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Erschienen in: Current Diabetes Reports 7/2017

01.07.2017 | Psychosocial Aspects (S Jaser, Section Editor)

Psychosocial Patient-Reported Outcomes in Pediatric and Adolescent Diabetes: a Review and Case Example

verfasst von: Sarah D. Corathers, Constance A. Mara, Pavan K. Chundi, Jessica C. Kichler

Erschienen in: Current Diabetes Reports | Ausgabe 7/2017

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Abstract

Purpose of Review

The purpose of this review is to define psychosocial patient-reported outcomes (PROs) relevant to pediatric and adolescent diabetes populations. Potential domains for PROs include a spectrum of emotional, behavioral, social, physical, overall health, and/or care management areas. A literature review of potential PRO measures, selection criteria, and implementation strategies including a case example will be presented.

Recent Findings

Among the pediatric, adolescent, and emerging adult populations, research indicates a relative higher risk for distress, depression, anxiety, and eating disorders as compared to peers without diabetes. Use of PRO measures can expand providers’ focus beyond glycemic control, or simply hemoglobin A1c, to better appreciate the impact of diabetes on the whole child/adolescent, and provide services that address patients’ individually identified needs, which are most salient to them.

Summary

Successful selection and implementation of psychosocial PRO measures should be designed to include pathways for real-time provider interaction with the patient and respective PRO data to guide clinical care.
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Literatur
1.
Zurück zum Zitat Liese AD, D'Agostino Jr RB, Hamman RF, Kilgo PD, Lawrence JM, et al. The burden of diabetes mellitus among US youth: prevalence estimates from the SEARCH for diabetes in youth study. Pediatrics. 2006;118(4):1510–8.CrossRefPubMed Liese AD, D'Agostino Jr RB, Hamman RF, Kilgo PD, Lawrence JM, et al. The burden of diabetes mellitus among US youth: prevalence estimates from the SEARCH for diabetes in youth study. Pediatrics. 2006;118(4):1510–8.CrossRefPubMed
2.
Zurück zum Zitat Modi AC, Pai AL, Hommel KA, Hood KK, Cortina S, Hilliard ME, et al. Pediatric self-management: a framework for research, practice, and policy. Pediatrics. 2012;129(2):e473–85.CrossRefPubMed Modi AC, Pai AL, Hommel KA, Hood KK, Cortina S, Hilliard ME, et al. Pediatric self-management: a framework for research, practice, and policy. Pediatrics. 2012;129(2):e473–85.CrossRefPubMed
3.
Zurück zum Zitat Garvey KC, Foster NC, Agarwal S, DiMeglio LA, Anderson BJ, Corathers SD, et al. Health care transition preparation and experiences in a U.S. National Sample of Young Adults With Type 1 Diabetes. Diabetes Care. 2016. Garvey KC, Foster NC, Agarwal S, DiMeglio LA, Anderson BJ, Corathers SD, et al. Health care transition preparation and experiences in a U.S. National Sample of Young Adults With Type 1 Diabetes. Diabetes Care. 2016.
4.
Zurück zum Zitat Chiang JL, Kirkman MS, Laffel LM, Peters AL. Type 1 diabetes sourcebook A. Type 1 diabetes through the life span: a position statement of the American Diabetes Association. Diabetes Care. 2014;37(7):2034–54.CrossRefPubMed Chiang JL, Kirkman MS, Laffel LM, Peters AL. Type 1 diabetes sourcebook A. Type 1 diabetes through the life span: a position statement of the American Diabetes Association. Diabetes Care. 2014;37(7):2034–54.CrossRefPubMed
5.
Zurück zum Zitat Wood JR, Miller KM, Maahs DM, Beck RW, DiMeglio LA, Libman IM, et al. Most youth with type 1 diabetes in the T1D exchange clinic registry do not meet American Diabetes Association or International Society for Pediatric and Adolescent Diabetes clinical guidelines. Diabetes Care. 2013;36(7):2035–7.CrossRefPubMedPubMedCentral Wood JR, Miller KM, Maahs DM, Beck RW, DiMeglio LA, Libman IM, et al. Most youth with type 1 diabetes in the T1D exchange clinic registry do not meet American Diabetes Association or International Society for Pediatric and Adolescent Diabetes clinical guidelines. Diabetes Care. 2013;36(7):2035–7.CrossRefPubMedPubMedCentral
6.
