Ausgabe 1/2021
Inhalt (193 Artikel)
Delphi consensus on strategies in the management of opioid-induced constipation in cancer patients
Regina Gironés Sarrió, Agnès Calsina-Berna, Adoración Gozalvo García, José Miguel Esparza-Miñana, Esther Falcó Ferrer, Rosa María Villatoro Roldan, Jaime Alcober Pérez, Vicent Alcolea Fuster, José Huidobro Ubierna, Begoña Campos Balea, Fernando García Urra, Antonio Gabriel Amengual Vich, Olga Linares Alemparte, Sandra Villamil Montufar, Miguel Ángel Núñez Viejo, Virginia Aurora Ochagavia Galilea, Esther García Asencio, Ana Ruiz Alonso, Alfredo Paredes Lario, María del Carmen Francisco López, Visitación Sorolla Gutiérrez, Núria Calvo Vergés, Natalia Iriarte Gay de Montella, Marta Andrés Escapa, Juan David Cárdenas, María Escarlata López Ramírez, Laura Visa, Julio César Melón Pérez, Juan Luis Martí Ciriquian, Raquel Marsé Fabregat, Joaquina Martínez Galán, Isabel Chirivella González, Margarita Álvaro Pardo, Luis Enrique Chara Velarde, María Isabel Villanego Beltrán, Paula Peleteiro Higuero, María Fernández Abad, Consuelo Rodríguez Rodríguez, José Lorenzo Gómez-Aldaraví, Cristina Mateo, Javier Martínez Trufero, María Sereno Moyano, Sandra Morales Pérez, Roberto A. Pazo Cid, Deborah Moreno Alonso, Salvador Garcerá Juan, Fernando Henao Carrasco, José Agustín González Romero, Alejandro Falcón González, Carlos López López, María Herrera Abián, Josep Porta-Sales
Evaluating a multidimensional strategy to improve the professional self-care of occupational therapists working with people with life limiting illness
Courtney Apostol, Kathryn Cranwell, Danielle Hitch
Health-related expectations of the chronically critically ill: a multi-perspective qualitative study
A. Fuchsia Howard, Sarah Crowe, Laura Choroszewski, Joe Kovatch, Adrianne Jansen Haynes, Joan Ford, Scott Beck, Gregory J. Haljan
Stakeholder perspectives and requirements to guide the development of digital technology for palliative cancer services: a multi-country, cross-sectional, qualitative study in Nigeria, Uganda and Zimbabwe
Kennedy Bashan Nkhoma, Bassey Ebenso, David Akeju, Samuel Adejoh, Michael Bennett, Mike Chirenje, Adlight Dandadzi, Elizabeth Nabirye, Elizabeth Namukwaya, Eve Namisango, Kehinde Okunade, Omolola Salako, Richard Harding, Matthew J. Allsop
The role of research in improving responsiveness of palliative care to migrants and other underserved populations in the Netherlands: a qualitative interview study
M. Torensma, B. D. Onwuteaka-Philipsen, X. de Voogd, D. L. Willems, J. L. Suurmond
Patient participation and associated factors in the discussions on do-not-attempt-resuscitation and end-of-life disclosure: a retrospective chart review study
Akiko Abe, Masato Kobayashi, Takashi Kohno, Mari Takeuchi, Saori Hashiguchi, Masaru Mimura, Daisuke Fujisawa
A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer
Anne Sæle Barlund, Beate André, Kari Sand, Anne-Tove Brenne
Palliative care needs among patients with advanced illnesses in Bhutan
Tara Devi Laabar, Christobel Saunders, Kirsten Auret, Claire E. Johnson
Spiritual care practices in hospices in the Western cape, South Africa: the challenge of diversity
Ronita Mahilall, Leslie Swartz
Advanced care planning during the COVID-19 pandemic: ceiling of care decisions and their implications for observational data
Sam Straw, Melanie McGinlay, Michael Drozd, Thomas A. Slater, Alice Cowley, Stephe Kamalathasan, Nicholas Maxwell, Rory A. Bird, Aaron O. Koshy, Milos Prica, Peysh A. Patel, Samuel D. Relton, John Gierula, Richard M. Cubbon, Mark T. Kearney, Klaus K. Witte
Challenges for palliative care day services: a focus group study
Felicity Hasson, Joanne Jordan, Laurie McKibben, Lisa Graham-Wisener, Anne Finucane, Kathy Armour, Shazia Zafar, Alistair Hewison, Kevin Brazil, W. George Kernohan
Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study
Marina R. Ekkel, Marja F. I. A. Depla, Els M. L. Verschuur, Ruth B. Veenhuizen, Cees M. P. M. Hertogh, Bregje D. Onwuteaka-Philipsen
To hydrate or not to hydrate? The effect of hydration on survival, symptoms and quality of dying among terminally ill cancer patients
Chien-Yi Wu, Ping-Jen Chen, Tzu-Lin Ho, Wen-Yuan Lin, Shao-Yi Cheng
Chinese medical teachers’ cultural attitudes influence palliative care education: a qualitative study
Antonia M. Willemsen, Piret Paal, Silja Zhang, Stephen Mason, Frank Elsner
Communication of Pharmacogenomic test results and treatment plans in pediatric oncology: deliberative stakeholder consultations with parents
Cristina Longo, Vasiliki Rahimzadeh, Gillian Bartlett
Impact of a specialised palliative care intervention in patients with advanced soft tissue sarcoma – a single-centre retrospective analysis
F. Brandes, J. K. Striefler, A. Dörr, M. Schmiester, S. Märdian, G. Koulaxouzidis, D. Kaul, A. Behzadi, P. Thuss-Patience, J. Ahn, U. Pelzer, L. Bullinger, A. Flörcken
Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach
Jackelyn Y. Boyden, Chris Feudtner, Janet A. Deatrick, Kimberley Widger, Gwenn LaRagione, Blyth Lord, Mary Ersek
What makes palliative care needs “complex”? A multisite sequential explanatory mixed methods study of patients referred for specialist palliative care
Anne M. Finucane, Connie Swenson, John I. MacArtney, Rachel Perry, Hazel Lamberton, Lucy Hetherington, Lisa Graham-Wisener, Scott A. Murray, Emma Carduff
What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care
