nach oben

Journal of Clinical Psychology in Medical Settings

Erschienen in:

11.02.2022

Technology-Based Peer Support Interventions for Adolescents with Chronic Illness: A Systematic Review

verfasst von: Patricia Berkanish, Samuel Pan, Adrienne Viola, Quinn Rademaker, Katie A. Devine

Erschienen in: Journal of Clinical Psychology in Medical Settings | Ausgabe 4/2022

Einloggen, um Zugang zu erhalten

Abstract

Technology may help adolescents with chronic illnesses overcome barriers to accessing peer support, which has been associated with better quality of life and health outcomes. This review aimed to describe technology-based peer support interventions for adolescents with chronic illness following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Of 3781 articles identified, 32 met inclusion criteria. The most common technologies were websites with discussion forums (n = 18), chat messaging (n = 9), and video conferencing (n = 7). Most studies (69%) focused on feasibility and had small sample sizes. Results support the feasibility and acceptability of these interventions. Results suggested positive effects on social support, but were mixed on isolation, quality of life, and disease self-management. There were too few adequately powered randomized controlled trials to determine efficacy of these interventions at this time. Future work should use rigorous methods to evaluate efficacy and account for rapid shifts in technology for adolescent communication.

Nur mit Berechtigung zugänglich

Ahola Kohut, S., Stinson, J., van Wyk, M., et al. (2014). Systematic review of peer support interventions for adolescents with chronic illness. International Journal of Child Adolescent Health, 7, 183–197.

Ahola Kohut, S., Stinson, J. N., Ruskin, D., et al. (2016). iPeer2Peer program: A pilot feasibility study in adolescents with chronic pain. Pain, 157, 1146–1155.PubMedCrossRef

Ammerlaan, J., van Os-Medendorp, H., de Boer-Nijhof, N., et al. (2017). Short term effectiveness and experiences of a peer guided web-based self-management intervention for young adults with juvenile idiopathic arthritis. Pediatric Rheumatology, 15(1), 1–13.CrossRef

Anderson, M., & Jiang, J. (2018). Teens, Social Media & Technology. Retrieved from https://www.pewresearch.org/internet/2018/05/31/teens-social-media-technology-2018/.

Badawy, S. M., Barrera, L., Sinno, M. G., Kaviany, S., O’Dwyer, L. C., & Kuhns, L. M. (2017a). Text messaging and mobile phone apps as interventions to improve adherence in adolescents with chronic health conditions: A systematic review. JMIR mHealth and uHealth, 5(5), e66.PubMedPubMedCentralCrossRef

Badawy, S. M., & Radovic, A. (2020). Digital approaches to remote pediatric health care delivery during the COVID-19 pandemic: Existing evidence and a call for further research. JMIR Pediatrics and Parenting, 3(1), e20049.

Badawy, S. M., Thompson, A. A., & Kuhns, L. M. (2017b). Medication adherence and technology-based interventions for adolescents with chronic health conditions: A few key considerations. JMIR mHealth and uHealth, 5(12), e202.PubMedPubMedCentralCrossRef

Badawy, S. M., & Kuhns, L. M. (2016). Economic evaluation of text-messaging and smartphone-based interventions to improve medication adherence in adolescents with chronic health conditions: A systematic seview. JMIR mHealth and uHealth, 4(4), e121.PubMedPubMedCentralCrossRef

Badawy, S. M., Thompson, A. A., & Liem, R. I. (2016). Technology access and smartphone app preferences for medication adherence in adolescents and young adults with sickle cell disease. Pediatric Blood & Cancer, 63(5), 848–852.CrossRef

Bennett, P. N., St. Clair Russell, J., Atwal, J., et al. (2018). Patient-to-patient peer mentor support in dialysis: Improving the patient experience. Seminars in Dialysis, 31, 455–461.PubMedCrossRef

Bers, M. U., Beals, L. M., Chau, C., et al. (2010). Use of a virtual community as a psychosocial support system in pediatric transplantation. Pediatric Transplantation, 14, 261–267.PubMedCrossRef

Boogerd, E. A., Noordam, C., Kremer, J. A. M., et al. (2014). Teaming up: Feasibility of an online treatment environment for adolescents with type 1 diabetes. Pediatric Diabetes, 15, 394–402.PubMedCrossRef

Cafazzo, J. A., Casselman, M., Hamming, N., et al. (2012). Design of an mHealth app for the self-management of adolescent type 1 diabetes: A pilot study. Journal of Medical Internet Research, 14, e70.PubMedPubMedCentralCrossRef

Chadi, N., Weisbaum, E., Malboeuf-Hurtubise, C., et al. (2018). Can the Mindful Awareness and Resilience Skills for Adolescents (MARS-A) Program be provided online? Voices from the youth. Children, 5(9), 115.PubMedCentralCrossRef

