Ausgabe 1/2016
Inhalt (100 Artikel)
How different is the care of terminal pancreatic cancer patients in inpatient palliative care units and acute hospital wards? A nationwide population-based study
Jack P. Wang, Chen-Yi Wu, I-Hsuan Hwang, Chien-Hui Kao, Yi-Ping Hung, Shinn-Jang Hwang, Chung-Pin Li
Utilization of palliative radiotherapy for bone metastases near end of life in a population-based cohort
Manpreet S. Tiwana, Mark Barnes, Andrew Kiraly, Robert A. Olson
“Sometimes we can’t fix things”: a qualitative study of health care professionals’ perceptions of end of life care for patients with heart failure
Margaret Glogowska, Rosemary Simmonds, Sarah McLachlan, Helen Cramer, Tom Sanders, Rachel Johnson, Umesh T. Kadam, Daniel S. Lasserson, Sarah Purdy
Correlation between patient quality of life in palliative care and burden of their family caregivers: a prospective observational cohort study
Katja Krug, Antje Miksch, Frank Peters-Klimm, Peter Engeser, Joachim Szecsenyi
Conceptual foundations of a palliative approach: a knowledge synthesis
Richard Sawatzky, Pat Porterfield, Joyce Lee, Duncan Dixon, Kathleen Lounsbury, Barbara Pesut, Della Roberts, Carolyn Tayler, James Voth, Kelli Stajduhar
Compassion: a scoping review of the healthcare literature
Shane Sinclair, Jill M. Norris, Shelagh J. McConnell, Harvey Max Chochinov, Thomas F. Hack, Neil A. Hagen, Susan McClement, Shelley Raffin Bouchal
Physical activity interests and preferences of cancer patients with brain metastases: a cross-sectional survey
Sonya S. Lowe, Brita Danielson, Crystal Beaumont, Sharon M. Watanabe, Kerry S. Courneya
The determinants of home and nursing home death: a systematic review and meta-analysis
Vania Costa, Craig C. Earle, Mary Jane Esplen, Robert Fowler, Russell Goldman, Daphna Grossman, Leslie Levin, Douglas G. Manuel, Shirlee Sharkey, Peter Tanuseputro, John J. You
The needs, models of care, interventions and outcomes of palliative care in the Caribbean: a systematic review of the evidence
Sandhya Maharaj, Richard Harding
Effectiveness of the “Cancer Home-Life Intervention” on everyday activities and quality of life in people with advanced cancer living at home: a randomised controlled trial and an economic evaluation
Å. Brandt, M. S. Pilegaard, L. G. Oestergaard, L. Lindahl-Jacobsen, J. Sørensen, A. T. Johnsen, K. la Cour
The feasibility of a train-the-trainer approach to end of life care training in care homes: an evaluation
Andrea Mayrhofer, Claire Goodman, Nigel Smeeton, Melanie Handley, Sarah Amador, Sue Davies
Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer
Kimberley Widger, Stefan Friedrichsdorf, Joanne Wolfe, Stephen Liben, Jason D. Pole, Eric Bouffet, Mark Greenberg, Amna Husain, Harold Siden, James A. Whitlock, Adam Rapoport
‘I don’t think I’d be frightened if the statins went’: a phenomenological qualitative study exploring medicines use in palliative care patients, carers and healthcare professionals.