Lesley Dunleavy, Danni Collingridge Moore, Ida Korfage, Sheila Payne, Catherine Walshe, Nancy Preston
Development of a managed clinical network for children’s palliative care – a qualitative evaluation
Andrew Papworth, Lorna Fraser, Jo Taylor
Health care needs of elderly patients with lung, liver, or colon cancer in Taiwan
Tzu-Yin Lee, Henny Dwi Susanti, Kuo-Chen Hung, Su-Yueh Yang, Hui-Fen Fang, Jia-Ruey Tsai, Jeng-Fong Chiou, Min-Huey Chung
Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan
Isabelle Schaefer, Nicole Heneka, Tim Luckett, Meera R. Agar, Suzanne K. Chambers, David C. Currow, Georgia Halkett, Domenica Disalvo, Ingrid Amgarth-Duff, Cleola Anderiesz, Jane L. Phillips
Using natural language processing to explore heterogeneity in moral terminology in palliative care consultations
Eline van den Broek-Altenburg, Robert Gramling, Kelly Gothard, Maarten Kroesen, Caspar Chorus
Home hospitalization for palliative cancer care: factors associated with unplanned hospital admissions and death in hospital
Vincent Gamblin, Chloé Prod’homme, Adrien Lecoeuvre, André -Michel Bimbai, Joël Luu, Pierre-Alexandre Hazard, Arlette Da Silva, Stéphanie Villet, Marie-Cécile Le Deley, Nicolas Penel
The pattern of change in opioid and adjuvant prescriptions for cancer pain before and after referral to a comprehensive program in the Palliative Care Center in Kuwait
Ameena Mohammed Al-Ansari, Wafaa Mostafa Abd-El-Gawad, Sobhi Mostafa AboSerea, Eman El Sayed ElShereafy, Fatma Abdel Shakor Ali, Mohammed Abd Elaziz ElSayed
Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study
X. de Voogd, D. L. Willems, M. Torensma, B. D. Onwuteaka-Philipsen, J. L. Suurmond
The relationship between proxy agency and the medical decisions concerning pediatric patients in palliative care: a qualitative study
Martina Fay, Jessica Guadarrama, Tirsa Colmenares-Roa, Iraís Moreno-Licona, Ana Gabriela Cruz-Martin, Ingris Peláez-Ballestas
Palliative treatment of endometrial cancer: what is the role of anastrozole in elderly women?
Barbara Gardella, Mattia Dominoni, Stefano Bogliolo, Chiara Cassani, Giulia Vittoria Carletti, Annalisa De Silvestri, Arsenio Spinillo
Valuing end-of-life care: translation and content validation of the ICECAP-SCM measure
Uta Gühne, Marie Dorow, Jessica Grothe, Janine Stein, Margrit Löbner, Judith Dams, Joanna Coast, Philip Kinghorn, Hans-Helmut König, Steffi G. Riedel-Heller
A meaning-centered spiritual care training program for hospice palliative care teams in South Korea: development and preliminary evaluation
Kyung-Ah Kang, Shin-Jeong Kim, Do-Bong Kim, Myung-Hee Park, Soo-Jin Yoon, Sung-Eun Choi, Young-Sim Choi, Su-Jin Koh
Access to and adequacy of psychological services for adult patients in UK hospices: a national, cross-sectional survey
Daisy McInnerney, Bridget Candy, Patrick Stone, Nicola Atkin, Joana Johnson, Syd Hiskey, Nuriye Kupeli
Cultural adaptation and psychometric evaluation of the Chinese version of the nurse-specific end-of-life professional caregiver survey: a cross-sectional study
Zhijie Zou, Jinbing Bai, Yaohua Gu, Qihua Zou, Canhua Xiao, Jiong Yang, Qing Zhang, Mark Lazenby
Comparing two models of outpatient specialised palliative care
Elizabeth Rosted, Birgit Aabom, Bibi Hølge-Hazelton, Mette Raunkiær
Palliative care nurse champions’ views on their role and impact: a qualitative interview study among hospital and home care nurses
Marijanne Engel, Lia van Zuylen, Andrée van der Ark, Agnes van der Heide
Systematic adaptation of the Thai version of the supportive and palliative care indicators tool for low-income setting (SPICT-LIS)
Supakorn Sripaew, Orapan Fumaneeshoat, Thammasin Ingviya
Evaluating the integration of palliative care in national health systems: an indicator rating process with EAPC task force members to measure advanced palliative care development
Natalia Arias-Casais, Eduardo Garralda, Miguel Antonio Sánchez-Cárdenas, John Y. Rhee, Carlos Centeno
Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study
Tine Ikander, Stefan Starup Jeppesen, Olfred Hansen, Mette Raunkiær, Karin Brochstedt Dieperink
Inducing a sense of worthiness in patients: the basis of patient-centered palliative care for cancer patients in Iran
Mir Hossein Aghaei, Zohreh Vanaki, Eesa Mohammadi
No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial
Rose Miranda, Tinne Smets, Nele Van Den Noortgate, Jenny T. van der Steen, Luc Deliens, Sheila Payne, Katarzyna Szczerbińska, Sophie Pautex, Liesbeth Van Humbeeck, Giovanni Gambassi, Marika Kylänen, Lieve Van den Block, Yuliana Gatsolaeva, Lara Pivodic, Elisabeth Honinx, Marc Tanghe, Hein van Hout, Katherine Froggatt, Bregje Onwuteaka-Philipsen, H. Roeline W. Pasman, Ruth Piers, Ilona Baranska, Mariska Oosterveld-Vlug, Anne B. Wichmann, Yvonne Engels, Myrra Vernooij-Dassen, Jo Hockley, Suvi Leppäaho, Catherine Bassal, Federica Mammarella, Martina Mercuri, Paola Rossi, Ivan Segat, Agata Stodolska, Eddy Adang, Paula Andreasen, Outi Kuitunen-Kaija, Teija Hammar, Rauha Heikkilä, Danni Collingridge Moore, Violetta Kijowska, Maud ten Koppel, Emilie Morgan de Paula
Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore
Victoria Jane En Long, Yin Bun Cheung, Debra Qu, Katherine Lim, Guozhang Lee, Alethea C. P. Yee, Ping Guo, Richard Harding, Grace Meijuan Yang
How well do documented goals-of-care discussions for patients with stage IV cancer reflect communication best practices?
