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AIDS and Behavior

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20.02.2016 | Original Paper

The Positive Outlook Study: A Randomised Controlled Trial Evaluating Online Self-Management for HIV Positive Gay Men

verfasst von: Tanya Millard, Paul A. Agius, Karalyn McDonald, Sean Slavin, Sonya Girdler, Julian H. Elliott

Erschienen in: AIDS and Behavior | Ausgabe 9/2016

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Abstract

The aim of this paper was to evaluate the effectiveness of an online self-management program in improving health outcomes and well-being for gay men living with HIV in Australia. The online Positive Outlook Program was based on self-efficacy theory and used a self-management approach to enhance HIV-positive gay men’s skills, confidence and abilities to manage the psychosocial issues associated with HIV in daily life. The 7-week program was delivered in closed groups and comprised information modules, action-planning activities, moderated discussion boards, and weekly peer-facilitated ‘live chats’. A randomised controlled trial was conducted to establish the effectiveness of the Positive Outlook program compared to a ‘usual care’ control. Participants were HIV-positive gay men 18 years or older living in Australia. Primary outcomes were evaluated at three time-points (baseline, post-intervention and 12-week’s post-intervention follow-up) and included HIV-related quality of life (PROQOL-HIV), outcomes of health education (HeiQ) and HIV specific self-efficacy (Positive Outlook Self-Efficacy Scale). A total of 132 gay men with HIV in Australia were randomly allocated to the intervention (n = 68) or usual care control (n = 64) groups. Maximum likelihood marginal-linear modelling indicated significant improvement in the intervention group on the PROQOL-HIV subscales of body change (p = 0.036), social relationships (p = 0.035) and emotional distress (p = 0.031); the HeiQ subscales of health-directed activity (p = 0.048); constructive attitudes and approaches (p = 0.015); skill and technique acquisition (p = 0.046) and health service navigation (p = 0.008); and the Positive Outlook Self-Efficacy Scale on the subscales of relationships (p = 0.019); social participation (p = 0.006); and emotions (p = 0.041). Online delivery of self-management programs is feasible and has the potential to improve quality of life, self-management skills and domain specific self-efficacy for gay men with HIV.

van Sighem A, Gras L, Reiss P, Brinkman K, de Wolf F. Life expectancy of recently diagnosed asymptomatic HIV-infected patients approaches that of uninfected individuals. AIDS. 2010;24:1527–35.CrossRefPubMed

Nakagawa F, Lodwick RK, Smith CJ, Smith R, Cambiano V, Lundgren JD, Delpech V, Phillips AN. Projected life expectancy of people with HIV according to timing of diagnosis. AIDS. 2012;26:335–43.CrossRefPubMed

Grierson J, Power J, Pitts M, Croy S, Clement T, Thorpe R, McDonald K. HIV futures 6: making positive lives count. Melbourne: The Australian Research Centre in Sex, Health and Society, Latrobe University; 2009.

Bravo P, Edwards A, Rollnick S, Elwyn G. Tough decisions faced by people living with HIV: a literature review of psychosocial problems. AIDS Rev. 2010;12:76–88.PubMed

Green G, Smith R. The psychosocial and health care needs of HIV-positive people in the United Kingdom: a review. HIV Medicine. 2004;5:4–46.CrossRef

Mao L, Kippax SC, Newman CE, Andrews G, Rogers G, Saltman DC, Kidd MR. Rates of depression among men attending high-HIV-caseload general practices in Australia. Mental Health Fam Med. 2008;5:79.

Institute TK. HIV, viral hepatitis and sexually transmissible infections in Australia. In: Book HIV, viral hepatitis and sexually transmissible infections in Australia. Kensington: The Kirby Institute, University of New South Wales; 2014.

Kalichman SC, DiMarco M, Austin J, Luke W, DiFonzo K. Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. J Behav Med. 2003;26:315–32.CrossRefPubMed

Mayfield-Arnold EM, Rice E, Flannery D, Rotheram-Borus MJ. HIV disclosure among adults living with HIV. AIDS Care. 2008;20:80–92.CrossRefPubMed

10.

Smith R, Rosetto K, Peterson BL. A meat-analysis of disclosure of one’s HIV-positive status, stigma and social support. AIDS Care. 2008;20:1266–75.CrossRefPubMed

11.

