Ausgabe 1/2014
Inhalt (192 Artikel)
Validation of the International Prostate Symptom Score in Chinese males and females with lower urinary tract symptoms
Edmond PH Choi, Cindy LK Lam, Weng-Yee Chin
Falls and EQ-5D rated quality of life in community-dwelling seniors with concurrent chronic diseases: a cross-sectional study
Ulrich Thiem, Renate Klaaßen-Mielke, Ulrike Trampisch, Anna Moschny, Ludger Pientka, Timo Hinrichs
Validation of the Spanish versions of the long (26 items) and short (12 items) forms of the Self-Compassion Scale (SCS)
Javier Garcia-Campayo, Mayte Navarro-Gil, Eva Andrés, Jesús Montero-Marin, Lorena López-Artal, Marcelo Marcos Piva Demarzo
Which tinnitus-related aspects are relevant for quality of life and depression: results from a large international multicentre sample
Florian Zeman, Michael Koller, Berthold Langguth, Michael Landgrebe
Validation of the Turkish version of the quality of recovery-40 questionnaire
Serkan Karaman, Semih Arici, Serkan Dogru, Tugba Karaman, Hakan Tapar, Ziya Kaya, Mustafa Suren, Mehtap Gurler Balta
Psychosocial factors as predictors of quality of life in chronic portuguese patients
Estela Vilhena, José Pais-Ribeiro, Isabel Silva, Luísa Pedro, Rute F Meneses, Helena Cardoso, António Martins da Silva, Denisa Mendonça
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version
Perrine F Limperg, Lotte Haverman, Hedy A van Oers, Marion AJ van Rossum, Heleen Maurice-Stam, Martha A Grootenhuis
Patient reports of the outcomes of treatment: a structured review of approaches
Helen Lloyd, Crispin Jenkinson, Monica Hadi, Elizabeth Gibbons, Ray Fitzpatrick
Quality of life impact of mental health conditions in England: results from the adult psychiatric morbidity surveys
Jennifer Roberts, Pamela Lenton, Anju D Keetharuth, John Brazier
Exploration of dimensionality and psychometric properties of the Pittsburgh Sleep Quality Index in cases with temporomandibular disorders
Ksenija Rener-Sitar, Mike T John, Dipankar Bandyopadhyay, Michael J Howell, Eric L Schiffman
Health-related quality of life in adolescents with chronic physical illness in northern Russia: a cross-sectional study
Anna Zashikhina, Bruno Hagglof
Perceptions of symptoms and expectations of advanced therapy for Parkinson’s disease: preliminary report of a Patient-Reported Outcome tool for Advanced Parkinson’s disease (PRO-APD)
Prashanth Reddy, Pablo Martinez-Martin, Richard G Brown, Kallol Ray Chaudhuri, Jean-Pierre Lin, Richard Selway, Ian Forgacs, Keyoumars Ashkan, Michael Samuel
Latent variables may be useful in pain’s assessment
Donald R Royall, Ricardo Salazar, Raymond F Palmer
Validity and reliability of the Spanish version of the 10-item CD-RISC in patients with fibromyalgia
Blanca Notario-Pacheco, Vicente Martínez-Vizcaíno, Eva Trillo-Calvo, Mari Cruz Pérez-Yus, Dolores Serrano-Parra, Javier García-Campayo
The impact of cataract surgery on vision-related quality of life for bilateral cataract patients in Ho Chi Minh City, Vietnam: a prospective study
Kien Gia To, Lynn B Meuleners, Michelle L Fraser, Dung Van Do, Dat Van Duong, Van-Anh Ngoc Huynh, Quyen Gia To, Tien Duy Phi, Hoang Huy Tran, Nguyen Do Nguyen
Impact of tuberculosis treatment on health-related quality of life of pulmonary tuberculosis patients: a follow-up study
Muhammad Atif, Syed Azhar Syed Sulaiman, Asrul Akmal Shafie, Muhammad Asif, Muhammad Khan Sarfraz, Heng Chin Low, Zaheer-Ud-Din Babar
Application of Bother in patient reported outcomes instruments across cultures
Mary C Gawlicki, Shawn M McKown, Matthew J Talbert, Barbara A Brandt
Bladder cancer index: cross-cultural adaptation into Spanish and psychometric evaluation
Stefanie Schmidt, Ricard Riel, Albert Frances, José Antonio Lorente Garin, Xavier Bonfill, María José Martinez-Zapata, Maria Morales Suarez-Varela, Javier dela Cruz, José Ignacio Emparanza, María-José Sánchez, Javier Zamora, Juan Manuel Ramos Goñi, Jordi Alonso, Montse Ferrer
Assessing the validity and intra-observer agreement of the MIDAM-LTC; an instrument measuring factors that influence personal dignity in long-term care facilities
Mariska G Oosterveld-Vlug, H Roeline W Pasman, Isis E van Gennip, Henrica CW de Vet, Bregje D Onwuteaka-Philipsen
A comparison of injured patient and general population valuations of EQ-5D health states for New Zealand
Ross Wilson, Paul Hansen, John Langley, Sarah Derrett
Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients’ experience
Anne Brédart, Alexia Marrel, Linda Abetz-Webb, Kathy Lasch, Catherine Acquadro
Measurement equivalence and feasibility of the EORTC QLQ-PR25: paper-and-pencil versus touch-screen administration
Yu-Jun Chang, Chih-Hung Chang, Chiao-Ling Peng, Hsi-Chin Wu, Hsueh-Chun Lin, Jong-Yi Wang, Tsai-Chung Li, Yi-Chun Yeh, Wen-Miin Liang
The ACTonHEART study: rationale and design of a randomized controlled clinical trial comparing a brief intervention based on Acceptance and Commitment Therapy to usual secondary prevention care of coronary heart disease
Chiara AM Spatola, Gian Mauro Manzoni, Gianluca Castelnuovo, Gabriella Malfatto, Mario Facchini, Christina L Goodwin, Matteo Baruffi, Enrico Molinari
Can the Fatigue Severity Scale 7-item version be used across different patient populations as a generic fatigue measure - a comparative study using a Rasch model approach
Sverker Johansson, Anders Kottorp, Kathryn A Lee, Caryl L Gay, Anners Lerdal
The role of quality of care and attitude towards disability in the relationship between severity of disability and quality of life: findings from a cross-sectional survey among people with physical disability in China
Qiao-Lan Zheng, Qi Tian, Chun Hao, Jing Gu, Ramona Lucas-Carrasco, Jian-Ting Tao, Zuo-Yi Liang, Xin-Lin Chen, Ji-Qian Fang, Jian-Hua Ruan, Qiu-Xiang Ai, Yuan-Tao Hao
Physical and psychological long-term outcome after traumatic brain injury in children and adult patients