Natalie C. Ernecoff, Kathryn L. Wessell, William A. Wood, Gary S. Winzelberg, Frances A. Collichio, Laura C. Hanson
Enhanced home palliative care could reduce emergency department visits due to non-organic dyspnea among cancer patients: a retrospective cohort study
Hua-Shui Hsu, Tai-Hsien Wu, Chin-Yu Lin, Ching-Chun Lin, Tsung-Po Chen, Wen-Yuan Lin
Socioeconomy as a prognostic factor for location of death in Swedish palliative cancer patients
Jonas Nilsson, Georg Holgersson, Gustav Ullenhag, Malin Holmgren, Bertil Axelsson, Tobias Carlsson, Michael Bergqvist, Stefan Bergström
Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study
Sonja McIlfatrick, Paul Slater, Esther Beck, Olufikayo Bamidele, Sharon McCloskey, Karen Carr, Deborah Muldrew, Lisa Hanna-Trainor, Felicity Hasson
Opioid therapy vs. multimodal analgesia in head and neck Cancer (OPTIMAL-HN): study protocol for a randomized clinical trial
Sondos Zayed, Pencilla Lang, Lucas C. Mendez, Nancy Read, Jinka Sathya, Varagur Venkatesan, Dwight E. Moulin, Andrew Warner, David A. Palma
Effect of continual quality improvement of palliative care consultation teams by iterative, customer satisfaction survey-driven evaluation
Noriyuki Kawabata, Mikio Nin
Qualitative investigation of patient and carer experiences of everyday legal needs towards end of life
Helen Close, Kamal Sidhu, Hazel Genn, Jonathan Ling, Colette Hawkins
Attitudes and educational needs of emergency doctors providing palliative and end-of-life care in Hong Kong: a cross-sectional analysis based on a self-report study
Kwun Hang Wong, Li Chuan Marc Yang, Kam Wing Raymond Woo, Oi Fung Wong, Wing Yan Kwong, Choi Fung Tse, Shing Kit Tommy Lam, Hing Man Ma, Chau Hung Albert Lit, Hiu Fai Ho, Yau Ngai Shih
Short-form quality care questionnaire-palliative care has acceptable measurement properties in Brazilian cancer patients
Vinício dos Santos Barros, Daniela Bassi-Dibai, André Pontes-Silva, Laíla Silva Linhares Barros, Adriana Sousa Rêgo, Cid André Fidelis-de-Paula-Gomes, Almir Vieira Dibai-Filho
Nurses’ knowledge and attitudes towards palliative care and death: a learning intervention
Yanping Hao, Lixuan Zhan, Meiling Huang, Xianying Cui, Ying Zhou, En Xu
Psychosocial-spiritual interventions among Muslims undergoing treatment for cancer: an integrative review
Abdallah Abu Khait, Mark Lazenby
Comparison of the health-related quality of life of end stage kidney disease patients on hemodialysis and non-hemodialysis management in Uganda
Peace Bagasha, Elizabeth Namukwaya, Mhoira Leng, Robert Kalyesubula, Edrisa Mutebi, Ronald Naitala, Elly Katabira, Mila Petrova
An Australian Neuro-Palliative perspective on Huntington's disease: a case report
Rajvi Shah, Sarah CM Lee, Rupert B Strasser, Christopher Grossman
The hospice as a learning space: a death education intervention with a group of adolescents
Ines Testoni, Lorenza Palazzo, Lucia Ronconi, Stefania Donna, Paolo Francesco Cottone, Michael Alexander Wieser
Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study
Shannon Freeman, Davina Banner, Valerie Ward
Validity and reliability of the Persian version of the nurse spiritual care therapeutics scale (NSCTS)
Fatemeh Merati-Fashi, Behnam Khaledi-Paveh, Hadis Mosafer, Abbas Ebadi
“It’s given me confidence”: a pragmatic qualitative evaluation exploring the perceived benefits of online end‐of‐life education on clinical care
Deidre D Morgan, Caroline Litster, Megan Winsall, Kim Devery, Deb Rawlings
Unmet needs related to the quality of life of advanced cancer patients in Korea: a qualitative study
Jeehee Pyo, Minsu Ock, Mina Lee, Juhee Kim, Jaekyung Cheon, Juhee Cho, Jung Hye Kwon, Hyeyeoung Kim, Hyeon-Su Im, Young Joo Min, Su-Jin Koh
Continuity in palliative care – analysis of intersectoral palliative care based on routine data of a statutory health insurance
Laura Rehner, Kilson Moon, Wolfgang Hoffmann, Neeltje van den Berg
The impact of uncertainty on bereaved family’s experiences of care at the end of life: a thematic analysis of free text survey data
Jackie Robinson, Caitlin Pilbeam, Hetty Goodwin, Deborah Raphael, Susan Waterworth, Merryn Gott
Palliative care in day-hospital for advanced cancer patients: a study protocol for a multicentre randomized controlled trial
Laura Thery, Amélie Anota, Lorraine Waechter, Celine Laouisset, Timothee Marchal, Alexis Burnod, Elisabeth Angellier, Oum El Kheir Djoumakh, Clemence Thebaut, Anne Brédart, Sylvie Dolbeault, Jean-Christophe Mino, Carole Bouleuc
Challenges and opportunities for spiritual care practice in hospices in a middle-income country
Ronita Mahilall, Leslie Swartz
Changes in decision-making process for life-sustaining treatment in patients with advanced cancer after the life-sustaining treatment decisions-making act
Hyeyeong Kim, Hyeon-Su Im, Kyong Og Lee, Young Joo Min, Jae-Cheol Jo, Yunsuk Choi, Yoo Jin Lee, Daseul Kang, Changyoung Kim, Su-Jin Koh, Jaekyung Cheon
Development and evaluation of the Good Grief program for young people bereaved by familial cancer
Pandora Patterson, Fiona E. J. McDonald, Elizabeth Kelly-Dalgety, Bianca Lavorgna, Barbara L. Jones, Anna E. Sidis, Thomasin Powell
Correction to: A meaning-centered spiritual care training program for hospice palliative care teams in South Korea: development and preliminary evaluation
Kyung-Ah Kang, Shin-Jeong Kim, Do-Bong Kim, Myung-Hee Park, Soo-Jin Yoon, Sung-Eun Choi, Young-Sim Choi, Su-Jin Koh
Bereavement interventions to support informal caregivers in the intensive care unit: a systematic review
Stephana J. Moss, Krista Wollny, Therese G. Poulin, Deborah J. Cook, Henry T. Stelfox, Amanda Roze des Ordons, Kirsten M. Fiest
A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland
Martyna Tomczyk, Nathalie Dieudonné-Rahm, Ralf J. Jox
The opinion of French pulmonologists and palliative care physicians on non-invasive ventilation during palliative sedation at end of life: a nationwide survey
