nach oben

Community Mental Health Journal

Erschienen in:

01.04.2009 | Original Paper

Eligibility, Recruitment, and Retention of African Americans with Severe Mental Illness in Community Research

verfasst von: Michelle DeCoux Hampton, Mary C. White, Linda Chafetz

Erschienen in: Community Mental Health Journal | Ausgabe 2/2009

Einloggen, um Zugang zu erhalten

Abstract

Data that addresses severely mentally ill (SMI) African Americans (AAs) likelihood to participate in clinical research is limited. This study’s purpose was to determine if differences exist between races regarding eligibility, recruitment, and retention in a community-based clinical trial. The sample included 293 participants. Data sources included clinical records and interviews. Logistic regression was used for analysis. AAs were as likely to participate and to complete followup interviews as Whites. In contrast to studies about non-mentally ill AAs, AAs with SMI appeared to be as willing to consent to and to remain in clinical research studies as Whites.

Arean, P. A., Alvidrez, J., Nery, R., Estes, C., & Linkins, K. (2003). Recruitment and retention of older minorities in mental health services research. The Gerontologist, 43(1), 36–44. doi:10.1159/000067164.PubMedCrossRef

Barrio, C. (2001). Culture and schizophrenia: A cross-ethnic growth curve analysis. The Journal of Nervous and Mental Disease, 189(10), 676–684. doi:10.1097/00005053-200110000-00004.PubMedCrossRef

Barrio, C., Yamada, A. M., Atuel, H., Hough, R. L., Yee, S., Berthot, B., et al. (2003). A tri-ethnic examination of symptom expression on the positive and negative syndrome scale in schizophrenia-spectrum disorders. Schizophrenia Research, 60(2–3), 259–269. doi:10.1016/S0920-9964(02)00223-2.PubMedCrossRef

Blumenthal, D. S., Sung, J., Coates, R., Williams, J., & Liff, J. (1995). Recruitment and retention of subjects for a longitudinal cancer prevention study in an inner-city black community. Health Services Research, 30(1–2), 197–205.PubMed

Chafetz, L., White, M.C., Collins-Bride, G., Cooper, B.A., & Nickens, J. (2008). Clinical trial of wellness training: Health promotion for severely mentally ill adults. The Journal of Nervous and Mental Disease, 196(6), 475–483.PubMedCrossRef

Chafetz, L., White, M. C., Collins-Bride, G., Nickens, J., & Cooper, B. A. (2006). Predictors of physical functioning among adults with severe mental illness. Psychiatric Services (Washington, DC), 57(2), 225–231. doi:10.1176/appi.ps.57.2.225.

Chen, Y. R., Swann, A. C., & Johnson, B. A. (1998). Stability of diagnosis in bipolar disorder. The Journal of Nervous and Mental Disease, 186(1), 17–23. doi:10.1097/00005053-199801000-00004.PubMedCrossRef

Chow, J. C., Jaffee, K., & Snowden, L. (2003). Racial/ethnic disparities in the use of mental health services in poverty areas. American Journal of Public Health, 93(5), 792–797.PubMedCrossRef

Chung, H., Mahler, J. C., & Kakuma, T. (1995). Racial differences in treatment of psychiatric inpatients. Psychiatric Services (Washington, DC), 46(6), 586–591.

Connell, C. M., Shaw, B. A., Holmes, S. B., & Foster, N. L. (2001). Caregivers’ attitudes toward their family members’ participation in Alzheimer disease research: Implications for recruitment and retention. Alzheimer Disease and Associated Disorders, 15(3), 137–145. doi:10.1097/00002093-200107000-00005.PubMedCrossRef

Dilworth-Anderson, P., & Williams, S. W. (2004). Recruitment and retention strategies for longitudinal African American caregiving research: The family caregiving project. Journal of Aging and Health, 16(5), 137S–156S. doi:10.1177/0898264304269725.PubMedCrossRef

