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Child's Nervous System

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24.02.2020 | Focus Session

Quality of life after selective dorsal rhizotomy: an assessment of family-reported outcomes using the CPQoL questionnaire

verfasst von: James M. W. Robins, Abbey Boyle, Kate McCune, Rajib Lodh, John R. Goodden

Erschienen in: Child's Nervous System | Ausgabe 9/2020

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Abstract

Background

Selective dorsal rhizotomy (SDR) is widely accepted as an effective procedure for management of lower limb spasticity in children with cerebral palsy. However, effects of the procedure on quality of life are not widely reported and less so using a structured and validated quality of life tool such as Cerebral Palsy Quality of Life Questionnaire (CPQoL). Here, we present complete data for CPQoL outcomes for SDR patients operated in a single institution at 2 years follow-up.

Methods

Patients were operated over a 5-year period by the same surgeon using the same technique in a single institution. CPQoL questionnaires were completed by patients and families pre-operatively and at 6 months, 1 year and 2 years post-operatively. Data was collected prospectively.

Results

A total of 78 patients (58 male, 20 female), age range 2.6–13.8 years (median 6.33) were included whom underwent SDR between October 2012–November 2017. All had complete follow-up up to 2 years post-procedure (most recent November 2019). Four patients were excluded due to incomplete follow-up data. Statistically significant improvement was seen across five out of seven CPQoL domains and this was sustained to 2 years post-SDR.

Conclusions

We demonstrate using a validated Quality of Life Tool that SDR has a beneficial effect on the quality of life for patients with cerebral palsy at this length of follow-up.

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Titel: Quality of life after selective dorsal rhizotomy: an assessment of family-reported outcomes using the CPQoL questionnaire
verfasst von: James M. W. Robins
Abbey Boyle
Kate McCune
Rajib Lodh
John R. Goodden
Publikationsdatum: 24.02.2020
Verlag: Springer Berlin Heidelberg
Erschienen in: Child's Nervous System / Ausgabe 9/2020
Print ISSN: 0256-7040
Elektronische ISSN: 1433-0350
DOI: https://doi.org/10.1007/s00381-020-04546-1

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Abstract

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