V. Guastella, G. Piwko, A. Greil, C. Lambert, A. Lautrette
Factors influencing length of survival in ambulatory palliative care - a cross sectional study based on secondary data
Johannes Just, Marie-Therese Schmitz, Ulrich Grabenhorst, Thomas Joist, Kirsten Horn, Bettina Engel, Klaus Weckbecker
Why is hospice care important? An exploration of its benefits for patients with terminal cancer
Maria Wajid, Eslavath Rajkumar, J. Romate, Allen Joshua George, R. Lakshmi, Srinagesh Simha
Translation, cultural adaptation and validation of the Chinese version of the Carer Support Needs Assessment Tool for family caregivers of cancer patients receiving home-based hospice care
Sijia Zhou, Qianqian Zhao, Huimin Weng, Ning Wang, Xia Wu, Xinxin Li, Lili Zhang
Factors influencing nurses’ intention to work in the oncology specialty: multi-institutional cross-sectional study
Omar Alrasheedi, Timothy John Schultz, Gillian Harvey
Paediatric palliative screening scale as a useful tool for clinicians’ assessment of palliative care needs of pediatric patients: a retrospective cohort study
In Gyu Song, Seung Yeon Kwon, Yoon Jung Chang, Min Sun Kim, Sung Hoon Jeong, Seung Min Hahn, Kyu Tae Han, So-Jung Park, Jin Young Choi
Palliative Performance Scale and survival in patients with cancer and non-cancer diagnoses needing a palliative care consultation: a retrospective cohort study
Patcharaporn Prompantakorn, Chaisiri Angkurawaranon, Kanokporn Pinyopornpanish, Lalita Chutarattanakul, Chanchanok Aramrat, Chanapat Pateekhum, Nisachol Dejkriengkraikul
Acute and long-term grief reactions and experiences in parentally cancer-bereaved teenagers
Tove Bylund-Grenklo, Dröfn Birgisdóttir, Kim Beernaert, Tommy Nyberg, Viktor Skokic, Jimmie Kristensson, Gunnar Steineck, Carl Johan Fürst, Ulrika Kreicbergs
Decision making in the end-of-life care of patients who are terminally ill with cancer – a qualitative descriptive study with a phenomenological approach from the experience of healthcare workers
Angela Luna-Meza, Natalia Godoy-Casasbuenas, José Andrés Calvache, Eduardo Díaz-Amado, Fritz E. Gempeler Rueda, Olga Morales, Fabian Leal, Carlos Gómez-Restrepo, Esther de Vries
Information needs of patients with chronic diseases and their relatives for web-based advance care planning: a qualitative interview study
Doris van der Smissen, Judith A. C. Rietjens, Lisette van Gemert-Pijnen, Sandra van Dulmen, Agnes van der Heide, Ida J. Korfage
Exploring the relationship between spiritual well-being and death anxiety in patients with gynecological cancer: a cross-section study
Yue Feng, Xingcan Liu, Tangwei Lin, Biru Luo, Qianqian Mou, Jianhua Ren, Jing Chen
Frames and counter-frames giving meaning to palliative care and euthanasia in the Netherlands
Baldwin Van Gorp, Gert Olthuis, Anneleen Vandekeybus, Jelle van Gurp
Views of patients with advanced disease and their relatives on participation in palliative care research
Karolina Vlckova, Kristyna Polakova, Anna Tuckova, Adam Houska, Martin Loucka
Development and implementation of a transmural palliative care consultation service: a multiple case study in the Netherlands
Marijanne Engel, Arianne Stoppelenburg, Andrée van der Ark, Floor M. Bols, Johannis Bruggeman, Ellen C.J. Janssens-van Vliet, Johanna H. Kleingeld-van der Windt, Ingrid E. Pladdet, Angelique E.M.J. To-Baert, Lia van Zuylen, Agnes van der Heide
Current status of intensive end-of-life care in children with hematologic malignancy: a population-based study
Nobuyuki Yotani, Daisuke Shinjo, Motohiro Kato, Kimikazu Matsumoto, Kiyohide Fushimi, Yoshiyuki Kizawa
A qualitative exploration of the unmet information needs of Chinese advanced cancer patients and their informal caregivers
Tao Wang, Alex Molassiotis, Betty Pui Man Chung, Si-Lin Zheng, Hou-Qiang Huang, Jing-Yu (Benjamin) Tan
Can primary palliative care education change life-sustaining treatment intensity of older adults at the end of life? A retrospective study
Qian Liu, Mingzhao Qin, Jian Zhou, Hui Zheng, Weiping Liu, Qi Shen
Validation of the Chinese version of the Care Evaluation Scale for measuring the quality of structure and process of end-of-life care from the perspective of bereaved family
Juanjuan Zhao, Liming You, Hongmei Tao, Frances Kam Yuet Wong
Adapting ENABLE for patients with advanced cancer and their family caregivers in Singapore: a qualitative formative evaluation
Grace Meijuan Yang, J. Nicholas Dionne-Odom, Yi Han Foo, Ariel Hui Mei Chung, Nur Haidah Ahmad Kamal, Laurence Tan, Chou Chuen Yu, Le Mai Khanh, Audrey Rui Xuan Koh, Irene Teo, Sungwon Yoon, Marie Bakitas
Knowledge of palliative care and preference of end of life care: a cross-sectional survey of residents in the Chinese socio-cultural background of Macao
Kuai In Tam, Sok Leng Che, Mingxia Zhu, Sok Man Leong
Compassion fatigue and compassion satisfaction among palliative care health providers: a scoping review
Manal Hassan Baqeas, Jenny Davis, Beverley Copnell
Evidence on the economic value of end-of-life and palliative care interventions: a narrative review of reviews
Xhyljeta Luta, Baptiste Ottino, Peter Hall, Joanna Bowden, Bee Wee, Joanne Droney, Julia Riley, Joachim Marti
End-of-life care preferences among cancer patients in Southern Thailand: a university hospital-based cross-sectional survey
Jarurin Pitanupong, Sahawit Janmanee
Documentation of older people’s end-of-life care in the context of specialised palliative care: a retrospective review of patient records
M. Sjöberg, A.-K. Edberg, B. H. Rasmussen, I. Beck
Support received by family members before, at and after an ill person’s death
Anna O’Sullivan, Anette Alvariza, Joakim Öhlén, Cecilia Larsdotter
Combining paid work and family care for a patient at the end of life at home: insights from a qualitative study among caregivers in the Netherlands
Femmy M. Bijnsdorp, Bregje D. Onwuteaka-Philipsen, Cécile R.L. Boot, Allard J. van der Beek, Hanna T. Klop, H. Roeline W. Pasman
