Skip to main content
Erschienen in: The Journal of Behavioral Health Services & Research 4/2007

01.10.2007 | Regular Article

Studying Family Participation in System-of-care Evaluations: Using Qualitative Methods to Examine a National Mandate in Local Contexts

verfasst von: Pauline Jivanjee, PhD, Adjoa Robinson, PhD

Erschienen in: The Journal of Behavioral Health Services & Research | Ausgabe 4/2007

Einloggen, um Zugang zu erhalten

Abstract

With the rapid pace of policy and practice changes in children’s mental health, there is a need for research to examine, describe, and disseminate information about the translation of policy directives into practice innovations at the local level. National policy mandates for children’s mental health have placed expectations on local communities to involve families as partners in the development, implementation, and evaluation of systems of care with little guidance about how to implement program requirements locally. Consequently, there is a gap in the knowledge base regarding how innovations are actually implemented in local community contexts. This article reports on a qualitative study to gain understanding of family participation in evaluations of systems of care from the perspectives of evaluators and family members working together. Findings provided rich examples of the experiences and perceptions of evaluators and family members working on evaluation teams, the challenges they encountered, and effective strategies to meet those challenges.
Literatur
1.
Zurück zum Zitat US Department of Health and Human Services. Cooperative Agreements for the Comprehensive Community Mental Health Services for Children and Their Families, Child Mental Health Initiative, Part I Programmatic Guidance, RFA No. SM-03-009. Washington, DC: US Department of Health and Human Services; 2003. US Department of Health and Human Services. Cooperative Agreements for the Comprehensive Community Mental Health Services for Children and Their Families, Child Mental Health Initiative, Part I Programmatic Guidance, RFA No. SM-03-009. Washington, DC: US Department of Health and Human Services; 2003.
2.
Zurück zum Zitat Friesen BJ, Stephens B. Expanding family roles in the system of care: research and practice. In: Epstein MH, Kutash K, Duchnowski A, eds. Outcomes for Children and Youth with Behavioral and Emotional Disorders and Their Families, Vol. 2. Austin, TX: Pro-Ed; 1998:231–259. Friesen BJ, Stephens B. Expanding family roles in the system of care: research and practice. In: Epstein MH, Kutash K, Duchnowski A, eds. Outcomes for Children and Youth with Behavioral and Emotional Disorders and Their Families, Vol. 2. Austin, TX: Pro-Ed; 1998:231–259.
3.
Zurück zum Zitat US Department of Health and Human Services. Mental Health: A Report of the Surgeon General. Rockville, MD: US Public Health Service; 1999. US Department of Health and Human Services. Mental Health: A Report of the Surgeon General. Rockville, MD: US Public Health Service; 1999.
4.
Zurück zum Zitat US Public Health Service National Agenda. Report of the Surgeon General’s Conference on Children’s Mental Health: A National Action Agenda. Washington, DC: US Department of Health and Human Services; 2000. US Public Health Service National Agenda. Report of the Surgeon General’s Conference on Children’s Mental Health: A National Action Agenda. Washington, DC: US Department of Health and Human Services; 2000.
7.
Zurück zum Zitat Patton MQ. Utilization-focused Evaluation, Edition 3. Thousand Oaks, CA: Sage Publications; 1997. Patton MQ. Utilization-focused Evaluation, Edition 3. Thousand Oaks, CA: Sage Publications; 1997.
8.
Zurück zum Zitat Morris D. The inclusion of stakeholders in evaluation: benefits and drawbacks. Canadian Journal of Program Evaluation. 2002;17:49–58. Morris D. The inclusion of stakeholders in evaluation: benefits and drawbacks. Canadian Journal of Program Evaluation. 2002;17:49–58.
9.
Zurück zum Zitat Turnbull AP, Friesen BJ, Ramirez C. Participatory action research as a model for conducting family research. Journal of the Association for Persons with Severe Handicaps. 1998;23:178–188.CrossRef Turnbull AP, Friesen BJ, Ramirez C. Participatory action research as a model for conducting family research. Journal of the Association for Persons with Severe Handicaps. 1998;23:178–188.CrossRef
10.
Zurück zum Zitat Burke B. Evaluating for change: reflections on participatory evaluation. New Directions for Evaluation. 1998;80:43–56.CrossRef Burke B. Evaluating for change: reflections on participatory evaluation. New Directions for Evaluation. 1998;80:43–56.CrossRef
11.
Zurück zum Zitat Fetterman DM. Foundations of Empowerment Evaluation. Thousand Oaks, CA: Sage Publications; 2001. Fetterman DM. Foundations of Empowerment Evaluation. Thousand Oaks, CA: Sage Publications; 2001.
12.
Zurück zum Zitat Santelli B, Singer GHS, DiVenere N, et al. Participatory action research: reflections on critical incidents in a PAR project. Journal of the Association for Persons with Severe Handicaps. 1998;23:211–222.CrossRef Santelli B, Singer GHS, DiVenere N, et al. Participatory action research: reflections on critical incidents in a PAR project. Journal of the Association for Persons with Severe Handicaps. 1998;23:211–222.CrossRef
13.
Zurück zum Zitat Dugan MA. Participatory and empowerment evaluation: lessons learned in training and technical assistance. In: Fetterman DM, Kaftarian SK, Wandersman A, eds. Empowerment Evaluation: Knowledge and Tools for Self-assessment And Accountability. Thousand Oaks, CA: Sage Publications; 1995:277–303. Dugan MA. Participatory and empowerment evaluation: lessons learned in training and technical assistance. In: Fetterman DM, Kaftarian SK, Wandersman A, eds. Empowerment Evaluation: Knowledge and Tools for Self-assessment And Accountability. Thousand Oaks, CA: Sage Publications; 1995:277–303.
