Skip to main content
Erschienen in: Journal of Religion and Health 2/2018

29.12.2017 | Impressionistic Reporting

A Contemporary Paradigm: Integrating Spirituality in Advance Care Planning

verfasst von: Katie Lutz, Stefan R. Rowniak, Prabjot Sandhu

Erschienen in: Journal of Religion and Health | Ausgabe 2/2018

Einloggen, um Zugang zu erhalten

Abstract

In the 25 years since advance care planning first drew the attention of the national healthcare and legal systems, gains in the rate of advance care directive completion have been negligible despite the effort of researchers, ethicists, and lawmakers. With the benefit of sophisticated healthcare technology, patients are living longer. Despite the benefits of increased longevity, it is widely acknowledged that enough has not been done to adequately address end-of-life care decisions at the crossroads between medical futility and quality of life. To arrive at a solution, researchers have focused on patient self-reflection, provider attitudes, health literacy, communication and the logistics of surrogacy, setting, payment, and documentation. However, a survey of the literature reveals one conspicuously absent theme. It is a phenomenon one would expect in the context of end-of-life discussion and decision making, that of spiritual inquiry. This article explores the history leading up and past approaches to advance care planning and then suggests the use of a theoretical model and a body of work concerning spiritual care as a new tack in the ongoing development of advance care planning.
Literatur
Zurück zum Zitat Anandarajah, G., & Hight, E. (2001). Spirituality and medical practice: Using the HOPE questions as a practical tool for spiritual assessment. American Family Physician, 63(1), 81–88.PubMed Anandarajah, G., & Hight, E. (2001). Spirituality and medical practice: Using the HOPE questions as a practical tool for spiritual assessment. American Family Physician, 63(1), 81–88.PubMed
Zurück zum Zitat Astrow, A. B., Wexler, A., Texeira, K., He, M., & Sulmasy, D. (2007). Is failure to meet spiritual needs associated with cancer patients' perceptions of quality of care and their satisfaction with care?. Journal of Clinical Oncology, 25, 5753–5757.CrossRefPubMed Astrow, A. B., Wexler, A., Texeira, K., He, M., & Sulmasy, D. (2007). Is failure to meet spiritual needs associated with cancer patients' perceptions of quality of care and their satisfaction with care?. Journal of Clinical Oncology, 25, 5753–5757.CrossRefPubMed
Zurück zum Zitat Balboni, T., Balboni, M., Paulk, M. E., Phelps, A., Wright, A., Peteet, J., et al. (2011). Support of cancer patients’ spiritual needs and associations with medical care costs at the end of life. Cancer, 117(23), 5383–5391.CrossRefPubMedPubMedCentral Balboni, T., Balboni, M., Paulk, M. E., Phelps, A., Wright, A., Peteet, J., et al. (2011). Support of cancer patients’ spiritual needs and associations with medical care costs at the end of life. Cancer, 117(23), 5383–5391.CrossRefPubMedPubMedCentral
Zurück zum Zitat Balboni, T. A., Paulk, M. E., Balboni, M. J., Phelps, A. C., Loggers, E. T., Wright, A. A., et al. (2010). Provision of spiritual care to patients with advanced cancer: Associations with medical care and quality of life near death. Journal of Clinical Oncology, 28, 445–452.CrossRefPubMed Balboni, T. A., Paulk, M. E., Balboni, M. J., Phelps, A. C., Loggers, E. T., Wright, A. A., et al. (2010). Provision of spiritual care to patients with advanced cancer: Associations with medical care and quality of life near death. Journal of Clinical Oncology, 28, 445–452.CrossRefPubMed
Zurück zum Zitat Black, K., & Csikai, E. (2015). Dying in the age of choice. Journal of Social Work in End-of-Life & Palliative Care, 11, 27–49.CrossRef Black, K., & Csikai, E. (2015). Dying in the age of choice. Journal of Social Work in End-of-Life & Palliative Care, 11, 27–49.CrossRef