Exploring the status of and demand for palliative day-care clinics and day hospices in Germany: a protocol for a mixed-methods study
Franziska A. Herbst, Stephanie Stiel, Kathrin Damm, Lea de Jong, Jona T. Stahmeyer, Nils Schneider
Video decision support tool promoting values conversations in advanced care planning in cancer: protocol of a randomised controlled trial
Natasha Michael, Clare O’Callaghan, Ekavi Georgousopoulou, Adelaide Melia, Merlina Sulistio, David Kissane
Brief Engagement and Acceptance Coaching for Hospice Settings (the BEACHeS study): results from a Phase I study of acceptability and initial effectiveness in people with non-curative cancer
Nicholas J. Hulbert-Williams, Sabrina F. Norwood, David Gillanders, Anne M. Finucane, Juliet Spiller, Jenny Strachan, Susan Millington, Joseph Kreft, Brooke Swash
Facilitating advance care planning in the general practice setting for patients with a chronic, life-limiting illness: protocol for a phase-III cluster-randomized controlled trial and process evaluation of the ACP-GP intervention
Julie Stevens, Peter Pype, Kim Eecloo, Luc Deliens, Koen Pardon, Aline De Vleminck
NUrsing Homes End of Life care Program (NUHELP): developing a complex intervention
Emilio Mota-Romero, Ana Alejandra Esteban-Burgos, Daniel Puente-Fernández, María Paz García-Caro, Cesar Hueso-Montoro, Raquel Mercedes Herrero-Hahn, Rafael Montoya-Juárez
Correction to: Acute and long-term grief reactions and experiences in parentally cancer-bereaved teenagers
Tove Bylund-Grenklo, Dröfn Birgisdóttir, Kim Beernaert, Tommy Nyberg, Viktor Skokic, Jimmie Kristensson, Gunnar Steineck, Carl Johan Fürst, Ulrika Kreicbergs
Developing an integrated model of community-based palliative care into the primary health care (PHC) for terminally ill cancer patients in Iran
Suzanne Hojjat-Assari, Maryam Rassouli, Maxwell Madani, Heshmatolah Heydari
Perceptions of healthcare professionals towards palliative care in internal medicine wards: a cross-sectional survey
Jason Tay, Scott Compton, Gillian Phua, Qingyuan Zhuang, Shirlyn Neo, Guozhang Lee, Limin Wijaya, Min Chiam, Natalie Woong, Lalit Krishna
Symptoms, symptom relief and support in COVID-19 patients dying in hospitals during the first pandemic wave
Lisa Martinsson, Jonas Bergström, Christel Hedman, Peter Strang, Staffan Lundström
Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study
Hannah J. Fairlamb, Fliss E. M. Murtagh
The prevalence of perceived stigma and self-blame and their associations with depression, emotional well-being and social well-being among advanced cancer patients: evidence from the APPROACH cross-sectional study in Vietnam
Nguyen Tuong Pham, Jia Jia Lee, Nhu Hiep Pham, Thi Do Quyen Phan, Khoa Tran, Hoai Bao Dang, Irene Teo, Chetna Malhotra, Eric A. Finkelstein, Semra Ozdemir
Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective
Kuai In Tam, Elaine Haycock-Stuart, Sarah J. Rhynas
Insights from a community-based palliative care course: a qualitative study
Tania Pastrana, Johannes Wüller, Simone Weyers, Eduardo Bruera
My mind is still mine: a self-portrait in a photography project for adolescents and young adults with cancer
Andrea Ferrari, Alice Patriccioli, Matteo Silva, Matteo Davide Bonvicini, Maura Massimino
Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis
Katherine E. Sleeman, Anna Timms, Juliet Gillam, Janet E. Anderson, Richard Harding, Elizabeth L. Sampson, Catherine J. Evans
Validation of the psychometric properties of the Malay advance care planning questionnaire
Mun Kit Lim, Pauline Siew Mei Lai, Pei Se Wong, Sajaratulnisah Othman, Fadzilah Hanum Mohd Mydin
Use of antithrombotics at the end of life: an in-depth chart review study
Bregje A.A. Huisman, Eric C.T. Geijteman, Jimmy J. Arevalo, Marianne K. Dees, Lia van Zuylen, Karolina M. Szadek, Agnes van der Heide, Monique A.H. Steegers
An integrative review to identify how nurses practicing in inpatient specialist palliative care units uphold the values of nursing
Sue Moran, Maria Bailey, Owen Doody
Dignity of patients with palliative needs in the Middle East: an integrative review
Silva Dakessian Sailian, Yakubu Salifu, Rima Saad, Nancy Preston
Anticoagulation for patients with mechanical heart valves at the end of life: understanding clinician attitudes and improving decision making
Jonathan Raby, Victoria Bradley, Nikant Sabharwal
Engaging family caregivers and health system partners in exploring how multi-level contexts in primary care practices affect case management functions and outcomes of patients and family caregivers at end of life: a realist synthesis
Grace Warner, Lisa Garland Baird, Brendan McCormack, Robin Urquhart, Beverley Lawson, Cheryl Tschupruk, Erin Christian, Lori Weeks, Kothai Kumanan, Tara Sampalli
Learning to care for the spirit of dying patients: the impact of spiritual care training in a hospice-setting
Wafie Hussein Chahrour, Niels Christian Hvidt, Elisabeth Assing Hvidt, Dorte Toudal Viftrup
Before the 2020 Pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales
Ishrat Islam, Annmarie Nelson, Mirella Longo, Anthony Byrne
Medical Assistance in Dying in patients with advanced cancer and their caregivers: a mixed methods longitudinal study protocol
Madeline Li, Gilla K. Shapiro, Roberta Klein, Anne Barbeau, Anne Rydall, Jennifer A. H. Bell, Rinat Nissim, Sarah Hales, Camilla Zimmermann, Rebecca K. S. Wong, Gary Rodin
Context and mechanisms that enable implementation of specialist palliative care Needs Rounds in care homes: results from a qualitative interview study
Jane Koerner, Nikki Johnston, Juliane Samara, Wai-Man Liu, Michael Chapman, Liz Forbat
Physicians’ decreased tendency to choose palliative care for patients with advanced dementia between 1999 and 2015
Saila Haapasalmi, Reetta P. Piili, Riina Metsänoja, Pirkko-Liisa I. Kellokumpu-Lehtinen, Juho T. Lehto
