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Health and Quality of Life Outcomes

Ausgabe 1/2013

Inhalt (218 Artikel)

Open Access Research

Validity and responsiveness of the EQ-5D in assessing and valuing health status in patients with somatoform disorders

Christian Brettschneider, Hans-Helmut König, Wolfgang Herzog, Claudia Kaufmann, Rainer Schaefert, Alexander Konnopka

Open Access Research

Psychometric properties of the Spanish version of the mindful attention awareness scale (MAAS) in patients with fibromyalgia

Ausias Cebolla, Juan V Luciano, Marcelo Piva DeMarzo, Mayte Navarro-Gil, Javier Garcia Campayo

Open Access Research

Assessment of health-related quality of life in Turkish patients with facial prostheses

Arzu Atay, Kadriye Peker, Yumushan Günay, Servet Ebrinç, Banu Karayazgan, Ömer Uysal

Open Access Short report

Cross-cultural adaptation and validation of a Brazilian version of an instrument to assess impairments related to oral functioning of people with Down syndrome

Karina Bonanato, Isabela A Pordeus, Thiago Compart, Ana Cristina Oliveira, Paul J Allison, Saul M Paiva

Open Access Research

Effect on health-related quality of life of a multimodal physiotherapy program in patients with chronic musculoskeletal disorders

Antonio Ignacio Cuesta-Vargas, Manuel González-Sánchez, María Jesús Casuso-Holgado

Open Access Research

Temperament and character properties of primary focal hyperhidrosis patients

Mehmet Ak, Didem Dincer, Bikem Haciomeroglu, Suleyman Akarsu, Alper Cinar, Nergis Lapsekili

Open Access Research

Does quality of life assessment in palliative care look like a complex screening program?

Gianluca Catania, Massimo Costantini, Monica Beccaro, Annamaria Bagnasco, Loredana Sasso

Open Access Research

Improving valuation sampling of EQ-5D health states

Adrian Bagust

Open Access Research

Interpreting one oral health impact profile point

Daniel R Reissmann, Ira Sierwald, Guido Heydecke, Mike T John

Open Access Research

Are treatment benefits in neuropathic pain reflected in the self assessment of treatment questionnaire?

Ingela Wiklund, Stefan Holmstrom, Malcolm Stoker, Kathleen W Wyrwich, Mary Devine

Open Access Research

Quality of life as measured by the short-form 36 (SF-36) questionnaire in patients with early systemic sclerosis and undifferentiated connective tissue disease

Michele Iudici, Giovanna Cuomo, Serena Vettori, Manuela Avellino, Gabriele Valentini

Open Access Research

Impact of malocclusion on oral health related quality of life in young people

Yaghma Masood, Mohd Masood, Nurul Nadiah Binti Zainul, Nurhuda Binti Abdul Alim Araby, Saba Fouad Hussain, Tim Newton

Open Access Research

Promising insights into the health related quality of life for children with severe obesity

David T Selewski, David N Collier, Jackie MacHardy, Heather E Gross, Edward M Pickens, Alan W Cooper, Selam Bullock, Marian F Earls, Keeley J Pratt, Kelli Scanlon, Jonathan D McNeill, Kassandra L Messer, Yee Lu, David Thissen, Darren A DeWalt, Debbie S Gipson

Open Access Research

Development of the Adult PedsQL™ Neurofibromatosis Type 1 Module: Initial Feasibility, Reliability and Validity

Kavitha Nutakki, Cynthia M Hingtgen, Patrick Monahan, James W Varni, Nancy L Swigonski

Open Access Research

Management of adult attention deficit hyperactivity disorder in UK primary care: a survey of general practitioners

Suzanne McCarthy, Lynda Wilton, Macey Murray, Paul Hodgkins, Philip Asherson, Ian CK Wong

Open Access Research

Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study

Debbie S Gipson, David T Selewski, Susan F Massengill, Larysa Wickman, Kassandra L Messer, Emily Herreshoff, Corinna Bowers, Maria E Ferris, John D Mahan, Larry A Greenbaum, Jackie MacHardy, Gaurav Kapur, Deepa H Chand, Jens Goebel, Gina Marie Barletta, Denis Geary, David B Kershaw, Cynthia G Pan, Rasheed Gbadegesin, Guillermo Hidalgo, Jerome C Lane, Jeffrey D Leiser, Brett W Plattner, Peter X Song, David Thissen, Yang Liu, Heather E Gross, Darren A DeWalt

Open Access Research

Psychometric validation of the visual function questionnaire-25 in patients with diabetic macular edema

Andrew J Lloyd, Jane Loftus, Michelle Turner, Ginny Lai, Andreas Pleil

Open Access Research

Psychometric properties of the Fatigue Severity Scale in obese patients

Franco M Impellizzeri, Fiorenza Agosti, Alessandra De Col, Alessandro Sartorio

Open Access Research

Mapping health outcome measures from a stroke registry to EQ-5D weights

Ola Ghatnekar, Marie Eriksson, Eva-Lotta Glader

Open Access Research

Health related quality of life after gastric bypass or intensive lifestyle intervention: a controlled clinical study

Tor Ivar Karlsen, Randi Størdal Lund, Jo Røislien, Serena Tonstad, Gerd Karin Natvig, Rune Sandbu, Jøran Hjelmesæth

Open Access Research

Impact on quality of life in teachers after educational actions for prevention of voice disorders: a longitudinal study

