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19.02.2016 | Original Article

Medical advocacy among African-American women diagnosed with breast cancer: from recipient to resource

verfasst von: Yamile Molina, Ashley Scherman, Tara Hayes Constant, Bridgette Hempstead, Jacci Thompson-Dodd, Shayla Richardson, Shauna Rae Weatherby, Kerryn W. Reding, Rachel M. Ceballos

Erschienen in: Supportive Care in Cancer | Ausgabe 7/2016

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Abstract

Purpose

Medical advocacy at multiple levels (self, community/interpersonal, national/public health interest) may be helpful to address the disproportionate burden of breast cancer African-American women encounter. Little, however, is known about the interplay of medical advocacy at different levels.

Methods

We analyzed qualitative data from two studies focused on the psychosocial experiences of breast cancer among 38 African-American women living in Western Washington State.

Results

Emergent themes suggested that survivors received community/interpersonal advocacy from different members of social networks in the form of social support (appraisal, emotional, informational, instrumental). Survivors indicated that receiving this support was associated with greater self-advocacy in terms of their own care experiences, as well as greater community/interpersonal advocacy on their part as resources to other women diagnosed with breast cancer, their family, friends, and larger communities.

Conclusion

Our findings suggest that community/interpersonal advocacy, including providing different types of support, may lead to improved self-advocacy as well as health-protective impacts for the networks in which survivors are embedded. Future quantitative research is warranted to support these findings and assess how this interplay is associated with improved outcomes among this marginalized and resilient population.

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Titel: Medical advocacy among African-American women diagnosed with breast cancer: from recipient to resource
verfasst von: Yamile Molina
Ashley Scherman
Tara Hayes Constant
Bridgette Hempstead
Jacci Thompson-Dodd
Shayla Richardson
Shauna Rae Weatherby
Kerryn W. Reding
Rachel M. Ceballos
Publikationsdatum: 19.02.2016
Verlag: Springer Berlin Heidelberg
Erschienen in: Supportive Care in Cancer / Ausgabe 7/2016
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-016-3123-4

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Medical advocacy among African-American women diagnosed with breast cancer: from recipient to resource