14.
Zurück zum Zitat Mertens DM. Inclusive evaluation: implications of transformative theory for evaluation. American Journal of Evaluation. 1999; 20:1–14. Mertens DM. Inclusive evaluation: implications of transformative theory for evaluation. American Journal of Evaluation. 1999; 20:1–14.
15.
Zurück zum Zitat Osher T, Telesford M. Involving families to improve research. In: Hoagwood K, Jensen P, Fisher CB, eds. Ethical Issues in Mental Health Research with Children and Adolescents. Mahwah, NJ: Lawrence Erlbaum Associates; 1996:29–39. Osher T, Telesford M. Involving families to improve research. In: Hoagwood K, Jensen P, Fisher CB, eds. Ethical Issues in Mental Health Research with Children and Adolescents. Mahwah, NJ: Lawrence Erlbaum Associates; 1996:29–39.
16.
Zurück zum Zitat Brandon PR. Stakeholder participation for the purpose of helping insure evaluation validity: bridging the gap between collaborative and non-collaborative evaluations. American Journal of Evaluation. 1998;19:325–337. Brandon PR. Stakeholder participation for the purpose of helping insure evaluation validity: bridging the gap between collaborative and non-collaborative evaluations. American Journal of Evaluation. 1998;19:325–337.
17.
Zurück zum Zitat Vander Stoep A, Williams M, Jones R, et al. Families as full research partners: what’s in it for us? Journal of Behavioral Health Services Research. 1999;26:329–344.PubMedCrossRef Vander Stoep A, Williams M, Jones R, et al. Families as full research partners: what’s in it for us? Journal of Behavioral Health Services Research. 1999;26:329–344.PubMedCrossRef
18.
Zurück zum Zitat Wallerstein N. Power between evaluator and community: research relationships within New Mexico’s healthier communities. Social Science and Medicine. 1999;49:39–53.PubMedCrossRef Wallerstein N. Power between evaluator and community: research relationships within New Mexico’s healthier communities. Social Science and Medicine. 1999;49:39–53.PubMedCrossRef
19.
Zurück zum Zitat Osher TW, van Kammen W, Zaro SM. Family participation in evaluating systems of care: family, research, and system perspectives. Journal of Emotional and Behavioral Disorders. 2001;9:63–70.CrossRef Osher TW, van Kammen W, Zaro SM. Family participation in evaluating systems of care: family, research, and system perspectives. Journal of Emotional and Behavioral Disorders. 2001;9:63–70.CrossRef
20.
Zurück zum Zitat Rodwell MK. Social Work Constructivist Research. New York, NY: Garland Publishing; 1998. Rodwell MK. Social Work Constructivist Research. New York, NY: Garland Publishing; 1998.
21.
Zurück zum Zitat Glaser B, Strauss A. The Discovery of Grounded Theory. Chicago, IL: Aldine; 1967. Glaser B, Strauss A. The Discovery of Grounded Theory. Chicago, IL: Aldine; 1967.
22.
Zurück zum Zitat Gilgun JF. Hand into glove: the grounded theory approach and social work practice research. In: Sherman E, Reid WJ, eds. Qualitative Research in Social Work. New York, NY: Columbia University Press; 1994:115–125. Gilgun JF. Hand into glove: the grounded theory approach and social work practice research. In: Sherman E, Reid WJ, eds. Qualitative Research in Social Work. New York, NY: Columbia University Press; 1994:115–125.
23.
Zurück zum Zitat Patton MQ. Qualitative Evaluation and Research Methods. Newbury Park, CA: Sage Publications; 1990. Patton MQ. Qualitative Evaluation and Research Methods. Newbury Park, CA: Sage Publications; 1990.
24.
Zurück zum Zitat Jivanjee P, Friesen BJ. Shared expertise: the role of families in professional training. Journal of Emotional and Behavioral Disorders. 1997;5:205–211. Jivanjee P, Friesen BJ. Shared expertise: the role of families in professional training. Journal of Emotional and Behavioral Disorders. 1997;5:205–211.
25.
Zurück zum Zitat Kemmis S, McTaggart R. Participatory action research: communicative action and the public sphere. In: Denzin NK, Lincoln YS, eds. The Sage Handbook of Qualitative Research, Third Edition. Thousand Oaks, CA: Sage Publications; 2005:559–603. Kemmis S, McTaggart R. Participatory action research: communicative action and the public sphere. In: Denzin NK, Lincoln YS, eds. The Sage Handbook of Qualitative Research, Third Edition. Thousand Oaks, CA: Sage Publications; 2005:559–603.
26.
Zurück zum Zitat Guba EG, Lincoln YS. Paradigmatic controversies, contradictions, and emerging confluences. In: Denzin NK Lincoln YS, eds. The Sage Handbook of Qualitative Research, Third Edition. Thousand Oaks, CA: Sage Publications; 2005:191–215. Guba EG, Lincoln YS. Paradigmatic controversies, contradictions, and emerging confluences. In: Denzin NK Lincoln YS, eds. The Sage Handbook of Qualitative Research, Third Edition. Thousand Oaks, CA: Sage Publications; 2005:191–215.
27.
Zurück zum Zitat Morse JM. “Emerging from the data”: the cognitive processes of analysis in qualitative inquiry. In: Morse JM, ed. Critical Issues in Qualitative Research Methods. Thousand Oaks, CA: Sage; 1993:23–43. Morse JM. “Emerging from the data”: the cognitive processes of analysis in qualitative inquiry. In: Morse JM, ed. Critical Issues in Qualitative Research Methods. Thousand Oaks, CA: Sage; 1993:23–43.
Metadaten
Titel
Studying Family Participation in System-of-care Evaluations: Using Qualitative Methods to Examine a National Mandate in Local Contexts
verfasst von
Pauline Jivanjee, PhD
Adjoa Robinson, PhD
Publikationsdatum
01.10.2007
Verlag
Springer US
Erschienen in
The Journal of Behavioral Health Services & Research / Ausgabe 4/2007
Print ISSN: 1094-3412
Elektronische ISSN: 2168-6793
DOI
https://doi.org/10.1007/s11414-007-9051-9