Raquel Aparecida Pizolato, Maria Inês Beltrati Cornacchioni Rehder, Marcelo de Castro Meneghim, Glaucia Maria Bovi Ambrosano, Fábio Luiz Mialhe, Antonio Carlos Pereira

Open Access Short report

Cross-cultural adaptation and psychometric properties of the Brazilian version of the scale of oral health outcomes for 5-year-old children (SOHO-5)

Jenny Abanto, Georgios Tsakos, Saul Martins Paiva, Daniela Goursand, Daniela Prócida Raggio, Marcelo Bönecker

Open Access Research

Quality of life in women undergoing urinary diversion for bladder cancer: results of a multicenter study among long-term disease-free survivors

Mauro Gacci, Omar Saleh, Tommaso Cai, John L Gore, Carolina D’Elia, Andrea Minervini, Lorenzo Masieri, Claudia Giannessi, Michele Lanciotti, Virginia Varca, Alchiede Simonato, Sergio Serni, Giorgio Carmignani, Marco Carini

Open Access Research

Screening for anxiety disorders in patients with coronary artery disease

Adomas Bunevicius, Margarita Staniute, Julija Brozaitiene, Victor JM Pop, Julius Neverauskas, Robertas Bunevicius

Open Access Research

Responsiveness of the MOS-HIV and EQ-5D in HIV-infected adults receiving antiretroviral therapies

Albert W Wu, Kristin A Hanson, Gale Harding, Seema Haider, Margaret Tawadrous, Alexandra Khachatryan, Chris L Pashos, Kit N Simpson

Open Access Research

Quality of life in overweight and obese young Chinese children: a mixed-method study

Christine Mei Sheung Chan, Wen-Chung Wang

Open Access Review

Health-related quality of life and economic impact of urinary incontinence due to detrusor overactivity associated with a neurologic condition: a systematic review

Crisanta I Tapia, Kristin Khalaf, Karina Berenson, Denise Globe, Michael Chancellor, Lesley K Carr

Open Access Research

Does the care dependency of nursing home residents influence their health-related quality of life?-A cross-sectional study

Manuela Tabali, Thomas Ostermann, Elke Jeschke, Theo Dassen, Cornelia Heinze

Open Access Research

Quality of life and the related factors in spouses of veterans with chronic spinal cord injury

Mohammad Hossein Ebrahimzadeh, Bibi-Soheila Shojaei, Farideh Golhasani-Keshtan, Seyed Hossein Soltani-Moghaddas, Asieh Sadat Fattahi, Seyed Mahdi Mazloumi

Open Access Research

Treatment satisfaction is associated with improved quality of life in patients treated with inhaled treprostinil for pulmonary arterial hypertension

Hubert Chen, Erika B Rosenzweig, S Karl Gotzkowsky, Carl Arneson, Andrew C Nelsen, Robert C Bourge

Open Access Research

Cross cultural evaluation of the Warwick-Edinburgh mental well-being scale (WEMWBS) -a mixed methods study

Frances Taggart, Tim Friede, Scott Weich, Aileen Clarke, Mark Johnson, Sarah Stewart-Brown

Open Access Research

Adolescents with Type 1 Diabetes: parental perceptions of child health and family functioning and their relationship to adolescent metabolic control

Susan M Moore, Naomi J Hackworth, Victoria E Hamilton, Elisabeth P Northam, Fergus J Cameron

Open Access Short report

Construct validity of the PROMIS® sexual function and satisfaction measures in patients with cancer

Kathryn E Flynn, Bryce B Reeve, Li Lin, Jill M Cyranowski, Deborah Watkins Bruner, Kevin P Weinfurt

Open Access Research

Changes in quality of life into adulthood after very preterm birth and/or very low birth weight in the Netherlands

Afra van Lunenburg, Sylvia M van der Pal, Paula van Dommelen, Karin M van der Pal – de Bruin, Jack Bennebroek Gravenhorst, Gijsbert HW Verrips

Open Access Research

Validation of the mothers object relations scales in 2–4 year old children and comparison with the child–parent relationship scale

Douglas E Simkiss, Fiona MacCallum, Emma EY Fan, John M Oates, Peter K Kimani, Sarah Stewart-Brown

Open Access Research

HIV-related stigma and physical symptoms have a persistent influence on health-related quality of life in Australians with HIV infection

Susan Herrmann, Elizabeth McKinnon, Noel B Hyland, Christophe Lalanne, Simon Mallal, David Nolan, Olivier Chassany, Martin Duracinsky

Open Access Research

Quality of life among parents of children with phenylketonuria (PKU)

Astrid Fidika, Christel Salewski, Lutz Goldbeck

Open Access Research

A validation of the ICECAP-O in a population of post-hospitalized older people in the Netherlands

Peter Makai, Marc A Koopmanschap, Werner BF Brouwer, Anna AP Nieboer

Open Access Research

Mapping the EQ-5D index by UPDRS and PDQ-8 in patients with Parkinson’s disease

Judith Dams, Jens Klotsche, Bernhard Bornschein, Jens P Reese, Monika Balzer-Geldsetzer, Yaroslav Winter, Anette Schrag, Andrew Siderowf, Wolfgang H Oertel, Günther Deuschl, Uwe Siebert, Richard Dodel

Open Access Research

Validation of a Spanish version of the psychological inflexibility in pain scale (PIPS) and an evaluation of its relation with acceptance of pain and mindfulness in sample of persons with fibromyalgia