Zurück zum Zitat Young-Hyman D, de Groot M, Hill-Briggs F, Gonzalez JS, Hood K, Peyrot M. Psychosocial care for people with diabetes: a position statement of the American Diabetes Association. Diabetes Care. 2016;39(12):2126–40.CrossRefPubMed Young-Hyman D, de Groot M, Hill-Briggs F, Gonzalez JS, Hood K, Peyrot M. Psychosocial care for people with diabetes: a position statement of the American Diabetes Association. Diabetes Care. 2016;39(12):2126–40.CrossRefPubMed
7.
Zurück zum Zitat Iturralde E, Weissberg-Benchell J, Hood KK. Avoidant coping and diabetes-related distress: pathways to adolescents' type 1 diabetes outcomes. Health Psychol. 2016. Iturralde E, Weissberg-Benchell J, Hood KK. Avoidant coping and diabetes-related distress: pathways to adolescents' type 1 diabetes outcomes. Health Psychol. 2016.
8.
Zurück zum Zitat Lohr KN, Zebrack BJ. Using patient-reported outcomes in clinical practice: challenges and opportunities. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2009;18(1):99–107.CrossRef Lohr KN, Zebrack BJ. Using patient-reported outcomes in clinical practice: challenges and opportunities. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2009;18(1):99–107.CrossRef
10.
Zurück zum Zitat • Pyatak EA, Sequeira PA, Vigen CL, Weigensberg MJ, Wood JR, Montoya L, et al. Clinical and psychosocial outcomes of a structured transition program among young adults with type 1 diabetes. J Adolesc Health. 2017;60(2):212–8. Study of a structured transition program intervention that includes clinical, health utilization and psychosocial outcomes to evaluate effectiveness. CrossRefPubMed • Pyatak EA, Sequeira PA, Vigen CL, Weigensberg MJ, Wood JR, Montoya L, et al. Clinical and psychosocial outcomes of a structured transition program among young adults with type 1 diabetes. J Adolesc Health. 2017;60(2):212–8. Study of a structured transition program intervention that includes clinical, health utilization and psychosocial outcomes to evaluate effectiveness. CrossRefPubMed
11.
Zurück zum Zitat Rodbard HW, Peters AL, Slee A, Cao A, Traina SB, Alba M. The effect of canagliflozin, a sodium glucose cotransporter 2 inhibitor, on glycemic end points assessed by continuous glucose monitoring and patient-reported outcomes among people with type 1 diabetes. Diabetes Care. 2017;40(2):171–80.CrossRefPubMed Rodbard HW, Peters AL, Slee A, Cao A, Traina SB, Alba M. The effect of canagliflozin, a sodium glucose cotransporter 2 inhibitor, on glycemic end points assessed by continuous glucose monitoring and patient-reported outcomes among people with type 1 diabetes. Diabetes Care. 2017;40(2):171–80.CrossRefPubMed
12.
Zurück zum Zitat Tanenbaum ML, Hanes SJ, Miller KM, Naranjo D, Bensen R, Hood KK. Diabetes device use in adults with type 1 diabetes: barriers to uptake and potential intervention targets. Diabetes Care. 2017;40(2):181–7.CrossRefPubMed Tanenbaum ML, Hanes SJ, Miller KM, Naranjo D, Bensen R, Hood KK. Diabetes device use in adults with type 1 diabetes: barriers to uptake and potential intervention targets. Diabetes Care. 2017;40(2):181–7.CrossRefPubMed
13.
Zurück zum Zitat • Weissberg-Benchell J, Hood K, Laffel L, Heinemann L, Ball D, Kowalski A, et al. Toward development of psychosocial measures for automated insulin delivery. J Diabetes Sci Technol. 2016;10(3):799–801. This paper highlights the need for new psychosocial outcome measures to address the patient experience for emerging diabetes technologies including automated insulin delivery systems in order to evaluate both physiologic and psychologic metics of treatment interventions. CrossRefPubMed • Weissberg-Benchell J, Hood K, Laffel L, Heinemann L, Ball D, Kowalski A, et al. Toward development of psychosocial measures for automated insulin delivery. J Diabetes Sci Technol. 2016;10(3):799–801. This paper highlights the need for new psychosocial outcome measures to address the patient experience for emerging diabetes technologies including automated insulin delivery systems in order to evaluate both physiologic and psychologic metics of treatment interventions. CrossRefPubMed
14.
