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Erschienen in: Quality of Life Research 4/2014

01.05.2014

Development of the PROMIS® pediatric global health (PGH-7) measure

verfasst von: Christopher B. Forrest, Katherine B. Bevans, Ramya Pratiwadi, JeanHee Moon, Rachel E. Teneralli, Jo M. Minton, Carole A. Tucker

Erschienen in: Quality of Life Research | Ausgabe 4/2014

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Abstract

Purpose

To develop a practical, efficient, and reliable pediatric global health (PGH) measure that would be useful for clinical, quality improvement, and research applications.

Methods

Using the Patient Reported Outcome Measurement Information System (PROMIS) mixed-methods approach for item bank development, we identified an item pool that was well understood by children as young as age 8 years and tested its psychometric properties in an internet panel sample of 3,635 children 8–17 years old and 1,807 parents of children 5–17 years old.

Results

The final version of the PGH measure included 7 items assessing general, physical, mental, and social health. Four of these items had the same wording as the PROMIS adult global health measure. Internal consistency was 0.88 for the child-report form and 0.84 for the parent form; both had excellent test–retest reliability. The measures showed factor invariance across age categories. There was no differential item functioning by age, gender, race, or ethnicity. Because the measure includes the general health rating question, it is possible to estimate the PGH scale using this widely used single item.