Crepaz N, Marks G. Serostatus disclosure, sexual communication and safer sex in HIV-positive men. AIDS Care. 2003;15:379–87.CrossRefPubMed

12.

Greene K, Frey LR, Derlega VJ. Interpersonalizing AIDS: attending to the personal and social relationships of individuals living with HIV and/or AIDS. J Soc Pers Relationsh. 2002;19:5–17.CrossRef

13.

Leserman J, Jackson ED, Petitto JM, Golden RN, Silva SG, Perkins DO, Cai J, Folds JD, Evans DL. Progression to AIDS: the effects of stress, depressive symptoms, and social support. Psychosom Med. 1999;61:397–406.CrossRefPubMed

14.

Swindells S, Mohr J, Justis JC, Berman S, Squire C, Wagener MM, Singh N. Quality of life in patients with human immunodeficiency virus infection: impact of social support, coping style and hopelessness. Int J STD AIDS. 1999;10:383–91.CrossRefPubMed

15.

Jia H, Uphold CR, Wu S, Reid K, Findley K, Duncan PW. Health-related quality of life among men with HIV infection: effects on social support, coping and depression. AIDS Patient Care STDs. 2004;18:594–603.CrossRefPubMed

16.

Burgoyne R, Renwick R. Social support and quality of life over time among adults living with HIV in the HAART era. Soc Sci Med. 2004;58:1353–66.CrossRefPubMed

17.

Brashers DE, Neidig JL, Goldsmith DJ. Social support and the management of uncertainty for people living with HIV or AIDS. Health Commun. 2004;16:305–31.CrossRefPubMed

18.

Norris SL, Engelgua MM, Venkat Narayan KM. Effectivness of self-management training in type 2 diabetes. Diabetes Care. 2001;24:561–87.CrossRefPubMed

19.

Lorig KR, Ritter PL, Dost A, Plant K, Laurent DD, Mcneil I. The expert patients programme online, a 1-year study of an Internet-based self-management programme for people with long-term conditions. Chronic Illness. 2008;4:247–56.CrossRefPubMed

20.

Lorig K, Sobel D, Stewart A, Brown B, Bandura A, Ritter P, Gonzalez V, Laurent D, Holman H. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization. Med Care. 1999;37:5–14.CrossRefPubMed

21.

Girdler SJ, Boldy DP, Dhaliwal SS, Crowley M, Packer TL. Vision self-management for older adults: a randomised controlled trial. Br J Opthamol. 2010;94:223–8.CrossRef

22.

Organization WH. The World Health Report 2004: changing history. In: Book the world health report 2004: changing history. Geneva: World Health Organisation; 2004.

23.

Rueda S, Park-Wyllie LY, Bayoumi A, Tynan AM, Antoniou T, Rourke S, Glazier R. Patient support and education for promoting adherence to highly active antiretroviral therapy for HIV/AIDS. Cochrane Database Syst Rev. 2006;3:CD001442.PubMed

24.

Smith SR, Rublein JC, Marcus C, Brock TP, Chesney MA. A medication self-management program to improve adherence to HIV therapy regimens. Patient Educ Couns. 2003;50:187–99.CrossRefPubMed

25.

Chiou PY, Kuo BIT, Lee MB, Chen YM, Chuang P, Lin LC. A programme of symptom management for improving quality of life and drug adherence in AIDS/HIV patients. J Adv Nurs. 2006;55:169–79.CrossRefPubMed

26.

Webel AR. Testing a peer-based symptom management intervention for women living with HIV/AIDS. AIDS Care. 2010;1:1–13.

27.

Wantland DJ, Holzemer WL, Moezzi S, Willard SS, Arudo J, Kirksey KM, Portillo CJ, Corless IB, Rosa ME, Robinson LL, et al. A randomized controlled trial testing the efficacy of an HIV/AIDS symptom management manual. J Pain Symptom Manag. 2008;36:235–46.CrossRef

28.

Chiou P, Kuo BI, Lee M, Chen Y, Wu S, Lin L. A program of symptom management for improving self-care for patients with HIV-AIDS. AIDS Patient Care STDs. 2004;18:539–47.CrossRefPubMed

29.

Gifford AL, Sengupta S. Self-management health education for chronic HIV infection. AIDS Care. 1999;11:115–30.CrossRefPubMed

30.