Zurück zum Zitat Sharifi A, De Bock MI, Jayawardene D, Loh MM, Horsburgh JC, Berthold CL, et al. Glycemia, treatment satisfaction, cognition, and sleep quality in adults and adolescents with type 1 diabetes when using a closed-loop system overnight versus sensor-augmented pump with low-glucose suspend function: a randomized crossover study. Diabetes Technol Ther. 2016;18(12):772–83.CrossRefPubMed Sharifi A, De Bock MI, Jayawardene D, Loh MM, Horsburgh JC, Berthold CL, et al. Glycemia, treatment satisfaction, cognition, and sleep quality in adults and adolescents with type 1 diabetes when using a closed-loop system overnight versus sensor-augmented pump with low-glucose suspend function: a randomized crossover study. Diabetes Technol Ther. 2016;18(12):772–83.CrossRefPubMed
15.
Zurück zum Zitat Standards of Medical Care in Diabetes. Summary of revisions. Diabetes Care. 2017;40(Suppl 1):S4–5. Standards of Medical Care in Diabetes. Summary of revisions. Diabetes Care. 2017;40(Suppl 1):S4–5.
16.
Zurück zum Zitat Delamater AM, de Wit M, McDarby V, Malik J, Acerini CL, International Society for P, et al. ISPAD clinical practice consensus guidelines 2014. Psychological care of children and adolescents with type 1 diabetes. Pediatr Diabetes. 2014;15(Suppl 20):232–44.CrossRefPubMed Delamater AM, de Wit M, McDarby V, Malik J, Acerini CL, International Society for P, et al. ISPAD clinical practice consensus guidelines 2014. Psychological care of children and adolescents with type 1 diabetes. Pediatr Diabetes. 2014;15(Suppl 20):232–44.CrossRefPubMed
17.
Zurück zum Zitat Peters A, Laffel L, Transitions ADA. Diabetes care for emerging adults: recommendations for transition from pediatric to adult diabetes care systems. Diabetes Care. 2011;34(11):2477–85.CrossRefPubMedPubMedCentral Peters A, Laffel L, Transitions ADA. Diabetes care for emerging adults: recommendations for transition from pediatric to adult diabetes care systems. Diabetes Care. 2011;34(11):2477–85.CrossRefPubMedPubMedCentral
18.
Zurück zum Zitat Langley GJ. The improvement guide: a practical approach to enhancing organizational performance. 2nd ed. San Francisco: Jossey-Bass; 2009. xxi, 490 p. p. Langley GJ. The improvement guide: a practical approach to enhancing organizational performance. 2nd ed. San Francisco: Jossey-Bass; 2009. xxi, 490 p. p.
19.
Zurück zum Zitat Forrest CB, Bevans KB, Pratiwadi R, Moon J, Teneralli RE, Minton JM, et al. Development of the PROMIS (R) pediatric global health (PGH-7) measure. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2014;23(4):1221–31.CrossRef Forrest CB, Bevans KB, Pratiwadi R, Moon J, Teneralli RE, Minton JM, et al. Development of the PROMIS (R) pediatric global health (PGH-7) measure. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2014;23(4):1221–31.CrossRef
20.
Zurück zum Zitat Polonsky WH, Fisher L, Earles J, Dudl RJ, Lees J, Mullan J, et al. Assessing psychosocial distress in diabetes: development of the diabetes distress scale. Diabetes Care. 2005;28(3):626–31.CrossRefPubMed Polonsky WH, Fisher L, Earles J, Dudl RJ, Lees J, Mullan J, et al. Assessing psychosocial distress in diabetes: development of the diabetes distress scale. Diabetes Care. 2005;28(3):626–31.CrossRefPubMed
21.
Zurück zum Zitat Polonsky WH, Anderson BJ, Lohrer PA, Welch G, Jacobson AM, Aponte JE, et al. Assessment of diabetes-related distress. Diabetes Care. 1995;18(6):754–60.CrossRefPubMed Polonsky WH, Anderson BJ, Lohrer PA, Welch G, Jacobson AM, Aponte JE, et al. Assessment of diabetes-related distress. Diabetes Care. 1995;18(6):754–60.CrossRefPubMed
22.