Durant, R. W., Davis, R. B., St George, D. M., Williams, I. C., Blumenthal, C., & Corbie-Smith, G. M. (2007). Participation in research studies: Factors associated with failing to meet minority recruitment goals. Annals of Epidemiology, 17(8), 634–642. doi:10.1016/j.annepidem.2007.02.003.PubMedCrossRef

Fouad, M. N., Partridge, E., Green, B. L., Kohler, C., Wynn, T., Nagy, S., et al. (2000). Minority recruitment in clinical trials: A conference at Tuskegee, researchers and the community. Annals of Epidemiology, 10(8), S35–S40. doi:10.1016/S1047-2797(00)00199-X.PubMedCrossRef

Gilliss, C. L., Lee, K. A., Gutierrez, Y., Taylor, D., Beyene, Y., Neuhaus, J., et al. (2001). Recruitment and retention of healthy minority women into community-based longitudinal research. Journal of Women’s Health & Gender-Based Medicine, 10(1), 77–85. doi:10.1089/152460901750067142.CrossRef

Gooden, K. M., Carter-Edwards, L., Hoyo, C., Akbar, J., Cleveland, R. J., Oates, V., et al. (2005). Perceptions of participation in an observational epidemiologic study of cancer among African Americans. Ethnicity & Disease, 15(1), 68–75.

Hessol, N. A., Schneider, M., Greenblatt, R. M., Bacon, M., Barranday, Y., Holman, S., et al. (2001). Retention of women enrolled in a prospective study of human immunodeficiency virus infection: Impact of race, unstable housing, and use of human immunodeficiency virus therapy. American Journal of Epidemiology, 154(6), 563–573. doi:10.1093/aje/154.6.563.PubMedCrossRef

Julion, W., Gross, D., & Barclay-McLaughlin, G. (2000). Recruiting families of color from the inner city: Insights from the recruiters. Nursing Outlook, 48(5), 230–237. doi:10.1067/mno.2000.102992.PubMedCrossRef

Kuno, E., & Rothbard, A. B. (2002). Racial disparities in antipsychotic prescription patterns for patients with schizophrenia. The American Journal of Psychiatry, 159(4), 567–572. doi:10.1176/appi.ajp.159.4.567.PubMedCrossRef

Lehman, A. F. (2000). The quality of life interview. In Handbook of psychiatric measures (pp. 138–140). Washington, DC: American Psychiatric Association.

Lehman, A. F., Dixon, L., Hoch, J. S., Deforge, B., Kernan, E., & Frank, R. (1999). Cost-effectiveness of assertive community treatment for homeless persons with severe mental illness. The British Journal of Psychiatry, 174, 346–352.PubMedCrossRef

Mak, W. W., Law, R. W., Alvidrez, J., & Perez-Stable, E. J. (2007). Gender and ethnic diversity in NIMH-funded clinical trials: Review of a decade of published research. Administration and Policy in Mental Health, 34(6), 497–503. doi:10.1007/s10488-007-0133-z.PubMedCrossRef

McAlpine, D. D., & Mechanic, D. (2000). Utilization of specialty mental health care among persons with severe mental illness: The roles of demographics, need, insurance, and risk. Health Services Research, 35(1–2), 277–292.PubMed

McLellan, A. T. (2000). Addiction severity index (ASI). In Handbook of psychiatric measures (pp. 472–474). Washington, DC: American Psychiatric Association.

Menendez, E., White, M. C., & Tulsky, J. P. (2001). Locating study subjects: Predictors and successful search strategies with inmates released from a US County jail. Controlled Clinical Trials, 22, 238–247.PubMedCrossRef

Montross, L. P., Barrio, C., Yamada, A. M., Lindamer, L., Golshan, S., Garcia, P., et al. (2005). Tri-ethnic variations of co-morbid substance and alcohol use disorders in schizophrenia. Schizophrenia Research, 79(2–3), 297–305. doi:10.1016/j.schres.2005.04.014.PubMedCrossRef

National Institutes of Health. (NIH) (October 1, 2001). NIH policy and guidelines on the inclusion of women and minorities as subjects in clinical research. http://grants.nih.gov/grants/funding/women_min/guidelines_amended_10_2001.htm. Retrieved 5 Nov 2007.

