nach oben

Community Mental Health Journal

Erschienen in:

10.11.2017 | Original Paper

Families in Assertive Community Treatment (ACT) Teams in Norway: A Cross-Sectional Study on Relatives’ Experiences of Involvement and Alienation

verfasst von: B. M. Weimand, P. Israel, M. Ewertzon

Erschienen in: Community Mental Health Journal | Ausgabe 5/2018

Einloggen, um Zugang zu erhalten

Abstract

International research shows that relatives of people with mental illness are rarely involved by mental health services. Assertive Community Treatment (ACT) has been recently implemented in Norway. The experience of relatives of ACT users is largely unknown. The aim of this study was to explore relatives’ experience with ACT-teams in Norway. Data were collected using the family involvement and alienation questionnaire, consisting of experiences of approach, and alienation from the provision of professional care. 38 Relatives participated in this study. A majority experienced a positive approach (openness, confirmation, and cooperation) from the ACT teams, which also was considered better compared to previous services. They considered openness and cooperation as essential aspects from the professionals. Almost half did not feel alienated (powerlessness and social isolation). Higher level of being approached positively was significantly associated with lower level of feeling alienated. The knowledge of what constituted relatives’ positive experiences with the ACT teams should be transferred into practice regarding how to form a positive alliance with relatives.

The term approach: how the health professionals meet the relatives, in relatives’ experience.

The term encounter: the relatives’ experiences with their contact with mental health professionals.

Aakerholt, A. (2010). ACT-håndbok [Manual of ACT treatment]. Ottestad: Kompetansesenter rus – region øst (KoRus-Øst).

Altman, D. (1991). Practical statistics for medical research. London: Chapman and Hall.

Ben-Porath, D. D., Peterson, G., & Piskur, C. (2004). Effectiveness of and consumer satisfaction with an assertive community treatment program for the severely mentally ill: A 3-year follow-up. Psychological Services, 1(1), 40–47.CrossRef

Benzein, E. G., Hagberg, M., & Saveman, B. I. (2008). ‘Being appropriately unusual’: A challenge for nurses in health-promoting conversations with families. Nursing Inquiry, 15(2), 106–115.CrossRefPubMed

Bird, V., Premkumar, P., Kendall, T., Whittington, C., Mitchell, J., & Kuipers, E. (2010). Early intervention services, cognitive–behavioural therapy and family intervention in early psychosis: Systematic review. The British Journal of Psychiatry: The Journal of Mental Science, 197(5), 350–356.CrossRef

Brislin, R. W. (1970). Back-translation for cross-cultural research. Journal of Cross-Cultural Psychology, 1, 185–216.CrossRef

Chadda, R. K., Singh, T. B., & Ganguly, K. K. (2007). Caregiver burden and coping. Social Psychiatry and Psychiatric Epidemiology, 42(11), 923–930.CrossRefPubMed

Clausen, H., Landheim, A., Heiervang, K. S., Stuen, H. K., Killaspy, H., Šaltytė, J. B., & Ruud, T. (2015). Associations between quality of life and functioning in an assertive community population. Psychiatric Services, 66(11), 1249–1252.CrossRefPubMed

Dieterich, M., Irving, C. B., Park, B., & Marshall, M. (2010). Intensive case management for severe mental illness. The Cochrane Library. https://doi.org/10.1002/14651858.CD007906.pub2.CrossRef

Doane, G. H., & Varcoe, C. (2005). Family nursing as relational inquiry. Developing health-promoting practice. Philadelphia: Lippincott Williams and Wilkins.

Doornbos, M. M. (2002). Family caregivers and the mental healthcare system: Reality and dreams. Archives of Psychiatric Nursing, 16(1), 39–46.CrossRefPubMed

Engmark, L., Alfstadsæther, B., & Holte, A. (2006). Diagnose schizofreni: Foreldres erfaring [Diagnosis schizophrenia: Parents’ experiences]. (Nasjonalt folkehelseinstitutt, 6:1). Oslo: Nasjonalt folkehelseinstitutt, 6(1).