Hagen Andruszkow, Ezin Deniz, Julia Urner, Christian Probst, Orna Grün, Ralf Lohse, Michael Frink, Christian Krettek, Christian Zeckey, Frank Hildebrand
Oral health associated with quality of life of people living with HIV/AIDS in Brazil
Gabriella Barreto Soares, Cléa Adas Saliba Garbin, Tânia Adas Saliba Rovida, Artênio José Ísper Garbin
Secukinumab treatment in rheumatoid arthritis is associated with incremental benefit in the clinical outcomes and HRQoL improvements that exceed minimally important thresholds
Vibeke Strand, Mark Kosinski, Ari Gnanasakthy, Usha Mallya, Shephard Mpofu
Critical appraisal of a brief 5 item version of the Neck Disability Index
Charles P Gabel, Antonio I Cuesta-Vargas, Markus Melloh, Jason Osborne
Modelling the relationship between the WOMAC osteoarthritis index and EQ-5D
Allan Wailoo, Monica Hernandez Alava, Antonio Escobar Martinez
A systematic review of the impact of parental socio-economic status and home environment characteristics on children’s oral health related quality of life
Santhosh Kumar, Jeroen Kroon, Ratilal Lalloo
Khat chewing and health related quality of life: cross-sectional study in Jazan region, Kingdom of Saudi Arabia
Kamaludin Ahmed Sheikh, Maged El-setouhy, Umar Yagoub, Rashad Alsanosy, Zafar Ahmed
Behavioural profile and human adaptation of survivors after radical cystectomy and ileal conduit
Maria Angela Cerruto, Carolina D’Elia, Giovanni Cacciamani, Davide De Marchi, Salvatore Siracusano, Massimo Iafrate, Mauro Niero, Cristina Lonardi, Pierfrancesco Bassi, Emanuele Belgrano, Ciro Imbimbo, Marco Racioppi, Renato Talamini, Stefano Ciciliato, Laura Toffoli, Michele Rizzo, Francesco Visalli, Paolo Verze, Walter Artibani
Assessment of long-term quality of life after cavotricuspid isthmus ablation for typical atrial flutter
Pilar Cabanas-Grandío, Javier García-Seara, Francisco Gude, José Luis Martínez-Sande, Xesús Alberte Fernández-López, José R González-Juanatey
Perceptions of individuals living with spinal cord injury toward preference-based quality of life instruments: a qualitative exploration
David GT Whitehurst, Nitya Suryaprakash, Lidia Engel, Nicole Mittmann, Vanessa K Noonan, Marcel FS Dvorak, Stirling Bryan
The construct validity and responsiveness of the EQ-5D, SF-6D and Diabetes Health Profile-18 in type 2 diabetes
Brendan Mulhern, Keith Meadows
Impact of caregiver and parenting status on time trade-off and standard gamble utility scores for health state descriptions
Louis S Matza, Kristina S Boye, David H Feeny, Joseph A Johnston, Lee Bowman, Jessica B Jordan
Health-related quality of life and income-related social mobility in young adults
David S Brennan, A John Spencer
Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study
Claire L Hill, Wendy O Baird, Stephen J Walters
Improved self-efficacy in persons with relapsing remitting multiple sclerosis after an intensive social cognitive wellness program with participation of support partners: a 6-months observational study
Peter Joseph Jongen, Rob Ruimschotel, Marco Heerings, Astrid Hussaarts, Lotte Duyverman, Anneke van der Zande, Joyce Valkenburg-Vissers, Hanne Wolper, Maarten van Droffelaar, Wim Lemmens, Rogier Donders, Leo H Visser
Translation and validation of the Chinese version of the quality of life radiation therapy instrument and the head & neck module (QOL-RTI/H&N)
Xin-lin Chen, Zhen-wen Qiu, Mo-fa Gu, Yong Su, Li-zhi Liu, Yan Liu, Chuan-wei Mo, Qian Xu, Juan Sun, Dong-hai Li
Health-related quality of life in epilepsy patients receiving anti-epileptic drugs at National Referral Hospitals in Uganda: a cross-sectional study
Anne M Nabukenya, Joseph KB Matovu, Fred Wabwire-Mangen, Rhoda K Wanyenze, Fredrick Makumbi
Impact of oral health conditions on the quality of life of preschool children and their families: a cross-sectional study
Monalisa Cesarino Gomes, Tassia Cristina de Almeida Pinto-Sarmento, Edja Maria Melo de Brito Costa, Carolina Castro Martins, Ana Flávia Granville-Garcia, Saul Martins Paiva
Health-related quality of life in chronic obstructive pulmonary disease patients in Korea
Seon-Ha Kim, Yeon Mok Oh, Min-Woo Jo
Development of a new occupational balance-questionnaire: incorporating the perspectives of patients and healthy people in the design of a self-reported occupational balance outcome instrument
Mona Dür, Günter Steiner, Veronika Fialka-Moser, Alexandra Kautzky-Willer, Clemens Dejaco, Birgit Prodinger, Michaela Alexandra Stoffer, Alexa Binder, Josef Smolen, Tanja Alexandra Stamm
Examining the incremental impact of long-standing health conditions on subjective well-being alongside the EQ-5D
Mengjun Wu, John Brazier, Clare Relton, Cindy Cooper, Christine Smith, Joanna Blackburn
A comparison of health status in patients meeting alternative definitions for chronic fatigue syndrome/myalgic encephalomyelitis
Samantha C Johnston, Ekua W Brenu, Sharni L Hardcastle, Teilah K Huth, Donald R Staines, Sonya M Marshall-Gradisnik
Measurement invariance across chronic conditions: a systematic review and an empirical investigation of the Health Education Impact Questionnaire (heiQ™)
Michael Schuler, Gunda Musekamp, Jürgen Bengel, Sandra Nolte, Richard H Osborne, Hermann Faller
Health-related quality of life and socioeconomic status: inequalities among adults with a chronic disease
Andreas Mielck, Martin Vogelmann, Reiner Leidl
Health-related quality of life and related factors of military police officers
Franciele Cascaes da Silva, Salma Stéphany Soleman Hernandez, Beatriz Angélica Valdivia Arancibia, Thiago Luis da Silva Castro, Paulo José Barbosa Gutierres Filho, Rudney da Silva
Estimating a minimal clinically important difference for the EuroQol 5-dimension health status index in persons with multiple sclerosis
Christine G Kohn, Matthew F Sidovar, Kirandeep Kaur, Yungfen Zhu, Craig I Coleman
What explains health in persons with visual impairment?
