Skip to main content
Erschienen in: Quality of Life Research 6/2011

01.08.2011

Race and preference-based health-related quality of life measures in the United States

verfasst von: Claudia C. A. Pereira, Mari Palta, John Mullahy, Dennis G. Fryback

Erschienen in: Quality of Life Research | Ausgabe 6/2011

Einloggen, um Zugang zu erhalten

Abstract

Background

Health-related quality of life instruments (HRQoL) are widely used to produce measures that summarize population health and to inform decision-making and health policy. Although the literature about the relationship between health and race in the United States is quite extensive, there is a lack of studies that comprehensively examine the relationship between race and preference-based HRQoL. Given the widespread use of these measures, it becomes important to understand the extent of the race differences in HRQoL scores and factors associated with any such differences.

Methods

We examined the differences in HRQoL, between blacks and whites and associated factors, using the summary scores of the SF-6D, EQ-5D, QWB-SA, HUI2, HUI3, administered by telephone to a nationally representative sample of 3,578 black and white US adults between the ages of 35 and 89 in the National Health Measurement Study (NHMS).

Results

Black women had substantially lower HRQoL than white women. The difference was largely explained by sociodemographic and socioeconomic variables. Black men did not differ significantly from white men, except for the EQ-5D. HRQoL among black men was higher at higher income levels, while the HRQoL of black women was especially low compared to other groups at high income levels.
Literatur
1.
Zurück zum Zitat Williams, D., & Mohammed, S. (2009). Discrimination and racial disparities in health: evidence and needed research. Journal of Behavioral Medicine, 32, 20–47.PubMedCrossRef Williams, D., & Mohammed, S. (2009). Discrimination and racial disparities in health: evidence and needed research. Journal of Behavioral Medicine, 32, 20–47.PubMedCrossRef
2.
Zurück zum Zitat Barr, D. A. (2008). Health disparities in the United States : Social class, race, ethnicity, and health. Baltimore: Johns Hopkins University Press. Barr, D. A. (2008). Health disparities in the United States : Social class, race, ethnicity, and health. Baltimore: Johns Hopkins University Press.
3.
Zurück zum Zitat Williams, D. R., Yan, Y., Jackson, J. S., & Anderson, N. B. (1997). Racial differences in physical and mental health: Socio-economic status, stress and discrimination. Journal of Health Psychology, 2, 335–351.CrossRef Williams, D. R., Yan, Y., Jackson, J. S., & Anderson, N. B. (1997). Racial differences in physical and mental health: Socio-economic status, stress and discrimination. Journal of Health Psychology, 2, 335–351.CrossRef
4.
Zurück zum Zitat Quittner, A. L., Schechter, M. S., Rasouliyan, L., Haselkorn, T., Pasta, D. J., & Wagener, J. S. (2010). Impact of socioeconomic status, race, and ethnicity on quality of life in patients with cystic fibrosis in the United States. Chest, 137(3), 642–650.PubMedCrossRef Quittner, A. L., Schechter, M. S., Rasouliyan, L., Haselkorn, T., Pasta, D. J., & Wagener, J. S. (2010). Impact of socioeconomic status, race, and ethnicity on quality of life in patients with cystic fibrosis in the United States. Chest, 137(3), 642–650.PubMedCrossRef
5.
Zurück zum Zitat Xie, J., Wu, E., Zheng, Z., Sullivan, P., Zhan, L., & Labarthe, D. (2008). Patient-reported health status in coronary heart disease in the United States: Age, sex, racial, and ethnic differences. Circulation, 118, 491–497.PubMedCrossRef Xie, J., Wu, E., Zheng, Z., Sullivan, P., Zhan, L., & Labarthe, D. (2008). Patient-reported health status in coronary heart disease in the United States: Age, sex, racial, and ethnic differences. Circulation, 118, 491–497.PubMedCrossRef
6.
Zurück zum Zitat Gaskin, D., & Frick, K. (2008). Race and ethnic disparities in valuing health. Medical Decision Making, 28, 12–20.PubMedCrossRef Gaskin, D., & Frick, K. (2008). Race and ethnic disparities in valuing health. Medical Decision Making, 28, 12–20.PubMedCrossRef
