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Pediatric Nephrology

Erschienen in:

14.06.2021 | Original Article

Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale

verfasst von: Abbie Bauer, Eliza Blanchette, Cortney Taylor Zimmerman, Aaron Wightman

Erschienen in: Pediatric Nephrology | Ausgabe 12/2021

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Abstract

Background

Caring for a child with kidney failure on dialysis profoundly impacts caregivers’ lives, yet the depth of this burden is not well understood. The Paediatric Renal Caregiver Burden Scale (PR-CBS) is a recently validated instrument used to measure caregiver burden in this population.

Methods

We performed a cross-sectional study of caregiver burden for caregivers of children with kidney failure receiving dialysis at three pediatric centers. Caregivers completed the PR-CBS instrument as part of a larger qualitative study of caregiver experience. We performed descriptive statistics. T-tests were used to examine differences between dialysis modality and within key demographics. Multivariate linear regression was utilized to assess associations between significant factors and total score.

Results

Ten caregivers of children receiving peritoneal dialysis (PD) and 21 receiving hemodialysis (HD) participated. Total burden score and mean score for every domain was higher for caregivers of children on HD compared to PD. PR-CBS score was significantly associated with younger child age and married status in caregivers. In adjusted multivariate analysis, dialysis modality and married marital status were significantly associated with PR-CBS score.

Conclusions

This study found that dialysis caregivers experience significant caregiver burden and demonstrates the utility of the PR-CBS in an American population. We found higher burdens among HD caregivers, younger children, and married caregivers. While these findings must be replicated on a larger scale, they suggest possible areas for targeted interventions to improve the quality of life of children with kidney failure and their families.

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Titel: Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale
verfasst von: Abbie Bauer
Eliza Blanchette
Cortney Taylor Zimmerman
Aaron Wightman
Publikationsdatum: 14.06.2021
Verlag: Springer Berlin Heidelberg
Erschienen in: Pediatric Nephrology / Ausgabe 12/2021
Print ISSN: 0931-041X
Elektronische ISSN: 1432-198X
DOI: https://doi.org/10.1007/s00467-021-05149-x

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Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale

Abstract

Background

Methods

Results

Conclusions

Graphical abstract

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Abstract

Background

Methods

Results

Conclusions

Graphical abstract

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