Chesney MA, Chambers DB, Taylor JM, Johnson LM, Folkman S. Coping effectiveness training for men living with HIV: results from a randomized clinical trial testing a group-based intervention. Psychosom Med. 2003;65:1038–46.CrossRefPubMed

31.

Millard T, Elliott J, Girdler S. Self management education programs for people living with HIV/AIDS: a systematic review. AIDS Patient Care STD’s. 2013;27:103–13.CrossRef

32.

Kalichman SC, Cain D, Cherry C, Pope H, Eaton L, Kalichman MO. Internet use among people living with HIV/AIDS: coping and health-related correlates. AIDS Patient Care STDs. 2005;19:439–48.CrossRefPubMed

33.

ABS. Household use of information technology: Australia 2010–2011. In: Book household use of information technology: Australia 2010–2011. Melbourne: Australian Bureau of Statistics; 2011.

34.

Muessig KE, Nekkanti M, Bauermeister J, Bull S, Hightow-Weidman LB. A systematic review of recent smartphone, internet and web 2.0 interventions to address the HIV continuum of care. Curr HIV/AIDS Rep. 2015;12:173–90.CrossRefPubMedPubMedCentral

35.

Mahajan AP, Sayles JN, Patel VA, Remien RH, Ortiz D, Szekeres G, Coates TJ. Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward. AIDS. 2008;22:S67.CrossRefPubMedPubMedCentral

36.

Heckman TG. The chronic illness quality of life (QOL) model: explaining life satisfaction in people living with HIV disease. Health Psychol. 2003;22:140–7.CrossRefPubMed

37.

Lorig KR, Ritter PL, Laurent DD, Plant K. Internet-based chronic disease self-management: a randomized trial. Med Care. 2006;44(964–971):9. doi:10.1097/1001.mlr.0000233678.0000280203.c0000233671.

38.

van der Meer V, Bakker MJ, van den Hout WB, Rabe KF, Sterk PJ, Kievit J, Assendelft WJJ, Sont JK. Internet-based self-management plus education compared with usual care in asthma. Ann Intern Med. 2009;151:110–20.CrossRefPubMed

39.

Lorig KR, Ritter PL, Laurent DD, Plant K. The internet-based arthritis self-management program: a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Care Res. 2008;59:1009–17.CrossRef

40.

Millard T, Elliott J, Slavin S, McDonald K, Rowell S, Girdler S. The positive outlook study- a randomised controlled trial evaluating the effectiveness of an online self-management program targeting psychosocial issues for men living with HIV: a study protocol. BMC Public Health. 2014;14:106.CrossRefPubMedPubMedCentral

41.

Millard T, McDonald K, Elliott J, Slavin S, Rowell SG. Informing the development of an online self-management program for men living with HIV: a needs assessment. BMC Public Health. 2014;. doi:10.1186/1471-2458-14-1209.

42.

Bandura A. Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977;84:191–215.CrossRefPubMed

43.

Lorig KR, Holman HR. Self-management education: history, definition, outcomes and mechanisms. Ann Behav Med. 2003;26:1–7.CrossRefPubMed

44.

Duracinsky M, Lalanne C, Le Coeur S, Herrmann S, Berzins B, Armstrong AR, Fai Lau JT, Fournier I, Chassany O. Psychometric validation of the PROQOL-HIV questionnaire, a new health-related quality of life instrument–specific to HIV disease. JAIDS. 2012;59:506–15.PubMed

45.

Osborne RH, Elsworth GR, Whitfield K. The health educatuion impact questionnaire (heiQ): an outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions. Patient Educ Couns. 2007;66:192–201.CrossRefPubMed

46.

Nolte S, Elsworth GR, Sinclair AJ, Osborne RH. The extent and breadth of benefits from participating in chronic disease self-management courses: a national patient-reported outcomes survey. Patient Educ Couns. 2007;65:351–60.CrossRefPubMed

47.

Bartholomew LK, Parcel GS, Kok G, Gottlieb NH, Fernandez ME. Planning health promotion programs: an intervention mapping approach. San Francisco: Wiley; 2011.

48.

Gifford AL, Laurent DD, Gonzales VM, Chesney MA, Lorig KR. Pilot randomized trial of education to improve self-management skills of men with symptomatic HIV/AIDS. Clin Sci. 1998;18:136–44.

49.

Allison PD. Missing data. Thousand Oaks: Sage publications; 2001.

50.

