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memo - Magazine of European Medical Oncology

Erschienen in:

02.08.2019 | short review

Cure is not enough! Why it is time to act and close the gap

Survivors speaking up

verfasst von: Carina Schneider, Jaap den Hartogh, Katharina Feckter, Zuzana Tomášiková, Anita Kienesberger, CCI Europe Survivors Network, CCI Europe

Erschienen in: memo - Magazine of European Medical Oncology | Ausgabe 3/2019

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Summary

Purpose

Good news: Survival rates in childhood cancer have increased from 20% up to over 80% in Europe, depending on cancer type and country. Not so good news: This great success comes with the price that up to 60 to 70% of childhood cancer survivors suffer from cancer- and treatment-related long-term effects that need life-long follow-up care. Bad news: transition from paediatric health care to adult health care still poses a great problem for childhood cancer survivors due to the lack of adequate long-term care structures for adult survivors of childhood cancer.

Patients and methods

Ongoing initiatives and projects driven forward jointly by survivors, parents and health care professionals tackle this gap: Childhood Cancer International Europe (CCI-E) and its Survivors Network (CCI-ESN), the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (PanCare) and the European Society for Paediatric Oncology (SIOP Europe) are working on and advocating for better long-term follow-up care structures across Europe.

Results

Three ongoing best practice projects are presented—each reflecting one important element in the delivery and provision of comprehensive long-term follow-up care: The PanCareFollowUp Project, the Survivorship-Passport and the ZONE-project.

Conclusion

The Childhood Cancer International Europe Survivors Network call for action: We need the support of politicians and our health care systems to make sure that every single survivor gets the long-term care that they need. So #RaiseYourHands4Survivors and help us close the gap!

ZONE is the German acronym for the project “Centre for oncological follow-up of adult Survivors (of childhood cancer)”.

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Titel: Cure is not enough! Why it is time to act and close the gap
Survivors speaking up
verfasst von: Carina Schneider
Jaap den Hartogh
Katharina Feckter
Zuzana Tomášiková
Anita Kienesberger
CCI Europe Survivors Network
CCI Europe
Publikationsdatum: 02.08.2019
Verlag: Springer Vienna
Erschienen in: memo - Magazine of European Medical Oncology / Ausgabe 3/2019
Print ISSN: 1865-5041
Elektronische ISSN: 1865-5076
DOI: https://doi.org/10.1007/s12254-019-0508-3

Springer Medizin

Cure is not enough! Why it is time to act and close the gap

Survivors speaking up