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Erschienen in: Community Mental Health Journal 3/2017

07.06.2016 | Original Paper

Quality of Life, Stigma and Burden Perception Among Family Caregivers and Patients with Psychiatric Illnesses in Jordan

verfasst von: Heyam F. Dalky, Abeer M. Qandil, Ahlam Sh. Natour, Meininger C. Janet

Erschienen in: Community Mental Health Journal | Ausgabe 3/2017

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Abstract

The literature reported several factors which could impact the quality of life of caregivers and patients with psychiatric illnesses. This study aimed to determine the level of quality of life among a sample of 532 of caregivers and patients with psychiatric illness at two out-patient mental health clinics in Northern Jordan, and to examine the relationships of sociodemographic characteristics, stigma and caregiver perceptions of burden with quality of life. A correlational descriptive design was utilized. Three self-administered questionnaires were used. Results indicated that patients had low to moderate QOL, and they suffered moderate to high stigma. Also, family caregivers perceived low to moderate QOL. Patients’ and family caregivers’ stigma perception correlated negatively and significantly with WHOQOL-BREF. Family caregivers’ burden correlated negatively and significantly with all domains of WHOQOL-BREF, total QOL-100, and self-reported general health. Health care providers should assure the importance of focusing more toward minimizing stigma and promoting physical and general health to maintain a good quality of life of caregivers and patients with mental illnesses.
Literatur
Zurück zum Zitat American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association.
Zurück zum Zitat Barnes, A. L., Murphy, M. E., Fowler, C. A., & Rempfer, M. V. (2012). Health-related quality of life and overall life satisfaction in people with serious mental illness. Schisophrenia Research and Treatment. doi:10.1155/2012/245103. Barnes, A. L., Murphy, M. E., Fowler, C. A., & Rempfer, M. V. (2012). Health-related quality of life and overall life satisfaction in people with serious mental illness. Schisophrenia Research and Treatment. doi:10.​1155/​2012/​245103.
Zurück zum Zitat Bastawrous, M. (2012). Caregiver burden—A critical discussion. International Journal of Nursing Studies, 50, 431–441.CrossRefPubMed Bastawrous, M. (2012). Caregiver burden—A critical discussion. International Journal of Nursing Studies, 50, 431–441.CrossRefPubMed
Zurück zum Zitat Bauer, R., Koepke, F., Sterzinger, L., & Spiessl, H. (2012). Burden, rewards, and coping-the ups and downs of caregivers of people with mental illness. Journal of Nervous and Mental Disease, 200(11), 928–934.CrossRefPubMed Bauer, R., Koepke, F., Sterzinger, L., & Spiessl, H. (2012). Burden, rewards, and coping-the ups and downs of caregivers of people with mental illness. Journal of Nervous and Mental Disease, 200(11), 928–934.CrossRefPubMed
Zurück zum Zitat Boyer, L., Millier, A., Perthame, E., Aballea, S., Auquier, P., & Toumi, M. (2013). Quality of life is predictive of relapse in schizophrenia. BMC Psychiatry, 9, 13–15. Boyer, L., Millier, A., Perthame, E., Aballea, S., Auquier, P., & Toumi, M. (2013). Quality of life is predictive of relapse in schizophrenia. BMC Psychiatry, 9, 13–15.
Zurück zum Zitat Chan, S. (2011). Global perspective of burden of family caregivers for persons with schizophrenia. Archives of Psychiatric Nursing, 25(5), 339–349.CrossRefPubMed Chan, S. (2011). Global perspective of burden of family caregivers for persons with schizophrenia. Archives of Psychiatric Nursing, 25(5), 339–349.CrossRefPubMed
Zurück zum Zitat Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale: Lawrence Erlbaum Associates. Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale: Lawrence Erlbaum Associates.