Zurück zum Zitat Cox DJ, Irvine A, Gonder-Frederick L, Nowacek G, Butterfield J. Fear of hypoglycemia: quantification, validation, and utilization. Diabetes Care. 1987;10(5):617–21.CrossRefPubMed Cox DJ, Irvine A, Gonder-Frederick L, Nowacek G, Butterfield J. Fear of hypoglycemia: quantification, validation, and utilization. Diabetes Care. 1987;10(5):617–21.CrossRefPubMed
23.
Zurück zum Zitat Kamps JL, Roberts MC, Varela RE. Development of a new fear of hypoglycemia scale: preliminary results. J Pediatr Psychol. 2005;30(3):287–91.CrossRefPubMed Kamps JL, Roberts MC, Varela RE. Development of a new fear of hypoglycemia scale: preliminary results. J Pediatr Psychol. 2005;30(3):287–91.CrossRefPubMed
24.
Zurück zum Zitat Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39(8):800–12.CrossRefPubMed Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39(8):800–12.CrossRefPubMed
25.
Zurück zum Zitat Green LB, Wysocki T, Reineck BM. Fear of hypoglycemia in children and adolescents with diabetes. J Pediatr Psychol. 1990;15(5):633–41.CrossRefPubMed Green LB, Wysocki T, Reineck BM. Fear of hypoglycemia in children and adolescents with diabetes. J Pediatr Psychol. 1990;15(5):633–41.CrossRefPubMed
26.
Zurück zum Zitat Spitzer RL, Kroenke K, Williams JB, Lowe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med. 2006;166(10):1092–7.CrossRefPubMed Spitzer RL, Kroenke K, Williams JB, Lowe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med. 2006;166(10):1092–7.CrossRefPubMed
27.
28.
Zurück zum Zitat La Greca AM, Bearman KJ. The diabetes social support questionnaire-family version: evaluating adolescents' diabetes-specific support from family members. J Pediatr Psychol. 2002;27(8):665–76.CrossRefPubMed La Greca AM, Bearman KJ. The diabetes social support questionnaire-family version: evaluating adolescents' diabetes-specific support from family members. J Pediatr Psychol. 2002;27(8):665–76.CrossRefPubMed
29.
Zurück zum Zitat Procidano ME, Heller K. Measures of perceived social support from friends and from family: three validation studies. Am J Community Psychol. 1983;11(1):1–24.CrossRefPubMed Procidano ME, Heller K. Measures of perceived social support from friends and from family: three validation studies. Am J Community Psychol. 1983;11(1):1–24.CrossRefPubMed
30.
Zurück zum Zitat Schmitt A, Gahr A, Hermanns N, Kulzer B, Huber J, Haak T. The diabetes self-management questionnaire (DSMQ): development and evaluation of an instrument to assess diabetes self-care activities associated with glycaemic control. Health Qual Life Outcomes. 2013;11:138.CrossRefPubMedPubMedCentral Schmitt A, Gahr A, Hermanns N, Kulzer B, Huber J, Haak T. The diabetes self-management questionnaire (DSMQ): development and evaluation of an instrument to assess diabetes self-care activities associated with glycaemic control. Health Qual Life Outcomes. 2013;11:138.CrossRefPubMedPubMedCentral
31.
Zurück zum Zitat Schafer LC, McCaul KD, Glasgow RE. Supportive and nonsupportive family behaviors: relationships to adherence and metabolic control in persons with type I diabetes. Diabetes Care. 1986;9(2):179–85.CrossRefPubMed Schafer LC, McCaul KD, Glasgow RE. Supportive and nonsupportive family behaviors: relationships to adherence and metabolic control in persons with type I diabetes. Diabetes Care. 1986;9(2):179–85.CrossRefPubMed
32.
Zurück zum Zitat Melamed S, Kushnir T, Shirom A. Burnout and risk factors for cardiovascular diseases. Behav Med. 1992;18(2):53–60.CrossRefPubMed Melamed S, Kushnir T, Shirom A. Burnout and risk factors for cardiovascular diseases. Behav Med. 1992;18(2):53–60.CrossRefPubMed
33.
Zurück zum Zitat Rubin RR, Peyrot M, Saudek CD. Effect of diabetes education on self-care, metabolic control, and emotional well-being. Diabetes Care. 1989;12(10):673–9.CrossRefPubMed Rubin RR, Peyrot M, Saudek CD. Effect of diabetes education on self-care, metabolic control, and emotional well-being. Diabetes Care. 1989;12(10):673–9.CrossRefPubMed
34.