Christie, D., & Viner, R. (2005). ABC of adolescence: Adolescent development. British Medical Journal, 330, 301–304.PubMedPubMedCentralCrossRef

Dennis, C.-L. (2003). Peer support within a health care context: A concept analysis. International Journal of Nursing Studies, 40, 321–332.PubMedCrossRef

Donovan, E., Martin, S. R., Seidman, L. C., et al. (2019). A mobile-based mindfulness and social support program for adolescents and young adults with sarcoma: Development and pilot testing. JMIR mHealth and uHealth, 7, e10921.PubMedPubMedCentralCrossRef

Dulli, L., Ridgeway, K., Packer, C., et al. (2018). An online support group intervention for adolescents living with HIV in Nigeria: A pre-post test study. JMIR Public Health and Surveillance, 4, e12397.PubMedPubMedCentralCrossRef

Dulli, L., Ridgeway, K., Packer, C., et al. (2020). A social media-based support group for youth living with HIV in Nigeria (SMART Connections): Randomized controlled trial. Journal of Medical Internet Research, 22, e18343.PubMedPubMedCentralCrossRef

Elsbernd, A. B., Hjerming, M., Visler, C., et al. (2018). Using cocreation in the process of designing a smartphone app for adolescents and young adults with cancer: Prototype development study. JMIR Formative Research, 2(2), e9842.CrossRef

Faiola, A., Papautsky, E. L., & Isola, M. (2019). Empowering the aging with mobile health: A mHealth framework for supporting sustainable healthy lifestyle behavior. Current Problems in Cardiology, 44, 232–266.PubMedCrossRef

Fergie, G., Hilton, S., & Hunt, K. (2016). Young adults’ experiences of seeking online information about diabetes and mental health in the age of social media. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 19(6), 1324–1335.CrossRef

Fisher, E. B., Boothroyd, R. I., Coufal, M. M., et al. (2012). Peer support for self-management of diabetes improved outcomes in international settings. Health Affairs, 31, 130–139.PubMedCrossRef

Forte, A., Sarli, G., Polidori, L., Lester, D., & Pompili, M. (2021). The role of new technologies to prevent suicde in adolescence: A systematic review of the literature. Medicina, 57(109), 1–13.

Francis, J., Cross, D., Schultz, A., et al. (2020). Developing a smartphone application to support social connectedness and wellbeing in young people with cystic fibrosis. Journal of Cystic Fibrosis, 19, 277–283.PubMedCrossRef

Freedenberg, V. A., Hinds, P. S., & Friedmann, E. (2017). Mindfulness-based stress reduction and group support decrease stress in adolescents with cardiac diagnoses: A randomized two-group study. Pediatric Cardiology, 38, 1415–1425.PubMedCrossRef

Gonzalez-Morkos, B., Zavala, O., Malogolowkin, M., et al. (2014). The teen impact experience: A webcast pilot project for teens with cancer and blood diseases. Journal of Pediatric Oncology Nursing, 31, 272–276.PubMedCrossRef

Grey, M., Whittemore, R., Jeon, S., et al. (2013). Internet psycho-education programs improve outcomes in youth with type 1 diabetes. Diabetes Care, 36, 2475–2482.PubMedPubMedCentralCrossRef

Griffiths, C., Panteli, N., Brunton, D., et al. (2015). Designing and evaluating the acceptability of Realshare: An online support community for teenagers and young adults with cancer. Journal of Health Psychology, 20, 1589–1601.PubMedCrossRef

Hacking, D., Mgengwana-Mbakaza, Z., Cassidy, T., et al. (2019). Peer mentorship via mobile phones for newly diagnosed HIV-positive youths in clinic care in Khayelitsha, South Africa: Mixed methods study. Journal of Medical Internet Research, 21, e14012.PubMedPubMedCentralCrossRef

Hardin, A. P., & Hackell, J. M. (2017) Age limit of pediatrics. American Academy of Pediatrics 140.

Iafusco, D., Galderisi, A., Nocerino, I., et al. (2011). Chat line for adolescents with type 1 diabetes: A useful tool to improve coping with diabetes: A 2-year follow-up study. Diabetes Technology & Therapeutics, 13, 551–555.CrossRef

Iribarren, S. J., Cato, K., Falzon, L., & Stone, P. W. (2017). What is the economic evidence for mHealth? A systematic review of economic evaluations of mHealth solutions. PLoS ONE, 12(2), e0170581.PubMedPubMedCentralCrossRef

Johnson, K. B., Ravert, R. D., & Everton, A. (2001). Hopkins Teen Central: Assessment of an internet-based support system for children with cystic fibrosis. Pediatrics, 107, E24.PubMedCrossRef

Kennedy, C. E., Fonner, V. A., Armstrong, K. A., et al. (2019). The Evidence Project risk of bias tool: Assessing study rigor for both randomized and non-randomized intervention studies. Systematic Reviews, 8(1), 3.PubMedPubMedCentralCrossRef