Juliane Leissner, Michaela Coenen, Stephan Froehlich, Danny Loyola, Alarcos Cieza
The effect of continuous passive motion and sling exercise training on clinical and functional outcomes following total knee arthroplasty: a randomized active-controlled clinical study
Anett Mau-Moeller, Martin Behrens, Susanne Finze, Sven Bruhn, Rainer Bader, Wolfram Mittelmeier
Psychosocial work conditions and quality of life among primary health care employees: a cross sectional study
Mariza Alves Barbosa Teles, Mirna Rossi Barbosa, Andréa Maria Duarte Vargas, Viviane Elizângela Gomes, Efigênia Ferreira e Ferreira, Andréa Maria Eleutério de Barros Lima Martins, Raquel Conceição Ferreira
Quality of life after the initial treatments of non-small cell lung cancer: a persistent predictor for patients’ survival
Irawati Lemonnier, Francis Guillemin, Patrick Arveux, Christelle Clément-Duchêne, Michel Velten, Marie-Christine Woronoff-Lemsi, Damien Jolly, Cédric Baumann
Experience of gratitude, awe and beauty in life among patients with multiple sclerosis and psychiatric disorders
Arndt Büssing, Anne Gritli Wirth, Franz Reiser, Anne Zahn, Knut Humbroich, Kathrin Gerbershagen, Sebastian Schimrigk, Michael Haupts, Niels Christian Hvidt, Klaus Baumann
Self-rated dental health and dental insurance: modification by household income
Dana N Teusner, Olga Anikeeva, David S Brennan
Could baseline health-related quality of life (QoL) predict overall survival in metastatic colorectal cancer? The results of the GERCOR OPTIMOX 1 study
Momar Diouf, Benoist Chibaudel, Thomas Filleron, Christophe Tournigand, Marine Hug de Larauze, Marie-Line Garcia-Larnicol, Sarah Dumont, Christophe Louvet, Nathalie Perez-Staub, Alexandra Hadengue, Aimery de Gramont, Franck Bonnetain
Comparing the EQ-5D 3L and 5L: measurement properties and association with chronic conditions and multimorbidity in the general population
Calypse B Agborsangaya, Markus Lahtinen, Tim Cooke, Jeffrey A Johnson
Psychometric evaluation of the Korean version of the Diabetes Symptom Checklist-Revised (DSC-R) for Patients with Type 2 Diabetes
Eun-Hyun Lee, Kwan-Woo Lee, Rhayun Song, Frank J Snoek, Seung Hei Moon
Transcultural adaptation and validation of the “Hip and Knee” questionnaire into Spanish
Enric Castellet, Oscar Ares, Fernando Celaya, Andrés Valentí-Azcárate, Angels Salvador, Ana Torres, Pedro Sesma
“Getting stuck with LAM”: patients perspectives on living with Lymphangioleiomyomatosis
Amanda Belkin, Karen Albright, Kaitlin Fier, Jennifer Desserich, Jeffrey J Swigris
Cross cultural adaptation and validation of a Spanish version of the lower limb functional index
Antonio I Cuesta-Vargas, Charles P Gabel, Paul Bennett
Psychometric study of the Persian short-form eight-item Parkinson’s disease questionnaire (PDQ-8) to evaluate health related quality of life (HRQoL)
Seyed-Mohammad Fereshtehnejad, Nader Naderi, Arash Rahmani, Gholam Ali Shahidi, Ahmad Delbari, Johan Lökk
Patient-reported outcome labeling claims and measurement approach for metastatic castration-resistant prostate cancer treatments in the United States and European Union
Marci J Clark, Nimanee Harris, Ingolf Griebsch, Dagmar Kaschinski, Catherine Copley-Merriman
Identifying key domains of health-related quality of life for patients with Chronic Obstructive Pulmonary Disease: the patient perspective
Muirne CS Paap, Christina Bode, Lonneke IM Lenferink, Lianne C Groen, Caroline B Terwee, Sara Ahmed, Owis Eilayyan, Job van der Palen
Assessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diary
Leah Kleinman, Sally Mannix, Lesley M Arnold, Claire Burbridge, Kellee Howard, Kelly McQuarrie, Verne Pitman, Malca Resnick, Tom Roth, Tara Symonds
A brief patient-reported outcome instrument for primary care: German translation and validation of the Measure Yourself Medical Outcome Profile (MYMOP)
Katja Hermann, Katharina Kraus, Kathrin Herrmann, Stefanie Joos
Italian translation, cultural adaptation and validation of the PedsQL™ 3.0 Diabetes Module questionnaire in children with type 1 diabetes and their parents
Giuseppe d’Annunzio, Sara Gialetti, Chiara Carducci, Ivana Rabbone, Donatella Lo Presti, Sonia Toni, Eugenio Zito, Sara Bolloli, Renata Lorini, Ornella Della Casa Alberighi
Patient-reported outcome measures for systemic lupus erythematosus clinical trials: a review of content validity, face validity and psychometric performance
Laura Holloway, Louise Humphrey, Louise Heron, Claire Pilling, Helen Kitchen, Lise Højbjerre, Martin Strandberg-Larsen, Brian Bekker Hansen
Validation of the Headache Impact Test (HIT-6) in patients with chronic migraine
Regina Rendas-Baum, Min Yang, Sepideh F Varon, Lisa M Bloudek, Ronald E DeGryse, Mark Kosinski