Young adults understanding and readiness to engage with palliative care: extending the reach of palliative care through a public health approach: a qualitative study
Anita Mallon, Felicity Hasson, Karen Casson, Paul Slater, Sonja McIlfatrick
Using a self-directed workbook to support advance care planning with long term care home residents
Tamara Sussman, Sharon Kaasalainen, Jack Lawrence, Paulette V. Hunter, Valerie Bourgeois-Guerin, Michelle Howard
Advance care planning conversations in primary care: a quality improvement project using the Serious Illness Care Program
Abe Hafid, Michelle Howard, Dale Guenter, Dawn Elston, Shireen Fikree, Erin Gallagher, Samantha Winemaker, Heather Waters
Advance care planning preferences in Chinese nursing home residents: results from two cross-sectional studies in Hong Kong and Taiwan
Xinyi Xu, Shu-Wen Tu, Chia-Chin Lin
Palliative care providers’ use of digital health and perspectives on technological innovation: a national study
Jason Mills, Jennifer Fox, Raechel Damarell, Jennifer Tieman, Patsy Yates
Divergent patterns of confrontation with death using the Anticipated Farewell to Existence Questionnaire (AFEQT): a cross-sectional comparative study of four samples with increasing proximity to death
Juan Valdés-Stauber, Ursula Stabenow, Jakob Böttinger, Sarah Kramer, Reinhold Kilian
Cost-utility analysis of palliative care in patients with advanced cancer: a retrospective study
Hao Wu, Ping Lin, Shujuan Yang, Wei Zhang, Wenjuan Tao
Use of palliative radiotherapy among patients with metastatic non-small-cell lung cancer in Puerto Rico
Valerie Quiñones-Avila, Karen J. Ortiz-Ortiz, Ruth Ríos-Motta, Heriberto Marín-Centeno, Guillermo Tortolero-Luna
Adaptation of the Australian Palliative Care Phase concept to the German palliative care context: a mixed-methods approach using cognitive interviews and cross-sectional data
Eva Lehmann, Farina Hodiamont, Mirjam Landmesser, Carina S. Knobloch, Friedemann Nauck, Christoph Ostgathe, Bettina Grüne, Claudia Bausewein
Providing dignity therapy to patients with advanced cancer: a feasibility study within the setting of a hospital palliative care unit
Francesca Nunziante, Silvia Tanzi, Sara Alquati, Cristina Autelitano, Enrica Bedeschi, Elisabetta Bertocchi, Matilde Dragani, Davide Simonazzi, Elena Turola, Luca Braglia, Luciano Masini, Silvia Di Leo
Benefits, for patients with late stage chronic obstructive pulmonary disease, of being cared for in specialized palliative care compared to hospital. A nationwide register study
Ingela Henoch, Ann Ekberg-Jansson, Claes-Göran Löfdahl, Peter Strang
Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study
E. Honinx, L. Van den Block, R. Piers, B. D. Onwuteaka-Philipsen, S. Payne, K. Szczerbińska, G. Gambassi, M. Kylänen, L. Deliens, T. Smets, Yuliana Gatsolaeva, Rose Miranda, Lara Pivodic, Marc Tanghe, Hein van Hout, Roeline H. R. W. Pasman, Mariska Oosterveld-Vlug, Ruth Piers, Anne B. Wichmann, Yvonne Engels, Myrra Vernooij-Dassen, Jo Hockley, Sheila Payne, Suvi Leppäaho, Ilona Barańska, Sophie Pautex, Catherine Bassal, Federica Mammarella, Martina Mercuri, Paola Rossi, Ivan Segat, Agata Stodolska, Eddy Adang, Paula Andreasen, Outi Kuitunen-Kaija, Danni Collingridge Moore, Agnieszka Pac, Violetta Kijowska, Maud ten Koppel, Jenny T. van der Steen, Emilie Morgan de Paula
Higher levels of unmet support needs in spouses are associated with poorer quality of life – a descriptive cross-sectional study in the context of palliative home care
Maria Norinder, Kristofer Årestedt, Susanne Lind, Lena Axelsson, Gunn Grande, Gail Ewing, Maja Holm, Joakim Öhlén, Inger Benkel, Anette Alvariza
Associations between the spiritual well-being (EORTC QLQ-SWB32) and quality of life (EORTC QLQ-C30) of patients receiving palliative care for cancer in Cyprus
Maria Kyranou, Marianna Nicolaou
Evaluating the specialist palliative care clinical nurse specialist role in an acute hospital setting: a mixed methods sequential explanatory study
Michael Connolly, Mary Ryder, Kate Frazer, Eileen Furlong, Teresa Plazo Escribano, Philip Larkin, Eileen Carruthers, Eileen McGuigan
Trends in specialized palliative care referrals at an oncology center from 2007 to 2019
Lucka Boltezar, Barbara Jezersek Novakovic, Maja Ebert Moltara
Parental bereavement – impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review
Prachi Simran Vig, Jia Yin Lim, Randal Wei Liang Lee, Huixin Huang, Xiu Hui Tan, Wei Qiang Lim, Marie Bernadette Xin Yi Lim, Alexia Sze Inn Lee, Min Chiam, Crystal Lim, Vijayendra Ranjan Baral, Lalit Kumar Radha Krishna
Experiences of bereaved family caregivers with shared decision making in palliative cancer treatment: a qualitative interview study
Sanne P. C. van Oosterhout, Daisy J. M. Ermers, Floor K. Ploos van Amstel, Carla M. L. van Herpen, Yvonne Schoon, Marieke Perry, Maartje van Geel, Evelien J. M. Kuip, Yvonne Engels
Documenting plans for care: advance care directives and the 7-step pathway in the acute care context
Gregory Brian Crawford, Katherine Hodgetts, Teresa Burgess, Jaklin Eliott
Nurse-led normalised advance care planning service in hospital and community health settings: a qualitative study
Se Ok Ohr, Peter Cleasby, Sarah Yeun-Sim Jeong, Tomiko Barrett
Knowledge of end-of-life wishes by physicians and family caregivers in cancer patients
Jose A Calvache, Socorro Moreno, Gillian Prue, Joanne Reid, Sam H Ahmedzai, Angelica Arango-Gutierrez, Liliana Ardila, Lucia I Arroyo, Esther de Vries
“We don’t want to sedate him” - A qualitative interview study on intentions when administering sedative drugs at the end of life in nursing homes and hospitals
Sophie Meesters, Bettina Grüne, Claudia Bausewein, Eva Schildmann
Addressing challenges in information-provision: a qualitative study among oncologists and women with advanced breast cancer
Liesbeth M. van Vliet, Maartje C. Meijers, Sandra van Dulmen, Elsken van der Wall, Nicole Plum, Jacqueline Stouthard, Anneke L. Francke