7.
Zurück zum Zitat Luo, N., Johnson, J., Shaw, J., Feeny, D., & Coons, S. (2005). Self-reported health status of the general adult U.S. population as assessed by the EQ-5D and health utilities index. Medical Care, 43, 1078–1086.PubMedCrossRef Luo, N., Johnson, J., Shaw, J., Feeny, D., & Coons, S. (2005). Self-reported health status of the general adult U.S. population as assessed by the EQ-5D and health utilities index. Medical Care, 43, 1078–1086.PubMedCrossRef
8.
Zurück zum Zitat Lubetkin, E., Jia, H., Franks, P., & Gold, M. (2005). Relationship among sociodemographic factors, clinical conditions, and health-related quality of life: Examining the EQ-5D in the U.S. general population. Quality of Life Research, 14, 2187–2196.PubMedCrossRef Lubetkin, E., Jia, H., Franks, P., & Gold, M. (2005). Relationship among sociodemographic factors, clinical conditions, and health-related quality of life: Examining the EQ-5D in the U.S. general population. Quality of Life Research, 14, 2187–2196.PubMedCrossRef
9.
Zurück zum Zitat Brooks, R., Rabin, R., & de Charro, F. (2003). The measurement and valuation of health status using EQ-5D: A European perspective. Dordrecht, Netherlands: Kluwer Academic Publishers. Brooks, R., Rabin, R., & de Charro, F. (2003). The measurement and valuation of health status using EQ-5D: A European perspective. Dordrecht, Netherlands: Kluwer Academic Publishers.
10.
Zurück zum Zitat Shaw, J. W., Johnson, J. A., & Coons, S. J. (2005). US valuation of the EQ-5D health states: Development and testing of the DI valuation model. Medical Care, 43(3), 203–220.PubMedCrossRef Shaw, J. W., Johnson, J. A., & Coons, S. J. (2005). US valuation of the EQ-5D health states: Development and testing of the DI valuation model. Medical Care, 43(3), 203–220.PubMedCrossRef
11.
Zurück zum Zitat Torrance, W. G., Feeny, D. H., Furlong, W. J., Barr, R. D., Zhang, Y., & Wang, Q. (1996). Multiattribute utility function for a comprehensive health status classification system: Health utilities index mark 2. Medical Care, 34(7), 702–722.PubMedCrossRef Torrance, W. G., Feeny, D. H., Furlong, W. J., Barr, R. D., Zhang, Y., & Wang, Q. (1996). Multiattribute utility function for a comprehensive health status classification system: Health utilities index mark 2. Medical Care, 34(7), 702–722.PubMedCrossRef
12.
Zurück zum Zitat Feeny, D., Furlong, W., Torrance, G. W., Goldsmith, C. H., Zhu, Z., DePauw, S., et al. (2002). Multiattribute and singleattribute utility functions for the health utilities index mark 3 system. Medical Care, 40, 113–128.PubMedCrossRef Feeny, D., Furlong, W., Torrance, G. W., Goldsmith, C. H., Zhu, Z., DePauw, S., et al. (2002). Multiattribute and singleattribute utility functions for the health utilities index mark 3 system. Medical Care, 40, 113–128.PubMedCrossRef
13.
Zurück zum Zitat Andresen, E. M., Rothenberg, B. M., & Kaplan, R. M. (1998). Performance of a self-administered mailed version of the quality of well-being (QWB-SA) questionnaire among older adults. Medical Care, 36, 1349–1360.PubMedCrossRef Andresen, E. M., Rothenberg, B. M., & Kaplan, R. M. (1998). Performance of a self-administered mailed version of the quality of well-being (QWB-SA) questionnaire among older adults. Medical Care, 36, 1349–1360.PubMedCrossRef
14.
Zurück zum Zitat Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21, 271–292.PubMedCrossRef Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21, 271–292.PubMedCrossRef
15.
Zurück zum Zitat Brazier, J., & Roberts, J. (2004). The estimation of a preference-based measure of health from the SF-12. Medical Care, 42, 851–859.PubMedCrossRef Brazier, J., & Roberts, J. (2004). The estimation of a preference-based measure of health from the SF-12. Medical Care, 42, 851–859.PubMedCrossRef
16.