Linguistic and psychometric validation of the MSSS-88 questionnaire for patients with multiple sclerosis and spasticity in Germany
Thomas Henze, Sylvia von Mackensen, Gerald Lehrieder, Uwe K Zettl, Carmen Pfiffner, Peter Flachenecker
Self-report measurement of pain & symptoms in palliative care patients: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa
David Blum, Lucy E Selman, Godfrey Agupio, Thandi Mashao, Keletso Mmoledi, Tony Moll, Natalya Dinat, Liz Gwyther, Lydia Mpanga Sebuyira, Barbara Ikin, Julia Downing, Stein Kaasa, Irene J Higginson, Richard Harding
Health-Related Quality of Life (HRQoL) changes in South Australia: comparison of burden of disease morbidity and survey-based health utility estimates
David Banham, Graeme Hawthorne, Robert Goldney, Julie Ratcliffe
The impact of preoperative patient characteristics on health states after total hip replacement and related satisfaction thresholds: a cohort study
Matthias Vogl, Rainer Wilkesmann, Christian Lausmann, Matthias Hunger, Werner Plötz
Is marital status associated with quality of life?
Kyu-Tae Han, Eun-Cheol Park, Jae-Hyun Kim, Sun Jung Kim, Sohee Park
Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures
Michele Peters, Helen Crocker, Sarah Dummett, Crispin Jenkinson, Helen Doll, Ray Fitzpatrick
Construct and concurrent validity of a patient-reported adverse drug event questionnaire: a cross-sectional study
Sieta T de Vries, Flora M Haaijer-Ruskamp, Dick de Zeeuw, Petra Denig
Health related quality of life of children and adolescents with congenital adrenal hyperplasia in Brazil
Daniel Luis Schueftan Gilban, Paulo Alonso Garcia Alves Junior, Izabel Calland Ricarte Beserra
Influence of health-related quality of life on health service utilization in Chinese rural-to-urban female migrant workers
Chu-Hong Lu, Pei-Xi Wang, Yi-Xiong Lei, Zhong-Cheng Luo
Development of the Japanese version of the Minneapolis-Manchester Quality of Life Survey of Health - Adolescent Form (MMQL-AF) and investigation of its reliability and validity
Makiko Koike, Hiroki Hori, Takeshi Rikiishi, Akira Hayakawa, Naoko Tsuji, Tsukasa Yonemoto, Hideko Uryu, Eisuke Matsushima
The psychometric properties of the St George’s Respiratory Questionnaire (SGRQ) in patients with idiopathic pulmonary fibrosis: a literature review
Jeffrey J Swigris, Dirk Esser, Craig S Conoscenti, Kevin K Brown
A prospective cross-sectional study on quality of life and treatment satisfaction in type 2 diabetic patients with retinopathy without other major late diabetic complications
Nuria Alcubierre, Esther Rubinat, Alicia Traveset, Montserrat Martinez-Alonso, Marta Hernandez, Carmen Jurjo, Didac Mauricio
Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks
San D Keller, Manshu Yang, Marsha J Treadwell, Ellen M Werner, Kathryn L Hassell
Construct validity and responsiveness of the simplified version of Ankylosing Spondylitis Disease Activity Score (SASDAS) for the evaluation of disease activity in axial spondyloarthritis
Fausto Salaffi, Alessandro Ciapetti, Marina Carotti, Stefania Gasparini, Gustavo Citera, Marwin Gutierrez
Recent advances in patient and proxy-reported quality of life research
Kristofer Bandayrel, Bradley C Johnston
From KIDSCREEN-10 to CHU9D: creating a unique mapping algorithm for application in economic evaluation
Gang Chen, Katherine Stevens, Donna Rowen, Julie Ratcliffe
Health-related quality of life of ambulant adults with cerebral palsy and its association with falls and mobility decline: a preliminary cross sectional study
Prue E Morgan, Sze-Ee Soh, Jennifer L McGinley
Quality of life as a prognostic marker in pulmonary arterial hypertension
Caio JCS Fernandes, Barbara CS Martins, Carlos VP Jardim, Rozana M Ciconelli, Luciana K Morinaga, Ana Paula Breda, Susana Hoette, Rogério Souza
Mapping of Incontinence Quality of Life (I-QOL) scores to Assessment of Quality of Life 8D (AQoL-8D) utilities in patients with idiopathic overactive bladder
Gang Chen, Jonathan T Tan, Kwong Ng, Angelo Iezzi, Jeffrey Richardson
Development of a questionnaire specifically for patients with Ileal Orthotopic Neobladder (IONB)
Salvatore Siracusano, Mauro Niero, Cristina Lonardi, Maria Angela Cerruto, Stefano Ciciliato, Laura Toffoli, Francesco Visalli, Davide Massidda, Massimo Iafrate, Walter Artibani, Pierfrancesco Bassi, Ciro Imbimbo, Marco Racioppi, Renato Talamini, Carolina D'Elia, Giovanni Cacciamani, Davide De Marchi, Tommaso Silvestri, Paolo Verze, Emanuele Belgrano
Impact of Alzheimer’s Disease on Caregiver Questionnaire: internal consistency, convergent validity, and test-retest reliability of a new measure for assessing caregiver burden