Baltasar Rodero, Joao Paulo Pereira, Maria Cruz Pérez-Yus, Benigno Casanueva, Antonio Serrano-Blanco, Maria J Rodrigues da Cunha Ribeiro, Juan V Luciano, Javier Garcia-Campayo

Open Access Letter to the Editor

A response to Gadarowski’s letter to the editor

Isabella Piva, Angela Graziano, Giuseppe Lo Monte, Stefano Caracciolo, Roberto Marci

Open Access Study protocol

A pilot study of yoga as self-care for arthritis in minority communities

Kimberly R Middleton, Michael M Ward, Steffany Haaz, Sinthujah Velummylum, Alice Fike, Ana T Acevedo, Gladys Tataw-Ayuketah, Laura Dietz, Barbara B Mittleman, Gwenyth R Wallen

Open Access Research

Quality of life of older frail persons receiving a post-discharge program

Tracy A Comans, Nancye M Peel, Leonard C Gray, Paul A Scuffham

Open Access Research

Construct validity of the Assessment of Quality of Life - 6D (AQoL-6D) in community samples

Joanne Allen, Kerry J Inder, Terry J Lewin, John R Attia, Brian J Kelly

Open Access Research

A factor confirmation and convergent validity of the “areas of worklife scale” (AWS) to Spanish translation

Santiago Gascón, Michael P Leiter, Naomi Stright, Miguel A Santed, Jesús Montero-Marín, Eva Andrés, Angela Asensio-Martínez, Javier García-Campayo

Open Access Research

Association of psychological status and patient-reported physical outcome measures in joint arthroplasty: a lack of divergent validity

Johannes M Giesinger, Markus S Kuster, Henrik Behrend, Karlmeinrad Giesinger

Open Access Research

Patient-reported outcomes in adequately treated hypothyroidism – insights from the German versions of ThyDQoL, ThySRQ and ThyTSQ

Eva M Quinque, Arno Villringer, Juergen Kratzsch, Stefan Karger

Open Access Research

Long-term effects of sulfur mustard on civilians’ mental health 20 years after exposure (The Sardasht-Iran Cohort Study)

Rasoul Roshan, Parvin Rahnama, Zeinab Ghazanfari, Ali Montazeri, Mohammad Reza Soroush, Mohammad Mehdi Naghizadeh, Mahdiyeh Melyani, Azadeh Tavoli, Tooba Ghazanfari

Open Access Short report

What is the relevance of quality of life assessment for patients with attention impairment?

Karine Baumstarck, Mohamed Boucekine, Irina Klemina, Françoise Reuter, Valérie Aghababian, Anderson Loundou, Jean Pelletier, Pascal Auquier

Open Access Erratum

Erratum to: systematic review: do patient expectations influence treatment outcomes in total knee and total hip arthroplasty?

Tsjitske M Haanstra, Tobias van den Berg, Raymond W Ostelo, Rudolf W Poolman, Elise P Jansma, Pim Cuijpers, Henrica C W de Vet

Open Access Research

Factors associated with health-related quality of life among Indian women in mining and agriculture

Melba Sheila D’Souza, Subrahmanya Nairy Karkada, Ganesha Somayaji

Open Access Research

German version of the whiplash disability questionnaire: reproducibility and responsiveness

Michael McCaskey, Thierry Ettlin, Corina Schuster

Open Access Research

Health-related quality of life and life satisfaction in colorectal cancer survivors: trajectories of adjustment

Jeff Dunn, Shu Kay Ng, William Breitbart, Joanne Aitken, Pip Youl, Peter D Baade, Suzanne K Chambers

Open Access Research

Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form

Eva-Lena Einberg, Ibadete Kadrija, David Brunt, Jens M Nygren, Petra Svedberg

Open Access Research

German translation, cross-cultural adaptation and validation of the whiplash disability questionnaire

Corina Schuster, Michael McCaskey, Thierry Ettlin

Open Access Research

Effects of a rapid response system on quality of life: a prospective cohort study in surgical patients before and after implementing a rapid response system

Friede Simmes, Lisette Schoonhoven, Joke Mintjes, Bernard G Fikkers, Johannes G van der Hoeven

Open Access Research

Performance of the Dutch SF-36 version 2 as a measure of health-related quality of life in patients with rheumatoid arthritis

Peter M ten Klooster, Harald E Vonkeman, Erik Taal, Liseth Siemons, Lidy Hendriks, Alphons J L de Jong, Ellen A J Dutmer, Piet L C M van Riel, Mart A F J van de Laar

Open Access Research

A comparison of four different approaches to measuring health utility in depressed patients

Nicholas Turner, John Campbell, Tim J Peters, Nicola Wiles, Sandra Hollinghurst

Open Access Research

Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument

Monika Bullinger, Julia Quitmann, Mick Power, Michael Herdman, Emmanuelle Mimoun, Kendra DeBusk, Eva Feigerlova, Carolina Lunde, Maria Dellenmark-Blom, Dolores Sanz, Anja Rohenkohl, Andreas Pleil, Hartmut Wollmann, John E Chaplin

Open Access Research

Potential of patient-reported outcomes as nonprimary endpoints in clinical trials

Ari Gnanasakthy, Sandra Lewis, Marci Clark, Margaret Mordin, Carla DeMuro

Open Access Short report

Cross-cultural French adaptation and validation of the Impact On Family Scale (IOFS)