Zurück zum Zitat Bond, C., & Lowton, K. (2011). Geriatricians’ view on advance care decisions and their use in clinical care in England: Qualitative study. Age and Ageing, 40(4), 450–456.CrossRefPubMed Bond, C., & Lowton, K. (2011). Geriatricians’ view on advance care decisions and their use in clinical care in England: Qualitative study. Age and Ageing, 40(4), 450–456.CrossRefPubMed
Zurück zum Zitat Butterworth, A. M. (2003). Reality check: 10 barriers to advance planning. Nurse Practitioner, 28(5), 42–43.CrossRefPubMed Butterworth, A. M. (2003). Reality check: 10 barriers to advance planning. Nurse Practitioner, 28(5), 42–43.CrossRefPubMed
Zurück zum Zitat Crisp, D. H. (2007). Healthy older adults’ execution of advance directives: A qualitative study of decision making. Journal of Nursing Law, 11(4), 180–190. Crisp, D. H. (2007). Healthy older adults’ execution of advance directives: A qualitative study of decision making. Journal of Nursing Law, 11(4), 180–190.
Zurück zum Zitat Duke, G., Yarbrough, S., & Pang, K. (2009). The patient self-determination act: 20 years revisited. Journal of Nursing Law, 13(4), 114–123.CrossRef Duke, G., Yarbrough, S., & Pang, K. (2009). The patient self-determination act: 20 years revisited. Journal of Nursing Law, 13(4), 114–123.CrossRef
Zurück zum Zitat Engel, G. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196(4286), 129–136.CrossRefPubMed Engel, G. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196(4286), 129–136.CrossRefPubMed
Zurück zum Zitat Fagerlin, A., & Schneider, C. E. (2004). Enough: The failure of the living will. Hastings Center Report, 34(2), 30–42.CrossRefPubMed Fagerlin, A., & Schneider, C. E. (2004). Enough: The failure of the living will. Hastings Center Report, 34(2), 30–42.CrossRefPubMed
Zurück zum Zitat Fitchett, G. (1999). Screening for spiritual risk. Chaplaincy Today, 15, 2–12.CrossRef Fitchett, G. (1999). Screening for spiritual risk. Chaplaincy Today, 15, 2–12.CrossRef
Zurück zum Zitat Gawande, A. (2014). Being moral: Medicine and what matters in the end. New York, NY: Metropolitan Books. Gawande, A. (2014). Being moral: Medicine and what matters in the end. New York, NY: Metropolitan Books.
Zurück zum Zitat Hayek, S., Nieva, R., Corrigan, F., Zhou, A., Mudaliar, U., Mays, D., et al. (2014). End-of-life care planning: Improving documentation of advance directives in the outpatient clinic using electronic medical records. Journal of Palliative Medicine, 17(12), 1348–1352.CrossRefPubMed Hayek, S., Nieva, R., Corrigan, F., Zhou, A., Mudaliar, U., Mays, D., et al. (2014). End-of-life care planning: Improving documentation of advance directives in the outpatient clinic using electronic medical records. Journal of Palliative Medicine, 17(12), 1348–1352.CrossRefPubMed
Zurück zum Zitat Heiman, H., Bates, D., Fairchild, D., Shaykevich, S., & Lehmann, S. (2004). Improving completion of advance directives in the primary care setting: A randomized controlled trial. The American Journal of Medicine, 117, 318–324.CrossRefPubMed Heiman, H., Bates, D., Fairchild, D., Shaykevich, S., & Lehmann, S. (2004). Improving completion of advance directives in the primary care setting: A randomized controlled trial. The American Journal of Medicine, 117, 318–324.CrossRefPubMed
Zurück zum Zitat Hodge, D. R., & Wolosin, R. (2014). Spiritual needs and satisfaction with service provision: Mediating pathways among a national sample of hospital inpatients. Social Work Research, 38(3), 135–143.CrossRef Hodge, D. R., & Wolosin, R. (2014). Spiritual needs and satisfaction with service provision: Mediating pathways among a national sample of hospital inpatients. Social Work Research, 38(3), 135–143.CrossRef
Zurück zum Zitat Hoffman, R. (2005). The evolution of hospice in America: Nursing’s role. Journal of Gerontological Nursing, 31(7), 26–54.CrossRef Hoffman, R. (2005). The evolution of hospice in America: Nursing’s role. Journal of Gerontological Nursing, 31(7), 26–54.CrossRef