Community palliative care services on addressing physical and psychosocial needs in people with advanced illness: a prospective cohort study
Helen Yue-lai Chan, Carmen Ka-man Chung, Shawn Sze-chai Tam, Rita Suk-kuen Chow
Health-related quality of life in patients with colorectal cancer in the palliative phase: a systematic review and meta-analysis
Ida Røed Flyum, Seila Mahic, Ellen Karine Grov, Pål Joranger
Evaluating satisfaction with the quality and provision of end-of-life care for patients from diverse ethnocultural backgrounds
Ayah Nayfeh, Christopher J. Yarnell, Craig Dale, Lesley Gotlib Conn, Brigette Hales, Tracey Das Gupta, Anita Chakraborty, Ruxandra Pinto, Ru Taggar, Robert Fowler
Implementing welfare technology in palliative homecare for patients with cancer: a qualitative study of health-care professionals’ experiences
Lina Oelschlägel, Alfhild Dihle, Vivi L. Christensen, Kristin Heggdal, Anne Moen, Jane Österlind, Simen A. Steindal
Healthcare professionals’ perspectives of patient and family preferences of patient place of death: a qualitative study
Manjusha K. Sathiananthan, Gregory B. Crawford, Jaklin Eliott
Same, same, but different? A longitudinal, mixed-methods study of stability in values and preferences for future end-of-life care among community-dwelling, older adults
Malin Eneslätt, Gert Helgesson, Carol Tishelman
“The system is well intentioned, but complicated and fallible” interviews with caregivers and decision makers about palliative care in Canada
Nicole Luymes, Nicole Williams, Liz Garrison, Donna Goodridge, Maria Silveira, Dawn M. Guthrie
Association between attitude towards death and spiritual care competence of Chinese oncology nurses: a cross-sectional study
Liujin Li, Jingmin Lv, Lingling Zhang, Yalan Song, Ying Zhou, Jiaxian Liu
Provision and related factors of end-of-life care in elderly housing with care services in collaboration with home-visiting nurse agencies: a nationwide survey
Sakiko Fukui, Naoko Otsuki, Sumie Ikezaki, Hiroki Fukahori, Saori Irie
Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings
Hui-Lin Cheng, Doris Yin Ping Leung, Po Shan Ko, Ming Wai Chung, Wai Man Lam, Po Tin Lam, Andrew Leung Luk, Simon Ching Lam
Quality of dying in hospital general wards: a cross-sectional study about the end-of-life care
Filippo Binda, Marco Clari, Gabriella Nicolò, Simone Gambazza, Barbara Sappa, Paola Bosco, Dario Laquintana
Pain, disease severity and associations with individual quality of life in patients with motor neuron diseases
Ylva Åkerblom, Lena Zetterberg, Birgitta Jakobsson Larsson, Dag Nyholm, Ingela Nygren, Pernilla Åsenlöf
Palliative care integration: a critical review of nurse migration effect in Jamaica
Rebecca L. Edwards, Patricia A. Patrician, Marie Bakitas, Adelais Markaki
Building a telepalliative care strategy in nursing homes: a qualitative study with mobile palliative care teams
Clément Cormi, Marie Petit, Juline Auclair, Emmanuel Bagaragaza, Isabelle Colombet, Stéphane Sanchez
Palliative care in the community – the role of the resource nurse, a qualitative study
Håkon Johansen, Ann Karin Helgesen
Patient and physician perspectives on engaging in palliative and healthcare trials: a qualitative descriptive study
Valeria Cardenas, Anna Rahman, Jenna Giulioni, Alexis Coulourides Kogan, Susan Enguidanos
Description and evaluation of a French grief workshop for children and adolescents bereaved of a sibling or parent
Ashley Ridley, Alexis Revet, Jean-Philippe Raynaud, Eric Bui, Agnès Suc
The effect of a single session of 30-min mindful breathing in reducing fatigue among patients with haematological cancer – a randomised controlled trial
Diana-Leh-Ching Ng, Gin-Gin Gan, Nur Adila Anuar, Yu-Zhen Tung, Natalie-Zi Lai, Yi-Wen Tan, Siti Norazilah Mohd Said, Amalia Madihie, Chee-Shee Chai, Seng-Beng Tan
Medical decisions concerning the end of life for cancer patients in three Colombian hospitals – a survey study
Esther de Vries, Fabián Alexander Leal Arenas, Agnes van der Heide, Fritz E. Gempeler Rueda, Raul Murillo, Olga Morales, Eduardo Diaz-Amado, Nelcy Rodríguez, Beatriz Juliana Gonzalez, Danny Steven Castilblanco Delgado, Jose A. Calvache
How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study
Yvonne N. Becqué, Judith A. C. Rietjens, Agnes van der Heide, Erica Witkamp
Caregiver burden among family caregivers of incurable cancer patients in two eastern Mediterranean countries
Samy A. Alsirafy, Radfan Nagy, Amneh D. Hassan, Radwa Fawzy, Ahmad A. M. Abdelhafeez, Marahim O. Husein, Mohammed A. Almashiakhi, Saad H. Alabdullateef, Saeed A. Alghamdi, Ashraf M. Elyamany
Predictors of the final place of care of patients with advanced cancer receiving integrated home-based palliative care: a retrospective cohort study
Ri Yin Tay, Rozenne W. K. Choo, Wah Ying Ong, Allyn Y. M. Hum
Prognosis does not change the landscape: palliative home care clients experience high rates of pain and nausea, regardless of prognosis
Nicole Williams, Kirsten Hermans, Tara Stevens, John P. Hirdes, Anja Declercq, Joachim Cohen, Dawn M. Guthrie
Assessment of self-efficacy for caregiving in oncology: Italian validation of the caregiver inventory (CGI-I)
S. Serpentini, B. Guandalini, G. Tosin, L. Ronconi, G. Cristaldi, R. Amatulli, G. Deledda, S. Riccardi, S. Sommacal, L. Iannopollo, V. Calvo, T. V. Merluzzi
Subjective burdens among informal caregivers of critically ill patients: a cross-sectional study in rural Shandong, China
Wenhao Fu, Jiajia Li, Feng Fang, Dan Zhao, Wenting Hao, Shixue Li
Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools
Clare Ellis-Smith, India Tunnard, Marsha Dawkins, Wei Gao, Irene J. Higginson, Catherine J. Evans, Ellis-Smith, Yi, Gao, Norton, Marshall, Banerjee, Goodman, Higginson, Sube Banerjee, Marsha Dawkins, Clare Ellis-Smith, Catherine J. Evans, Claire Goodman, Irene J. Higginson, Matthew Maddocks, Christine Norton, David Seamark, India Tunnard, Colin Vincent, Gao Wei, Deokhee Yi