Kingod, N., Cleal, B., Wahlberg, A., et al. (2016). Online peer-to-peer communities in the daily lives of people with chronic illness. Qualitative Health Research, 27, 89–99.CrossRef

Lau, N., Colt, S. F., Waldbaum, S., O’Daffer, A., Fladeboe, K., Yi-Frazier, J. P., McCauley, E., & Rosenberg, A. R. (2021). Telemental health for youth with chronic illnesses: Systematic review. JMIR Mental Health, 8(8), e30098.PubMedPubMedCentralCrossRef

Letourneau, N., Stewart, M., Masuda, J. R., et al. (2012). Impact of online support for youth with asthma and allergies: Pilot study. Journal of Pediatric Nursing, 27, 65–73.PubMedCrossRef

Lindsay, S., Kolne, K., & Cagliostro, E. (2018). Electronic mentoring programs and interventions for children and youth with disabilities: Systematic review. JMIR Pediatrics and Parenting, 1(2), e11679.PubMedPubMedCentralCrossRef

Mendoza, J. A., Baker, K. S., Moreno, M. A., et al. (2017). A Fitbit and Facebook mHealth intervention for promoting physical activity among adolescent and young adult childhood cancer survivors: A pilot study. Pediatric Blood & Cancer, 64, e26660.CrossRef

Merianos, A. L., King, K. A., Vidourek, R. A., et al. (2015). Mentoring and peer-led interventions to improve quality of life outcomes among adolescents with chronic illnesses. Applied Research in Quality of Life, 11, 1009–1023.CrossRef

Michaud, P.-A., Suris, J.-C., & Viner, R. (2007). The adolescent with a chronic condition: Epidemiology, developmental issues and health care provision. World Health Organization.

Moher, D., Liberati, A., Tetzlaff, J., et al. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Annals of Internal Medicine, 151, 264–270.PubMedCrossRef

National Institutes of Health. (2017). NIH clinical trail definition. Retrieved from https://grants.nih.gov/grants/policy/faq_clinical_trial_definition.htm#5243.

Newton, K. T., & Ashley, A. (2013). Pilot study of a web-based intervention for adolescents with type 1 diabetes. Journal of Telemedicine and Telecare, 19, 443–449.PubMedCrossRef

Nicholas, D. B., Fellner, K. D., Frank, M., et al. (2012). Evaluation of an online education and support intervention for adolescents with diabetes. Social Work in Health Care, 51, 815–827.PubMedCrossRef

Patel, R., Chang, T., Greysen, S. R., & Chopra, V. (2015). Social media use in chronic disease: A systematic review and novel taxonomy. The American Journal of Medicine, 128(12), 1335–1350.PubMedCrossRef

Perrin A. (2015). Social media usage: 2005–2015. Pew Research Center. Retrieved from http://www.pewinternet.org/2015/10/08/2015/Social-Networking-Usage-2005-2015/.

Perski, O., Blandford, A., West, R., & Michie, S. (2017). Conceptualising engagement with digital behaviour change interventions: A systematic review using principles from critical interpretive synthesis. Translational Behavioral Medicine, 7(2), 254–267.PubMedCrossRef

Petrovski, G. M., & Zivkovic, M. M. (2019). Are we ready to treat our diabetes patients using social media? Yes, we are. Journal of Diabetes Science and Technology, 13, 171–175.PubMedCrossRef

Plevinsky, J. M., & Greenley, R. N. (2014). Exploring health-related quality of life and social functioning in adolescents with inflammatory bowel diseases after attending camp oasis and participating in a Facebook group. Inflammatory Bowel Diseases, 20, 1611–1617.PubMedCrossRef

Prout Parks, E., Moore, R. H., Li, Z., et al. (2018). Assessing the feasibility of a social media to promote weight management engagement in adolescents with severe obesity: Pilot study. JMIR Research Protocols, 7, e52.PubMedPubMedCentralCrossRef

Qi, L., Liu, Q., Qi, X., Wu, N., Tang, W., & Xiong, H. (2015). Effectiveness of peer support for improving glycaemic control in patients with type 2 diabetes: A meta-analysis of randomized controlled trials. BMC Public Health, 15, 471.PubMedPubMedCentralCrossRef

Radovic, A., & Badawy, S. M. (2020). Technology use for adolescent health and wellness. Pediatrics, 145(Suppl 2), S186–S194.PubMedCrossRef

Raymond, J. K., Berget, C. L., Driscoll, K. A., et al. (2016). CoYoT1 clinic: Innovative telemedicine care model for young adults with Type 1 diabetes. Diabetes Technology & Therapeutics, 18, 385–390.CrossRef

Sanson-Daly, U. M., Wakefield, C. E., Bryant, R. A., et al. (2019). Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors. Psycho-Oncology, 28, 284–292.CrossRef

Scalzi, L. V., Hollenbeak, C. S., Mascuilli, E., et al. (2018). Improvement of medication adherence in adolescents and young adults with SLE using web-based education with and without a social media intervention, a pilot study. Pediatric Rheumatology, 16(1), 18.PubMedPubMedCentralCrossRef

Serlachius, A., Badawy, S. M., & Thabrew, H. (2020). Psychosocial challenges and opportunities for youth with chronic health conditions during the COVID-19 pandemic. JMIR Pediatrics and Parenting, 3(2), e23057.