Adam Todd, Holly Holmes, Sallie Pearson, Carmel Hughes, Inga Andrew, Lisa Baker, Andy Husband
Physical compared to mental diseases as reasons for committing suicide: a retrospective study
Martin Fegg, Sybille Kraus, Matthias Graw, Claudia Bausewein
Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing
Siobhan Fox, Alison Cashell, W. George Kernohan, Marie Lynch, Ciara McGlade, Tony O’Brien, Sean S. O’Sullivan, Suzanne Timmons
Development of a complex intervention to support the initiation of advance care planning by general practitioners in patients at risk of deteriorating or dying: a phase 0-1 study
Aline De Vleminck, Dirk Houttekier, Luc Deliens, Robert Vander Stichele, Koen Pardon
Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
Naouma Siouta, Karen van Beek, Nancy Preston, Jeroen Hasselaar, Sean Hughes, Sheila Payne, Eduardo Garralda, Carlos Centeno, Marlieke van der Eerden, Marieke Groot, Farina Hodiamont, Lukas Radbruch, Csilla Busa, Agnes Csikos, Johan Menten
Erratum to: Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease
Brenda Bentley, Moira O’Connor, Lauren J. Breen, Robert Kane
Strengthening pharmaceutical systems for palliative care services in resource limited settings: piloting a mHealth application across a rural and urban setting in Uganda
Eve Namisango, Chris Ntege, Emmanuel B. K. Luyirika, Fatia Kiyange, Matthew J. Allsop
Identification of hospital patients in need of palliative care – a predictive score
Cornelia Meffert, Gerta Rücker, Isaak Hatami, Gerhild Becker
Family caregivers’ accounts of caring for a family member with motor neurone disease in Norway: a qualitative study
Sverre Vigeland Lerum, Kari Nyheim Solbrække, Jan C. Frich
Validity, reliability and responsiveness to change of the Italian palliative care outcome scale: a multicenter study of advanced cancer patients
Massimo Costantini, Elisa Rabitti, Monica Beccaro, Flavio Fusco, Carlo Peruselli, Pietro La Ciura, Alessandro Valle, Cinzia Suriani, Maria Alejandra Berardi, Danila Valenti, Felicita Mosso, Piero Morino, Giovanni Zaninetta, Giorgio Tubere, Massimo Piazza, Michele Sofia, Silvia Di Leo, Irene J. Higginson
The wish to die among palliative home care clients in Ontario, Canada: A cross-sectional study
Shannon Freeman, Trevor Frise Smith, Eva Neufeld, Kathy Fisher, Satoru Ebihara
Integrating patient reported measures as predictive parameters into decisionmaking about palliative chemotherapy: a pilot study
Anna Creutzfeldt, Anna Suling, Karin Oechsle, Anja Mehnert, Djordje Atanackovic, Melanie Kripp, Dirk Arnold, Alexander Stein, Julia Quidde
To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
Karen Van Beek, Naouma Siouta, Nancy Preston, Jeroen Hasselaar, Sean Hughes, Sheila Payne, Lukas Radbruch, Carlos Centeno, Agnes Csikos, Eduardo Garralda, Marlieke van der Eerden, Farina Hodiamont, Ildiko Radvanyi, Johan Menten
Implementing the care programme for the last days of life in an acute geriatric hospital ward: a phase 2 mixed method study
Rebecca Verhofstede, Tinne Smets, Joachim Cohen, Massimo Costantini, Nele Van Den Noortgate, Luc Deliens
The use of reflective diaries in end of life training programmes: a study exploring the impact of self-reflection on the participants in a volunteer training programme
Alison Germain, Kate Nolan, Rita Doyle, Stephen Mason, Maureen Gambles, Hong Chen, Ruthmarijke Smeding, John Ellershaw
The size of the population potentially in need of palliative care in Germany - an estimation based on death registration data
Nadine Scholten, Anna Lena Günther, Holger Pfaff, Ute Karbach
When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child’s end-of life care
Karin Zimmermann, Eva Bergstraesser, Sandra Engberg, Anne-Sylvie Ramelet, Katrin Marfurt-Russenberger, Nicolas Von der Weid, Chantal Grandjean, Patricia Fahrni-Nater, Eva Cignacco
Context, mechanisms and outcomes in end of life care for people with advanced dementia
Nuriye Kupeli, Gerard Leavey, Kirsten Moore, Jane Harrington, Kathryn Lord, Michael King, Irwin Nazareth, Elizabeth L. Sampson, Louise Jones
Symptom severity of patients with advanced cancer in palliative care unit: longitudinal assessments of symptoms improvement
Shu-Yu Tai, Chung-Yin Lee, Chien-Yi Wu, Hui-Ya Hsieh, Joh-Jong Huang, Chia-Tsuan Huang, Chen-Yu Chien
Palliative chemotherapy: oxymoron or misunderstanding?
