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Graefe's Archive for Clinical and Experimental Ophthalmology

Erschienen in:

06.02.2021 | Oculoplastics and Orbit

Measuring quality of care and life in patients with an ocular prosthesis

verfasst von: Sébastien Ruiters, Stéphan De Jong, Ilse Mombaerts

Erschienen in: Graefe's Archive for Clinical and Experimental Ophthalmology | Ausgabe 7/2021

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Abstract

Purpose

In patients with an anophthalmic condition, the primary determinants of success of ocular prosthetic rehabilitation are satisfaction with care and quality of life (QoL). The aim of this study is to develop a condition-specific questionnaire as a patient-reported outcome measure for patients with an ocular prosthesis.

Methods

Observational cross-sectional prospective study. We included 100 patients (52 female, 48 male, > 18 years old) with an anophthalmic and ocular prosthetic condition existing for 2 years or more. The patients completed a pre-tested 72-item questionnaire regarding their experience on living with an ocular prosthesis in four domains of QoL: single vision and care, wearing comfort, physical appearance and motility, and psychosocial functioning. Associations with demographic factors and condition- and prosthesis-related variables were investigated with multivariate analysis. The questionnaire was reduced with principal component analysis to obtain the Global Ocular Prosthesis Score (GOPS).

Results

Satisfaction scores for each QoL domain were high with a mean visual analogue score between 7.2 and 7.6. Patients were generally satisfied with the physical appearance of the artificial eye and reported adequate psychosocial functioning. Patients described the reduced peripheral visual field and socket discharge as chief complaints. The test was reduced to a 20-item questionnaire. The mean GOPS was 70.87 (median 75.00).

Conclusions

Patients with longstanding ocular prosthetic wear are satisfied with their physical appearance and report adequate psychosocial functioning. A concise 20-item questionnaire for the anophthalmic condition is a valuable tool to quantitatively measure patient-reported outcome of ocular prosthetic rehabilitation.

Trial registration number

NCT04321382, 03/2020, retrospectively registered

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Titel: Measuring quality of care and life in patients with an ocular prosthesis
verfasst von: Sébastien Ruiters
Stéphan De Jong
Ilse Mombaerts
Publikationsdatum: 06.02.2021
Verlag: Springer Berlin Heidelberg
Erschienen in: Graefe's Archive for Clinical and Experimental Ophthalmology / Ausgabe 7/2021
Print ISSN: 0721-832X
Elektronische ISSN: 1435-702X
DOI: https://doi.org/10.1007/s00417-021-05088-1

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Abstract

Purpose

Methods

Results

Conclusions

Trial registration number

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