Jason C Cole, Diane Ito, Yaozhu J Chen, Rebecca Cheng, Jennifer Bolognese, Josephine Li-McLeod
The psychometric properties of the German version of the WHOQOL-OLD in the German population aged 60 and older
Ines Conrad, Herbert Matschinger, Steffi Riedel-Heller, Carolin von Gottberg, Reinhold Kilian
Generic utilities in chronic obstructive pulmonary disease patients stratified according to different staging systems
Marc Miravitlles, Alicia Huerta, José Alberto Fernández-Villar, Bernardino Alcázar, Guillermo Villa, Carles Forné, Maribel Cuesta, Carlos Crespo, Francisco García-Río
Psychological distress in spouses of somatically Ill: longitudinal findings from The Nord-TrØndelag Health Study (HUNT)
Ingrid Borren, Kristian Tambs, Kristin Gustavson, Jon Martin Sundet
Confirmatory factor analysis of the thyroid-related quality of life questionnaire ThyPRO
Torquil Watt, Mogens Groenvold, Nina Deng, Barbara Gandek, Ulla Feldt-Rasmussen, Åse Krogh Rasmussen, Laszlo Hegedüs, Steen Joop Bonnema, Jakob Bue Bjorner
Patient-reported utilities in advanced or metastatic melanoma, including analysis of utilities by time to death
Anthony J Hatswell, Becky Pennington, Louisa Pericleous, Donna Rowen, Maximilian Lebmeier, Dawn Lee
Reliability and validity of PedsQL for Portuguese children aged 5–7 and 8–12 years
Pedro L Ferreira, Carla F Baltazar, Luís Cavalheiro, Jan Cabri, Rui S Gonçalves
Quality of life of Croatian veterans' wives and veterans with posttraumatic stress disorder
Tina Peraica, Anđelko Vidović, Zrnka Kovačić Petrović, Dragica Kozarić-Kovačić
Linguistic validation and cultural adaptation of an English version of the Evaluation of Daily Activity Questionnaire in rheumatoid arthritis
Alison Hammond, Sarah Tyson, Yeliz Prior, Ruth Hawkins, Alan Tennant, Ulla Nordenskiold, Ingrid Thyberg, Gunnel Sandqvist, Ragnhild Cederlund
Deriving a mapping algorithm for converting SF-36 scores to EQ-5D utility score in a Korean population
Seon-Ha Kim, Seon-Ok Kim, Sang-il Lee, Min-Woo Jo
Chronic inflammation and quality of life in older adults: a cross-sectional study using biomarkers to predict emotional and relational outcomes
Alexandra CH Nowakowski
Ethnicity does not account for differences in the health-related quality of life of Turkish, Moroccan, and Moluccan elderly in the Netherlands
Ilona Verhagen, Wynand JG Ros, Bas Steunenberg, Niek J de Wit
Psychometric evaluation, using Rasch analysis, of the WHOQOL-BREF in heroin-dependent people undergoing methadone maintenance treatment: further item validation
Kun-Chia Chang, Jung-Der Wang, Hsin-Pei Tang, Ching-Ming Cheng, Chung-Ying Lin
Development of the Incontinence Utility Index: estimating population-based utilities associated with urinary problems from the Incontinence Quality of Life Questionnaire and Neurogenic Module
Jesús Cuervo, Nacho Castejón, Kristin M Khalaf, Catherine Waweru, Denise Globe, Donald L Patrick
Validation and application of health utilities index in Chinese subjects with down syndrome
Winnie Ka Yan Mok, Wilfred Hing-Sang Wong, Gary Tsz Kin Mok, Yoyo Wing Yiu Chu, Frederick Ka Wing Ho, Chun Bong Chow, Patrick Ip, Brian Hon-Yin Chung
Health-related quality of life for pre-diabetic states and type 2 diabetes mellitus: a cross-sectional study in Västerbotten Sweden
Anne Neumann, Olaf Schoffer, Fredrik Norström, Margareta Norberg, Stefanie J Klug, Lars Lindholm
Improving the primary care physicians' decision making for fibromyalgia in clinical practice: development and validation of the Fibromyalgia Detection (FibroDetect®) screening tool
Ralf Baron, Serge Perrot, Isabelle Guillemin, Cayetano Alegre, Carla Dias-Barbosa, Ernest Choy, Héléne Gilet, Giorgio Cruccu, Jules Desmeules, Joëlle Margaux, Selwyn Richards, Eric Serra, Michael Spaeth, Benoit Arnould
Comparison of the responsiveness of the Foot Health Status Questionnaire and the Manchester Foot Pain and Disability Index in older people
Hylton B Menz, Maria Auhl, Sonja Ristevski, Nicoletta Frescos, Shannon E Munteanu
Validation and comparison of EuroQoL-5 dimension (EQ-5D) and Short Form-6 dimension (SF-6D) among stable angina patients
Jing Wu, Yuerong Han, Fei-Li Zhao, Jin Zhou, Zhijun Chen, He Sun
Using item response theory to enrich and expand the PROMIS® pediatric self report banks
Hally Quinn, David Thissen, Yang Liu, Brooke Magnus, Jin-Shei Lai, Dagmar Amtmann, James W Varni, Heather E Gross, Darren A DeWalt
Impact of three genetic musculoskeletal diseases: a comparative synthesis of achondroplasia, Duchenne muscular dystrophy and osteogenesis imperfecta
Maman Joyce Dogba, Frank Rauch, Erin Douglas, Christophe Bedos
How is the most severe health state being valued by the general population?