EJ Roeland, TW LeBlanc
An exploration of contextual dimensions impacting goals of care conversations in postgraduate medical education
Amanda L Roze des Ordons, Jocelyn Lockyer, Michael Hartwick, Aimee Sarti, Rola Ajjawi
HOLD study (Home care Obstructive Lung Disease): natural history of patients with advanced COPD
Daniel Gainza Miranda, Eva María Sanz Peces, Alberto Alonso Babarro, Maria Concepción Prados Sánchez, María Varela Cerdeira
Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique
I. Tuffrey-Wijne, M. Wicki, P. Heslop, M. McCarron, S. Todd, D. Oliver, A. de Veer, G. Ahlström, S. Schäper, G. Hynes, J. O’Farrell, J. Adler, F. Riese, L. Curfs
A qualitative evaluation of the impact of a palliative care course on preregistration nursing students’ practice in Cameroon
Nahyeni Bassah, Karen Cox, Jane Seymour
End-of-life decisions in acute stroke patients: an observational cohort study
Angelika Alonso, Anne D. Ebert, Dorothee Dörr, Dieter Buchheidt, Michael G. Hennerici, Kristina Szabo
Timely identification of palliative patients and anticipatory care planning by GPs: practical application of tools and a training programme
Bregje Thoonsen, Marieke Groot, Stans Verhagen, Chris van Weel, Kris Vissers, Yvonne Engels
A palliative care link nurse programme in Mulago Hospital, Uganda: an evaluation using mixed methods
Julia Downing, Mwazi Batuli, Grace Kivumbi, Josephine Kabahweza, Liz Grant, Scott A. Murray, Elizabeth Namukwaya, Mhoira Leng
Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa
Sara Naomi Naicker, Linda Richter, Alan Stein, Laura Campbell, Joan Marston
Mortality in a cohort of complex patients with chronic illnesses and multimorbidity: a descriptive longitudinal study
I. Martín-Lesende, E. Recalde, P. Viviane-Wunderling, T. Pinar, F. Borghesi, T. Aguirre, M. Recio, ME Martínez, J. Asua
Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care
Jan Gaertner, Waldemar Siemens, Barbara A. Daveson, Melinda Smith, Catherine J. Evans, Irene J. Higginson, Gerhild Becker
Management of non-ovarian cancer malignant ascites through indwelling catheter drainage
Xiaoli Gu, Yuanyuan Zhang, Menglei Cheng, Minghui Liu, Zhe Zhang, Wenwu Cheng
Cultural perspectives of older nursing home residents regarding signing their own DNR directives in Eastern Taiwan: a qualitative pilot study
Hsin-Tzu Sophie Lee, Shu-Chen Cheng, Yu-Tzu Dai, Mei Chang, Wen-Yu Hu
A retrospective population based cohort study of access to specialist palliative care in the last year of life: who is still missing out a decade on?
Lorna Rosenwax, Katrina Spilsbury, Beverley A. McNamara, James B. Semmens
A qualitative exploration of the collaborative working between palliative care and geriatric medicine: Barriers and facilitators from a European perspective
Gwenda Albers, K. Froggatt, L. Van den Block, G. Gambassi, P. Vanden Berghe, S. Pautex, N. Van Den Noortgate
Favored subjects and psychosocial needs in music therapy in terminally ill cancer patients: a content analysis
Pia Preissler, Sarah Kordovan, Anneke Ullrich, Carsten Bokemeyer, Karin Oechsle
Integrated palliative care in the Spanish context: a systematic review of the literature
Eduardo Garralda, Jeroen Hasselaar, José Miguel Carrasco, Karen Van Beek, Naouma Siouta, Agnes Csikos, Johan Menten, Carlos Centeno
Sedation at the end of life - a nation-wide study in palliative care units in Austria
Sophie Schur, Dietmar Weixler, Christoph Gabl, Gudrun Kreye, Rudolf Likar, Eva Katharina Masel, Michael Mayrhofer, Franz Reiner, Barbara Schmidmayr, Kathrin Kirchheiner, Herbert Hans Watzke
Identification and characteristics of patients with palliative care needs in Brazilian primary care
Fernando C. I. Marcucci, Marcos A. S. Cabrera, Anamaria Baquero Perilla, Marilia Maroneze Brun, Eder Marcos L. de Barros, Vanessa M. Martins, John P. Rosenberg, Patsy Yates
Caring for frail older people in the last phase of life – the general practitioners’ view
Karin Geiger, Nils Schneider, Jutta Bleidorn, Katharina Klindtworth, Saskia Jünger, Gabriele Müller-Mundt
Improving end of life care in care homes; an evaluation of the six steps to success programme
Mary O’Brien, Jennifer Kirton, Katherine Knighting, Brenda Roe, Barbara Jack
Factors influencing the uptake of neonatal bereavement support services – Findings from two tertiary neonatal centres in the UK
Jayanta Banerjee, Charanjit Kaur, Sridhar Ramaiah, Rahul Roy, Narendra Aladangady
An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes
Geena Saini, Elizabeth L. Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones, Kirsten J. Moore
Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease
Naouma Siouta, K. Van Beek, M. E. van der Eerden, N. Preston, J. G. Hasselaar, S. Hughes, E. Garralda, C. Centeno, A. Csikos, M. Groot, L. Radbruch, S. Payne, J. Menten
Exploring access to end of life care for ethnic minorities with end stage kidney disease through recruitment in action research
Emma Wilkinson, Gurch Randhawa, Edwina Brown, Maria Da Silva Gane, John Stoves, Graham Warwick, Tahira Akhtar, Regina Magee, Sue Sharman, Ken Farrington
The effect of bereavement groups on grief, anxiety, and depression - a controlled, prospective intervention study
