nach oben

Journal of Public Health

Erschienen in:

16.02.2020 | Original Article

Lived experience of mothers of children with disabilities: a qualitative study of Iran

verfasst von: Javad Yoosefi lebni, Arash Ziapour, Bahar Khosravi, Zahra Rahimi khalifeh kandi

Erschienen in: Journal of Public Health | Ausgabe 5/2021

Einloggen, um Zugang zu erhalten

Abstract

Aim

Having a child with disabilities at home poses many problems and tensions for all family members to various degrees. However, mothers are the ones most at risk of issues arising from caring for children with disabilities, due to their stronger emotional relationships. Therefore, the present study aimed to investigate the lived experience of mothers of children with disabilities in Iran.

Methods

In this qualitative phenomenological study, the statistical population consisted of mothers of children with disabilities residing in Tehran, the capital city of Iran, from which 17 subjects were selected through targeted sampling and studied using in-depth interviewing. Sampling continued to the point of data saturation, and simultaneous with interviews, Colaizzi’s method was applied for data analysis.

Results

The results of the present study revealed that the lived experience of mothers of children with disabilities included two main themes, namely inter-personal experiences and social experiences. It was also demonstrated that the lived experience of mothers of children with disabilities had eight sub-themes: feelings of guilt, loss of opportunities, maternal sacrifice, worrying about the future, feelings of guilt about other children, social isolation, lack of socioeconomic support, and stigma.

Conclusion

The results of the present study provide a framework for understanding the life problems of mothers with children with disabilities, and could be used for supporting mothers emotionally and socially, and for improving their lifestyles.

Alagheband M, Aghayousefi A, Kamali M, Dehestani M, Haghiroalsadat F, Nazari T, Sheikha M (2011) Effect of coping-therapy on mental health of mothers with genetic and non genetic mentally retarded children. J Shahid Sadoughi Univ Med Sci 19:104–113

Arjmandnia A, Afrooz G, Sadati S (2008) Main causes of disabilities in school age children and adolescents urban areas and rural in Iran. J Psychol Educ 39:203–217

Bumin G, Gunal A, Tukel Ş (2008) Anxiety, depression and quality of life in mothers of disabled children. SDU Tıp Fakültesi Dergisi 15:6–11

Dyson L (2010) Unanticipated effects of children with learning disabilities on their families. Learn Disabil Q 33:43–55CrossRef

Ejiri K, Matsuzawa A (2017) Factors associated with employment of mothers caring for children with intellectual disabilities. Int J Dev Disabil 23:1–9. https://doi.org/10.1080/20473869.2017.1407862CrossRef

Fadakar Sogheh R, Abbasi S, Khaleghdoost T, Atrkar Roshan Z (2014) Family’s mentally retarded child problems under protection of welfare centers. J Holistic Nurs Mid 24(3):38–47

Fairthorne J, Jacoby P, Bourke J, de Klerk N, Leonard H (2016) Onset of maternal psychiatric disorders after the birth of a child with autism spectrum disorder: a retrospective cohort study. Autism 20:37–44. https://doi.org/10.1177/1362361314566048CrossRefPubMed

Ghaderi F, Yarahmadi Y, Ghavami B (2017) The effectiveness of storytelling on improving auditory memory of students with reading disabilities in Marivan City, Iran. Int J Pediatr 5:5515–5524. https://doi.org/10.22038/ijp.2017.23877.2019CrossRef

Hakkak HR, Taghdisi MH, Shojaezadeh D, Nedjat S, Peyman N, Taghipour A (2014) Clarifying the role of schools in tendency or lack of tendency toward smoking among teenage boys (11–14) in Mashhad, Iran. Iran Red Crescent Med J 16(1):e12848. https://doi.org/10.5812/ircmj.12848CrossRef

Hartley SL, Schultz HM (2015) Support needs of fathers and mothers of children and adolescents with autism spectrum disorder. J Autism Dev Disord 45:1636–1648. https://doi.org/10.1007/s10803-014-2318-0CrossRefPubMedPubMedCentral

Hosseini SH, 1., Rajabzadeh R, 2., Nosrati H, 3., Naseri F, 4., Toroski M, 5., Mohaddes Hakkak H, 6. & Ayati MH , 7. et al. Prevalence of medicinal herbs consumption in pregnant women referring to Bojnurd health care centers. Iran J Obstetr, Gynecol Infert 20(9): 33-40. , https://doi.org/10.22038/IJOGI.2017.9953(2017).