Zurück zum Zitat Sullivan, P., Lawrence, W., & Ghushchyan, V. (2005). A national catalog of preference-based scores for chronic conditions in the United States. Medical Care, 43, 736–749.PubMedCrossRef Sullivan, P., Lawrence, W., & Ghushchyan, V. (2005). A national catalog of preference-based scores for chronic conditions in the United States. Medical Care, 43, 736–749.PubMedCrossRef
17.
Zurück zum Zitat House, J., & Williams, D. R. (2003). Understanding and reducing socioeconomic and racial/ethnic disparities in health. In R. Hofrichter (Ed.), Health and social justice: A reader on the politics, ideology, and inequity in the distribution of disease (pp. 89–131). San Francisco: Jossey-Bass. House, J., & Williams, D. R. (2003). Understanding and reducing socioeconomic and racial/ethnic disparities in health. In R. Hofrichter (Ed.), Health and social justice: A reader on the politics, ideology, and inequity in the distribution of disease (pp. 89–131). San Francisco: Jossey-Bass.
18.
Zurück zum Zitat Fryback, D., Dunham, N., Palta, M., Hanmer, J., Buechner, J., Cherepanov, D., et al. (2007). US norms for six generic health-related quality-of-life indexes from the national health measurement study. Medical Care, 45, 1162–1170.PubMedCrossRef Fryback, D., Dunham, N., Palta, M., Hanmer, J., Buechner, J., Cherepanov, D., et al. (2007). US norms for six generic health-related quality-of-life indexes from the national health measurement study. Medical Care, 45, 1162–1170.PubMedCrossRef
19.
Zurück zum Zitat Cherepanov, D., Palta, M., Fryback, D. G., & Robert, S. A. (2010). Gender differences in health-related quality-of-life are partly explained by sociodemographic and socioeconomic variation between adult men and women in the US: Evidence from four US nationally representative data sets. Quality of Life Research (in press). Cherepanov, D., Palta, M., Fryback, D. G., & Robert, S. A. (2010). Gender differences in health-related quality-of-life are partly explained by sociodemographic and socioeconomic variation between adult men and women in the US: Evidence from four US nationally representative data sets. Quality of Life Research (in press).
20.
Zurück zum Zitat Robert, S. A., Cherepanov, D., Palta, M., Dunham, N. C., Feeny, D., & Fryback, D. G. (2009). Socioeconomic status and age variations in health-related quality of life: Results from the national health measurement study. Journal of Gerontology: Social Science, 64B, 378–389.CrossRef Robert, S. A., Cherepanov, D., Palta, M., Dunham, N. C., Feeny, D., & Fryback, D. G. (2009). Socioeconomic status and age variations in health-related quality of life: Results from the national health measurement study. Journal of Gerontology: Social Science, 64B, 378–389.CrossRef
21.
Zurück zum Zitat Schafer, J. L. (1997). Analysis of incomplete multivariate data. London: Chapman & Hall.CrossRef Schafer, J. L. (1997). Analysis of incomplete multivariate data. London: Chapman & Hall.CrossRef
22.
Zurück zum Zitat Kaplan, R. M. (2005). The minimally clinically important difference in generic utility-based measures. COPD, 21, 91–97.CrossRef Kaplan, R. M. (2005). The minimally clinically important difference in generic utility-based measures. COPD, 21, 91–97.CrossRef
23.
Zurück zum Zitat Walters, S. J., & Brazier, J. E. (2003). What is the relationship between the minimally important difference and health state utility values? The case of the SF-6D. Health and Quality of Life Outcomes, 11, 1–4. Walters, S. J., & Brazier, J. E. (2003). What is the relationship between the minimally important difference and health state utility values? The case of the SF-6D. Health and Quality of Life Outcomes, 11, 1–4.
24.
Zurück zum Zitat Walters, S. J., & Brazier, J. E. (2005). Comparison of the minimally important difference for two health state utility measures: EQ-5D and SF-6D. Health and Quality of Life Outcomes, 146, 1523–1532. Walters, S. J., & Brazier, J. E. (2005). Comparison of the minimally important difference for two health state utility measures: EQ-5D and SF-6D. Health and Quality of Life Outcomes, 146, 1523–1532.
25.