Zurück zum Zitat Hofmann, J. C., Wenger, N. S., Davis, R. B., Teno, T., Conors, A. F., Desbiens, N., et al. (1997). Patient preferences for communication with physicians about end-of-life decisions. Annals of Internal Medicine, 127(1), 1–12.CrossRefPubMed Hofmann, J. C., Wenger, N. S., Davis, R. B., Teno, T., Conors, A. F., Desbiens, N., et al. (1997). Patient preferences for communication with physicians about end-of-life decisions. Annals of Internal Medicine, 127(1), 1–12.CrossRefPubMed
Zurück zum Zitat Institute of Medicine (IOM). (2014). Dying in America: Improving quality and honoring individual preferences near the end of life. Washington, DC: The National Academy Press. Institute of Medicine (IOM). (2014). Dying in America: Improving quality and honoring individual preferences near the end of life. Washington, DC: The National Academy Press.
Zurück zum Zitat Kang, J., Shin, D. W., Choi, J. Y., Park, C. H., Baek, Y. J., Mo, H. N., et al. (2012). Addressing the religious needs of dying patients by health care staff in Korea: Patient perspectives in a multi-religious Asian country. Psycho-Oncology, 21, 274–381.CrossRef Kang, J., Shin, D. W., Choi, J. Y., Park, C. H., Baek, Y. J., Mo, H. N., et al. (2012). Addressing the religious needs of dying patients by health care staff in Korea: Patient perspectives in a multi-religious Asian country. Psycho-Oncology, 21, 274–381.CrossRef
Zurück zum Zitat Keary, S., & Moorman, S. M. (2015). Patient–physician end-of-life discussion in the routine care of Medicare beneficiaries. Journal of Aging and Health, 27(6), 983–1002.CrossRefPubMed Keary, S., & Moorman, S. M. (2015). Patient–physician end-of-life discussion in the routine care of Medicare beneficiaries. Journal of Aging and Health, 27(6), 983–1002.CrossRefPubMed
Zurück zum Zitat Levin, J. S., Larson, D. B., & Puchalski, C. (1997). Religion and spirituality in medicine. Journal of the American Medical Association, 278(9), 792–793.CrossRefPubMed Levin, J. S., Larson, D. B., & Puchalski, C. (1997). Religion and spirituality in medicine. Journal of the American Medical Association, 278(9), 792–793.CrossRefPubMed
Zurück zum Zitat McMahan, R., Knight, K., Fried, T., & Sudore, R. (2013). Advance care planning: Beyond advance directives: Perspectives from patients and surrogates. Journal of Pain and Symptom Management, 46(3), 355–365.CrossRefPubMed McMahan, R., Knight, K., Fried, T., & Sudore, R. (2013). Advance care planning: Beyond advance directives: Perspectives from patients and surrogates. Journal of Pain and Symptom Management, 46(3), 355–365.CrossRefPubMed
Zurück zum Zitat McRee, L., & Reed, P. (2016). Nurse practitioners: Knowledge, skills, leadership for the end-of life conversation in intensive care. Nursing Science Quarterly, 29(1), 78–81.CrossRefPubMed McRee, L., & Reed, P. (2016). Nurse practitioners: Knowledge, skills, leadership for the end-of life conversation in intensive care. Nursing Science Quarterly, 29(1), 78–81.CrossRefPubMed
Zurück zum Zitat Moore, T. (2014). A religion of one’s own: A guide to creating a personal spirituality in a secular world. New York, NY: Penguin Random House. Moore, T. (2014). A religion of one’s own: A guide to creating a personal spirituality in a secular world. New York, NY: Penguin Random House.
Zurück zum Zitat Pargament, K. I., Koenig, H. G., Tarakeshwar, N., & Hahn, J. (2004). Religious coping methods as predictors of psychological, physical, and spiritual outcomes among medically ill elderly patients: A two-year longitudinal study. Journal of Health Psychology, 9, 713–730.CrossRefPubMed Pargament, K. I., Koenig, H. G., Tarakeshwar, N., & Hahn, J. (2004). Religious coping methods as predictors of psychological, physical, and spiritual outcomes among medically ill elderly patients: A two-year longitudinal study. Journal of Health Psychology, 9, 713–730.CrossRefPubMed
Zurück zum Zitat Pearce, M. J., Coan, A. D., Herndon, J. E., Koenig, H. G., & Abernathy, A. P. (2012). Unmet spiritual care needs impact emotional and spiritual well-being in advanced cancer patients. Supportive Care in Cancer, 20, 2269–2276.CrossRefPubMed Pearce, M. J., Coan, A. D., Herndon, J. E., Koenig, H. G., & Abernathy, A. P. (2012). Unmet spiritual care needs impact emotional and spiritual well-being in advanced cancer patients. Supportive Care in Cancer, 20, 2269–2276.CrossRefPubMed
