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Supportive Care in Cancer

Erschienen in:

01.11.2006 | Original Article

Supportive care needs of people with brain tumours and their carers

verfasst von: Monika Janda, Elizabeth G. Eakin, Lucy Bailey, David Walker, Kate Troy

Erschienen in: Supportive Care in Cancer | Ausgabe 11/2006

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Abstract

Goals of work

The diagnosis and treatment of a brain tumour may result in long-term changes in a patient’s functional and social abilities and/or in a greatly reduced life span. A qualitative investigation was conducted to examine the supportive care needs of patients with brain tumour and their carers.

Materials and methods

Overall, 18 patients and 18 carers participated in focus groups or telephone interviews, following a structured interview guide to elicit supportive care services of importance to these patients and carers.

Main results

Six major themes were identified using the framework analysis method, including needs for information and coping with uncertainty, practical support, support to return to pretreatment responsibilities or prepare for long-term care, support to deal with social isolation and organize respite care, support to overcome stigma/discrimination and support to discuss potentially reduced life expectancy.

Conclusions

Five recommendations to improve service delivery include: assignment of a dedicated member of the care team or case manager; proactive dissemination of information, education and psychosocial support; access to objective assessment of neuropsychological functioning; facilitating easier access to welfare payments; and services facilitating communication about difficult illness-related topics. Provision of services along these recommendations could improve supportive care of brain tumour patients and their carers.

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Titel: Supportive care needs of people with brain tumours and their carers
verfasst von: Monika Janda
Elizabeth G. Eakin
Lucy Bailey
David Walker
Kate Troy
Publikationsdatum: 01.11.2006
Verlag: Springer-Verlag
Erschienen in: Supportive Care in Cancer / Ausgabe 11/2006
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-006-0074-1

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