Background
Methods
Search strategy
Inclusion criteria
Study selection
Results
Relevant publications | Subject | Main results | Country | Materials and methods |
---|---|---|---|---|
Feldman et al. (2012) [31] | preliminary evaluation of health rights training | training group made significantly more correct responses on post training and follow-up tests | Canada | RCT with 6 month follow-up (N = 31) |
Brolan et al. (2012) [32] | meaning, perceptions and experiences of advocacy by family members and paid support workers of adults with ID | advocacy roles are vital to people with ID | Australia | RCT (113 parents, 84 support workers of adults with ID) |
Sermier Dessemontet & Bless (2013) [12] | the impact of including children with ID in general education classrooms with support on the academic achievement of their low-, average-, and high-achieving peers without disabilities | no significant difference in the progress of the low-, average- and high-achieving pupils from classrooms with or without inclusion | Switzerland | quasi-experimental study (N = 404) |
Gray et al. (2014) [33] | changes in living arrangements and participation in daytime activities over time in a community population of young people with ID | adequate provision of accommodation and employment services for young adults with ID is lacking | Australia | quantitative longitudinal study (N = 536) |
McConkey & Leavey (2013) [22] | changes from 2001 to 2011 in Irish attitudes towards the right to sexual fulfilment of persons with ID | in 2011, half the people in the survey thought that people with ID had the right to sexual relationships | Ireland | quantitative study in 2001 (N = 1000), in 2006 (N = 1004), in 2011 (N = 1039) |
Badia et al. (2013) [16] | leisure activities of persons with ID | leisure activities and recreation activities were mostly solitary and passive in nature; age, type of schooling and severity of disability determine participation | Spain | cross-sectional quantitative study (N = 237) |
Gobrial (2012) [24] | awareness of human rights of children with ID in Egypt | widespread lack of awareness of the rights of children with ID; respondents believed that these children had limited access to mental health care, social care, education and rehabilitation | Egypt | quantitative study, parents of children with ID (N = 72), professionals (n = 50), neither parents nor professionals (n = 78) |
Stancliffe et al. (2011) [18] | benchmark on the degree of choice exercised by adult service users with ID in the USA | individuals living in their own home or an agency-operated apartment were more likely to choose where and with whom they live than individuals in nursing homes, institutions or group homes | USA | quantitative study (N = 6778) |
Dusseljee et al. (2011) [34] | variations in community participation in the domains work, social contacts and leisure activities among people with ID | most people with ID in the Netherlands have work or other daytime activities, have social contacts and have leisure activities; people with ID in general hardly participate in activities with people without ID | Netherlands | quantitative study (N = 653) |
Badia et al. (2011) [17] | influence of personal characteristics and environmental factors on the participation in leisure activities of people with ID | participation in leisure activities is determined more by personal factors and perceived barriers than by disability-related factors | Spain | cross-sectional quantitative study (N = 237) |
Aznar et al. (2012) [26] | testing the usefulness of the ITINERIS scale on the rights of persons with intellectual disabilities (ISRPID) | the ISRPID can be an appropriate scale to monitor the UN-CRPD rights at an individual or group level | Chile | 705 persons with ID, control group of 524 college students |
Martin & Cobigo (2011) [35] | improving the understanding of the concept of social inclusion and its indicators | a clear definition of inclusion and its measurement is needed for decision-makers and service providers | Canada | retrospective analyses with adults residing in institutions (N = 1014) and with adults receiving community-based residential services (n = 327) |
Drew et al. (2011) [7] | types of human rights violations experienced by people with mental and psychosocial disabilities in low-income and middle-income countries | wide range of human rights violations including the inability to access adequate mental health services or being subjected to stigma and discrimination | Belize, Bosnia and Herzegovina (and others) | survey (N = 51 people with mental and psychosocial disabilities from 18 countries) and review of literature |
Fasching (2012) [36] | access to labour market measures to enhance vocational participation for people with ID | vocational guidance predominates qualifying measures and measures directly aiming at integration on the regular labour market | Austria | nationwide survey (N = 625 persons with ID participating in vocational measures) |
Gomez et al. (2011) [37] | Exploratory investigation about implementation of human rights according to UN-CRPD | many situations of abuse and negligence are still existing. Violation of privacy recognized as major problem by both groups | Spain | quantitative study (N = 586 persons with ID in defined services and N = 161 professionals in the same services) |