Zurück zum Zitat Streisand R, Braniecki S, Tercyak KP, Kazak AE. Childhood illness-related parenting stress: the pediatric inventory for parents. J Pediatr Psychol. 2001;26(3):155–62.CrossRefPubMed Streisand R, Braniecki S, Tercyak KP, Kazak AE. Childhood illness-related parenting stress: the pediatric inventory for parents. J Pediatr Psychol. 2001;26(3):155–62.CrossRefPubMed
35.
Zurück zum Zitat Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQL Family Impact Module: preliminary reliability and validity. Health Qual Life Outcomes. 2004;2:55.CrossRefPubMedPubMedCentral Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQL Family Impact Module: preliminary reliability and validity. Health Qual Life Outcomes. 2004;2:55.CrossRefPubMedPubMedCentral
36.
Zurück zum Zitat Toobert DJ, Hampson SE, Glasgow RE. The summary of diabetes self-care activities measure: results from 7 studies and a revised scale. Diabetes Care. 2000;23(7):943–50.CrossRefPubMed Toobert DJ, Hampson SE, Glasgow RE. The summary of diabetes self-care activities measure: results from 7 studies and a revised scale. Diabetes Care. 2000;23(7):943–50.CrossRefPubMed
37.
Zurück zum Zitat Brownlee-Duffeck M, Peterson L, Simonds JF, Goldstein D, Kilo C, Hoette S. The role of health beliefs in the regimen adherence and metabolic control of adolescents and adults with diabetes mellitus. J Consult Clin Psychol. 1987;55(2):139–44.CrossRefPubMed Brownlee-Duffeck M, Peterson L, Simonds JF, Goldstein D, Kilo C, Hoette S. The role of health beliefs in the regimen adherence and metabolic control of adolescents and adults with diabetes mellitus. J Consult Clin Psychol. 1987;55(2):139–44.CrossRefPubMed
38.
Zurück zum Zitat Tran VT, Harrington M, Montori VM, Barnes C, Wicks P, Ravaud P. Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform. BMC Med. 2014;12:109.CrossRefPubMedPubMedCentral Tran VT, Harrington M, Montori VM, Barnes C, Wicks P, Ravaud P. Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform. BMC Med. 2014;12:109.CrossRefPubMedPubMedCentral
39.
Zurück zum Zitat Van Der Ven NC, Weinger K, Yi J, Pouwer F, Ader H, Van Der Ploeg HM, et al. The confidence in diabetes self-care scale: psychometric properties of a new measure of diabetes-specific self-efficacy in Dutch and US patients with type 1 diabetes. Diabetes Care. 2003;26(3):713–8.CrossRefPubMedPubMedCentral Van Der Ven NC, Weinger K, Yi J, Pouwer F, Ader H, Van Der Ploeg HM, et al. The confidence in diabetes self-care scale: psychometric properties of a new measure of diabetes-specific self-efficacy in Dutch and US patients with type 1 diabetes. Diabetes Care. 2003;26(3):713–8.CrossRefPubMedPubMedCentral
41.
Zurück zum Zitat Welch GW, Jacobson AM, Polonsky WH. The problem areas in diabetes scale. An evaluation of its clinical utility. Diabetes Care. 1997;20(5):760–6.CrossRefPubMed Welch GW, Jacobson AM, Polonsky WH. The problem areas in diabetes scale. An evaluation of its clinical utility. Diabetes Care. 1997;20(5):760–6.CrossRefPubMed
42.
Zurück zum Zitat Mulvaney SA, Hood KK, Schlundt DG, Osborn CY, Johnson KB, Rothman RL, et al. Development and initial validation of the barriers to diabetes adherence measure for adolescents. Diabetes Res Clin Pract. 2011;94(1):77–83.CrossRefPubMedPubMedCentral Mulvaney SA, Hood KK, Schlundt DG, Osborn CY, Johnson KB, Rothman RL, et al. Development and initial validation of the barriers to diabetes adherence measure for adolescents. Diabetes Res Clin Pract. 2011;94(1):77–83.CrossRefPubMedPubMedCentral
43.
Zurück zum Zitat Owens JA, Spirito A, McGuinn M. The Children's Sleep Habits Questionnaire (CSHQ): psychometric properties of a survey instrument for school-aged children. Sleep. 2000;23(8):1043–51.CrossRefPubMed Owens JA, Spirito A, McGuinn M. The Children's Sleep Habits Questionnaire (CSHQ): psychometric properties of a survey instrument for school-aged children. Sleep. 2000;23(8):1043–51.CrossRefPubMed
44.