Shah, A. C., & Badawy, S. M. (2021). Telemedicine in pediatrics: Systematic review of randomized controlled trials. JMIR Pediatric Parent., 4(1), e22696.CrossRef

Sokol, R. B., & Fisher, E. P. (2016). Peer support for the hardly reached: A systematic review. American Journal of Public Health, 106(7), e1–e8.PubMedPubMedCentralCrossRef

Stangor, C., & Walinga, J. (2010) Introduction to psychology. 1st Canadian Edition ed. Victoria BCcampus, BC Open Textbook Project.

Stinson, J., Ahola Kohut, S., Forgeron, P., et al. (2016). The iPeer2Peer Program: A pilot randomized controlled trial in adolescents with Juvenile Idiopathic Arthritis. Pediatric Rheumatology, 14(1), 1–10.CrossRef

Troncone, A., Cascella, C., Chianese, A., et al. (2019). Psychological support for adolescents with type 1 diabetes provided by adolescents with type 1 diabetes: The chat line experience. Pediatric Diabetes, 20(6), 800–810.PubMed

Villanti, A. C., Johnson, A. L., Ilakkuvan, V., Jacobs, M. A., Graham, A. L., & Rath, J. M. (2017). Social media use and access to digital technology in US young adults in 2016. Journal of Medical Internet Research, 19(6), e196.PubMedPubMedCentralCrossRef

Warshaw, H., Hodgson, L., Heyman, M., et al. (2019). The role and value of ongoing and peer support in diabetes care and education. The Diabetes Educator, 45, 569–579.PubMedCrossRef

Whittemore, R., Liberti, L. S., Jeon, S., et al. (2016). Efficacy and implementation of an Internet psychoeducational program for teens with type 1 diabetes. Pediatric Diabetes, 17, 567–575.PubMedCrossRef

Whittemore, R., Grey, M., Lindemann, E., et al. (2010). Development of an internet coping skills training program for teenagers with type 1 diabetes. CIN: Computers Informatics, Nursing, 28, 103–111.

Wilson, C., & Stock, J. (2021). “Social media comes with good and bad sides, doesn’t it?” A balancing act of the benefits and risks of social media use by young adults with long-term conditions. Health, 25(5), 515–534.PubMedCrossRef

Yi-Frazier, J. P., Cochrane, K., Mitrovich, C., et al. (2015). Using instagram as a modified application of photovoice for storytelling and sharing in adolescents with type 1 diabetes. Qualitative Health Research, 25, 1372–1382.PubMedPubMedCentralCrossRef

Titel: Technology-Based Peer Support Interventions for Adolescents with Chronic Illness: A Systematic Review
verfasst von: Patricia Berkanish
Samuel Pan
Adrienne Viola
Quinn Rademaker
Katie A. Devine
Publikationsdatum: 11.02.2022
Verlag: Springer US
Erschienen in: Journal of Clinical Psychology in Medical Settings / Ausgabe 4/2022
Print ISSN: 1068-9583
Elektronische ISSN: 1573-3572
DOI: https://doi.org/10.1007/s10880-022-09853-0

Live-Webinar "Urologie und Sexualmedizin in der Praxis"

Springer Medizin

Technology-Based Peer Support Interventions for Adolescents with Chronic Illness: A Systematic Review

Abstract

Live-Webinar "Urologie und Sexualmedizin in der Praxis"

Springer Medizin

Abstract

Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten

Weitere Artikel der Ausgabe 4/2022

The Impact of Resilience, Alexithymia and Subjectively Perceived Helplessness of Myocardial Infarction on the Risk of Posttraumatic Stress

The Effects of Physicians’ Communication and Empathy Ability on Physician–Patient Relationship from Physicians’ and Patients’ Perspectives

Modified Training Experiences for Psychology Interns and Fellows During COVID-19: Use of Telepsychology and Telesupervision by Child and Adolescent Training Programs

Incorporating Behavioral Health Providers onto Inpatient Medical Teams: A Feasibility Study

Change that Matters: A Health Behavior Change and Behavioral Health Curriculum for Primary Care

Use of the Stanford Integrative Psychosocial Assessment for Transplant as a Pre-surgical Psychological Evaluation Tool for Bariatric Surgery