Raphaël Boudas, Jérémie Jégu, Bruno Grollemund, Elvire Quentel, Anne Danion-Grilliat, Michel Velten

Open Access Research

The Caregiver Burden Questionnaire for Heart Failure (CBQ-HF): face and content validity

Louise Humphrey, Karoly Kulich, Celine Deschaseaux, Steven Blackburn, Laura Maguire, Anna Strömberg

Open Access Research

Factors associated with health-related quality of life in renal transplant recipients: results of a national survey in France

Stéphanie Gentile, Davy Beauger, Elodie Speyer, Elisabeth Jouve, Bertrand Dussol, Christian Jacquelinet, Serge Briançon

Open Access Research

Health-related quality of life associated with daytime and nocturnal hypoglycaemic events: a time trade-off survey in five countries

Marc Evans, Kamlesh Khunti, Muhammad Mamdani, Claus B Galbo-Jørgensen, Jens Gundgaard, Mette Bøgelund, Stewart Harris

Open Access Research

Using the bootstrap to establish statistical significance for relative validity comparisons among patient-reported outcome measures

Nina Deng, Jeroan J Allison, Hua Julia Fang, Arlene S Ash, John E Ware Jr

Open Access Research

Predictors of quality of life in a longitudinal study of users with severe mental disorders

Marie-Josée Fleury, Guy Grenier, Jean-Marie Bamvita, Jacques Tremblay, Norbert Schmitz, Jean Caron

Open Access Research

Assessment of perceived health status among primary care patients in Southern Italy: findings from a cross-sectional survey

Benedetto Manuti, Paolo Rizza, Claudia Pileggi, Aida Bianco, Maria Pavia

Open Access Research

‘Peace’ and ‘life worthwhile’ as measures of spiritual well-being in African palliative care: a mixed-methods study

Lucy Selman, Peter Speck, Marjolein Gysels, Godfrey Agupio, Natalya Dinat, Julia Downing, Liz Gwyther, Thandi Mashao, Keletso Mmoledi, Tony Moll, Lydia Mpanga Sebuyira, Barbara Ikin, Irene J Higginson, Richard Harding

Open Access Research

Scalability and internal consistency of the German version of the dementia-specific quality of life instrument QUALIDEM in nursing homes – a secondary data analysis

Martin Nikolaus Dichter, Olga Dortmann, Margareta Halek, Gabriele Meyer, Daniela Holle, Johanna Nordheim, Sabine Bartholomeyczik

Open Access Research

The impact of socio-economic status on health related quality of life for children and adolescents with heart disease

Amy Cassedy, Dennis Drotar, Richard Ittenbach, Shawna Hottinger, Jo Wray, Gil Wernovsky, Jane W Newburger, Lynn Mahony, Kathleen Mussatto, Mitchell I Cohen, Bradley S Marino

Open Access Research

Gender differences in health-related quality of life of Australian chronically-ill adults: patient and physician characteristics do matter

Upali W Jayasinghe, Mark F Harris, Jane Taggart, Bettina Christl, Deborah A Black

Open Access Research

Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

Michele Peters, Crispin Jenkinson, Helen Doll, E Diane Playford, Ray Fitzpatrick

Open Access Research

Health-related quality of life and physical functioning in people living with HIV/AIDS: a case–control design

Chidozie Emmanuel Mbada, Olaniyi Onayemi, Yewande Ogunmoyole, Olubusola Esther Johnson, Christopher O Akosile

Open Access Short report

Assessing health status and quality of life of Q-fever patients: the Nijmegen Clinical Screening Instrument versus the Short Form 36

Joris AF van Loenhout, W John Paget, Gerwin W Sandker, Jeannine LA Hautvast, Koos van der Velden, Jan H Vercoulen

Open Access Research

The development and validation of the major life changing decision profile (MLCDP)

Zaheer U Bhatti, Sam S Salek, Charlotte E Bolton, Lindsay George, Julian P Halcox, Sharon M Jones, Ian R Ketchell, Richard H Moore, Ramsey Sabit, Vincent Piguet, Andrew Y Finlay

Open Access Research

Utility of brief questionnaires of health-related quality of life (Airways Questionnaire 20 and Clinical COPD Questionnaire) to predict exacerbations in patients with asthma and COPD

Marina Blanco-Aparicio, Isabel Vázquez, Salvador Pita-Fernández, Sonia Pértega-Diaz, Héctor Verea-Hernando

Open Access Research

Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: the PU-QOL instrument

Claudia Gorecki, Julia M Brown, Stefan Cano, Donna L Lamping, Michelle Briggs, Susanne Coleman, Carol Dealey, Elizabeth McGinnis, Andrea E Nelson, Nikki Stubbs, Lyn Wilson, Jane Nixon

Open Access Research

The development of a patient-reported outcome measure for assessing nighttime symptoms of chronic obstructive pulmonary disease

Asha Hareendran, Andrew C Palsgrove, Michelle Mocarski, Michael L Schaefer, Juliana Setyawan, Robyn Carson, Barry Make

Open Access Research

Parent–child agreement on health-related quality of life (HRQOL): a longitudinal study

Luis Rajmil, Amanda Rodríguez López, Sílvia López-Aguilà, Jordi Alonso

Open Access Research

Development of a new tool for assessing Health-Related Quality of Life in patients with primary hyperparathyroidism

Susan M Webb, Manel Puig-Domingo, Carles Villabona, Manuel Muñoz-Torres, Jordi Farrerons, Xavier Badia