Ulla Näppä, Ann-Britt Lundgren, Bertil Axelsson
Communicating prognostic uncertainty in potential end-of-life contexts: experiences of family members
Marian Krawczyk, Romayne Gallagher
Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience
Catherine Walshe, Guillermo Perez Algorta, Steven Dodd, Matthew Hill, Nick Ockenden, Sheila Payne, Nancy Preston
Barriers to and facilitators for implementing quality improvements in palliative care – results from a qualitative interview study in Norway
Ragni Sommerbakk, Dagny Faksvåg Haugen, Aksel Tjora, Stein Kaasa, Marianne Jensen Hjermstad
Improving the quality of life of palliative and chronic disease patients and carers in remote Australia with the establishment of a day respite facility
Timothy A. Carey, Kellie Schouten, John Wakerman, John S. Humphreys, Fred Miegel, Simon Murphy, Mick Arundell
Mismatch between physicians and family members views on communications about patients with chronic incurable diseases receiving care in critical and intensive care settings in Georgia: a quantitative observational survey
Nana Chikhladze, Elene Janberidze, Mariam Velijanashvili, Nikoloz Chkhartishvili, Memed Jintcharadze, Julia Verne, Dimitri Kordzaia
The ‘problematisation’ of palliative care in hospital: an exploratory review of international palliative care policy in five countries
Jackie Robinson, Merryn Gott, Clare Gardiner, Christine Ingleton
Implementing the first regional hospice palliative care program in Ontario: the Champlain region as a case study
José Pereira, Jocelyne Contant, Gwen Barton, Christopher Klinger
Keep in touch (KIT): perspectives on introducing internet-based communication and information technologies in palliative care
Qiaohong Guo, Beverley Cann, Susan McClement, Genevieve Thompson, Harvey Max Chochinov
The impact of a simulated intervention on attitudes of undergraduate nursing and medical students towards end of life care provision
Claire Lewis, Joanne Reid, Zara McLernon, Rory Ingham, Marian Traynor
A co-design process developing heuristics for practitioners providing end of life care for people with dementia
Nathan Davies, Rammya Mathew, Jane Wilcock, Jill Manthorpe, Elizabeth L. Sampson, Kethakie Lamahewa, Steve Iliffe
Improving palliative care in selected settings in England using quality indicators: a realist evaluation
Steve Iliffe, Nathan Davies, Jill Manthorpe, Peter Crome, Sam H Ahmedzai, Myrra Vernooij-Dassen, Yvonne Engels
Resilience and hope during advanced disease: a pilot study with metastatic colorectal cancer patients
Joao Paulo Consentino Solano, Amanda Gomes da Silva, Ivan Agurtov Soares, Hazem Adel Ashmawi, Joaquim Edson Vieira
Comfort experience in palliative care: a phenomenological study
Adriana Coelho, Vitor Parola, Miguel Escobar-Bravo, João Apóstolo
Factors influencing the health-related quality of life of Chinese advanced cancer patients and their spousal caregivers: a cross-sectional study
Qiuping Li, Yinghua Xu, Huiya Zhou, Alice Yuen Loke
Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study
Jeffrey Goldhagen, Mark Fafard, Kelly Komatz, Terry Eason, William C. Livingood
Benefits of interventions for respiratory secretion management in adult palliative care patients—a systematic review
Juliano Ferreira Arcuri, Ebun Abarshi, Nancy J. Preston, Jenny Brine, Valéria Amorim Pires Di Lorenzo
Patients’ perception of types of errors in palliative care – results from a qualitative interview study
Isabel Kiesewetter, Christian Schulz, Claudia Bausewein, Rita Fountain, Andrea Schmitz
Health care professionals’ attitudes regarding palliative care for patients with chronic heart failure: an interview study
Jeanette Ziehm, Erik Farin, Katharina Seibel, Gerhild Becker, Stefan Köberich
Erratum to: A co-design process developing heuristics for practitioners providing end of life care for people with dementia
Nathan Davies, Rammya Mathew, Jane Wilcock, Jill Manthorpe, Elizabeth L. Sampson, Kethakie Lamahewa, Steve Iliffe
“Sometimes I’ve gone home feeling that my voice hasn’t been heard”: a focus group study exploring the views and experiences of health care assistants when caring for dying residents
Susan Fryer, Gary Bellamy, Tessa Morgan, Merryn Gott
Patients’ perceptions of palliative care quality in hospice inpatient care, hospice day care, palliative units in nursing homes, and home care: a cross-sectional study
Tuva Sandsdalen, Vigdis Abrahamsen Grøndahl, Reidun Hov, Sevald Høye, Ingrid Rystedt, Bodil Wilde-Larsson
The last phase of life with dementia in Swiss nursing homes: the study protocol of the longitudinal and prospective ZULIDAD study
Stefanie Eicher, Nathan Theill, Heike Geschwindner, Caroline Moor, Albert Wettstein, Gabriela Bieri-Brüning, Christoph Hock, Mike Martin, Henrike Wolf, Florian Riese
Caregiving in ALS – a mixed methods approach to the study of Burden
Miriam Galvin, Bernie Corr, Caoifa Madden, Iain Mays, Regina McQuillan, Virpi Timonen, Anthony Staines, Orla Hardiman
Erratum to: Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study
Jeffrey Goldhagen, Mark Fafard, Kelly Komatz, Terry Eason, William C. Livingood
Dying among older adults in Switzerland: who dies in hospital, who dies in a nursing home?