Zurück zum Zitat Coons, S., & Shaw, J. (2005). Generic adult health status measures. In P. Hayers & R. Hays (Eds.), Assessing quality of life in clinical trials (p. 467). New York: Oxford University Press. Coons, S., & Shaw, J. (2005). Generic adult health status measures. In P. Hayers & R. Hays (Eds.), Assessing quality of life in clinical trials (p. 467). New York: Oxford University Press.
26.
Zurück zum Zitat National Center for Health Statistics. (2007). Chartbook on trends in the health of Americans. In Health, United States, 2007 (p. 551). Hyattsville, MD. National Center for Health Statistics. (2007). Chartbook on trends in the health of Americans. In Health, United States, 2007 (p. 551). Hyattsville, MD.
27.
Zurück zum Zitat Ware, D., & Livingston, I. (2004). The life expectancy of the black male: Pressing issues from the cradle to the grave. In I. L. Livingston (Ed.), Praeger handbook of Black American health: Policies, issues behind disparities in health. Westport, CT: Praeger. Ware, D., & Livingston, I. (2004). The life expectancy of the black male: Pressing issues from the cradle to the grave. In I. L. Livingston (Ed.), Praeger handbook of Black American health: Policies, issues behind disparities in health. Westport, CT: Praeger.
28.
Zurück zum Zitat Shaw, J., Johnson, J., Chen, S., Levin, J., & Coons, S. (2007). Racial/ethnic differences in preferences for the EQ-5D health states: Results from the U.S. valuation study. Journal of Clinical Epidemiology, 60, 479–490.PubMedCrossRef Shaw, J., Johnson, J., Chen, S., Levin, J., & Coons, S. (2007). Racial/ethnic differences in preferences for the EQ-5D health states: Results from the U.S. valuation study. Journal of Clinical Epidemiology, 60, 479–490.PubMedCrossRef
29.
Zurück zum Zitat Perkins, A., Stump, T., Monahan, P., & McHorney, C. (2006). Assessment of differential item functioning for demographic comparisons in the MOS SF-36 health survey. Quality of Life Research, 15, 331–348.PubMedCrossRef Perkins, A., Stump, T., Monahan, P., & McHorney, C. (2006). Assessment of differential item functioning for demographic comparisons in the MOS SF-36 health survey. Quality of Life Research, 15, 331–348.PubMedCrossRef
30.
Zurück zum Zitat Hanmer, J., Hays, R. D., Fryback, D. G., et al. (2007). Mode of administration is important in US national estimates of health-related quality of life. Medical Care, 45, 1171–1179.PubMedCrossRef Hanmer, J., Hays, R. D., Fryback, D. G., et al. (2007). Mode of administration is important in US national estimates of health-related quality of life. Medical Care, 45, 1171–1179.PubMedCrossRef
31.
Zurück zum Zitat United States Census Bureau. (2009). Current population survey, 2004 panel. Washington, DC. United States Census Bureau. (2009). Current population survey, 2004 panel. Washington, DC.
32.
Zurück zum Zitat Department of Health, Human Services. (2001). Mental health: Culture, race, and ethnicity—a supplement to mental health: A report of the surgeon general. Rockville, MD: Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services. Department of Health, Human Services. (2001). Mental health: Culture, race, and ethnicity—a supplement to mental health: A report of the surgeon general. Rockville, MD: Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services.
33.
Zurück zum Zitat McHorney, C., Ware, J., Lu, J., & Sherbourne, C. (1994). The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32, 40–66.PubMedCrossRef McHorney, C., Ware, J., Lu, J., & Sherbourne, C. (1994). The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32, 40–66.PubMedCrossRef
34.
Zurück zum Zitat Shavers-Hornaday, V., Lynch, C., Burmeister, L., & Torner, J. (1997). Why are African Americans under-represented in medical research studies? Impediments to participation. Ethnicity and Health, 2, 31–45.PubMedCrossRef Shavers-Hornaday, V., Lynch, C., Burmeister, L., & Torner, J. (1997). Why are African Americans under-represented in medical research studies? Impediments to participation. Ethnicity and Health, 2, 31–45.PubMedCrossRef
35.
