Findings
Introduction
Hypothesis
Methods used
Overview in brief
Subjects and settings
Measures used
Additional data
Procedure
Methods and statistical analysis
Results
Feasibility
Means, standard deviations and response range of SMILY©-Illness andother questionnaires
Questionnaire | Child report | Parent report |
---|---|---|
SMILY©- illness total | 69 ± 17 (40–100) (17) | 64 ± 16 (40–100) (15) |
Effect on self | 68 ± 19 (40–100) (17) | 64 ± 16 (40–100) (15) |
Limitations | 67 ± 17 (40–100) (17) | 60 ± 17 (40–100) (15) |
Social | 81 ± 21 (35–100) (17) | 77 ± 21 (40–100) (14) |
Burden of illness | 64 ± 20 (31–100) (17) | 61 ± 18 (30–100) (15) |
Global HRQOL | 80 ± 22 (40–100) (17) | 70 ± 20 (40–100) (14) |
Global illness status | 71 ± 25 (40–100) (17) | 70 ± 22 (40–100) (35) |
Language SMILY © was adapted into | Modified by professional translation company andcollaborators who made more edits | Number of reviewers for accuracy and cultural suitabilityand have finally approved the translation | |
---|---|---|---|
1 | Afrikans | Prof trans (1 Peds Rheum) | 1Prof trans (1 Peds Rheum) |
2 | Arabic-Egypt | Prof trans, 3 Peds Rheum | 3 (3 Peds Rheum) |
3 | Arabic-Saudi Arabia | Prof trans, 1 Peds Rheum | 1 (1 Peds Rheum) |
4 | Czech | Prof trans, 1 Peds Rheum | 2 (2 Peds Rheum.) |
5 | Danish | Prof trans, 2 Peds Rheum | 2 (2 Peds Rheum.) |
6 | Dutch | Prof trans | 1 (1 Peds Rheum) |
7 | English-United Kingdom | Adaptation by Peds Nephrologist | 1 (Peds Nephrologist) |
8 | French | Prof trans, 1 Peds Rheum | 2 (2 Peds Rheum) |
9 | German-Austria | Prof trans | 2 (2 Peds Rheum) |
10 | German-Germany | Prof trans 1 Peds Rheum | 2 (2 Peds Rheum) |
11 | German-Swiss | Prof Trans 1 Peds Rheum | 2 (2 Peds Rheum) |
12 | Greek | Prof trans, 1 Peds Rheum | 2 (2 Peds Rheum) |
13 | Hebrew | Prof trans | 1 (Peds Rheum) |
14 | Hindi | Prof trans, | 1 (1 Peds Rheum) |
15 | Hungarian | Prof trans, | 1 (1 Peds Rheum) |
16 | Italian | Prof trans, 1 Peds Rheum | 8 (8 Peds Rheum) |
17 | Japanese | Prof trans, | 2 (2 Peds Rheum) |
18 | Portuguese | Prof trans 6 Peds Rheum | 10 (10 Peds Rheum) |
19 | Romanian | Prof trans, 1 peds Rheum | 1 (1 Peds Rheum) |
20 | Serbia | Prof trans, 1 Peds Rheum | 1 (1 Peds Rheum) |
21 | Slovenia | Prof trans, | 1 (1 Peds Rheum) |
22 | Spanish-Argentina | Prof trans, 1 Peds Rheum | 2 (1 Peds Rheum)* |
23 | Spanish-Mexican | Prof trans, 2 Peds Rheum | 2 (2 Peds Rheum) |
24 | Spanish-Spain | Prof trans, 2 Peds Rheum | 2 (2 Peds Rheum) |
25 | Spanish –US& Puertorico | Prof trans | 3 (3 Peds Rheum)* |
26 | Spanish-Venezuela | Prof trans, 2 Peds Rheum | 2 (1 Adult Rheum, 1 Peds Rheum) |
27 | Turkish | Prof trans, 1 Peds Rheum | 3 (3 Peds Rheum) |
28 | Xhosa | Prof Trans, 1 Peds Rheum nurse | 2 (1 Prof trans, 1 Peds Rheum nurse) |