Neighbors, H. W., Trierweiler, S. J., Ford, B. C., & Muroff, J. R. (2003). Racial differences in DSM diagnosis using a semi-structured instrument: The importance of clinical judgment in the diagnosis of African Americans. Journal of Health and Social Behavior, 44(3), 237–256. doi:10.2307/1519777.PubMedCrossRef

Riedel, M., Strassnig, M., Muller, N., Zwack, P., & Moller, H. J. (2005). How representative of everyday clinical populations are schizophrenia patients enrolled in clinical trials? European Archives of Psychiatry and Clinical Neuroscience, 255(2), 143–148. doi:10.1007/s00406-004-0547-5.PubMedCrossRef

Robinson, D., Woerner, M. G., Pollack, S., & Lerner, G. (1996). Subject selection biases in clinical trials: Data from a multicenter schizophrenia treatment study. Journal of Clinical Psychopharmacology, 16(2), 170–176. doi:10.1097/00004714-199604000-00009.PubMedCrossRef

Sengupta, S., Strauss, R. P., DeVellis, R., Quinn, S. C., DeVellis, B., & Ware, W. B. (2000). Factors affecting African American participation in aids research. Journal of acquired immune deficiency syndromes, 24(3), 275–284.PubMed

Snowden, L. R., Hu, T. W., & Jerrell, J. M. (1995). Emergency care avoidance: Ethnic matching and participation in minority-serving programs. Community Mental Health Journal, 31(5), 463–473. doi:10.1007/BF02188616.PubMedCrossRef

Spruill, I. (2004). Project sugar: A recruitment model for successful African American participation in health research. Journal of National Black Nurses’ Association, 15(2), 48–53.PubMed

Sullivan, G., & Spritzer, K. L. (1997). Consumer satisfaction with CMHC services. Community Mental Health Journal, 33(2), 123–131. doi:10.1023/A:1022471300466.PubMedCrossRef

Thompson, E. E., Neighbors, H. W., Munday, C., & Jackson, J. S. (1996). Recruitment and retention of African American patients for clinical research: An exploration of response rates in an urban psychiatric hospital. Journal of Consulting and Clinical Psychology, 64(5), 861–867. doi:10.1037/0022-006X.64.5.861.PubMedCrossRef

Thompson, E. E., Neighbors, H. W., Munday, C., & Trierweiler, S. (2003). Length of stay, referral to aftercare, and rehospitalization among psychiatric inpatients. Psychiatric Services (Washington, DC), 54(9), 1271–1276. doi:10.1176/appi.ps.54.9.1271.

Trierweiler, S. J., Neighbors, H. W., Munday, C., Thompson, E. E., Binion, V. J., & Gomez, J. P. (2000). Clinician attributions associated with the diagnosis of schizophrenia in African American and non-African American patients. Journal of Consulting and Clinical Psychology, 68(1), 171–175. doi:10.1037/0022-006X.68.1.171.PubMedCrossRef

Whaley, A. L. (2004). Ethnicity/race, paranoia, and hospitalization for mental health problems among men. American Journal of Public Health, 94(1), 78–81.PubMedCrossRef

Zhang, A. Y., & Snowden, L. R. (1999). Ethnic characteristics of mental disorders in five US Communities. Cultural Diversity & Ethnic Minority Psychology, 5(2), 134–146. doi:10.1037/1099-9809.5.2.134.CrossRef