Zurück zum Zitat Katz, R., Green, B., Kressin, N., Kegeles, S., Wang, M., James, S., et al. (2008). The legacy of the Tuskegee syphilis study: Assessing its impact on willingness to participate in biomedical studies. Journal of Health Care for the Poor and Underserved, 19, 1168–1180.PubMedCrossRef Katz, R., Green, B., Kressin, N., Kegeles, S., Wang, M., James, S., et al. (2008). The legacy of the Tuskegee syphilis study: Assessing its impact on willingness to participate in biomedical studies. Journal of Health Care for the Poor and Underserved, 19, 1168–1180.PubMedCrossRef
36.
Zurück zum Zitat Thomas, S., & Quinn, S. (1991). The Tuskegee syphilis study, 1932 to 1972: Implications for HIV education and AIDS risk education programs in the black community. American Journal of Public Health, 81, 1498–1505.PubMedCrossRef Thomas, S., & Quinn, S. (1991). The Tuskegee syphilis study, 1932 to 1972: Implications for HIV education and AIDS risk education programs in the black community. American Journal of Public Health, 81, 1498–1505.PubMedCrossRef
37.
Zurück zum Zitat Thorpe, R. J., Weiss, C., Xue, Q., & Fried, L. (2009). Transitions among disability levels or death in African American and white older women. Journal of Gerontology Series A Biological Sciences Medical Sciences, 64, 670–674.CrossRef Thorpe, R. J., Weiss, C., Xue, Q., & Fried, L. (2009). Transitions among disability levels or death in African American and white older women. Journal of Gerontology Series A Biological Sciences Medical Sciences, 64, 670–674.CrossRef
38.
Zurück zum Zitat Skarupski, K. A., Mendes de Leon, C. F., Bienas, J. L., Scherr, P. A., Zack, M. M., Moriarty, D. G., et al. (2007). Black-white differences in health-related quality of life among older adulta. Quality of Life Research, 16, 287–296.PubMedCrossRef Skarupski, K. A., Mendes de Leon, C. F., Bienas, J. L., Scherr, P. A., Zack, M. M., Moriarty, D. G., et al. (2007). Black-white differences in health-related quality of life among older adulta. Quality of Life Research, 16, 287–296.PubMedCrossRef
39.
Zurück zum Zitat Bratter, J., & Eschbach, K. (2005). Race/ethnic differences in nonspecific psychological distress: Evidence from the national health interview survey. Social Science Quarterly, 86, 620–644.CrossRef Bratter, J., & Eschbach, K. (2005). Race/ethnic differences in nonspecific psychological distress: Evidence from the national health interview survey. Social Science Quarterly, 86, 620–644.CrossRef
40.
Zurück zum Zitat Ferraro, K. (1993). Are black older adults health-pessimistic? Journal of Health and Social Behavior, 34, 201–214.PubMedCrossRef Ferraro, K. (1993). Are black older adults health-pessimistic? Journal of Health and Social Behavior, 34, 201–214.PubMedCrossRef
41.
Zurück zum Zitat Kessler, R., & Neighbors, H. (1986). A new perspective on the relationships among race, social class, and psychological distress. Journal of Health and Social Behavior, 27, 107–115.PubMedCrossRef Kessler, R., & Neighbors, H. (1986). A new perspective on the relationships among race, social class, and psychological distress. Journal of Health and Social Behavior, 27, 107–115.PubMedCrossRef
42.
Zurück zum Zitat Brown, D. (2003). A conceptual model of mental well-being for African American women. In D. Brown & V. Keith (Eds.), In and out of our right minds: The mental health of African American women (Vol. xv, 301 p). New York: Columbia University Press. Brown, D. (2003). A conceptual model of mental well-being for African American women. In D. Brown & V. Keith (Eds.), In and out of our right minds: The mental health of African American women (Vol. xv, 301 p). New York: Columbia University Press.
Metadaten
Titel
Race and preference-based health-related quality of life measures in the United States
verfasst von
Claudia C. A. Pereira
Mari Palta
John Mullahy
Dennis G. Fryback
Publikationsdatum
01.08.2011
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 6/2011
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9813-3

Weitere Artikel der Ausgabe 6/2011

Quality of Life Research 6/2011 Zur Ausgabe