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Erschienen in: Journal of General Internal Medicine 10/2008

01.10.2008 | Original Article

Comfort of General Internists and General Pediatricians in Providing Care for Young Adults with Chronic Illnesses of Childhood

verfasst von: Megumi J. Okumura, Michele Heisler, Matthew M. Davis, Michael D. Cabana, Sonya Demonner, Eve A. Kerr

Erschienen in: Journal of General Internal Medicine | Ausgabe 10/2008

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Abstract

Background

As an increasing number of patients with chronic conditions of childhood survive to adulthood, experts recommend that young adults with chronic conditions transfer from child-focused to adult-focused primary care. Little, however, is known about how comfortable physicians are caring for this population.

Objectives

To assess the comfort of general internists and general pediatricians in treating young adult patients with chronic illnesses originating in childhood as well as the factors associated with comfort.

Participants

In a random sample, 1288 of 2434 eligible US general internists and pediatricians completed a mailed survey (response rate = 53%).

Methods

We measured respondents’ comfort level in providing primary care for a patient with sickle cell disease (SCD) or cystic fibrosis (CF). We also measured levels of disease familiarity, training and subspecialty support, as well as individual physician characteristics.

Results

Fifteen percent of general internists reported being comfortable as the primary care provider for adults with CF and 32% reported being comfortable providing primary care for adults with SCD, compared with 38% of pediatricians for CF (p < .001) and 35% for SCD (p > 0.05). Less than half of general internists felt that their specialty should take primary care responsibility for adult patients with CF and SCD.