Zurück zum Zitat Owens JA, Maxim R, Nobile C, McGuinn M, Msall M. Parental and self-report of sleep in children with attention-deficit/hyperactivity disorder. Archives of pediatrics & adolescent medicine. 2000;154(6):549–55.CrossRef Owens JA, Maxim R, Nobile C, McGuinn M, Msall M. Parental and self-report of sleep in children with attention-deficit/hyperactivity disorder. Archives of pediatrics & adolescent medicine. 2000;154(6):549–55.CrossRef
45.
Zurück zum Zitat Markowitz JT, Butler DA, Volkening LK, Antisdel JE, Anderson BJ, Laffel LM. Brief screening tool for disordered eating in diabetes: internal consistency and external validity in a contemporary sample of pediatric patients with type 1 diabetes. Diabetes Care. 2010;33(3):495–500.CrossRefPubMed Markowitz JT, Butler DA, Volkening LK, Antisdel JE, Anderson BJ, Laffel LM. Brief screening tool for disordered eating in diabetes: internal consistency and external validity in a contemporary sample of pediatric patients with type 1 diabetes. Diabetes Care. 2010;33(3):495–500.CrossRefPubMed
46.
Zurück zum Zitat Rose M, Bezjak A. Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2009;18(1):125–36.CrossRef Rose M, Bezjak A. Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2009;18(1):125–36.CrossRef
47.
Zurück zum Zitat Almario CV, Chey WD, Khanna D, Mosadeghi S, Ahmed S, Afghani E, et al. Impact of National Institutes of Health Gastrointestinal PROMIS measures in clinical practice: results of a multicenter controlled trial. Am J Gastroenterol. 2016;111(11):1546–56.CrossRefPubMedPubMedCentral Almario CV, Chey WD, Khanna D, Mosadeghi S, Ahmed S, Afghani E, et al. Impact of National Institutes of Health Gastrointestinal PROMIS measures in clinical practice: results of a multicenter controlled trial. Am J Gastroenterol. 2016;111(11):1546–56.CrossRefPubMedPubMedCentral
48.
Zurück zum Zitat Greenhalgh J, Long AF, Flynn R. The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? Soc Sci Med. 2005;60(4):833–43.CrossRefPubMed Greenhalgh J, Long AF, Flynn R. The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? Soc Sci Med. 2005;60(4):833–43.CrossRefPubMed
49.
Zurück zum Zitat de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial. Diabetes Care. 2008;31(8):1521–6.CrossRefPubMedPubMedCentral de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial. Diabetes Care. 2008;31(8):1521–6.CrossRefPubMedPubMedCentral
50.
Zurück zum Zitat de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: benefits do not sustain in routine practice. Pediatr Diabetes. 2010;11(3):175–81.CrossRefPubMed de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, et al. Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: benefits do not sustain in routine practice. Pediatr Diabetes. 2010;11(3):175–81.CrossRefPubMed
51.
Zurück zum Zitat Snyder CF, Aaronson NK, Choucair AK, Elliott TE, Greenhalgh J, Halyard MY, et al. Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation. 2012;21(8):1305–14.CrossRef Snyder CF, Aaronson NK, Choucair AK, Elliott TE, Greenhalgh J, Halyard MY, et al. Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation. 2012;21(8):1305–14.CrossRef
52.
Zurück zum Zitat Corathers SD, Kichler J, Jones NH, Houchen A, Jolly M, Morwessel N, et al. Improving depression screening for adolescents with type 1 diabetes. Pediatrics. 2013;132(5):e1395–402.CrossRefPubMed Corathers SD, Kichler J, Jones NH, Houchen A, Jolly M, Morwessel N, et al. Improving depression screening for adolescents with type 1 diabetes. Pediatrics. 2013;132(5):e1395–402.CrossRefPubMed
53.
Zurück zum Zitat Kovacs M, Staff M. Children’s Depression Inventory (CDI): technical manual update. Multi-Health Systemc. Inc: North Tonawanda; 2003. Kovacs M, Staff M. Children’s Depression Inventory (CDI): technical manual update. Multi-Health Systemc. Inc: North Tonawanda; 2003.
54.