Weitere Artikel der Ausgabe 4/2007

The Journal of Behavioral Health Services & Research 4/2007 Zur Ausgabe

ADHS-Medikation erhöht das kardiovaskuläre Risiko

16.05.2024 Herzinsuffizienz Nachrichten

Erwachsene, die Medikamente gegen das Aufmerksamkeitsdefizit-Hyperaktivitätssyndrom einnehmen, laufen offenbar erhöhte Gefahr, an Herzschwäche zu erkranken oder einen Schlaganfall zu erleiden. Es scheint eine Dosis-Wirkungs-Beziehung zu bestehen.

Typ-2-Diabetes und Depression folgen oft aufeinander

14.05.2024 Typ-2-Diabetes Nachrichten

Menschen mit Typ-2-Diabetes sind überdurchschnittlich gefährdet, in den nächsten Jahren auch noch eine Depression zu entwickeln – und umgekehrt. Besonders ausgeprägt ist die Wechselbeziehung laut GKV-Daten bei jüngeren Erwachsenen.

Darf man die Behandlung eines Neonazis ablehnen?

08.05.2024 Gesellschaft Nachrichten

In einer Leseranfrage in der Zeitschrift Journal of the American Academy of Dermatology möchte ein anonymer Dermatologe bzw. eine anonyme Dermatologin wissen, ob er oder sie einen Patienten behandeln muss, der eine rassistische Tätowierung trägt.

Spezielles Sportprogramm bei einer Reihe von psychischen Erkrankungen effektiv

08.05.2024 Psychotherapie Nachrichten

Sportliche Betätigung hilft nicht nur bei Depression, sondern auch in Gruppen von Patientinnen und Patienten mit unterschiedlichen psychischen Erkrankungen, wie Insomnie, Panikattacken, Agoraphobie und posttraumatischem Belastungssyndrom. Sie alle profitieren längerfristig.

Update Psychiatrie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.