Xhyljeta Luta, Radoslaw Panczak, Maud Maessen, Matthias Egger, David C. Goodman, Marcel Zwahlen, Andreas E. Stuck, Kerri Clough - Gorr
Case conference primary-secondary care planning at end of life can reduce the cost of hospitalisations
Samantha Hollingworth, Jianzhen Zhang, Bharat Phani Vaikuntam, Claire Jackson, Geoffrey Mitchell
End-of-life care of patients with idiopathic pulmonary fibrosis
Kaisa Rajala, Juho T. Lehto, M. Saarinen, E. Sutinen, T. Saarto, M. Myllärniemi
Using linked administrative and disease-specific databases to study end-of-life care on a population level
Arno Maetens, Robrecht De Schreye, Kristof Faes, Dirk Houttekier, Luc Deliens, Birgit Gielen, Cindy De Gendt, Patrick Lusyne, Lieven Annemans, Joachim Cohen
Reasons for transferral to emergency departments of terminally ill patients - a French descriptive and retrospective study
Pierre Cornillon, Sébastien Loiseau, Bruno Aublet-Cuvelier, Virginie Guastella
The feasibility and acceptability of short-term, individual existential behavioural therapy for informal caregivers of patients recruited in a specialist palliative care unit
Helena S Stöckle, Sigrid Haarmann-Doetkotte, Claudia Bausewein, Martin J Fegg
Family and healthcare professionals’ perceptions of a pilot hospice at home programme for children: a qualitative study
Maria Brenner, Michael Connolly, Des Cawley, Frances Howlin, Jay Berry, Claire Quinn
Helping palliative care healthcare professionals get the most out of mentoring in a low-income country: a qualitative study
J. L. Whitehurst, J. Rowlands
Interventions and decision-making at the end of life: the effect of establishing the terminal illness situation
C. Campos-Calderón, R. Montoya-Juárez, C. Hueso-Montoro, E. Hernández-López, F. Ojeda-Virto, M. P. García-Caro
“It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers
Emily Harrop, Fiona Morgan, Anthony Byrne, Annmarie Nelson
Evaluation of a pilot of nurse practitioner led, GP supported rural palliative care provision
Geoffrey Keith Mitchell, Hugh Edgar Senior, Michael Peter Bibo, Blessing Makoni, Sharleen Nicole Young, John Patrick Rosenberg, Patsy Yates
Using telehealth to support end of life care in the community: a feasibility study
Jennifer J. Tieman, Kate Swetenham, Deidre D. Morgan, Timothy H. To, David C. Currow
The association between different opioid doses and the survival of advanced cancer patients receiving palliative care
Anon Sathornviriyapong, Kittiphon Nagaviroj, Thunyarat Anothaisintawee
Challenges to access and provision of palliative care for people who are homeless: a systematic review of qualitative research
Briony F. Hudson, Kate Flemming, Caroline Shulman, Bridget Candy
Strength in numbers: patient experiences of group exercise within hospice palliative care
Lorna Malcolm, Gill Mein, Alison Jones, Helena Talbot-Rice, Matthew Maddocks, Katherine Bristowe
Erratum to: Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience
Catherine Walshe, Guillermo Perez Algorta, Steven Dodd, Evangelia Papavasiliou, Matthew Hill, Nick Ockenden, Sheila Payne, Nancy Preston
Development and validation of a new patient experience tool in patients with serious illness
Karl M. Fernstrom, Nathan D. Shippee, Alissa L. Jones, Heather R. Britt
Health care professionals’ experience, understanding and perception of need of advanced cancer patients with cachexia and their families: The benefits of a dedicated clinic
David Scott, Joanne Reid, Peter Hudson, Peter Martin, Sam Porter