Conclusions

The PROMIS PGH-7 measure is a brief and reliable 7-item measure of a child’s global health.
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Literatur
2.
Zurück zum Zitat Bevans, K. B., Riley, A. W., Moon, J., & Forrest, C. B. (2010). Conceptual and methodological advances in child-reported outcomes measurement. Expert Review of Pharmacoeconomics Outcomes Research, 10(4), 385–396.PubMedCentralPubMedCrossRef Bevans, K. B., Riley, A. W., Moon, J., & Forrest, C. B. (2010). Conceptual and methodological advances in child-reported outcomes measurement. Expert Review of Pharmacoeconomics Outcomes Research, 10(4), 385–396.PubMedCentralPubMedCrossRef
3.
Zurück zum Zitat Rebok, G., Riley, A., Forrest, C., Starfield, B., Green, B., Robertson, J., et al. (2001). Elementary school-aged children’s reports of their health: A cognitive interviewing study. Quality of Life Research, 10(1), 59–70.PubMedCrossRef Rebok, G., Riley, A., Forrest, C., Starfield, B., Green, B., Robertson, J., et al. (2001). Elementary school-aged children’s reports of their health: A cognitive interviewing study. Quality of Life Research, 10(1), 59–70.PubMedCrossRef
4.
Zurück zum Zitat Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7, 3.PubMedCentralPubMedCrossRef Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7, 3.PubMedCentralPubMedCrossRef
5.
Zurück zum Zitat Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45.PubMedCrossRef Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45.PubMedCrossRef
6.
Zurück zum Zitat Clarke, S.-A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health and Quality of Life Outcomes, 2, 66.PubMedCentralPubMedCrossRef Clarke, S.-A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health and Quality of Life Outcomes, 2, 66.PubMedCentralPubMedCrossRef
7.
Zurück zum Zitat DeSalvo, K. B., Bloser, N., Reynolds, K., He, J., & Muntner, P. (2006). Mortality prediction with a single general self-rated health question. A meta-analysis. Journal of General Internal Medicine, 21(3), 267–275.PubMedCentralPubMedCrossRef DeSalvo, K. B., Bloser, N., Reynolds, K., He, J., & Muntner, P. (2006). Mortality prediction with a single general self-rated health question. A meta-analysis. Journal of General Internal Medicine, 21(3), 267–275.PubMedCentralPubMedCrossRef
8.
Zurück zum Zitat DeSalvo, K. B., Fan, V. S., McDonell, M. B., & Fihn, S. D. (2005). Predicting mortality and healthcare utilization with a single question. Health Services Research, 40(4), 1234–1246.PubMedCentralPubMedCrossRef DeSalvo, K. B., Fan, V. S., McDonell, M. B., & Fihn, S. D. (2005). Predicting mortality and healthcare utilization with a single question. Health Services Research, 40(4), 1234–1246.PubMedCentralPubMedCrossRef
9.
Zurück zum Zitat Simon, A. E., Chan, K. S., & Forrest, C. B. (2008). Assessment of children’s health-related quality of life in the United States with a multidimensional index. Pediatrics, 121(1), e118–e126.PubMedCrossRef Simon, A. E., Chan, K. S., & Forrest, C. B. (2008). Assessment of children’s health-related quality of life in the United States with a multidimensional index. Pediatrics, 121(1), e118–e126.PubMedCrossRef
10.
Zurück zum Zitat Starfield, B., Riley, A. W., Green, B. F., Ensminger, M. E., Ryan, S. A., Kelleher, K., et al. (1995). The adolescent child health and illness profile. A population-based measure of health. Medical Care, 33(5), 553–566.PubMedCrossRef Starfield, B., Riley, A. W., Green, B. F., Ensminger, M. E., Ryan, S. A., Kelleher, K., et al. (1995). The adolescent child health and illness profile. A population-based measure of health. Medical Care, 33(5), 553–566.PubMedCrossRef
11.
Zurück zum Zitat Ravens-Sieberer, U., Erhart, M., Rajmil, L., Herdman, M., Auquier, P., Bruil, J., et al. (2010). Reliability, construct and criterion validity of the KIDSCREEN-10 score: A short measure for children and adolescents’ well-being and health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(10), 1487–1500.CrossRef Ravens-Sieberer, U., Erhart, M., Rajmil, L., Herdman, M., Auquier, P., Bruil, J., et al. (2010). Reliability, construct and criterion validity of the KIDSCREEN-10 score: A short measure for children and adolescents’ well-being and health-related quality of life. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(10), 1487–1500.CrossRef
12.
Zurück zum Zitat Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.PubMedCrossRef Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.PubMedCrossRef
13.
Zurück zum Zitat Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). Commentary: The patient-reported outcome measurement information system (PROMISR) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621.PubMedCentralPubMedCrossRef Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). Commentary: The patient-reported outcome measurement information system (PROMISR) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621.PubMedCentralPubMedCrossRef
14.
Zurück zum Zitat Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research, 18(7), 873–880.PubMedCentralPubMedCrossRef Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research, 18(7), 873–880.PubMedCentralPubMedCrossRef
15.
Zurück zum Zitat Revicki, D. A., Kawata, A. K., Harnam, N., Chen, W. H., Hays, R. D., & Cella, D. (2009). Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Quality of Life Research, 18(6), 783–791.PubMedCentralPubMedCrossRef Revicki, D. A., Kawata, A. K., Harnam, N., Chen, W. H., Hays, R. D., & Cella, D. (2009). Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Quality of Life Research, 18(6), 783–791.PubMedCentralPubMedCrossRef
16.
Zurück zum Zitat Riley, W. T., Rothrock, N., Bruce, B., Christodolou, C., Cook, K., Hahn, E. A., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.PubMedCentralPubMedCrossRef Riley, W. T., Rothrock, N., Bruce, B., Christodolou, C., Cook, K., Hahn, E. A., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.PubMedCentralPubMedCrossRef
17.
Zurück zum Zitat Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: Rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096.CrossRef Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: Rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096.CrossRef
18.
Zurück zum Zitat Fortune-Greeley, A. K., Flynn, K. E., Jeffery, D. D., Williams, M. S., Keefe, F. J., Reeve, B. B., et al. (2009). Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: Improvements and remaining challenges. Quality of life research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(8), 1085–1093.CrossRef Fortune-Greeley, A. K., Flynn, K. E., Jeffery, D. D., Williams, M. S., Keefe, F. J., Reeve, B. B., et al. (2009). Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: Improvements and remaining challenges. Quality of life research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(8), 1085–1093.CrossRef
19.
Zurück zum Zitat Bevans, K. B., Riley, A. W., & Forrest, C. B. (2012). Development of the healthy pathways parent-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 38(2), 173–191. Bevans, K. B., Riley, A. W., & Forrest, C. B. (2012). Development of the healthy pathways parent-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 38(2), 173–191.
20.
Zurück zum Zitat Bevans, K. B., Riley, A. W., & Forrest, C. B. (2010). Development of the healthy pathways child-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1195–1214.CrossRef Bevans, K. B., Riley, A. W., & Forrest, C. B. (2010). Development of the healthy pathways child-report scales. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1195–1214.CrossRef
22.
Zurück zum Zitat Choi, S. W., Gibbons, L. E., & Crane, P. K. (2011). Lordif: An R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations. Journal of Statistical Software, 39(8), 1–30.PubMedCentralPubMed Choi, S. W., Gibbons, L. E., & Crane, P. K. (2011). Lordif: An R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations. Journal of Statistical Software, 39(8), 1–30.PubMedCentralPubMed
23.
Zurück zum Zitat Crane, P. K., Gibbons, L. E., Narasimhalu, K., Lai, J. S., & Cella, D. (2007). Rapid detection of differential item functioning in assessment of health-related quality of life: The functional assessment of cancer therapy. Quality of Life Research, 16, 101–114.PubMedCrossRef Crane, P. K., Gibbons, L. E., Narasimhalu, K., Lai, J. S., & Cella, D. (2007). Rapid detection of differential item functioning in assessment of health-related quality of life: The functional assessment of cancer therapy. Quality of Life Research, 16, 101–114.PubMedCrossRef
24.
Zurück zum Zitat Bevans, K. B., Pratawadi, R., Tucker, C., Riley, A. W., Forrest, C. B. (Submitted manuscript). A psychometric analysis of internet panel survey data collected from children and youth. Bevans, K. B., Pratawadi, R., Tucker, C., Riley, A. W., Forrest, C. B. (Submitted manuscript). A psychometric analysis of internet panel survey data collected from children and youth.
Metadaten
Titel
Development of the PROMIS® pediatric global health (PGH-7) measure
verfasst von
Christopher B. Forrest
Katherine B. Bevans
Ramya Pratiwadi
JeanHee Moon
Rachel E. Teneralli
Jo M. Minton
Carole A. Tucker
Publikationsdatum
01.05.2014
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 4/2014
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0581-8

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