Mihir Gandhi, Julian Thumboo, Hwee-Lin Wee, Nan Luo, Yin-Bun Cheung
When study site contributes to outcomes in a multi-center randomized trial: a secondary analysis of decisional conflict in men with localized prostate cancer
Meghan L Underhill, Fangxin Hong, Donna L Berry
Violations of local stochastic independence exaggerate scalability in Mokken scaling analysis of the Chinese Mandarin SF-36
Roger Watson, Wenru Wang, David R Thompson
Measurement of diabetes-related emotional distress using the Problem Areas in Diabetes scale: psychometric evaluations show that the short form is better than the full form
Eun-Hyun Lee, Young Whee Lee, Kwan-Woo Lee, Yong Seong Kim, Moon-Suk Nam
Patients' expectations from dental implants: a systematic review of the literature
Jie Yao, Hua Tang, Xiao-Li Gao, Colman McGrath, Nikos Mattheos
Spanish version of the screening Örebro Musculoskeletal Pain Questionnaire: a cross-cultural adaptation and validation
Antonio Ignacio Cuesta-Vargas, Manuel González-Sánchez
Quality of life in children with OCD with and without comorbidity
Bernhard Weidle, Thomas Jozefiak, Tord Ivarsson, Per Hove Thomsen
Impact of a pharmaceutical care programme on health-related quality of life among women with epilepsy: a randomised controlled trial (IPHIWWE study)
Martha Losada-Camacho, Mario F. Guerrero-Pabon, Pilar Garcia-Delgado, Fernando Martínez-Martinez
Measuring the psychosocial burden in women with low-grade abnormal cervical cytology in the TOMBOLA trial: psychometric properties of the Process and Outcome Specific Measure (POSM)
Kieran Rothnie, Seonaidh C Cotton, Shona Fielding, Nicola M Gray, Julian Little, Margaret E Cruickshank, Leslie G Walker, Mark Avis, Linda Sharp
A non-linear beta-binomial regression model for mapping EORTC QLQ- C30 to the EQ-5D-3L in lung cancer patients: a comparison with existing approaches
Iftekhar Khan, Stephen Morris
Development of a tool to recognize small airways dysfunction in asthma (SADT)
Lieke Schiphof-Godart, Erica van der Wiel, Nick HT ten Hacken, Maarten van den Berge, Dirkje S Postma, Thys van der Molen
Improvements in quality of life associated with biphasic insulin aspart 30 in type 2 diabetes patients in China: results from the A1chieve® observational study
Wenying Yang, Xiaoming Zhuang, Yukun Li, Qing Wang, Rongwen Bian, Jianguo Shen, Eva Hammerby, Li Yang
Instrument development and validation of the stroke pre-hospital delay behavior intention scale in a Chinese urban population
Qiuli Zhao, Li Yang, Qingqing Zuo, Xuemei Zhu, Xiao Zhang, Yanni Wu, Liu Yang, Wei Gao, Minghui Li
Health-related quality of life and cognitive emotion regulation strategies in the unemployed: a cross-sectional survey
Natalio Extremera, Lourdes Rey
Osteoarthritis medical labelling and health-related quality of life in the general population
Sara Lourenço, Raquel Lucas, Fábio Araújo, Mónica Bogas, Rui André Santos, Henrique Barros
Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study
Linda Clare, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Catherine Henderson, John V Hindle, Ian R Jones, Roy W Jones, Martin Knapp, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Nada M Savitch, Jeanette M Thom, Christina R Victor
Impact of tooth loss related to number and position on oral health quality of life among adults
Marília Jesus Batista, Herenia Procopio Lawrence, Maria da Luz Rosário de Sousa
Aging, Gender and Quality of Life (AGEQOL) study: factors associated with good quality of life in older Brazilian community-dwelling adults
Ana Cristina Viana Campos, Efigênia Ferreira e Ferreira, Andréa Maria Duarte Vargas, Cecilia Albala
Is hypoglycemia fear independently associated with health-related quality of life?
Lizheng Shi, Hui Shao, Yingnan Zhao, Nina A Thomas
Construct validity and impact of mode of administration of the PedsQL™ among a pediatric injury population
Sami Kruse, Amy Schneeberg, Mariana Brussoni
Translation and psychometric properties of the Chinese (Mandarin) version of the Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19) for school-age children
Chenghao Li, Bin Xia, Yu Wang, Xuelin Guan, Junwei Yuan, Lihong Ge
The impact of neuropathic pain and other comorbidities on the quality of life in patients with diabetes
Vesna Dermanovic Dobrota, Pero Hrabac, Dinko Skegro, Ranko Smiljanic, Savko Dobrota, Ingrid Prkacin, Neva Brkljacic, Kristijan Peros, Martina Tomic, Vesna Lukinovic-Skudar, Vanja Basic Kes
Quality of life after pulmonary embolism: validation of the French version of the PEmb-QoL questionnaire
Mathilde Rochat, Marie Méan, Andreas Limacher, Olivier Hugli, Frederikus A Klok, Danny M Cohn, Drahomir Aujesky
The validity of the EQ-5D-3L items: an investigation with type 2 diabetes patients from six European countries
Uwe Konerding, Sylvia G Elkhuizen, Raquel Faubel, Paul Forte, Tomi Malmström, Elpida Pavi, MF Bas Janssen
Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study
Linda Clare, Catherine Quinn, Zoe Hoare, Rhiannon Whitaker, Robert T Woods
Sample size used to validate a scale: a review of publications on newly-developed patient reported outcomes measures
Emmanuelle Anthoine, Leïla Moret, Antoine Regnault, Véronique Sébille, Jean-Benoit Hardouin
Quality of life ratings in dementia care – a cross-sectional study to identify factors associated with proxy-ratings
Johannes Gräske, Saskia Meyer, Karin Wolf-Ostermann
Health and quality of life outcomes
Meenakshi Jolly, Winston Sequeira, Joel A Block