Conclusions

A majority of general internists and pediatricians are not comfortable providing primary care for young adults with chronic illnesses of childhood origin, such as CF and SCD. Efforts to increase treatment comfort among providers may help with the transition to adult-focused care for the growing numbers of young adults with complex chronic conditions.
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Literatur
1.
Zurück zum Zitat Elborn JS, Shale DJ, Britton JR. Cystic fibrosis: current survival and population estimates to the year 2000. Thorax. 1991;46(12):881–5.PubMedCrossRef Elborn JS, Shale DJ, Britton JR. Cystic fibrosis: current survival and population estimates to the year 2000. Thorax. 1991;46(12):881–5.PubMedCrossRef
2.
Zurück zum Zitat Reid GJ, Webb GD, Barzel M, McCrindle BW, Irvine MJ, Siu SC. Estimates of life expectancy by adolescents and young adults with congenital heart disease. J Am Coll Cardiol. 2006;482:349–55.PubMedCrossRef Reid GJ, Webb GD, Barzel M, McCrindle BW, Irvine MJ, Siu SC. Estimates of life expectancy by adolescents and young adults with congenital heart disease. J Am Coll Cardiol. 2006;482:349–55.PubMedCrossRef
3.
Zurück zum Zitat Platt OS, Brambilla DJ, Rosse WF, et al. Mortality in sickle cell disease. Life expectancy and risk factors for early death. N Engl J Med. 1994;330(23):1639–44.PubMedCrossRef Platt OS, Brambilla DJ, Rosse WF, et al. Mortality in sickle cell disease. Life expectancy and risk factors for early death. N Engl J Med. 1994;330(23):1639–44.PubMedCrossRef
4.
Zurück zum Zitat Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol. 2001;375:1170–5.PubMedCrossRef Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol. 2001;375:1170–5.PubMedCrossRef
5.
Zurück zum Zitat Lakdawalla DN, Bhattacharya J, Goldman DP. Are the young becoming more disabled? Health Aff (Millwood). 2004;231:168–76.CrossRef Lakdawalla DN, Bhattacharya J, Goldman DP. Are the young becoming more disabled? Health Aff (Millwood). 2004;231:168–76.CrossRef
6.
Zurück zum Zitat Newacheck PW, Strickland B, Shonkoff JP, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998;102(1 Pt 1):117–23.PubMedCrossRef Newacheck PW, Strickland B, Shonkoff JP, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998;102(1 Pt 1):117–23.PubMedCrossRef
7.
Zurück zum Zitat van der Lee J, Mokkink L, Grootenhuis M, Heymans H, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007;297(24):2741–51. 1999 Oct.PubMedCrossRef van der Lee J, Mokkink L, Grootenhuis M, Heymans H, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007;297(24):2741–51. 1999 Oct.PubMedCrossRef
8.
Zurück zum Zitat Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993;147:570–6.PubMedCrossRef Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993;147:570–6.PubMedCrossRef
9.
Zurück zum Zitat American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 Pt 2):1304–6. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 Pt 2):1304–6.
10.
Zurück zum Zitat Reschovsky J, Reed M, Blumenthal D, Landon B. Physicians’ assessments of their ability to provide high-quality care in a changing health care system. Med Care. 2001;39(3):254–69.PubMedCrossRef Reschovsky J, Reed M, Blumenthal D, Landon B. Physicians’ assessments of their ability to provide high-quality care in a changing health care system. Med Care. 2001;39(3):254–69.PubMedCrossRef
11.
Zurück zum Zitat Foster GD, Wadden TA, Makris AP, et al. Primary care physicians’ attitudes about obesity and its treatment. Obes Res. 2003;11(10):1168–77.PubMedCrossRef Foster GD, Wadden TA, Makris AP, et al. Primary care physicians’ attitudes about obesity and its treatment. Obes Res. 2003;11(10):1168–77.PubMedCrossRef
12.
Zurück zum Zitat Blum R. Physicians’ assessment of deficiencies and desire for training in adolescent care. J Med Educ. 1987;62(5):401–7.PubMed Blum R. Physicians’ assessment of deficiencies and desire for training in adolescent care. J Med Educ. 1987;62(5):401–7.PubMed
13.
Zurück zum Zitat Zimmerman DL, Selick A, Singh R, Mendelssohn DC. Attitudes of Canadian nephrologists, family physicians and patients with kidney failure toward primary care delivery for chronic dialysis patients. Nephrol Dial Transplant. 2003;18(2):305–9.PubMedCrossRef Zimmerman DL, Selick A, Singh R, Mendelssohn DC. Attitudes of Canadian nephrologists, family physicians and patients with kidney failure toward primary care delivery for chronic dialysis patients. Nephrol Dial Transplant. 2003;18(2):305–9.PubMedCrossRef
14.
Zurück zum Zitat Schidlow DV, Fiel SB. Life beyond pediatrics. Transition of chronically ill adolescents from pediatric to adult health care systems. Med Clin North Am. 1990;74(5):1113–20.PubMed Schidlow DV, Fiel SB. Life beyond pediatrics. Transition of chronically ill adolescents from pediatric to adult health care systems. Med Clin North Am. 1990;74(5):1113–20.PubMed
15.
Zurück zum Zitat Stille CJ, Jerant A, Bell D, Meltzer D, Elmore JG. Coordinating care across diseases, settings, and clinicians: a key role for the generalist in practice. Ann Intern Med. 2005;142(8):700–8.PubMed Stille CJ, Jerant A, Bell D, Meltzer D, Elmore JG. Coordinating care across diseases, settings, and clinicians: a key role for the generalist in practice. Ann Intern Med. 2005;142(8):700–8.PubMed
16.
Zurück zum Zitat Cabana MD, Rand CS, Becher OJ, Rubin HR. Reasons for pediatrician nonadherence to asthma guidelines. Arch Pediatr Adolesc Med. 2001;155(9):1057–62.PubMed Cabana MD, Rand CS, Becher OJ, Rubin HR. Reasons for pediatrician nonadherence to asthma guidelines. Arch Pediatr Adolesc Med. 2001;155(9):1057–62.PubMed