Open Access Research

Validity and reliability of the Malay version of sleep apnea quality of life index – preliminary results

Norkhafizah Saddki, Hazama Mohamad, Nor Idayu Mohd Yusof, Dasmawati Mohamad, Norehan Mokhtar, Wan Zaripah Wan Bakar

Open Access Review

Patient-reported outcomes in meta-analyses – Part 1: assessing risk of bias and combining outcomes

Bradley C Johnston, Donald L Patrick, Jason W Busse, Holger J Schünemann, Arnav Agarwal, Gordon H Guyatt

Open Access Research

Absence of social desirability bias in the evaluation of chronic disease self-management interventions

Sandra Nolte, Gerald R Elsworth, Richard H Osborne

Open Access Research

Quality of life and BMI changes in youth participating in an integrated pediatric obesity treatment program

Keeley J Pratt, Suzanne Lazorick, Angela L Lamson, Andrada Ivanescu, David N Collier

Open Access Study protocol

Diagnostic and treatment delay, quality of life and satisfaction with care in colorectal cancer patients: a study protocol

Salvador Pita-Fernández, Sonia Pértega-Díaz, Beatriz López-Calviño, Teresa Seoane-Pillado, Esther Gago-García, Rocío Seijo-Bestilleiro, Paloma González-Santamaría, Alejandro Pazos-Sierra

Open Access Research

Measurement precision of the disability for back pain scale-by applying Rasch analysis

Yen-Mou Lu, Yuh-Yih Wu, Ching-Lin Hsieh, Chih-Lung Lin, Shiuh-Lin Hwang, Kuang-I Cheng, Yi-Jing Lue

Open Access Research

Health-related quality of life and social support among women treated for abortion complications in western Uganda

Solomon J Lubinga, Gillian A Levine, Alisa M Jenny, Joseph Ngonzi, Peter Mukasa-Kivunike, Andy Stergachis, Joseph B Babigumira

Open Access Research

Indigenous injury outcomes: life satisfaction among injured Māori in New Zealand three months after injury

Emma H Wyeth, Sarah Derrett, Brendan Hokowhitu, Ari Samaranayaka

Open Access Research

The benefits of psychosocial interventions for cancer patients undergoing radiotherapy

Zhen Guo, Hua-ying Tang, Hao Li, Sheng-kui Tan, Kai-hua Feng, Yin-chun Huang, Qing Bu, Wei Jiang

Open Access Research

Quality of life in China rural-to-urban female migrant factory workers: a before-and-after study

Chunyan Zhu, Qingshan Geng, Hongling Yang, Li Chen, Xianhua Fu, Wei Jiang

Open Access Research

The impact of podoconiosis on quality of life in Northern Ethiopia

Elizabeth Mousley, Kebede Deribe, Abreham Tamiru, Gail Davey

Open Access Research

Health-related quality of life of children and adolescents with mental disorders

Katharina Weitkamp, Judith K Daniels, Georg Romer, Silke Wiegand-Grefe

Open Access Research

Health-related quality of life and survival in Chinese patients with chronic liver disease

Feng Gao, Ru Gao, Guang Li, Zhan Min Shang, Jian Yu Hao

Open Access Research

Responsiveness of the Multiple Sclerosis International Quality of Life questionnaire to disability change: a longitudinal study

Karine Baumstarck, Helmut Butzkueven, Oscar Fernández, Peter Flachenecker, Sergio Stecchi, Egemen Idiman, Jean Pelletier, Mohamed Boucekine, Pascal Auquier

Open Access Research

Testing the McSad depression specific classification system in patients with somatic conditions: validity and performance

Katerina Papageorgiou, Karin M Vermeulen, Maya J Schroevers, Erik Buskens, Adelita V Ranchor

Open Access Research

Relationship between health-related quality of life, and acute care re-admissions and survival in older adults with chronic illness

Anastasia Hutchinson, Tshepo Mokuedi Rasekaba, Marnie Graco, David John Berlowitz, Graeme Hawthorne, Wen Kwang Lim

Open Access Research

Responsiveness to change for the Brazilian Scale of Oral Health Outcomes for 5-year-old children (SOHO-5)

Jenny Abanto, Georgios Tsakos, Thiago Machado Ardenghi, Saul Martins Paiva, Daniela Prócida Raggio, Aubrey Sheiham, Marcelo Bönecker

Open Access Research

Validation of a Spanish version of the Revised Fibromyalgia Impact Questionnaire (FIQR)

Monika Salgueiro, Juan Miguel García-Leiva, Javier Ballesteros, Javier Hidalgo, Rocío Molina, Elena P Calandre

Open Access Research

The relationship between traits optimism and anxiety and health-related quality of life in patients hospitalized for chronic diseases: data from the SATISQOL study

Sabrina Kepka, Cédric Baumann, Amélie Anota, Gaelle Buron, Elisabeth Spitz, Pascal Auquier, Francis Guillemin, Mariette Mercier

Open Access Research

Radiofrequency volumetric thermal ablation of fibroids: a prospective, clinical analysis of two years’ outcome from the Halt trial

Richard S Guido, James A Macer, Karen Abbott, Janice L Falls, Ian B Tilley, Scott G Chudnoff

Open Access Research

Psychological investigation in patients with polycystic ovary syndrome

Fatemeh Bazarganipour, Saeide Ziaei, Ali Montazeri, Fatemeh Foroozanfard, Anoshirvan Kazemnejad, Soghrat Faghihzadeh

