Background
Methods
Statistical analyses
Results
N = 221 | ||
---|---|---|
Age, mean (SD) | 42.1 (9.9) | |
Gender. Female, n (%) | 151 (68.3%) | |
Employment status, n (%) | Employed (part-time or full-time) | 115 (52.0%) |
Unemployed | 28 (12.7%) | |
Retired due to MS | 41 (18.6%) | |
Retired due to other reasons | 6 (2.78%) | |
Without paid employment | 31 (14.0%) | |
Some level of incapacity for work, n (%) | 75 (34.9%) | |
Time of MS evolution (years), mean (SD) | 9.1 (6.9) | |
EDSS score, median (SD) | 2.5 (1.5) | |
Time with DMT treatment (years), mean (SD) | 6.0 (4.4) | |
Use of previous DMT treatment, n (%) | 133 (60.2%) | |
Presence of relapses, n (%) | Since diagnosis | 201 (91.0%) |
During the last 2 years | 100 (45.2%) | |
During the last year | 52 (23.5%) |
Internal reliability
Non-parametric (Mokken) IRT
Item number and content | Mean (SD) | Endorsement frequencies (%) |
H
i
| |||||
---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | |||
1. A decision needs to be made
| 5.19 (1.37) | 14 (6) | 4 (2) | 3 (0.01) | 18 (0.08) | 49 (0.22) | 135 (0.60) | 0.27 |
2. How I want to be involved
| 5.17 (1.23) | 7 (3) | 5 (2) | 7 (0.03) | 31 (0.14) | 46 (0.21) | 127 (0.57) | 0.60 |
3. Informing me different options are available
| 5.53 (1.12) | 8 (4) | 2 (1) | 4 (0.02) | 8 (0.04) | 29 (0.13) | 172 (0.77) | 0.58 |
4. Explaining me advantages and disadvantages
| 5.57 (1.00) | 5 (2) | 2 (1) | 3 (0.01) | 12 (0.05) | 31 (0.14) | 170 (0.76) | 0.59 |
5. Helping me to understand the information
| 5.63 (0.86) | 4 (2) | 0 (0) | 2 (0.01) | 10 (0.04) | 37 (0.17) | 170 (0.76) | 0.54 |
6. Asking the treatment option I prefer
| 5.07 (1.46) | 12 (5) | 10 (4) | 10 (0.04) | 19 (0.08) | 40 (0.18) | 132 (0.59) | 0.63 |
7. Weighing jointly the different options
| 5.13 (1.37) | 11 (5) | 8 (4) | 4 (0.02) | 25 (0.11) | 46 (0.21) | 129 (0.58) | 0.66 |
8. Selecting a treatment option together
| 5.04 (1.41) | 13 (6) | 7 (3) | 6 (0.03) | 28 (0.13) | 48 (0.21) | 121 (0.54) | 0.66 |
9. Agreeing on how to proceed
| 5.30 (1.23) | 7 (3) | 8 (4) | 5 (0.02) | 10 (0.04) | 53 (0.24) | 140 (0.63) | 0.61 |
Item characteristics: GPCM
Item no. | a | b1
| b2
| b3
| b4
| b5
| Information | CFA loadings |
---|---|---|---|---|---|---|---|---|
1 | 0.22 | 4.50 | 0.42 | −8.60 | −4.83 | −4.62 | 1.10 | 0.26 |
2 | 1.16 | −1.73 | −1.97 | −2.59 | −1.14 | −0.93 | 5.80 | 0.72 |
3 | 1.34 | −1.09 | −2.40 | −2.12 | −2.14 | −1.73 | 6.71 | 0.75 |
4 | 1.28 | −1.51 | −2.25 | −2.72 | −1.93 | −1.73 | 6.40 | 0.67 |
5 | 1.15 | −1.57 | NA | −3.13 | −2.36 | −1.73 | 4.62 | 0.55 |
6 | 1.90 | −1.83 | −1.59 | −1.61 | −1.25 | −0.74 | 9.48 | 0.87 |
7 | 3.41 | −1.97 | −1.53 | −1.92 | −1.18 | −0.50 | 17.03 | 0.92 |
8 | 3.33 | −1.83 | −1.60 | −1.79 | −1.08 | −0.39 | 16.66 | 0.92 |
9 | 1.52 | −2.17 | −1.48 | −1.92 | −2.11 | −0.85 | 7.62 | 0.76 |