17.
Zurück zum Zitat Miller AR, Johnston C, Klassen AF, Fine S, Papsdorf M. Family physicians’ involvement and self-reported comfort and skill in care of children with behavioral and emotional problems: a population-based survey. BMC Fam Pract. 2005;6:(1)12.PubMedCrossRef Miller AR, Johnston C, Klassen AF, Fine S, Papsdorf M. Family physicians’ involvement and self-reported comfort and skill in care of children with behavioral and emotional problems: a population-based survey. BMC Fam Pract. 2005;6:(1)12.PubMedCrossRef
18.
Zurück zum Zitat Forrest CB, Nutting PA, von Schrader S, Rohde C, Starfield B. Primary care physician specialty referral decision making: patient, physician, and health care system determinants. Med Decis Making. 2006;26(1):76–85.PubMedCrossRef Forrest CB, Nutting PA, von Schrader S, Rohde C, Starfield B. Primary care physician specialty referral decision making: patient, physician, and health care system determinants. Med Decis Making. 2006;26(1):76–85.PubMedCrossRef
19.
Zurück zum Zitat Williams JW, Rost K, Dietrich AJ, Ciotti MC, Zyzanski SJ, Cornell J. Primary care physicians’ approach to depressive disorders. Effects of physician specialty and practice structure. Arch Fam Med. 1999;8(1):58–67.PubMedCrossRef Williams JW, Rost K, Dietrich AJ, Ciotti MC, Zyzanski SJ, Cornell J. Primary care physicians’ approach to depressive disorders. Effects of physician specialty and practice structure. Arch Fam Med. 1999;8(1):58–67.PubMedCrossRef
20.
Zurück zum Zitat Scal P. Transition for youth with chronic conditions: primary care physicians’ approaches. Pediatrics. 2002;110(6 Pt 2):1315–21.PubMed Scal P. Transition for youth with chronic conditions: primary care physicians’ approaches. Pediatrics. 2002;110(6 Pt 2):1315–21.PubMed
21.
Zurück zum Zitat Geenen SJ, Powers LE, Sells W. Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health. 2003;32(3):225–33.PubMedCrossRef Geenen SJ, Powers LE, Sells W. Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health. 2003;32(3):225–33.PubMedCrossRef
22.
Zurück zum Zitat Donaldson MS, Yordy KD, Lohr KN, Vanselow NA. Primary Care: America’s Health in a New Era. Washington, D.C.: National Academy Press; 1996. Donaldson MS, Yordy KD, Lohr KN, Vanselow NA. Primary Care: America’s Health in a New Era. Washington, D.C.: National Academy Press; 1996.
23.
Zurück zum Zitat Frankel L. The report of the CASRO task force on response rates. In: Wiseman F, eds. The Report of the CASRO Task Force on Response Rates. Cambridge, MA: Marketing Science Institute; 1983. Frankel L. The report of the CASRO task force on response rates. In: Wiseman F, eds. The Report of the CASRO Task Force on Response Rates. Cambridge, MA: Marketing Science Institute; 1983.
24.
Zurück zum Zitat Moore JL, McAuley JW, Mott D, Reeves AL, Bussa B. Referral characteristics of primary care physicians for seizure patients. Epilepsia. 2000;41(6):744–8.PubMedCrossRef Moore JL, McAuley JW, Mott D, Reeves AL, Bussa B. Referral characteristics of primary care physicians for seizure patients. Epilepsia. 2000;41(6):744–8.PubMedCrossRef
25.
Zurück zum Zitat Shah P, Norlin C, Logsdon V, Samson-Fang L. Gynecological care for adolescents with disability: physician comfort, perceived barriers, and potential solutions. J Pediatr Adolesc Gynecol. 2005;18(2):101–4.PubMedCrossRef Shah P, Norlin C, Logsdon V, Samson-Fang L. Gynecological care for adolescents with disability: physician comfort, perceived barriers, and potential solutions. J Pediatr Adolesc Gynecol. 2005;18(2):101–4.PubMedCrossRef
26.
Zurück zum Zitat Cummings SM, Savitz LA, Konrad TR. Reported response rates to mailed physician questionnaires. Health Serv Res. 2001;35(6):1347–55.PubMed Cummings SM, Savitz LA, Konrad TR. Reported response rates to mailed physician questionnaires. Health Serv Res. 2001;35(6):1347–55.PubMed
27.
Zurück zum Zitat Carroll G, Massarelli E, Opzoomer A, et al. Adolescents with chronic disease. Are they receiving comprehensive health care? J Adolesc Health Care. 1983;4(4):261–5.PubMedCrossRef Carroll G, Massarelli E, Opzoomer A, et al. Adolescents with chronic disease. Are they receiving comprehensive health care? J Adolesc Health Care. 1983;4(4):261–5.PubMedCrossRef
28.
Zurück zum Zitat Harrold LR, Field TS, Gurwitz JH. Knowledge, patterns of care, and outcomes of care for generalists and specialists. J Gen Intern Med. 1999;14(8):499–511.PubMedCrossRef Harrold LR, Field TS, Gurwitz JH. Knowledge, patterns of care, and outcomes of care for generalists and specialists. J Gen Intern Med. 1999;14(8):499–511.PubMedCrossRef
29.
Zurück zum Zitat Donohoe MT. Comparing generalist and specialty care: discrepancies, deficiencies, and excesses. Arch Intern Med. 1998;158(15):1596–608.PubMedCrossRef Donohoe MT. Comparing generalist and specialty care: discrepancies, deficiencies, and excesses. Arch Intern Med. 1998;158(15):1596–608.PubMedCrossRef
Metadaten
Titel
Comfort of General Internists and General Pediatricians in Providing Care for Young Adults with Chronic Illnesses of Childhood
verfasst von
Megumi J. Okumura
Michele Heisler
Matthew M. Davis
Michael D. Cabana
Sonya Demonner
Eve A. Kerr
Publikationsdatum
01.10.2008
Verlag
Springer-Verlag
Erschienen in
Journal of General Internal Medicine / Ausgabe 10/2008
Print ISSN: 0884-8734
Elektronische ISSN: 1525-1497
DOI
https://doi.org/10.1007/s11606-008-0716-8

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