Zurück zum Zitat Pearlman, R. A., Starks, H., Cain, K., & Cole, W. G. (2005). Improvements in advance care planning in the Veterans Affairs system: Results of a multifaceted intervention. Archives of Internal Medicine, 165, 667–674.CrossRefPubMed Pearlman, R. A., Starks, H., Cain, K., & Cole, W. G. (2005). Improvements in advance care planning in the Veterans Affairs system: Results of a multifaceted intervention. Archives of Internal Medicine, 165, 667–674.CrossRefPubMed
Zurück zum Zitat Periyakoil, V. (2016). A randomized clinical feasibility trial comparing the letter project advance directive to traditional advance directive. Journal of Pain and Symptom Management, 53(2), 419.CrossRef Periyakoil, V. (2016). A randomized clinical feasibility trial comparing the letter project advance directive to traditional advance directive. Journal of Pain and Symptom Management, 53(2), 419.CrossRef
Zurück zum Zitat Perkins, H. S. (2007). Controlling death: The false promise of advance directives. Annals of Internal Medicine, 147, 51–57.CrossRefPubMed Perkins, H. S. (2007). Controlling death: The false promise of advance directives. Annals of Internal Medicine, 147, 51–57.CrossRefPubMed
Zurück zum Zitat Puchalski, C. M. (2001a). Reconnecting the science and art of medicine. Academic Medicine, 76(12), 1224–1225.CrossRefPubMed Puchalski, C. M. (2001a). Reconnecting the science and art of medicine. Academic Medicine, 76(12), 1224–1225.CrossRefPubMed
Zurück zum Zitat Puchalski, C. M. (2001b). The role of spirituality in health care. Proceedings (Baylor University Medical Center), 14(4), 352–357.CrossRef Puchalski, C. M. (2001b). The role of spirituality in health care. Proceedings (Baylor University Medical Center), 14(4), 352–357.CrossRef
Zurück zum Zitat Puchalski, C. M. (2012). Spirituality as an essential domain of palliative care: Caring for the whole person. Progress in Palliative Care, 20(2), 63–65.CrossRef Puchalski, C. M. (2012). Spirituality as an essential domain of palliative care: Caring for the whole person. Progress in Palliative Care, 20(2), 63–65.CrossRef
Zurück zum Zitat Puchalski, C., & Romer, A. L. (2000). Taking a spiritual history allows physicians to understand patients more. Journal of Palliative Medicine, 3(1), 129–137.CrossRefPubMed Puchalski, C., & Romer, A. L. (2000). Taking a spiritual history allows physicians to understand patients more. Journal of Palliative Medicine, 3(1), 129–137.CrossRefPubMed
Zurück zum Zitat Puchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., et al. (2009). Improving the quality of spiritual care as a dimension of palliative care: The report of the consensus conference. Journal of Palliative Medicine, 12(10), 885–904.CrossRefPubMed Puchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., et al. (2009). Improving the quality of spiritual care as a dimension of palliative care: The report of the consensus conference. Journal of Palliative Medicine, 12(10), 885–904.CrossRefPubMed
Zurück zum Zitat Puchalski, C. M., Lunsford, B., Harris, M. H., & Miller, T. (2006). Interdisciplinary spiritual care for seriously ill and dying patients: A collaborative model. The Cancer Journal, 12(5), 398–416.CrossRefPubMed Puchalski, C. M., Lunsford, B., Harris, M. H., & Miller, T. (2006). Interdisciplinary spiritual care for seriously ill and dying patients: A collaborative model. The Cancer Journal, 12(5), 398–416.CrossRefPubMed
Zurück zum Zitat Puchalski, C. M., Vitillo, R., Hull, S. K., & Reller, N. (2014). Improving the spiritual dimension of whole person care: Reaching national and international consensus. Journal of Palliative Medicine, 17(6), 642–656.CrossRefPubMedPubMedCentral Puchalski, C. M., Vitillo, R., Hull, S. K., & Reller, N. (2014). Improving the spiritual dimension of whole person care: Reaching national and international consensus. Journal of Palliative Medicine, 17(6), 642–656.CrossRefPubMedPubMedCentral
