Background
Methods
Study design and setting
Data source
Data on recorded actual timing of ACP initiation
Data on perceived optimal timing of ACP initiation
Data analysis
Results
Total (n = 51) | Cancer (n = 24) | Organ failure (n = 16) | Multimorbidity (n = 11) | |
---|---|---|---|---|
Female sex: % (n) | 61 (31) | 63 (15) | 56 (9) | 64 (7) |
Age in years at time of death: median (IQR) | 82 (12) | 75 (17) | 85 (9) | 89 (16) |
Recorded actual vs. perceived optimal timing of ACP initiation
Qualitative analysis of the moment of the actual vs. perceived optimal ACP initiation
Total (n = 51) | Cancer (n = 24) | Organ failure (n = 16) | Multimorbidity (n = 11) | |||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
Timing (number of triggers identified) Triggers, % of total n identified triggers | Recorded actual (n = 144) | Perceived optimal (n = 388*) | Recorded actual (n = 71) | Perceived optimal (n = 197*) | Recorded actual (n = 41) | Perceived optimal (n = 114*) | Recorded actual (n = 32) | Perceived optimal (n = 77*) | ||||
% | % | % | % | % | % | % | % | |||||
In timeline of the diseasea | 25 | 28 | 32 | 39 | 20 | 23 | 16 | 9 | ||||
Symptoms indicating deteriorationb | 29 | 24 | 25 | 17 | 24 | 29 | 44 | 36 | ||||
Mental and spiritual health aspectsc | 24 | 23 | 25 | 24 | 22 | 22 | 25 | 23 | ||||
Patient characteristicsd | 3 | 3 | 0 | 2 | 10 | 4 | 0 | 7 | ||||
Appropriate setting** | 10 | 13 | 10 | 13 | 10 | 12 | 9 | 14 | ||||
Social contexte | 1 | 2 | 1 | 1 | 2 | 3 | 0 | 4 | ||||
Opportunity for initiation raised by other healthcare professional or family member | 8 | 6 | 10 | 6 | 12 | 7 | 6 | 7 |