Garcia Iriarte et al. (2014) [38] | main issues for people with ID in Ireland | core concerns: Living options, employment, relationships, citizenship, leisure time, money management, self-advocacy and communication | Ireland | national study involving 23 focus groups (N = 168) |
McConkey et al. (2013) [14] | inclusion within the context of Youth Unified Sports (which combines of players with ID and those without ID in the same sport teams) as perceived by athletes, partners, coaches, family carers and community representatives | factors which facilitate social inclusion of athletes: personal development of athletes and partners, creation of inclusive and equal bonds, promotion of positive perception of athletes, building alliances within local communities | Serbia, Poland, Ukraine, Germany, Hungary | qualitative study, 75 interviews in five different countries |
O’Connor et al. (2012) [11] | lecturer responses to the inclusion of students with ID auditing undergraduate classes | the initiative was strongly supported by all lecturers, providing opportunity to consider more inclusive instructional approaches for all learners | Ireland | qualitative study (N = 11) |
Saaltink et al. (2012) [39] | the right to participation for young people with ID in a family context | young people with ID follow an age-typical yet restricted pattern of participation in decisions about their lives; supported decision-making strategies are recommended | Canada | qualitative study (N = 10) |
Hillman et al. (2012) [40] | issues related to human rights arising within the daily lives of people in personal support networks that included adults with ID | maintenance of rights within a supportive environment can be facilitated by deep knowledge, respect, promotion of active participation and provision of support | Australia | qualitative study, ethnographic study of 9 personal support networks |
Shaw et al. (2011) [19] | views of people with ID and their family members regarding preferred models of housing and support for ageing people with ID | the main preference were models of housing that provide the opportunity to live in close proximity to their peers and in large groups in the community | Australia | qualitative study, focus group and individual interviews, adults with ID (N = 15) and family members (n = 10) |
Kelly et al. (2009) [41] | views and experiences of Irish people with ID in the area of sexuality and relationships | people with ID are getting insufficient sex education | Ireland | qualitative study, focus groups (N = 15) |
O’Brien et al. (2009) [10] | experiences of students with ID gaining access into a university setting | inclusion within the university setting led the students to see themselves more alike than different to their peers, they felt more accepted, more competent and more socially networked | Ireland | qualitative study, focus groups (N = 19) |
Frawley & Bigby (2011) [13] | political orientations of advisory body members with ID, their participatory experiences and the types of support they received | the political perspective of members with ID varied; work was found hard but rewarding; both practical and intangible obstacles to participation were encountered | Australia | qualitative study, members of disability advisory bodies with ID (N = 9) and without ID (n = 12) |
Cobigo (2014) [42] | lived experiences of persons with intellectual and developmental disabilities (IDD), identifying core components of the fundamental right of choice | four components identified: availability of choice opportunities, provision of choice options, informed cognitive process and act of choosing, supportive environment. | Canada | scoping review |
Relevant publications | Subject | Main results | Country | Materials and methods |
---|---|---|---|---|
Vijayalakshmi et al. (2013) [9] | the role of education in ascertaining human rights needs of people with mental illness | education is a mechanism for the pursuit of other human rights; empowerment to pursue education will play an important role in fulfilling the obligations of the UN-CRPD | India | quantitative study (N = 100) |
Angermeyer et al. (2014) [23] | changes of public attitudes towards restrictions on mentally ill people | people’s views on patient rights have become more liberal, but the public is more inclined to restrict patients’ freedom in case of deviant behaviour | Germany | quantitative study, two population surveys (N = 2094; n = 3642) |
Burns (2010) [43] | budget allocations over a 5-year period between psychiatric and general hospitals in KwaZulu-Natal | mean increase in budgets was considerably lower in psychiatric (3.8 %) than in general hospitals (10.2 %) | South Africa | quantitative study based on budget allocations (5 psychiatric and 7 general hospitals) |
Steinert et al. (2015) [44] | Patterns of individual mobility and active use of motorised vehicles | Participants drove considerably less in time and distances than general population. Alcohol abuse and recurrent psychiatric hospitalisation were associated with exclusion | Germany | quantitative study (N = 150) with participants with schizophrenia or schizoaffective disorder |
