Erschienen in:
01.06.2007 | Original Paper
Accuracy of Self-Reported Personal History of Cancer in an Outpatient Breast Center
verfasst von:
Francisco J. Dominguez, Christine Lawrence, Elkan F. Halpern, Brian Drohan, Georges Grinstein, Dalliah M. Black, Barbara L. Smith, Michele A. Gadd, Michele Specht, Daniel B. Kopans, Richard H. Moore, Sherwood S. Hughes, Constance A. Roche, Kevin S. Hughes
Erschienen in:
Journal of Genetic Counseling
|
Ausgabe 3/2007
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Abstract
The self-reporting of cancer history is becoming increasingly important, as it frequently guides medical decision-making. We studied the accuracy of personal cancer history using a self-administered questionnaire, comparing the results with the Tumor Registry at our institution. Among 39,662 records, we identified 3614 women with a single cancer in the Tumor Registry who reported none or one cancer on their questionnaire. The sensitivity in self-reporting cancers was 85.7%, ranging from 92.1% for breast cancer to 42.9% for leukemia. The accuracy for breast cancer and Hodgkin's Lymphoma was significantly better than other cancers (p=0.00027, CI: 1.4–3.88). Analysis of patient's characteristics showed that Caucasians reported breast cancer more accurately than Asian/Pacific Islanders (p=0.008), and those with Jewish ancestry more accurately than non-Jewish (p=0.0435). These results will help us to improve data collection and thus improve medical decision-making.