John A, Zapata Roblyer M (2017) Mothers parenting a child with intellectual disability in urban India: an application of the stress and resilience framework. Intellect Dev Disabil 55:325–337. https://doi.org/10.1352/1934-9556-55.5.325CrossRefPubMed

Jones L, Hastings RP, Totsika V, Keane L, Rhule N (2014) Child behavior problems and parental well-being in families of children with autism: the mediating role of mindfulness and acceptance. Am J Intellect Dev Disabil 119:171–185. https://doi.org/10.1352/1944-7558-119.2.171CrossRefPubMed

Karande S, Venkataraman R (2013) Impact of co-morbid attention-deficit/hyperactivity disorder on self-perceived health-related quality-of-life of children with specific learning disability. Indian J Psychiatry 55:52–59. https://doi.org/10.4103/0019-5545.105507CrossRefPubMedPubMedCentral

Kim BH, Kim KJ, Park IS, Lee KJ, Kim JK, Hong JJ, Lee HY (1999) A comparison of phenomenological research methodology: focused on Giorgi, Colaizzi, Van Kaam methods. J Korean Acad Nurs 29:1208–1220CrossRef

Komeyjani M (2012) Exceptional children and their mothers’ challenges. J Except Educ 2:38–44

Kuhlthau KA, Bloom S, Van Cleave J, Knapp AA, Romm D, Klatka K, Perrin JM (2011) Evidence for family-centered care for children with special health care needs: a systematic review. Acad Pediatr 11:136–143. e138. https://doi.org/10.1016/j.acap.2010.12.014CrossRefPubMed

Lee M, Emmett Gardner J (2015) A qualitative inquiry of Korean mothers’ perceptions of grandparents’ roles and support for families of children with severe disabilities. Int J Dev Disabil 61:206–221. https://doi.org/10.1179/2047387714Y.0000000053CrossRef

Marshall B, Cardon P, Poddar A, Fontenot R (2013) Does sample size matter in qualitative research?: a review of qualitative interviews in IS research. J Comput Inf Syst 54:11–22. https://doi.org/10.1080/08874417.2013.11645667CrossRef

Michaeli Manee F (2008) A comparative study on psychological well-being in mothers of elementary students with and without intellectual disabilities. J Except Child 8(1):53–69

Odom SL, Buysse V, Soukakou E (2011) Inclusion for young children with disabilities: a quarter century of research perspectives. J Early Interv 33:344–356. https://doi.org/10.1177/1053815111430094CrossRef

Rahimi S, Raheimi S, Jalali A, Jalali R (2018) Social support among women undergoing methadone maintenance treatment in Iran. J Addict Nurs 29(3):179–187. https://doi.org/10.1097/JAN.0000000000000234CrossRefPubMed

Riyahi A, Yazdani Ghadikolaee S, Kolagar M, Azami Sarukolaii A, Abdolrazaghi H, Rafiei F, Mohammadbeigi A (2017) Comparing the parenting role tasks in parents of children with mental/physical disabilities. Int J Pediatr 5:5079–5089. https://doi.org/10.22038/ijp.2017.22803.1910CrossRef

Seligman M, Darling RB (2017) Ordinary families, special children: a systems approach to childhood disability. Guilford, New York

Shosha GA (2012) Employment of Colaizzi’s strategy in descriptive phenomenology: a reflection of a researcher. Eur Sci J 8:31–43. https://doi.org/10.19044/esj.2012.v8n27p%25pCrossRef

Silverman D (2013) Doing qualitative research: a practical handbook. SAGE, London

Taghizadeh H, Asadi R (2015) Comparative analysis of quality of life in mothers of children with mental disability and mothers of normal children. J Rehab Sci 4:66–74

Theule J, Wiener J, Tannock R, Jenkins JM (2013) Parenting stress in families of children with ADHD: a meta-analysis. J Emot Behav Disord 21:3–17. https://doi.org/10.1177/1063426610387433CrossRef

Trivette CM, Dunst CJ, Hamby DW (2010) Influences of family-systems intervention practices on parent–child interactions and child development. Top Early Child Spec Educ 30:3–19. https://doi.org/10.1177/0271121410364250CrossRef

Whiting M (2014) Support requirements of parents caring for a child with disability and complex health needs. Nurs Child Young People 26:24–27. https://doi.org/10.7748/ncyp2014.05.26.4.24.e389CrossRefPubMed

Yamaoka Y, Tamiya N, Izumida N, Kawamura A, Takahashi H, Noguchi H (2016) The relationship between raising a child with a disability and the mental health of mothers compared to raising a child without disability in Japan. SSM Popul Health 2:542–548. https://doi.org/10.1016/j.ssmph.2016.08.001CrossRefPubMedPubMedCentral

Titel: Lived experience of mothers of children with disabilities: a qualitative study of Iran
verfasst von: Javad Yoosefi lebni
Arash Ziapour
Bahar Khosravi
Zahra Rahimi khalifeh kandi
Publikationsdatum: 16.02.2020
Verlag: Springer Berlin Heidelberg
Erschienen in: Journal of Public Health / Ausgabe 5/2021
Print ISSN: 2198-1833
Elektronische ISSN: 1613-2238
DOI: https://doi.org/10.1007/s10389-020-01215-0

Springer Medizin

Abstract

Aim

Methods

Results

Conclusion

Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten

Weitere Artikel der Ausgabe 5/2021

Multimorbidity and multiple causes of death in heart failure

Quality criteria/key components for high quality of diabetes management to avoid diabetes-related complications

HIV stigma reduction and health literacy education program with a cross-generational populaton in an African American faith-based church

Psychiatric disorders and associated risky behaviors among Iranian university students: results from the Iranian PDABs survey

Epidemiology of mortality induced by acute respiratory infections in infants and children under the age of 5 years and its relationship with the Human Development Index in Asia: an updated ecological study

Determinants of early age of mother at first birth in Bangladesh: a statistical analysis using a two-level multiple logistic regression model