Ewertzon, M., Andershed, B., Svensson, E., & Lützén, K. (2011). Family member’s expectation of the psychiatric healthcare professionals’ approach towards them. Journal of Psychiatric and Mental Health Nursing, 18(2), 146–157.CrossRefPubMed

Ewertzon, M., Cronqvist, A., Lützén, K., & Andershed, B. (2012). A lonely life journey bordered with struggle: Being a sibling of an individual with psychosis. Issues in Mental Health Nursing, 33(3), 157–164.CrossRefPubMed

Ewertzon, M., Lützén, K., Svensson, E., & Andershed, B. (2008). Developing the concept of family involvement and the alienation questionnaire in the context of psychiatric care. International Journal of Mental Health Nursing, 17(6), 439–449.CrossRefPubMed

Ewertzon, M., Lützén, K., Svensson, E., & Andershed, B. (2010). Family members’ involvement in psychiatric care: Experiences of the health care professionals’ approach and feeling of alienation. Journal of Psychiatric and Mental Health Nursing, 17(5), 422–432.CrossRefPubMed

Goodwin, V., & Happell, B. (2006). Conflicting agendas between consumers and carers: The perspectives of carers and nurses. International Journal of Mental Health Nursing, 15(2), 135–143.CrossRefPubMed

Hadryś, T., Adamowski, T., & Kiejna, A. (2011). Mental disorder in Polish families: Is diagnosis a predictor of caregiver’s burden? Social Psychiatry and Psychiatric Epidemiology, 46(5), 363–372.CrossRefPubMed

Heiervang, K., Westerlund, H., Bjørgen, D., Lofthus, A.-M., & Ruud, T. (2014). Bruker spør bruker om ACT. En undersøkelse om brukeres erfaringer med tilbudet fra ACT-team [Users asking users about ACT. A study of users’ experiences with the ACT-teams]. Oslo: Norwegian National Advisory Unit on Concurrent Substance Abuse and Mental Health Disorders and Akershus University Hospital.

Helsedirektoratet. (2008). Pårørende - en ressurs. Veileder om samarbeid med pårørende innen psykiske helsetjenester IS-1512. Oslo: Helsedirektoratet [Norwegian Directorate of Health. (2008). Relatives: A resource. Guidelines on collaboration with relatives in mental health services. IS-1512. Oslo: Norwegian Health Directorate].

Huguelet, P., Koellner, V., Boulguy, S., Nagalingum, K., Amani, S., Borras, L., & Perroud, N. (2012). Effects of an assertive community program in patients with severe mental disorders and impact on their families. Psychiatry and Clinical Neurosciences, 66(4), 328–336.CrossRefPubMed

IBM Corp. (2012). IBM SPSS statistics for Windows, version 21.0. Armonk, NY: IBM Corp.

Jeppesen, P., Petersen, L., Thorup, A., Abel, M.-B., Øehlensclæger, T.Ø, Christensen, G. K., et al. (2005). Integrated treatment of first-psychosis: Effect on treatment on family-burden. British Journal of Psychiatry, 187(Suppl. 48), 85–90.CrossRef

Johansson, A., Andershed, B., & Anderzen-Carlsson, A. (2014). Conceptions of mental health care—From the perspective of parents’ of adult children suffering from mental illness. Scandinavian Journal of Caring Sciences, 28(3), 496–504.CrossRefPubMed

Johansson, A., Ewertzon, M., Andershed, B., Anderzen-Carlsson, A., Nasic, S., & Ahlin, A. (2015). Health-related quality of life—From the perspective of mothers and fathers of adult children suffering from long-term mental disorders. Archives of Psychiatric Nursing, 29(3), 180–185.CrossRefPubMed

Lakeman, R. (2008). Family and carer participation in mental health care: Perspectives of consumers and carers in hospital and home care settings. Journal of Psychiatric and Mental Health Nursing, 15(3), 203–211.CrossRefPubMed

Landeweer, E., Molewijk, B., Hem, M. H., & Pedersen, R. (2017). Worlds apart? A scoping review addressing different stakeholder perspectives on barriers to family involvement in the care for persons with severe mental illness. BMC Health Services Research, 17, 349–358. https://doi.org/10.1186/s12913-017-2213-4.CrossRefPubMedPubMedCentral

Landheim, A., Ruud, T., Odden, S., Clausen, H., Heiervang, K. S., & Stuen, H. K. (2014). Utprøving av ACT-team i Norge-Hva viser resultatene [Testing of the ACT team in Norway. What do the results show ? Evaluation of the ACT team]. Oslo: Norwegian National Advisory Unit on Concurrent Substance Abuse and Mental Health Disorders and Akershus University Hospital.

Lefley, H. P. (2009). Family psychoeducation for serious mental illness. New York: Oxford University Press.CrossRef

Lowyck, B., De Hert, M., Peeters, E., Wampers, M., Gilis, P., & Peuskens, J. (2004). A study of the family burden of 150 family members of schizophrenic patients. European Psychiatry, 19(7), 395–401.CrossRefPubMed

Macleod, S. H., Elliot, L., & Brown, R. (2011). What support can community mental health nurses deliver to carers of people diagnosed with schizophrenia? Findings from a review of the literature. International Journal of Nursing Studies, 48(1), 100–120.CrossRefPubMed

Magliano, L., Fadden, G., Madianos, M., Caldas de Ameira, J., Held, T., Guarneri, M., et al. (1998). Burden on families of patients with schizophrenia: Results of the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 33(9), 405–412.CrossRefPubMed

Marshall, M., & Lockwood, A. (2000). Assertive community treatment for people with severe mental disorders. Cochrane Database of Systematic Reviews, 2, CD001089.