Zurück zum Zitat Scott, L. O., Law, J. M., Brodeur, D. P., Salerno, C. A., Thomas, A., & McMillan, S. C. (2014). Relationship with God, loneliness, anger, and symptom distress in patients with cancer who are near the end of life. Journal of Hospice & Palliative Nursing, 16(8), 482–488.CrossRef Scott, L. O., Law, J. M., Brodeur, D. P., Salerno, C. A., Thomas, A., & McMillan, S. C. (2014). Relationship with God, loneliness, anger, and symptom distress in patients with cancer who are near the end of life. Journal of Hospice & Palliative Nursing, 16(8), 482–488.CrossRef
Zurück zum Zitat Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine, 166, 493–497.CrossRefPubMed Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine, 166, 493–497.CrossRefPubMed
Zurück zum Zitat Sheingold, B. H., & Hahn, J. A. (2014). The history of healthcare quality: The first 100 years 1860–1960. International Journal of Africa Nursing Studies, 1(1), 18–22. Sheingold, B. H., & Hahn, J. A. (2014). The history of healthcare quality: The first 100 years 1860–1960. International Journal of Africa Nursing Studies, 1(1), 18–22.
Zurück zum Zitat Spoelhof, C. D., & Elliot, B. (2012). Implementing advance directives in office practice. American Family Physician, 85(5), 461–466.PubMed Spoelhof, C. D., & Elliot, B. (2012). Implementing advance directives in office practice. American Family Physician, 85(5), 461–466.PubMed
Zurück zum Zitat Stephenson, P. M., & Berry, D. M. (2014). Spirituality and uncertainty at the end of life. Oncology Nursing Forum, 41(1), 33–39.CrossRefPubMed Stephenson, P. M., & Berry, D. M. (2014). Spirituality and uncertainty at the end of life. Oncology Nursing Forum, 41(1), 33–39.CrossRefPubMed
Zurück zum Zitat Sudore, R. L., Schickedanz, A. D., Landefeld, C. S., Williams, B. A., Lindquist, K., Pantilat, S. Z., et al. (2008). Engagement in multiple steps of the advance care planning process: A descriptive study of diverse older adults. Journal of the American Geriatrics Society, 56(6), 1006–1013.CrossRefPubMedPubMedCentral Sudore, R. L., Schickedanz, A. D., Landefeld, C. S., Williams, B. A., Lindquist, K., Pantilat, S. Z., et al. (2008). Engagement in multiple steps of the advance care planning process: A descriptive study of diverse older adults. Journal of the American Geriatrics Society, 56(6), 1006–1013.CrossRefPubMedPubMedCentral
Zurück zum Zitat Sulmasy, D. P. (2002). A biopsychosocial-spiritual model for the care of patients at the end of life. The Gerontologist, 42, 24–33.CrossRefPubMed Sulmasy, D. P. (2002). A biopsychosocial-spiritual model for the care of patients at the end of life. The Gerontologist, 42, 24–33.CrossRefPubMed
Zurück zum Zitat Van Leuven, K. A. (2012). Advanced care planning in health service users. Journal of Clinical Nursing, 21, 3126–3133.CrossRefPubMed Van Leuven, K. A. (2012). Advanced care planning in health service users. Journal of Clinical Nursing, 21, 3126–3133.CrossRefPubMed
Zurück zum Zitat Wendler, D., & Rid, A. (2011). Systematic review: The effect on surrogates of making treatment decisions for others. Annals of Internal Medicine, 154(5), 336–346.CrossRefPubMed Wendler, D., & Rid, A. (2011). Systematic review: The effect on surrogates of making treatment decisions for others. Annals of Internal Medicine, 154(5), 336–346.CrossRefPubMed
Zurück zum Zitat Williams, A. L. (2006). Perspectives on spirituality at the end of life: A meta-summary. Palliative & Supportive Care, 4(4), 407–417.CrossRef Williams, A. L. (2006). Perspectives on spirituality at the end of life: A meta-summary. Palliative & Supportive Care, 4(4), 407–417.CrossRef
Metadaten
Titel
A Contemporary Paradigm: Integrating Spirituality in Advance Care Planning
verfasst von
Katie Lutz
Stefan R. Rowniak
Prabjot Sandhu
Publikationsdatum
29.12.2017
Verlag
Springer US
Erschienen in
Journal of Religion and Health / Ausgabe 2/2018
Print ISSN: 0022-4197
Elektronische ISSN: 1573-6571
DOI
https://doi.org/10.1007/s10943-017-0541-7

Weitere Artikel der Ausgabe 2/2018

Journal of Religion and Health 2/2018 Zur Ausgabe

Psychological Exploration

Revisiting The Depleted Self