Titel: Eligibility, Recruitment, and Retention of African Americans with Severe Mental Illness in Community Research
verfasst von: Michelle DeCoux Hampton
Mary C. White
Linda Chafetz
Publikationsdatum: 01.04.2009
Verlag: Springer US
Erschienen in: Community Mental Health Journal / Ausgabe 2/2009
Print ISSN: 0010-3853
Elektronische ISSN: 1573-2789
DOI: https://doi.org/10.1007/s10597-008-9162-7

Neu im Fachgebiet Psychiatrie

ADHS-Medikation erhöht das kardiovaskuläre Risiko

16.05.2024 Herzinsuffizienz Nachrichten

Erwachsene, die Medikamente gegen das Aufmerksamkeitsdefizit-Hyperaktivitätssyndrom einnehmen, laufen offenbar erhöhte Gefahr, an Herzschwäche zu erkranken oder einen Schlaganfall zu erleiden. Es scheint eine Dosis-Wirkungs-Beziehung zu bestehen.

Typ-2-Diabetes und Depression folgen oft aufeinander

14.05.2024 Typ-2-Diabetes Nachrichten

Menschen mit Typ-2-Diabetes sind überdurchschnittlich gefährdet, in den nächsten Jahren auch noch eine Depression zu entwickeln – und umgekehrt. Besonders ausgeprägt ist die Wechselbeziehung laut GKV-Daten bei jüngeren Erwachsenen.

Darf man die Behandlung eines Neonazis ablehnen?

08.05.2024 Gesellschaft Nachrichten

In einer Leseranfrage in der Zeitschrift Journal of the American Academy of Dermatology möchte ein anonymer Dermatologe bzw. eine anonyme Dermatologin wissen, ob er oder sie einen Patienten behandeln muss, der eine rassistische Tätowierung trägt.

Spezielles Sportprogramm bei einer Reihe von psychischen Erkrankungen effektiv

08.05.2024 Psychotherapie Nachrichten

Sportliche Betätigung hilft nicht nur bei Depression, sondern auch in Gruppen von Patientinnen und Patienten mit unterschiedlichen psychischen Erkrankungen, wie Insomnie, Panikattacken, Agoraphobie und posttraumatischem Belastungssyndrom. Sie alle profitieren längerfristig.

Update Psychiatrie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.

Newsletter bestellen

Die Highlights vom Kongress des American College of Cardiology 2024

Springer Medizin

Eligibility, Recruitment, and Retention of African Americans with Severe Mental Illness in Community Research

Abstract

Neu im Fachgebiet Psychiatrie

ADHS-Medikation erhöht das kardiovaskuläre Risiko

Typ-2-Diabetes und Depression folgen oft aufeinander

Darf man die Behandlung eines Neonazis ablehnen?

Spezielles Sportprogramm bei einer Reihe von psychischen Erkrankungen effektiv

Update Psychiatrie

Die Highlights vom Kongress des American College of Cardiology 2024

Springer Medizin

Abstract

Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten

Weitere Artikel der Ausgabe 2/2009

Needs and Preferences for Receiving Mental Health Information in an African American Focus Group Sample

The Relationships Among Perceived Criticism, Family Contact, and Consumer Clinical and Psychosocial Functioning for African-American Consumers with Schizophrenia

Psychoeducation to Address Stigma in Black Adults Referred for Mental Health Treatment: A Randomized Pilot Study

Mistrust of Outreach Workers and Lack of Confidence in Available Services Among Individuals who are Chronically Street Homeless

Diagnostic, Symptom, and Functional Assessments of Hispanic Outpatients in Community Mental Health Practice

Examining Racial/Ethnic Minority Treatment Experiences with Specialty Behavioral Health Service Providers

Neu im Fachgebiet Psychiatrie

ADHS-Medikation erhöht das kardiovaskuläre Risiko

Typ-2-Diabetes und Depression folgen oft aufeinander

Darf man die Behandlung eines Neonazis ablehnen?

Spezielles Sportprogramm bei einer Reihe von psychischen Erkrankungen effektiv

Update Psychiatrie