Responsiveness of the Japanese Osteoporosis Quality of Life questionnaire in women with postmenopausal osteoporosis
Hisashi Urushihara, Kousei Yoh, Etsuro Hamaya, Masanori Taketsuna, Kiyoshi Tanaka
Reliability and validity of the Japanese version of the Self-Stigma Scale in patients with type 2 diabetes
Asuka Kato, Misato Takada, Hideki Hashimoto
Mapping the Functional Assessment of Cancer Therapy - Breast (FACT-B) to the 5-level EuroQoL group’s 5-dimension questionnaire (EQ-5D-5L) utility index in a Multi-ethnic Asian population
Yin Bun Cheung, Nan Luo, Raymond Ng, Chun Fan Lee
Risk factors for incidence and persistence of disability in chronic major depression and alcohol use disorders: Longitudinal analyses of a population-based study
María Cabello, Francisco Félix Caballero, Somnath Chatterji, Alarcos Cieza, José Luis Ayuso-Mateos
Assessing self-management in patients with diabetes mellitus type 2 in Germany: validation of a German version of the Summary of Diabetes Self-Care Activities measure (SDSCA-G)
Martina Kamradt, Kayvan Bozorgmehr, Johannes Krisam, Tobias Freund, Marion Kiel, Markus Qreini, Elisabeth Flum, Sarah Berger, Werner Besier, Joachim Szecsenyi, Dominik Ose
Normative data and clinically significant effect sizes for single-item numerical linear analogue self-assessment (LASA) scales
Jasvinder A Singh, Daniel Satele, Suneetha Pattabasavaiah, Jan C Buckner, Jeff A Sloan
Importance of remission and residual somatic symptoms in health-related quality of life among outpatients with major depressive disorder: a cross-sectional study
Jong-Min Woo, Hong Jin Jeon, Eunsun Noh, Hyo-Jin Kim, Sun Woo Lee, Kyung Kyu Lee, Sung Hwan Kim, Jin Pyo Hong
Graphic representation of the burden of suffering in dizziness patients
Steffi Weidt, Annette Beatrix Bruehl, Hanspeter Moergeli, Dominik Straumann, Stefan Hegemann, Stefan Büchi, Michael Rufer
Social support: an important factor for quality of life in women with hirsutism
Maria Palmetun Ekbäck, Magnus Lindberg, Eva Benzein, Kristofer Årestedt
Development and psychometric validation of the Chinese version of Skindex-29 and Skindex-16
Zehui He, Chuanjian Lu, Mary-Margaret Chren, Zhongzhao Zhang, Yan Li, Xiaojia Ni, Henry A Buchtel V, Paul F Ryan, Guo-Zheng Li
Longitudinal observation, evaluation and interpretation of coping with mental (emotional) health in low vision rehabilitation using the Dutch ICF Activity Inventory
Janna E Bruijning, Ger HMB van Rens, Mark Fick, Dirk L Knol, Ruth MA van Nispen
Evaluation of a skin self examination attitude scale using an item response theory model approach
Ngadiman Djaja, Pip Youl, Joanne Aitken, Monika Janda
Psychometric properties and factor structure of the 13-item satisfaction with daily occupations scale when used with people with mental health problems
Mona Eklund, Martin Bäckström, Aaron M Eakman
Comparison of three longitudinal analysis models for the health-related quality of life in oncology: a simulation study
Amélie Anota, Antoine Barbieri, Marion Savina, Alhousseiny Pam, Sophie Gourgou-Bourgade, Franck Bonnetain, Caroline Bascoul-Mollevi
Health related quality of life is differently associated with leisure-time physical activity intensities according to gender: a cross-sectional approach
Priscila Missaki Nakamura, Inaian Pignatti Teixeira, Bruno Paula Caraça Smirmaul, Emerson Sebastião, Camila Bosquiero Papini, Sebastião Gobbi, Eduardo Kokubun
The relationship of parental rearing behavior and resilience as well as psychological symptoms in a representative sample
Katja Petrowski, Elmar Brähler, Markus Zenger
Further investigation of the psychometric properties of the insulin treatment appraisal scale among insulin-using and non-insulin-using adults with type 2 diabetes: results from diabetes MILES – Australia
Elizabeth Holmes-Truscott, Frans Pouwer, Jane Speight
Ethnic differences in health related quality of life for patients with type 2 diabetes
Tracey Jhita, Stavros Petrou, Anil Gumber, Ala Szczepura, Neil T Raymond, Srikanth Bellary
Abdominal obesity and its association with health-related quality of life in adults: a population-based study in five Chinese cities
Shunquan Wu, Rui Wang, An Jiang, Yingying Ding, Meijing Wu, Xiuqiang Ma, Yanfang Zhao, Jia He
Burden of post-herpetic neuralgia in a sample of UK residents aged 50 years or older: findings from the zoster quality of life (ZQOL) study
Mick Serpell, Adam Gater, Stuart Carroll, Linda Abetz-Webb, Azharul Mannan, Robert Johnson
Validation of the Spanish version of the hip outcome score: a multicenter study
Roberto Seijas, Andrea Sallent, Miguel Angel Ruiz-Ibán, Oscar Ares, Oliver Marín-Peña, Ricardo Cuéllar, Alfonso Muriel
Utility values for specific hepatic encephalopathy health states elicited from the general public in the United Kingdom
Julian F Guest, Kam Nanuwa, Rob Barden
Assessment of health-related quality of life in antiviral-treated Taiwanese chronic hepatitis C patients using SF-36 and CLDQ
Shu-Chuan Chang, Sheng-Shun Yang, Chiu-Chun Chang, Chun-Che Lin, Yueh-Chin Chung, Tsai-Chung Li
Gender differences in healthy life expectancy among Brazilian elderly
Ana Paula Belon, Margareth G Lima, Marilisa BA Barros
Validation of a Spanish version of the Spine Functional Index
Antonio I Cuesta-Vargas, Charles P Gabel
Validation of the Fatigue Severity Scale in chronic hepatitis C
Kathleen Rosa, Min Fu, Leen Gilles, Karin Cerri, Monika Peeters, Jeffrey Bubb, Jane Scott