Open Access Research

Quality of life impact of cardiovascular and affective conditions among older residents from urban and rural communities

Joanne Allen, Kerry J Inder, Melissa L Harris, Terry J Lewin, John R Attia, Brian J Kelly

Open Access Research

The quality of life of people with epilepsy at a tertiary referral centre in Malaysia

Bachok Norsa’adah, Jiman Zainab, Aishah Knight

Open Access Research

The Diabetes Self-Management Questionnaire (DSMQ): development and evaluation of an instrument to assess diabetes self-care activities associated with glycaemic control

Andreas Schmitt, Annika Gahr, Norbert Hermanns, Bernhard Kulzer, Jörg Huber, Thomas Haak

Open Access Research

Health related quality of life and mental distress after PCI: restoring a state of equilibrium

Johann Sipötz, Oliver Friedrich, Stefan Höfer, Werner Benzer, Thomas Chatsakos, Georg Gaul

Open Access Research

Analysis, evaluation and adaptation of the ReTransQoL: a specific quality of life questionnaire for renal transplant recipients

Davy Beauger, Stéphanie Gentile, Elisabeth Jouve, Bertrand Dussol, Christian Jacquelinet, Serge Briançon

Open Access Research

Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two

Heidi Johansen, Brede Dammann, Inger-Lise Andresen, Morten Wang Fagerland

Open Access Research

Course of COPD assessment test (CAT) and clinical COPD questionnaire (CCQ) scores during recovery from exacerbations of chronic obstructive pulmonary disease

Marc Miravitlles, Patricia García-Sidro, Alonso Fernández-Nistal, María Jesús Buendía, María José Espinosa de los Monteros, Jesús Molina

Open Access Research

The Chinese version of the world health organization quality of life instrument-older adults module (WHOQOL-OLD): psychometric evaluation

Rong Liu, Shaomin Wu, Yuantao Hao, Jing Gu, Jiqian Fang, Nanqiao Cai, Jinxin Zhang

Open Access Study protocol

Study protocol for valuing EQ-5D-3L and EORTC-8D health states in a representative population sample in Sri Lanka

Sanjeewa Kularatna, Jennifer A Whitty, Newell W Johnson, Paul A Scuffham

Open Access Research

Intrusive thoughts and quality of life among men with prostate cancer before and three months after surgery

Thordis Thorsteinsdottir, Maria Hedelin, Johan Stranne, Heiddis Valdimarsdóttir, Ulrica Wilderäng, Eva Haglind, Gunnar Steineck

Open Access Research

Validity and reliability of the EQ-5D-3L™ among a paediatric injury population

Mariana Brussoni, Sami Kruse, Kerry Walker

Open Access Research

Health literacy and ethnic disparities in health-related quality of life among rural women: results from a Chinese poor minority area

Cuili Wang, Hui Li, Lingui Li, Dongjuan Xu, Robert L Kane, Qingyue Meng

Open Access Research

Assessment of quality of life of the children and parents affected by inborn errors of metabolism with restricted diet: preliminary results of a cross-sectional study

Alexandre Fabre, Karine Baumstarck, Aline Cano, Anderson Loundou, Julie Berbis, Brigitte Chabrol, Pascal Auquier

Open Access Research

A UK validation of a general measure of subjective well-being: the modified BBC subjective well-being scale (BBC-SWB)

Eleanor Pontin, Matthias Schwannauer, Sara Tai, Peter Kinderman

Open Access Research

Development and calibration of an item bank for the assessment of activities of daily living in cardiovascular patients using Rasch analysis

Harald Baumeister, Birgit Abberger, Anne Haschke, Maren Boecker, Juergen Bengel, Markus Wirtz

Open Access Research

Posttraumatic growth, posttraumatic stress and psychological adjustment in the aftermath of the 2011 Oslo bombing attack

Ines Blix, Marianne Bang Hansen, Marianne Skogbrott Birkeland, Alexander Nissen, Trond Heir

Open Access Short report

Validation of the French version of the Amsterdam preoperative anxiety and information scale (APAIS)

Axel Maurice-Szamburski, Anderson Loundou, Xavier Capdevila, Nicolas Bruder, Pascal Auquier

Open Access Research

Preference-based Health status in a German outpatient cohort with multiple sclerosis

Jens Peter Reese, Gabriele Wienemann, Axel John, Alexandra Linnemann, Monika Balzer-Geldsetzer, Ulrich Otto Mueller, Christian Eienbröker, Björn Tackenberg, Richard Dodel

Open Access Research

Patient reported outcome instruments used in clinical trials of HIV-infected adults on NNRTI-based therapy: a 10-year review

Kit N Simpson, Kristin A Hanson, Gale Harding, Seema Haider, Margaret Tawadrous, Alexandra Khachatryan, Chris L Pashos, Albert W Wu

Open Access Study protocol

Home administration of maintenance pemetrexed for patients with advanced non-squamous non-small cell lung cancer: rationale, practicalities and phase II feasibility study design

Rohit Lal, Nawel Bourayou, Gunnar Hillerdal, Marianne Nicolson, Anders Vikstrom, Maria Lorenzo, Yulia D’yachkova, Susana Barriga, Carla Visseren-Grul

Open Access Research

Chronic myeloid leukemia (CML): association of treatment satisfaction, negative medication experience and treatment restrictions with health outcomes, from the patient’s perspective