Muhlbauer, S. A. (2002). Navigating the storm of illness: Phases in the family’s journey. Qualitative Health Research, 12(8), 1076–1092.CrossRefPubMed

Nicholls, E., & Pernice, R. (2009). Perceptions of the relationship between mental health professionals and family caregivers: Has there been any change? Issues in Mental Health Nursing, 30(8), 474–481.CrossRefPubMed

Östman, M., Hansson, L., & Andersson, K. (2000). Family burden, participation in care and mental health—An 11 years comparison of the situation of relatives to compulsorily and voluntarily admitted patients. International Journal of Social Psychiatry, 46(3), 191–200.CrossRefPubMed

Pharoah, F., Mari, J., Rathbone, J., & Wong, W. (2010). Family intervention for schizophrenia. Cochrane Database for Systematic Reviews. https://doi.org/10.1002/14651858.CD000088.CrossRef

Phillips, S. D., Burns, B. J., Edgar, E. R., Mueser, K. T., Linkins, K. W., Rosenheck, R. A., Drake, R. E., & McDonel Herr, E. C. (2001). Moving assertive community treatment into standard practice. Psychiatric Services, 52(6), 771–779.CrossRefPubMed

Rapaport, J., Bellringer, S., Pinfold, V., & Huxley, P. (2006). Carers and confidentiality in mental health care: Considering the role of the carers’ assessment: A study of service users’, carers’ and practitioners’ views. Health and Social Care in the Community, 14(4), 357–365.CrossRefPubMed

Roick, C., Heider, D., Bebbington, P. E., Angermeyer, M. C., Azorin, J. M., Brugha, T. S., et al. (2007). Burden on caregivers of people with schizophrenia: Comparison between Germany and Britain. The British Journal of Psychiatry, 190(4), 333–338.CrossRefPubMed

Rose, L. E., Mallinson, R. K., & Walton-Moss, B. (2004). Barriers to family care in psychiatric settings. Journal of Nursing Scholarship, 36(1), 39–47.CrossRefPubMed

Ruud, T., Birkeland, B., Faugli, A., Hagen, K. A., Hellman, A., Hilsen, M., et al. (2015). Barn som pårørende. Resultater fra en multisenterstudie [Children as relatives. Results from a multi-centre study]. Lørenskog: Akershus universitetssykehus HF.

Saveman, B. I. (2010). Family nursing research for practice: The Swedish perspective. Journal of Family Nursing, 16(1), 26–44.CrossRefPubMed

Schröder, A., Larsson, B. W., & Ahlström, G. (2007). Next of kin’s conceptions of the quality of care in the psychiatric setting: A phenomenographic study. International Journal of Mental Health Nursing, 16(5), 307–317.CrossRefPubMed

Schulze, B., & Rössler, W. (2005). Caregiver burden in mental illness: Review of measurement, findings and interventions in 2004–2005. Current Opinion in Psychiatry, 18(6), 684–691.CrossRefPubMed

Schwartz, C., & Gidron, R. (2002). Parents of adult children living at home: Rewards of caregiving. Health and Social Work, 27(2), 145–154.CrossRefPubMed

Siegel, S., & Castellan Jr., N. J. (1988). Nonparametric statistics for the behavioural sciences. Singapore: McGraw-Hill Book Co.

Sono, T., Oshima, I., Ito, J., Nishio, M., Suzuki, Y., Horiuchi, K., Niekawa, N., Ogawa, M., Setoya, Y., & Tsukada, K. (2012). Family support in assertive community treatment: An analysis of client outcomes. Community Mental Health Journal, 48(4), 463–470.CrossRefPubMed

Svensson, E. (2001a). Guidelines to statistical evaluation of data from rating scales and questionnaires. Journal of Rehabilitation Medicine, 33(1), 47–48.CrossRefPubMed

Svensson, E. (2001b). Construction of a single global scale for multi-item assessments of the same variable. Statistics in Medicine, 20(24), 3831–3846.CrossRefPubMed

Thara, R., Padmavati, R., Kumar, S., & Srinivasan, L. (1998). Burden assessment schedule. Instrument to assess burden on caregivers of chronic mentally ill. Indian Journal of Psychiatry, 40(1), 21–29.PubMedPubMedCentral

Vandvik, P. O., & Eiring, Ø. (2011). Foretaksprosjektet: mot kunnskapsbasert praksis i spesialisthelsetjenesten [The corporate project: Towards evidence-based practice in the specialist health services]. (Rapport fra Kunnskapssenteret nr 16-2011). Oslo: Nasjonalt kunnskapssenter for helsetjenesten.