Palliative care needs of patients with multiple sclerosis in southeast Iran
Fatemeh Dadsetan, Parvin Mangolian Shahrbabaki, Moghadameh Mirzai, Esmat Nouhi
Home care nurses more positive about the palliative care that is provided and their own competence than hospital nurses: a nationwide survey
Chantal Y. Joren, Anke J.E. de Veer, Kim de Groot, Anneke L. Francke
A survey of cancer care institutions in Nepal to inform design of a pain management mobile application
Virginia LeBaron, Abish Adhikari, Rachel Bennett, Sandhya Chapagain Acharya, Manita Dhakal, Catherine E. Elmore, Kara Fitzgibbon, Rajesh Gongal, Regina Kattel, Ganesh Koirala, Martha Maurer, Daniel Munday, Bijay Neupane, Krishna Sagar Sharma, Ramila Shilpakar, Sudip Shrestha, Usha Thapa, Hexuan Zhang, Rebecca Dillingham, Bishnu Dutta Paudel
Audiobooks from terminally ill parent for their children – a qualitative evaluation
Henning Cuhls, Michaela Hesse, Gülay Ates, Lukas Radbruch
Oral health plays second fiddle in palliative care: an interview study with registered nurses in home healthcare
Anna Gustafsson, Johanna Skogsberg, Åsa Rejnö
What’s suffering got to do with it? A qualitative study of suffering in the context of Medical Assistance in Dying (MAID)
Barbara Pesut, David Kenneth Wright, Sally Thorne, Margaret I. Hall, Gloria Puurveen, Janet Storch, Madison Huggins
Specialist palliative care teams and characteristics related to referral rate: a national cross-sectional survey among hospitals in the Netherlands
M.S. Boddaert, A. Stoppelenburg, J. Hasselaar, Y.M. van der Linden, K.C.P. Vissers, N.J.H. Raijmakers, L. Brom
A novel care guide for personalised palliative care – a national initiative for improved quality of care
Dröfn Birgisdóttir, Anette Duarte, Anna Dahlman, Bengt Sallerfors, Birgit H. Rasmussen, Carl Johan Fürst
“It was one of those complicated cases”: health practitioners’ perspectives and practices of providing end-of-life care for people with profound intellectual and multiple disability
Hille Voss, April Loxton, Julie Anderson, Joanne Watson
Challenges of paediatric palliative care in Romania: a focus groups study
Nadia Pacurari, Eva De Clercq, Monica Dragomir, Anca Colita, Tenzin Wangmo, Bernice S. Elger
Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
Maddy French, Thomas Keegan, Eleftherios Anestis, Nancy Preston
Cultures that collide: an ethnographic study of the introduction of a palliative care consultation team on acute wards
Maria Friedrichsen, Yvonne Hajradinovic, Maria Jakobsson, Kerstin Brachfeld, Anna Milberg
Trend analysis of palliative care consultation service for terminally ill non-cancer patients in Taiwan: a 9-year observational study
Lian-Shin Lin, Ling-Hui Huang, Yu-Chen Chang, Chun-Li Wang, Lung-Chun Lee, Chung-Chieh Hu, Pi-Shan Hsu, Wei-Min Chu
Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study
Anneke Ullrich, Holger Schulz, Sven Goldbach, Wiebke Hollburg, Annette Rommel, Marten Müller, Denise Kirsch, Katrin Kopplin-Förtsch, Julia Messerer, Louise König, Frank Schulz-Kindermann, Carsten Bokemeyer, Karin Oechsle
Feeling called to care: a qualitative interview study on normativity in family caregivers’ experiences in Dutch home settings in a palliative care context
Maaike M. Haan, Gert Olthuis, Jelle L. P. van Gurp
Prevalence and characteristics of patients with heart failure needing palliative care
Luisa Fernanda Arenas Ochoa, Valentina González-Jaramillo, Clara Saldarriaga, Mariantonia Lemos, Alicia Krikorian, John Jairo Vargas, Xavier Gómez-Batiste, Nathalia Gonzalez-Jaramillo, Steffen Eychmüller
How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study
Simon J. W. Oczkowski, Diane E. Crawshaw, Peggy Austin, Donald Versluis, Gaelen Kalles-Chan, Michael Kekewich, Dorothyann Curran, Paul Miller, Michaela Kelly, Ellen Wiebe, Andrea Frolic
Communicating with patients and families about illness progression and end of life: a review of studies using direct observation of clinical practice
Stuart Ekberg, Ruth Parry, Victoria Land, Katie Ekberg, Marco Pino, Charles Antaki, Laura Jenkins, Becky Whittaker
Qualitative assessment of the intention of Chinese community health workers to implement advance care planning using theory of planned behavior
Bingyu Xing, Guanmian Liang, Jing Zhang, Jinsheng Zhang, Zhizhi Jiang, Qunfang Miao
Correction to: Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis
Maddy French, Thomas Keegan, Eleftherios Anestis, Nancy Preston
Assessing the quality of deliberative stakeholder consultations involving allied health professionals in pediatric palliative care and hematology/oncology in Canada
Vasiliki Rahimzadeh, Cristina Longo, Justin Gagnon, Conrad Fernandez, Gillian Bartlett
A cross-sectional assessment of symptom burden among patients with advanced cervical cancer
Tolcha Kebebew, Azwihangwisi Helen Mavhandu-Mudzusi, Annah Mosalo
Palliative care provider attitudes toward existential distress and treatment with psychedelic-assisted therapies
Halsey Niles, Colleen Fogg, Ben Kelmendi, Mark Lazenby
Regional and age differences in specialised palliative care for patients with pancreatic cancer
Mathilde Adsersen, Inna Markovna Chen, Louise Skau Rasmussen, Julia Sidenius Johansen, Mette Nissen, Mogens Groenvold, Kristoffer Marsaa
Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial
Orphé Matthys, Aline De Vleminck, Sigrid Dierickx, Luc Deliens, Vincent Van Goethem, Lore Lapeire, Mogens Groenvold, Line Lund, Caroline Moeller Arnfeldt, Lisa Sengeloev, Helle Pappot, Anna Thit Johnsen, Suzanne Guerin, Philip J. Larkin, Catherine Jordan, Michael Connolly, Paul D’Alton, Massimo Costantini, Silvia Di Leo, Monica Guberti, Elena Turola, Agnes van der Heide, Erika Witkamp, Judith Rietjens, Maaike van der Wel, Kevin Brazil, Gillian Prue, Joanne Reid, David Scott, Katherine Bristowe, Richard Harding, Charles Normand, Peter May, Catherine Cronin, Laurel Northouse, Peter Hudson, Joachim Cohen