Zurück zum Zitat Corrigan, P. W., & Miller, F. E. (2004). Shame, blame, and contamination: A review of the impact of mental illness stigma on family members. Journal of Mental Health, 13(6), 537–548.CrossRef Corrigan, P. W., & Miller, F. E. (2004). Shame, blame, and contamination: A review of the impact of mental illness stigma on family members. Journal of Mental Health, 13(6), 537–548.CrossRef
Zurück zum Zitat Dalky, H. F. (2012a). Mental illness stigma reduction interventions: Review of intervention trials. Western Journal of Nursing Research, 34(4), 520–547.CrossRefPubMed Dalky, H. F. (2012a). Mental illness stigma reduction interventions: Review of intervention trials. Western Journal of Nursing Research, 34(4), 520–547.CrossRefPubMed
Zurück zum Zitat Dalky, H. F. (2012b). Arabic translation and cultural adaptation of the stigma-devaluation scale in Jordan. Journal of Mental Health, 21(1), 72–82.CrossRefPubMed Dalky, H. F. (2012b). Arabic translation and cultural adaptation of the stigma-devaluation scale in Jordan. Journal of Mental Health, 21(1), 72–82.CrossRefPubMed
Zurück zum Zitat Eack, S. M., & Newhill, C. E. (2007). Psychiatric symptoms and quality of life in schizophrenia: A meta-analysis. Schizophrenia Bulletin, 33(5), 1225–1237.CrossRefPubMedPubMedCentral Eack, S. M., & Newhill, C. E. (2007). Psychiatric symptoms and quality of life in schizophrenia: A meta-analysis. Schizophrenia Bulletin, 33(5), 1225–1237.CrossRefPubMedPubMedCentral
Zurück zum Zitat Hanzawa, S., Bae, J. K., Tanaka, H., Bae, Y. J., Tanaka, G., Inadomi, H., et al. (2010). Caregiver burden and coping strategies for patients with schizophrenia: Comparison between Japan and Korea. Psychiatry and Clinical Neurosciences, 64(4), 377–386.CrossRefPubMed Hanzawa, S., Bae, J. K., Tanaka, H., Bae, Y. J., Tanaka, G., Inadomi, H., et al. (2010). Caregiver burden and coping strategies for patients with schizophrenia: Comparison between Japan and Korea. Psychiatry and Clinical Neurosciences, 64(4), 377–386.CrossRefPubMed
Zurück zum Zitat Kadri, N., Manoudi, F., Berrada, S., & Moussaoui, D. (2004). Stigma impact on Moroccan families of patients with schizophrenia. Canadian Journal of Psychiatry, 49(9), 625–629.CrossRefPubMed Kadri, N., Manoudi, F., Berrada, S., & Moussaoui, D. (2004). Stigma impact on Moroccan families of patients with schizophrenia. Canadian Journal of Psychiatry, 49(9), 625–629.CrossRefPubMed
Zurück zum Zitat Kamel, A. A., Bond, A. E., & Froelicher, E. S. (2012). Depression and caregiver burden experienced by caregivers of Jordanian patients with stroke. International Journal of Nursing Practice, 18(2), 147–154.CrossRefPubMed Kamel, A. A., Bond, A. E., & Froelicher, E. S. (2012). Depression and caregiver burden experienced by caregivers of Jordanian patients with stroke. International Journal of Nursing Practice, 18(2), 147–154.CrossRefPubMed
Zurück zum Zitat Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Relationship of quality of life with coping and burden in primary caregivers of patients with schizophrenia. The Internaitonal Journal of Scoial Psychiatry, 60,107–116.CrossRef Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Relationship of quality of life with coping and burden in primary caregivers of patients with schizophrenia. The Internaitonal Journal of Scoial Psychiatry, 60,107–116.CrossRef
Zurück zum Zitat Kim, Y., van Ryn, M., Jensen, R. E., Griffin, J. M., Potosky, A., & Rowland, J. (2015). Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers. Psycho-Oncology, 24(1), 95–105.CrossRefPubMed Kim, Y., van Ryn, M., Jensen, R. E., Griffin, J. M., Potosky, A., & Rowland, J. (2015). Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers. Psycho-Oncology, 24(1), 95–105.CrossRefPubMed