Huber PJ. The behavior of maximum likelihood estimates under nonstandard conditions. In: Proceedings of the fifth Berkeley symposium on mathematical statistics and probability; 1967. p. 221–233.

51.

Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. New York: Psychology Press; 1988.

52.

StataCorp L. Stata version 13.0. College Station: StataCorp LP; 2013.

53.

Johnson C, Feinglos M, Pereira K, Hassell N, Blascovich J, Nicollerat J, Beresford HF, Levy J, Vorderstrasse A. Feasibility and preliminary effects of a virtual environment for adults with Type 2 diabetes: pilot study. J Med Internet Res (JMIR) Res Protoc. 2014; 3:e35.

54.

Nguyen HQ, Donesky-Cuenco D, Wolpin S, Reinke LF, Benditt JO, Paul SM, Carrieri-Kohlman V. Randomized controlled trial of an Internet-based versus face-to-face dyspnea self-management program for patients with chronic obstructive pulmonary disease: Pilot study. J Med Internet Res. 2008;. doi:10.2196/jmir.990.PubMedPubMedCentral

55.

Ghahari S, Packer TL, Passmore AE. Effectiveness of an online fatigue self-management programme for people with chronic neurological conditions: a randomized controlled trial. Clin Rehabil. 2010;24:727–44.CrossRefPubMed

56.

Webb T, Joseph J, Yardley L, Michie S. Using the internet to promote health behavior change: a systematic review and meta-analysis of the impact of theoretical basis, use of behavior change techniques, and mode of delivery on efficacy. J Med Internet Res. 2010;12:e4.CrossRefPubMedPubMedCentral

57.

Lorig KR, Ritter P, Stewart AL, Sobel DS, William Brown B, Bandura A, Gonzales VM, LaurentDD DS, Holman HR. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care. 2001;39:1217–33.CrossRefPubMed

58.

Samoocha D, Bruinvels DJ, Elbers NA, Anema JR, van der Beek AJ. Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res. 2010;. doi:10.2196/jmir.1286.PubMedPubMedCentral

59.

McDowell TL, Serovich JM. The effect of perceived and actual social support on the mental health of HIV-positive persons. AIDS Care. 2007;19:1223–9.CrossRefPubMedPubMedCentral

60.

Mavandadi S, Zanjani F, Ten Have TR, Oslin DW. Psychological wellbeing among individuals aging with HIV: the value of social relationships. J Acquir Immune Defic Syndr. 2009;51:91.CrossRefPubMedPubMedCentral

61.

Glasgow RE, Kurz D, King D, Dickman JM, Faber AJ, Halterman E, Woolley T, Toobert DJ, Strycker LA, Estabrooks PA. Twelve-month outcomes of an Internet-based diabetes self-management support program. Patient Educ Couns. 2012;87:81–92.CrossRefPubMed

62.

Wing RR, Tate DF, Gorin AA, Raynor HA, Fava JL. A self-regulation program for maintenance of weight loss. N Engl J Med. 2006;355:1563–71.CrossRefPubMed

63.

Tate DF, Jackvony EH, Wing RR. A randomized trial comparing human e-mail counseling, computer-automated tailored counseling, and no counseling in an Internet weight loss program. Arch Intern Med. 2006;166:1620–5.CrossRefPubMed

64.

Gold BC, Burke S, Pintauro S, Buzzell P, Harvey-Berino J. Weight loss on the web: a pilot study comparing a structured behavioral intervention to a commercial program. Obesity. 2007;15:155.CrossRefPubMed

65.

Gunther E. The law of attrition. J Med Internet Res. 2005;7:e11.CrossRef

66.

Wantland DJ, Portillo CJ, Holzemer WL, Slaughter R, McGhee EM. The effectiveness of web-based vs. non-web-based interventions: a meta-analysis of behavioral change outcomes. J Med Internet Res. 2004;6:4e0.CrossRef

Titel: The Positive Outlook Study: A Randomised Controlled Trial Evaluating Online Self-Management for HIV Positive Gay Men
verfasst von: Tanya Millard
Paul A. Agius
Karalyn McDonald
Sean Slavin
Sonya Girdler
Julian H. Elliott
Publikationsdatum: 20.02.2016
Verlag: Springer US
Erschienen in: AIDS and Behavior / Ausgabe 9/2016
Print ISSN: 1090-7165
Elektronische ISSN: 1573-3254
DOI: https://doi.org/10.1007/s10461-016-1301-5

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