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15.01.2019 | Ausgabe 1/2019

Journal of Cancer Survivorship 1/2019

Evaluation of a survivorship needs assessment planning tool for head and neck cancer survivor-caregiver dyads

Zeitschrift:
Journal of Cancer Survivorship > Ausgabe 1/2019
Autoren:
Katherine R. Sterba, Kent Armeson, Jane Zapka, Megan A. Scallion, Tiffany K. Garris, Evan M. Graboyes, Kenneth Ruggiero, Terry A. Day
Wichtige Hinweise

Electronic supplementary material

The online version of this article (https://​doi.​org/​10.​1007/​s11764-019-0732-1) contains supplementary material, which is available to authorized users.

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Abstract

Purpose

The objectives of this study were to test the acceptability and feasibility of a survivorship needs assessment planning (SNAP) tool for head and neck cancer (HNC) survivors and caregivers, evaluate short-term changes in psychosocial outcomes after completing the SNAP session, and develop strategies for system refinement.

Methods

We used a prospective one-group design and mixed methods with HNC survivors and caregivers (N = 25 dyads). Participants completed baseline and 6-week surveys before and after completing a SNAP clinic visit to assess psychosocial outcomes and acceptability. Intervention sessions included tablet-based needs assessments driving tailored care plans. Dyads’ open-ended feedback and clinician interviews (N = 12) evaluated acceptability and feasibility.

Results

SNAP data collection time burden and technology challenges were minimal, and care plans included messages (M = 19), educational materials (M = 13), and referrals (M = 4.5; 86% behavioral medicine, 77% nutrition, 65% physical therapy). Participants reported high satisfaction with the session and care plan, highlighting the key strengths of pulling complex medical information together and the focus on caregiver well-being, with multiple suggestions to facilitate clinic workflow. Depression and unmet needs decreased and survivorship knowledge increased significantly in survivors and caregivers (p < .05) over the 6-week period.

Conclusions

The SNAP tool is an innovative technology-based survivor-centered strategy to assess and manage needs in HNC survivors and caregivers. Results support its acceptability and ability to address dyads’ needs; the tool merits further testing in a clinical trial.

Implications for Cancer Survivors

Technology-enabled care planning may be a productive way to assess and address HNC dyads’ dynamic needs after treatment.

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