Zurück zum Zitat Link, B., Struening, E., Cullen, F., Shrout, P., & Dohrenwend, B. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. American Sociological Review, 52, 400–423.CrossRef Link, B., Struening, E., Cullen, F., Shrout, P., & Dohrenwend, B. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. American Sociological Review, 52, 400–423.CrossRef
Zurück zum Zitat Ohaeri, J., & Awadalla, A. W. (2009). The reliability and validity of the short version of the WHO Quality of Life Instrument in an Arab general population. Annals of Saudi Medicine, 29(2), 98–104.CrossRefPubMedPubMedCentral Ohaeri, J., & Awadalla, A. W. (2009). The reliability and validity of the short version of the WHO Quality of Life Instrument in an Arab general population. Annals of Saudi Medicine, 29(2), 98–104.CrossRefPubMedPubMedCentral
Zurück zum Zitat Orley, J. (1996). WHOQOL-BREF: Introduction, adminstration, scoring, and generic version of the assessment: Field trial version. Geneva: World Health Organization. Orley, J. (1996). WHOQOL-BREF: Introduction, adminstration, scoring, and generic version of the assessment: Field trial version. Geneva: World Health Organization.
Zurück zum Zitat Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerentology, 38(3), 344–348.CrossRef Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerentology, 38(3), 344–348.CrossRef
Zurück zum Zitat Seloilwe, E. S. (2006). Experiences and demands of families with mental ill people at home in Botswana. Journal of Nursing Scholarship, 38(3), 262–268.CrossRefPubMed Seloilwe, E. S. (2006). Experiences and demands of families with mental ill people at home in Botswana. Journal of Nursing Scholarship, 38(3), 262–268.CrossRefPubMed
Zurück zum Zitat Sidlova, M., Prasko, J., Jelenova, D., Kovacsova, A., Latalova, K., Sigmundova, Z., et al. (2011). The quality of life of patients suffering from schizophrenia—A comparison with healthy controls. Biomedical Paper, Medical Faculty of University of Palacky Olomouc Czech Republic, 155(2), 173-180. Sidlova, M., Prasko, J., Jelenova, D., Kovacsova, A., Latalova, K., Sigmundova, Z., et al. (2011). The quality of life of patients suffering from schizophrenia—A comparison with healthy controls. Biomedical Paper, Medical Faculty of University of Palacky Olomouc Czech Republic, 155(2), 173-180.
Zurück zum Zitat Tan, S. C., Yeoh, A. L., Choo, I. B., Huang, A. P., Ong, S. H., Ismail, H., et al. (2012). Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community. Journal of Clinical Nursing, 21(17–18), 2410–2418.CrossRefPubMed Tan, S. C., Yeoh, A. L., Choo, I. B., Huang, A. P., Ong, S. H., Ismail, H., et al. (2012). Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community. Journal of Clinical Nursing, 21(17–18), 2410–2418.CrossRefPubMed
Zurück zum Zitat WHO. (2010). Mental health: Strengthening our response (Fact Sheet). WHO. (2010). Mental health: Strengthening our response (Fact Sheet).
Zurück zum Zitat WHO. (2012). WHO Mental Health Gap Action Programme (mhGAP) (Report). WHO. (2012). WHO Mental Health Gap Action Programme (mhGAP) (Report).
Zurück zum Zitat Zahid, M. A., & Ohaeri, J. U. (2010). Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia. BMC Psychiatry, 10, 71.CrossRefPubMedPubMedCentral Zahid, M. A., & Ohaeri, J. U. (2010). Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia. BMC Psychiatry, 10, 71.CrossRefPubMedPubMedCentral
Metadaten
Titel
Quality of Life, Stigma and Burden Perception Among Family Caregivers and Patients with Psychiatric Illnesses in Jordan
verfasst von
Heyam F. Dalky
Abeer M. Qandil
Ahlam Sh. Natour
Meininger C. Janet
Publikationsdatum
07.06.2016
Verlag
Springer US
Erschienen in
Community Mental Health Journal / Ausgabe 3/2017
Print ISSN: 0010-3853
Elektronische ISSN: 1573-2789
DOI
https://doi.org/10.1007/s10597-016-0028-0

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