Zurück zum Zitat Allgaier A-K, Frühe B, Pietsch K, Saravo B, Baethmann M, Schulte-Körne G. Is the Children's Depression Inventory Short version a valid screening tool in pediatric care? A comparison to its full-length version. J Psychosom Res. 2012;73(5):369–74.CrossRefPubMed Allgaier A-K, Frühe B, Pietsch K, Saravo B, Baethmann M, Schulte-Körne G. Is the Children's Depression Inventory Short version a valid screening tool in pediatric care? A comparison to its full-length version. J Psychosom Res. 2012;73(5):369–74.CrossRefPubMed
55.
Zurück zum Zitat Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med Care. 2001;39(8):800–12.CrossRefPubMed Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med Care. 2001;39(8):800–12.CrossRefPubMed
56.
Zurück zum Zitat Varni JW, Bendo CB, Shulman RJ, Self MM, Nurko S, Franciosi JP, et al. Interpretability of the PedsQL gastrointestinal symptoms scales and gastrointestinal worry scales in pediatric patients with functional and organic gastrointestinal diseases. J Pediatr Psychol. 2015;40(6):591–601.CrossRefPubMedPubMedCentral Varni JW, Bendo CB, Shulman RJ, Self MM, Nurko S, Franciosi JP, et al. Interpretability of the PedsQL gastrointestinal symptoms scales and gastrointestinal worry scales in pediatric patients with functional and organic gastrointestinal diseases. J Pediatr Psychol. 2015;40(6):591–601.CrossRefPubMedPubMedCentral
57.
Zurück zum Zitat Varni JW, Curtis BH, Abetz LN, Lasch KE, Piault EC, Zeytoonjian AA. Content validity of the PedsQL 3.2 Diabetes Module in newly diagnosed patients with type 1 diabetes mellitus ages 8–45. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2013;22(8):2169–81.CrossRef Varni JW, Curtis BH, Abetz LN, Lasch KE, Piault EC, Zeytoonjian AA. Content validity of the PedsQL 3.2 Diabetes Module in newly diagnosed patients with type 1 diabetes mellitus ages 8–45. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2013;22(8):2169–81.CrossRef
58.
Zurück zum Zitat Hilliard ME, Lawrence JM, Modi AC, Anderson A, Crume T, Dolan LM, et al. Identification of minimal clinically important difference scores of the PedsQL in children, adolescents, and young adults with type 1 and type 2 diabetes. Diabetes Care. 2013;36(7):1891–7.CrossRefPubMedPubMedCentral Hilliard ME, Lawrence JM, Modi AC, Anderson A, Crume T, Dolan LM, et al. Identification of minimal clinically important difference scores of the PedsQL in children, adolescents, and young adults with type 1 and type 2 diabetes. Diabetes Care. 2013;36(7):1891–7.CrossRefPubMedPubMedCentral
59.
Zurück zum Zitat Hilliard ME, Herzer M, Dolan LM, Hood KK. Psychological screening in adolescents with type 1 diabetes predicts outcomes one year later. Diabetes Res Clin Pract. 2011;94(1):39–44.CrossRefPubMedPubMedCentral Hilliard ME, Herzer M, Dolan LM, Hood KK. Psychological screening in adolescents with type 1 diabetes predicts outcomes one year later. Diabetes Res Clin Pract. 2011;94(1):39–44.CrossRefPubMedPubMedCentral
60.
Zurück zum Zitat • Santana MJ, Haverman L, Absolom K, Takeuchi E, Feeny D, Grootenhuis M, et al. Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation. 2015;24(7):1707–18. The authors explore 3 different implementation strategies for adult learning of how to train clinicians to react to patient reported data. These variable settings create a framework for a more generalizable application of use of PRO measures in practice. CrossRef • Santana MJ, Haverman L, Absolom K, Takeuchi E, Feeny D, Grootenhuis M, et al. Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation. 2015;24(7):1707–18. The authors explore 3 different implementation strategies for adult learning of how to train clinicians to react to patient reported data. These variable settings create a framework for a more generalizable application of use of PRO measures in practice. CrossRef
Metadaten
Titel
Psychosocial Patient-Reported Outcomes in Pediatric and Adolescent Diabetes: a Review and Case Example
verfasst von
Sarah D. Corathers
Constance A. Mara
Pavan K. Chundi
Jessica C. Kichler
Publikationsdatum
01.07.2017
Verlag
Springer US
Erschienen in
Current Diabetes Reports / Ausgabe 7/2017
Print ISSN: 1534-4827
Elektronische ISSN: 1539-0829
DOI
https://doi.org/10.1007/s11892-017-0872-5

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