Ishan Hirji, Shaloo Gupta, Amir Goren, Diana R Chirovsky, Alyson B Moadel, Eduardo Olavarria, Timothy W Victor, Catherine C Davis

Open Access Short report

Longitudinal associations between oral health impacts and quality of life among a national cohort of Thai adults

Vasoontara Yiengprugsawan, Tewarit Somkotra, Sam-ang Seubsman, Adrian C Sleigh

Open Access Research

Burden of peripheral arterial disease in Europe and the United States: a patient survey

Elizabeth Marrett, Marco daCosta DiBonaventura, Qiaoyi Zhang

Open Access Research

Development and validation of the living with pulmonary hypertension questionnaire in pulmonary arterial hypertension patients

Nicola Bonner, Linda Abetz, Juliette Meunier, Mirko Sikirica, Stephen C Mathai

Open Access Research

Subjective health status and health-related quality of life among women with Recurrent Vulvovaginal Candidosis (RVVC) in Europe and the USA

Samuel Aballéa, Florent Guelfucci, Julian Wagner, Amine Khemiri, Jean-Paul Dietz, Jack Sobel, Mondher Toumi

Open Access Research

Anticipated adaptation or scale recalibration?

Yvette Edelaar-Peeters, Anne M Stiggelbout

Open Access Study protocol

Use of pedometer-driven walking to promote physical activity and improve health-related quality of life among meat processing workers: a feasibility trial

Suliman Mansi, Stephan Milosavljevic, Steve Tumilty, Paul Hendrick, G David Baxter

Open Access Research

Comparison of child self-reports and parent proxy-reports on quality of life of children with attention deficit hyperactivity disorder

Juliana CB Marques, Jorge A Oliveira, Juliana B Goulardins, Roseane O Nascimento, Allana MV Lima, Erasmo B Casella

Open Access Research

Use of health-related quality of life measures to predict health utility in postmenopausal osteoporotic women: results from the Multiple Outcomes of Raloxifene Evaluation study

Russel Burge, Wei Shen, April N Naegeli, Jahangir Alam, Stuart Silverman, Deborah T Gold, Tsehua Shih

Open Access Research

Evaluation of health related quality of life in children with immune thrombocytopenia with the PedsQL™ 4.0 Generic Core Scales: a study on behalf of the pays de Loire pediatric hematology network

Marion Strullu, Josué Rakotonjanahary, Eliane Tarral, Christophe Savagner, Caroline Thomas, Françoise Méchinaud, Yves Reguerre, Sylvaine Poignant, Arnaud Boutet, Joachim Bassil, Dominique Médinger, Emmanuel Quemener, Nancy L Young, Petronela Rachieru, Robert J Klaassen, Isabelle Pellier

Open Access Research

The impact of resilience on psychological outcomes in women after preeclampsia: an observational cohort study

Eva Mautner, Christina Stern, Maria Deutsch, Eva Nagele, Elfriede Greimel, Uwe Lang, Mila Cervar-Zivkovic

Open Access Research

The patient experience with fatigue and content validity of a measure to assess fatigue severity: qualitative research in patients with ankylosing spondylitis (AS)

April N Naegeli, Emuella Flood, Jennifer Tucker, Jennifer Devlen, Emily Edson-Heredia

Open Access Research

Item selection, reliability and validity of the Shortness of Breath with Daily Activities (SOBDA) questionnaire: a new outcome measure for evaluating dyspnea in chronic obstructive pulmonary disease

Teresa K Wilcox, Wen-Hung Chen, Kellee A Howard, Ingela Wiklund, Jean Brooks, Michael L Watkins, Charlotte E Cates, Maggie M Tabberer, Courtney Crim

Open Access Research

Development and evaluation of a crosswalk between the SF-36 physical functioning scale and Health Assessment Questionnaire disability index in rheumatoid arthritis

Peter M ten Klooster, Martijn AH Oude Voshaar, Barbara Gandek, Matthias Rose, Jakob B Bjorner, Erik Taal, Cees AW Glas, Piet LCM van Riel, Mart AFJ van de Laar

Open Access Research

The impact of implant treatment on oral health related quality of life in a private dental practice: a prospective cohort study

Mathieu Fillion, Dominique Aubazac, Marion Bessadet, Marlène Allègre, Emmanuel Nicolas

Open Access Research

Health related quality of life of children with rheumatic heart diseases: reliability of the Brazilian version of the pediatric quality of life inventory™ cardiac module scale

Anabela do Nascimento Moraes, Maria Teresa Ramos Ascensão Terreri, Maria Odete Esteves Hilário, Cláudio Arnaldo Len

Open Access Research

Psychometric properties of a short version of the HIV stigma scale, adapted for children with HIV infection

Maria Wiklander, Lise-Lott Rydström, Britt-Marie Ygge, Lars Navér, Lena Wettergren, Lars E Eriksson

Open Access Research

Estimating EQ-5D and OAB-5D health state utilities for patients with overactive bladder

Katia Desroziers, Samuel Aballéa, Khaled Maman, Jameel Nazir, Isaac Odeyemi, Zalmai Hakimi

Open Access Research

The Otitis Media-6 questionnaire: psychometric properties with emphasis on factor structure and interpretability

Christian Hamilton Heidemann, Christian Godballe, Anette Drøhse Kjeldsen, Eva Charlotte Jung Johansen, Christian Emil Faber, Henrik Hein Lauridsen