Estimation of health-related utility (EQ-5D index) in subjects with seasonal allergic rhinoconjunctivitis to evaluate health gain associated with sublingual grass allergen immunotherapy
Chris D Poole, Christian A Bannister, Jakob Nørgaard Andreasen, Jens Strodl Andersen, Craig J Currie
A confirmatory bifactor analysis of the hospital anxiety and depression scale in an Italian community sample
Luca Iani, Marco Lauriola, Massimo Costantini
Building resiliency: a cross-sectional study examining relationships among health-related quality of life, well-being, and disaster preparedness
Monica E Gowan, Ray C Kirk, Jeff A Sloan
What contributes to a good quality of life in early dementia? awareness and the QoL-AD: a cross-sectional study
Robert T Woods, Sharon M Nelis, Anthony Martyr, Judith Roberts, Christopher J Whitaker, Ivana Markova, Ilona Roth, Robin Morris, Linda Clare
Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures
Richard Harding, Lucy Selman, Zippy Ali, Richard A Powell, Eve Namisango, Faith Mwangi-Powell, Liz Gwyther, Nancy Gikaara, Irene J Higginson, Richard J Siegert
Overcoming barriers to the implementation of patient-reported outcomes in cancer clinical trials: the PROMOTION Registry
Fabio Efficace, Jonathan Rees, Peter Fayers, Andrea Pusic, Martin Taphoorn, Elfriede Greimel, Jaap Reijneveld, Katie Whale, Jane Blazeby
Development of a patient decision aid for people with refractory angina: protocol for a three-phase pilot study
Michael Hugh McGillion, Sandra Lee Carroll, Kelly Metcalfe, Heather Mary Arthur, Joseph Charles Victor, Robert McKelvie, Etienne Marc Jolicoeur, Marie-Gabrielle Lessard, James Stone, Nelson Svorkdal, John George Hanlon, Ada Andrade, Joel Niznick, Louise Malysh, William McDonald, Bonnie Stevens, Peter Coyte, Dawn Stacey
Significant impairment of health-related quality of life in mainland Chinese patients with chronic hepatitis B: a cross-sectional survey with pair-matched healthy controls
Guihua Zhuang, Min Zhang, Yong Liu, Yaling Guo, Qian Wu, Kaina Zhou, Zhenhao Ji, Xiaomei Zhang
Internalizing the threat of risk-a qualitative study about adolescents’ experience living with screening-detected celiac disease 5 years after diagnosis
Katrina Nordyke, Anna Rosén, Maria Emmelin, Anneli Ivarsson
Comparative efficacy of biologics as monotherapy and in combination with methotrexate on patient reported outcomes (PROs) in rheumatoid arthritis patients with an inadequate response to conventional DMARDs – a systematic review and network meta-analysis
Jeroen P Jansen, Felicity Buckley, Fred Dejonckheere, Sarika Ogale
Body image in idiopathic scoliosis: a comparison study of psychometric properties between four patient-reported outcome instruments
Antonia Matamalas, Joan Bagó, Elisabetta D'Agata, Ferran Pellisé
Frailty and quality of life: a cross-sectional study of Brazilian patients with pre-dialysis chronic kidney disease
Henrique Novais Mansur, Fernando AB Colugnati, Fabiane Rossi dos Santos Grincenkov, Marcus Gomes Bastos
Social support systems as determinants of self-management and quality of life of people with diabetes across Europe: study protocol for an observational study
Jan Koetsenruijter, Jan van Lieshout, Ivaylo Vassilev, Mari Carmen Portillo, Manuel Serrano, Ingrid Knutsen, Poli Roukova, Christos Lionis, Elka Todorova, Christina Foss, Anne Rogers, Michel Wensing
Screening preschool children with toothache: validation of the Brazilian version of the Dental Discomfort Questionnaire
Anelise Daher, Judith Versloot, Cláudio Rodrigues Leles, Luciane Rezende Costa
Validation of the Chinese version of the Reynolds’ suicidal ideation questionnaire: psychometric properties and its short version
Yi Zhang, Paul Siu Fai Yip, King-wa Fu
Mapping EORTC QLQ-C30 and QLQ-MY20 to EQ-5D in patients with multiple myeloma
Irina Proskorovsky, Philip Lewis, Cathy D Williams, Karin Jordan, Charalampia Kyriakou, Jack Ishak, Faith E Davies
Comparison of the ECOHIS and short-form P-CPQ and FIS scales
William M Thomson, Lyndie A Foster Page, Penelope E Malden, Wanda N Gaynor, Norhasnida Nordin
Properties of patient-reported outcome measures in individuals following acute whiplash injury
Joshua Pink, Stavros Petrou, Esther Williamson, Mark Williams, Sarah E Lamb
Perceived effects of health status on sexual activity in women and men older than 50 years
Gudrun Rohde, Kari Hansen Berg, Glenn Haugeberg
The influence of study population and definition of improvement on the smallest detectable change and the minimal important change of the neck disability index
Wouter Schuller, Raymond WJG Ostelo, Richard Janssen, Henrica CW de Vet
Item response theory and factor analysis as a mean to characterize occurrence of response shift in a longitudinal quality of life study in breast cancer patients
Amélie Anota, Caroline Bascoul-Mollevi, Thierry Conroy, Francis Guillemin, Michel Velten, Damien Jolly, Mariette Mercier, Sylvain Causeret, Jean Cuisenier, Olivier Graesslin, Zeinab Hamidou, Franck Bonnetain
Impact of angina frequency on health utility values of patients with chronic stable angina
Christine G Kohn, Matthew W Parker, Brendan L Limone, Craig I Coleman
Development and validation of the coronary heart disease scale under the system of quality of life instruments for chronic diseases QLICD-CHD: combinations of classical test theory and Generalizability theory
Chonghua Wan, Hezhan Li, Xuejin Fan, Ruixue Yang, Jiahua Pan, Wenru Chen, Rong Zhao