Weimand, B., Israel, P., & Ruud, T. (2014). Pårørende og ACT-team. En undersøkelse om pårørendes erfaringer med ACT-team, og ACT-teamlederes erfaringer med samarbeid med pårørende [Relatives and ACT-team. A study of relatives’ experiences with ACT-team, and team leaders’ experiences with collaboration with relatives]. Lørenskog: Akershus University Hospital and LPP.

Weimand, B. M. (2012). Experiences and nursing support of relatives of persons with severe mental illness faculty of social and life sciences. Doctoral Dissertation, Karlstad University Studies, Department of Nursing.

Weimand, B. M., Hedelin, B., Hall-Lord, M. L., & Sällström, C. (2011). “Left alone with straining but inescapable responsibilities”: Relatives’ experiences with mental health services.. Issues in Mental Health Nursing, 32(11), 703–710.CrossRefPubMed

Weimand, B. M., Hedelin, B., Sällström, C., & Hall-Lord, M. L. (2010). Burden and health in relatives of persons with severe mental illness: A Norwegian cross-sectional study. Issues in Mental Health Nursing, 31(12), 804–815.CrossRefPubMed

Weimand, B. M., Sällström, C., Hall-Lord, M., & Hedelin, B. (2013). Nurses’ dilemmas concerning support of relatives in mental health care. Nursing Ethics, 20(3), 285–299.CrossRefPubMed

Williams, C., Firn, M., Wharne, S., & Macpherson, R. (2011). Assertive outreach in mental healthcare: Current perspectives. West Sussex: Wiley-Blackwell.

Yesufu-Udechuku, A., Harrison, B., Mayo-Wilson, E., Young, N., Woodhams, P., Shiers, D., Kuipers, E., & Kendall, T. (2015). Interventions to improve the experience of caring for people with severe mental illness: Systematic review and meta-analysis. The British Journal of Psychiatry, 206, 268–274.CrossRefPubMed

Titel: Families in Assertive Community Treatment (ACT) Teams in Norway: A Cross-Sectional Study on Relatives’ Experiences of Involvement and Alienation
verfasst von: B. M. Weimand
P. Israel
M. Ewertzon
Publikationsdatum: 10.11.2017
Verlag: Springer US
Erschienen in: Community Mental Health Journal / Ausgabe 5/2018
Print ISSN: 0010-3853
Elektronische ISSN: 1573-2789
DOI: https://doi.org/10.1007/s10597-017-0207-7

Neu im Fachgebiet Psychiatrie

Demenzkranke durch Antipsychotika vielfach gefährdet

23.04.2024 Demenz Nachrichten

Wenn Demenzkranke aufgrund von Symptomen wie Agitation oder Aggressivität mit Antipsychotika behandelt werden, sind damit offenbar noch mehr Risiken verbunden als bislang angenommen.

Weniger postpartale Depressionen nach Esketamin-Einmalgabe

23.04.2024 Depression antepartal oder postpartal Nachrichten

Bislang gibt es kein Medikament zur Prävention von Wochenbettdepressionen. Das Injektionsanästhetikum Esketamin könnte womöglich diese Lücke füllen.

„Psychotherapie ist auch bei sehr alten Menschen hochwirksam!“

22.04.2024 DGIM 2024 Kongressbericht

Die Kombination aus Medikamenten und Psychotherapie gilt als effektivster Ansatz bei Depressionen. Das ist bei betagten Menschen nicht anders, trotz Besonderheiten.

Auf diese Krankheiten bei Geflüchteten sollten Sie vorbereitet sein

22.04.2024 DGIM 2024 Nachrichten

Um Menschen nach der Flucht aus einem Krisengebiet bestmöglich medizinisch betreuen zu können, ist es gut zu wissen, welche Erkrankungen im jeweiligen Herkunftsland häufig sind. Dabei hilft eine Internetseite der CDC (Centers for Disease Control and Prevention).

Update Psychiatrie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.

Newsletter bestellen

Springer Medizin

Abstract

Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten

Weitere Artikel der Ausgabe 5/2018

Validation of the Community Integration Scale for Adults with Psychiatric Disorders (CIS-APP-34)

Comparing Perceived Adequacy of Help Received Among Different Classes of Individuals with Severe Mental Disorders at Five-Year Follow-Up: A Longitudinal Cluster Analysis

Predictors of Client Satisfaction with Outpatient Mental Health Clinic Services in Italy and New York

Administrative Stressors and Islamic Coping Strategies Among Muslim Primary Principals in Malaysia: A Mixed Method Study