Mental disorder in Polish families: is diagnosis a predictor of caregiver’s burden?

To test whether a caregiver’s burden is associated with the patient’s psychiatric diagnosis and to find other predictors of family burden; to provide Polish data on the issue to international literature.

Of 377 eligible subjects, 141 were interviewed on admission to the mental hospital using Brief Psychiatric Rating Scale, Manchester Short Assessment of Quality of Life, Groningen Social Disability Schedule and Client’s Sociodemographic and Clinical History Inventory. Their caregivers completed the Involvement Evaluation Questionnaire (IEQ). Subjects were grouped according to ICD-10 diagnoses: schizophrenia (n = 55), depression (n = 61), and anxiety and personality disorders (n = 25). Highly aggressive, suicidal and somatically unstable patients were excluded along with patients below 18 and over 65 years. Statistics included multiple regression analysis, ANOVA, Kruskal–Wallis and chi-square tests.

Diagnostic groups differed with respect to sociodemographics, psychopathology and quality of life, but not with respect to mean level of social functioning. Despite between-group differences, the caregiver’s burden did not differ according to the diagnostic group. Of the four dimensions of burden, “worrying” and “urging” scored the highest. Majority of caregivers worried about their relative’s general health (82%), future (74%) and financial status (66%). Caregivers’ characteristics and not patients’ explained the largest proportion of the family burden variance (almost 23% for IEQ Tension). Higher burden seemed to be associated with the carer’s age, being a parent and number of hours spent weekly on caring for the ill relative. Lower burden was associated with the carers’ subjective feelings of being able to cope with problems and to pursue their own activities. Longer history of patient’s illness led to higher IEQ Tension. Polish caregivers were affected by their role in the same way as their counterparts abroad, but more of them were worried.

The caregiver’s burden seems to be independent of the patient’s diagnosis, but other factors contribute to the perceived burden, many of which are on the caregiver’s part. In Poland, the overall family burden may be attributed mostly to worrying about a mentally ill relative and his future. All caregivers may benefit from psychoeducation and family interventions usually planned for those caring for relatives with schizophrenia.