Open Access Research

Rasch analysis of the General Self-Efficacy Scale in a sample of persons with morbid obesity

Tore Bonsaksen, Anders Kottorp, Caryl Gay, May Solveig Fagermoen, Anners Lerdal

Open Access Research

Mapping the FACT-G cancer-specific quality of life instrument to the EQ-5D and SF-6D

Paulos Teckle, Helen McTaggart-Cowan, Kim Van der Hoek, Stephen Chia, Barb Melosky, Karen Gelmon, Stuart Peacock

Open Access Research

Quality of life in patients at first time visit for sleep disorders of breathing at a sleep centre

Serena Iacono Isidoro, Adriana Salvaggio, Anna Lo Bue, Salvatore Romano, Oreste Marrone, Giuseppe Insalaco

Open Access Research

Health-related quality of life in children and adolescents with celiac disease: survey of a population from central Italy

Emma Altobelli, Riccardo Paduano, Teresa Gentile, Claudia Caloisi, Ciro Marziliano, Stefano Necozione, Ferdinando di Orio

Open Access Research

Clinical validation of a non-heteronormative version of the Social Interaction Anxiety Scale (SIAS)

Philip Lindner, Christopher Martell, Jan Bergström, Gerhard Andersson, Per Carlbring

Open Access Research

The evaluation of the psychometric properties of a specific quality of life questionnaire for physiological pregnancy

Eva Vachkova, Stanislav Jezek, Jiri Mares, Marketa Moravcova

Open Access Research

Reliability, validity and responsiveness of the EQ-5D in assessing and valuing health status in patients with social phobia

Michael Sonntag, Alexander Konnopka, Falk Leichsenring, Simone Salzer, Manfred E Beutel, Stephan Herpertz, Wolfgang Hiller, Jürgen Hoyer, Peter Joraschky, Björn Nolting, Karin Pöhlmann, Ulrich Stangier, Bernhard Strauss, Ulrike Willutzki, Jörg Wiltink, Eric Leibing, Hans-Helmut König

Open Access Commentary

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative

Jordi Alonso, Susan J Bartlett, Matthias Rose, Neil K Aaronson, John E Chaplin, Fabio Efficace, Alain Leplège, Aiping LU, David S Tulsky, Hein Raat, Ulrike Ravens-Sieberer, Dennis Revicki, Caroline B Terwee, Jose M Valderas, David Cella, Christopher B Forrest

Open Access Research

Development and initial validation of a traditional Chinese medicine symptom-specific outcome measure: a Zheng-related atopic dermatitis symptom questionnaire (ZRADSQ)

Darong Wu, Chujun Huang, Xiumei Mo, Junfeng Liu, Jianxiong Cai, Chi Liu, Haili Zhu, Hongyi Li, Dacan Chen

Open Access Research

Longitudinal quality of life analysis in a phenylketonuria cohort provided sapropterin dihydrochloride

Teresa D Douglas, Usha Ramakrishnan, Julie A Kable, Rani H Singh

Open Access Research

Health promoting schools and children’s oral health related quality of life

Zamros YM Yusof, Nasruddin Jaafar

Open Access Research

Evaluation of the Irritable Bowel Syndrome Quality of Life (IBS-QOL) questionnaire in diarrheal-predominant irritable bowel syndrome patients

David A Andrae, Donald L Patrick, Douglas A Drossman, Paul S Covington

Open Access Research

Association between sense of coherence and health-related quality of life among primary care patients with chronic musculoskeletal pain

Neale R Chumbler, Kurt Kroenke, Samantha Outcalt, Matthew J Bair, Erin Krebs, Jingwei Wu, Zhangsheng Yu

Open Access Research

Validation of an instrument to evaluate quality of life in the aging population: WHOQOL-AGE

Francisco Félix Caballero, Marta Miret, Mick Power, Somnath Chatterji, Beata Tobiasz-Adamczyk, Seppo Koskinen, Matilde Leonardi, Beatriz Olaya, Josep Maria Haro, José Luis Ayuso-Mateos

Open Access Research

Development and application of the Chinese version of the adult strabismus quality of life questionnaire (AS-20): a cross-sectional study

Zong-Hua Wang, Wei Bian, Hui Ren, Rosemary Frey, Ling-Fei Tang, Xian-Yuan Wang

Open Access Review

The CONSORT Patient-Reported Outcome (PRO) extension: implications for clinical trials and practice

Melanie Calvert, Michael Brundage, Paul B Jacobsen, Holger J Schünemann, Fabio Efficace

Open Access Review

Patient-reported outcomes in meta-analyses -Part 2: methods for improving interpretability for decision-makers

Bradley C Johnston, Donald L Patrick, Kristian Thorlund, Jason W Busse, Bruno R da Costa, Holger J Schünemann, Gordon H Guyatt

Open Access Research

Psychometric evaluation of the sleep hygiene index: a sample of patients with chronic pain

Sungkun Cho, Gye-Seok Kim, Jang-Han Lee

Open Access Research

Patient-reported outcomes among patients using exenatide twice daily or insulin in clinical practice in six European countries: the CHOICE prospective observational study

Matthew Reaney, Chantal Mathieu, Claes-Göran Östenson, Stephan Matthaei, Thure Krarup, Jacek Kiljański, Carole Salaun-Martin, Hélène Sapin, Michael Theodorakis, Bruno Guerci