Kogstad (2009) [8] | violations of dignity considered from a clients’ point of view | gap between human rights’ aims and clients’ experiences in several settings; lack of safeguards against infringement | Norway | qualitative content analysis of 335 client narratives |
Nomidou (2013) [25] | human rights in in-patient care in Greek mental health facilities using the WHO QualityRights toolkit | either improvement or initiation is necessary for the psychiatric clinic under research to fully comply with the requirements of the UN-CRPD | Greece | qualitative study, 21 in-depth interviews, documentation review and observation |
Nankivell et al. (2013) [15] | orientation of nurses to human rights and access of consumers with severe mental illnesses to general practitioner services | the studied nurses only rarely raised the topic of human rights | Australia | qualitative study, 6 focus groups (N = 38) |
Battams & Henderson (2012) [20] | current and potential impact of the UN-CRPD on Australian legislation and policy | there is a greater focus on concerns about ‘negative rights’ rather than ‘positive rights’; high rates of involuntary detention and a lack of access to the law for people with psychiatric disabilities continue to be significant problems | Australia | qualitative study, ten interviews with professionals from law, psychiatry, policy and service user backgrounds |
Kleintjes et al. (2010) [21] | current support for mental health care user participation in policy development and implementation in South Africa | mental health care user consultation in policy development and implementation has been limited; however, most respondents felt that inclusion of user perspectives in policy processes would improve policy development | South Africa | qualitative study, semi-structured interviews (N = 96) and policy document analysis |
Randall et al. (2012) [27] | producing a toolkit to document violations and good practice with the aim of preventing human rights violations and improving general health care practice in psychiatric and and social care institutions | the toolkit has demonstrated applicability and is qualified as acceptable and feasible for the systematic monitoring of human rights in psychiatric and social care institutions | UK (and others) | methodological and implementation study conducted across 15 European countries in monitoring visits to 87 mental health organizations |
Henderson & Battams (2011) [45] | access and barriers to physical and mental health care | main barriers to the achievement to the right of health are structural (e.g. competing laws, political barriers) | Australia | qualitative study, interviews with 10 key stakeholders |
Major theme | Subthemes | Subject | References of relevant publications |
---|---|---|---|
Realisation | Key concerns of people with ID | UN-CRPD as a whole | |
Types of human rights violations | UN-CRPD as a whole | ||
Living arrangements and participation in daytime activities of people with ID | UN-CRPD as a whole | [33] | |
Impact of inclusion on peers without disabilities | UN-CRPD as a whole | [12] | |
The right of participation of people with ID | UN-CRPD as a whole | ||
Protection of rights in support networks | UN-CRPD as a whole | [40] | |
Freedom of choice of persons with IDD | Article 3, 19 (Choice)
| [42] | |
Choice of living arrangements | Article 3, 19 (Choice)
| ||
Social inclusion of people with ID | Article 19 (Social inclusion)
| ||
Role of education in meeting human rights needs of people with mental illness | Article 24 (Education)
| [9] | |
Inclusion of people with ID in postsecondary education | Article 24 (Education)
| ||
Access to physical health care for people with serious mental illness | Article 9, 25 (Health care services)
| ||
Health advocacy | Article 25 (Health)
| ||
Inclusion in political and public life | Article 29 (Participation in political and public life)
| [13] | |
Patterns of leisure participation of people with developmental disabilities | Article 30 (Leisure participation)
| ||
The right to sexual self-determination | Article 23, 25 (Sexual self-determination)
| [41] | |
Access to labour market for people with ID | Article 27 (Work and employment)
| [36] | |
Use of motorized vehicles | Article 20 (personal mobility)
| [44] | |
Implementation, Financing | Budget allocations to psychiatric hospitals | UN-CRPD as a whole | [43] |
Impact of UN-CRPD on national legislation and policy | UN-CRPD as a whole | [20] | |
Mental health care user participation in policy development and implementation | Article 29 (Participation in political and public life)
| [21] | |
Development of instruments | Application of ISRPID to measure the extent to which people with ID exercise their rights | UN-CRPD as a whole | [26] |
Development of ITHACA toolkit for systematic monitoring of human rights violations | UN-CRPD as a whole | [27] | |
Application of the WHO QualityRights toolkit which is based on the UN-CRPD | UN-CRPD as a whole | [25] | |
Attitudes | Public attitudes towards restrictions on mentally ill people | UN-CRPD as a whole | [23] |
Awareness of human rights of children with ID | UN-CRPD as a whole | [24] | |
Public attitudes towards the right of sexual fulfilment of people with ID | Article 23, 25 (Sexual self-determination)
| [22] |