |||
---|---|---|---|---|---|
Too short | Just right | Too long | |||
The lengths of the questionnaires were | 58 | 0 (0) | 47 (81) | 11 (19) | |
Not often enough | Just right | Too often | |||
The number of times I was asked to complete the questionnaires was | 58 | 0 (0) | 53 (91) | 5 (9) | |
Strongly agree | Agree | Disagree | Strongly Disagree | ||
It was easy to complete the questionnaires | 58 | 15 (26) | 36 (62) | 7 (12) | 0 (0) |
It made sense to complete the questionnaires | 58 | 16 (28) | 36 (62) | 5 (9) | 1 (2) |
It was easy to understand the questions | 58 | 18 (31) | 36 (62) | 4 (7) | 0 (0) |
Completing the questionnaires made it easier for me to remember my symptoms and side effects, when I spoke with the healthcare professionals | 57 | 15 (26) | 35 (61) | 7 (12) | 0 (0) |
Completing the questionnaires improved the conversation with the health care professionals | 57 | 14 (25) | 37 (65) | 6 (11) | 0 (0) |
The health care professionals used the information from the questionnaires in connection with my treatment | 54 | 15 (28) | 30 (56) | 9 (17) | 0 (0) |
It is my experience that the quality of my treatment was improved due to the fact that I had completed the questionnaires | 54 | 9 (17) | 35 (65) | 10 (19) | 0 (0) |
It is my experience that the communication with the health care professionals was improved due to the fact that I had completed the questionnaires | 55 | 9 (16) | 35 (64) | 11 (20) | 0 (0) |
Completing the questionnaires made me feel involved in my treatment | 56 | 18 (32) | 30 (54) | 8 (14) | 0 (0) |
I would recommend that other patients should complete the questionnaires | 56 | 23 (41) | 32 (57) | 1 (2) | 0 (0) |
I would like to continue completing questionnaires in the future | 54 | 24 (44) | 24 (44) | 4 (7) | 2 (4) |