Skip to main content
Erschienen in: Community Mental Health Journal 3/2010

01.06.2010 | Original Paper

Barriers to and Supports of Family Participation in a Rural System of Care for Children with Serious Emotional Problems

verfasst von: Michael D. Pullmann, Sarah VanHooser, Cheri Hoffman, Craig Anne Heflinger

Erschienen in: Community Mental Health Journal | Ausgabe 3/2010

Einloggen, um Zugang zu erhalten

Abstract

Researchers have not adequately addressed the unique characteristics of rural areas that influence the accessibility of services for families with children who have serious emotional problems. Understanding rurality is particularly important to “systems of care” grant sites because these grants are intended to restructure mental health service delivery by building upon the strengths of a community and addressing the community’s needs. This qualitative study examines the barriers to and supports for participation in services within a rural system of care site through the reported experiences of eight caregivers and nine staff. Findings indicate families face many challenges related to rurality, including stigma, transportation, isolation, poverty, and service availability. In addition to these challenges, however, participants reported many meaningful supports such as the religious community and the close-knit community of families and service providers. We present implications for planning, implementing, and evaluating systems of care in rural areas.
Literatur
Zurück zum Zitat Anderson, R. L., & Gittler, J. (2005). Unmet need for community-based mental health and substance use treatment among rural adolescents. Community Mental Health Journal, 41(1), 35–49.CrossRefPubMed Anderson, R. L., & Gittler, J. (2005). Unmet need for community-based mental health and substance use treatment among rural adolescents. Community Mental Health Journal, 41(1), 35–49.CrossRefPubMed
Zurück zum Zitat Angermeyer, M. C., Schulze, B., & Dietrich, S. (2003). Courtesy stigma: A focus group study of relatives of Schizophrenic patients. Social Psychiatry and Psychiatric Epidemiology, 38, 593–602.CrossRefPubMed Angermeyer, M. C., Schulze, B., & Dietrich, S. (2003). Courtesy stigma: A focus group study of relatives of Schizophrenic patients. Social Psychiatry and Psychiatric Epidemiology, 38, 593–602.CrossRefPubMed
Zurück zum Zitat Arcury, T. A., Gesler, W. M., Preisser, J. S., Sherman, J., Spencer, J., & Perin, J. (2005). The effects of geography and spatial behavior on health care utilization among the residents of a rural region. Health Services Research, 40(1), 135–155.CrossRefPubMed Arcury, T. A., Gesler, W. M., Preisser, J. S., Sherman, J., Spencer, J., & Perin, J. (2005). The effects of geography and spatial behavior on health care utilization among the residents of a rural region. Health Services Research, 40(1), 135–155.CrossRefPubMed
Zurück zum Zitat Babbie, E. (2005). The basics of social research (3rd ed.). Belmont, CA: Thomson Wadsworth. Babbie, E. (2005). The basics of social research (3rd ed.). Belmont, CA: Thomson Wadsworth.
Zurück zum Zitat Birenbaum, A. (1992). Courtesy stigma revisited. Mental Retardation, 30(5), 265–268.PubMed Birenbaum, A. (1992). Courtesy stigma revisited. Mental Retardation, 30(5), 265–268.PubMed
Zurück zum Zitat Boydell, K. M., Pong, R., Volpe, T., Tilleczek, K., Wilson, E., & Lemiex, S. (2006). Family perspectives on pathways to mental health care for children and youth in rural communities. The Journal of Rural Health, 22(2), 182–188.CrossRefPubMed Boydell, K. M., Pong, R., Volpe, T., Tilleczek, K., Wilson, E., & Lemiex, S. (2006). Family perspectives on pathways to mental health care for children and youth in rural communities. The Journal of Rural Health, 22(2), 182–188.CrossRefPubMed
Zurück zum Zitat Bruns, E. J., Walker, J. S., Adams, J., Miles, P., Osher, T., Rast, J., et al. (2004). Ten principles of the wraparound process. Portland, OR: National Wraparound Initiative, Research and Training Center on Family Support and Children’s Mental Health, Portland State University. Bruns, E. J., Walker, J. S., Adams, J., Miles, P., Osher, T., Rast, J., et al. (2004). Ten principles of the wraparound process. Portland, OR: National Wraparound Initiative, Research and Training Center on Family Support and Children’s Mental Health, Portland State University.
Zurück zum Zitat Corrigan, P. W., Watson, A. C., & Miller, F. E. (2006). Blame, shame and contamination: The impact of mental illness and drug dependence stigma on family members. Journal of Family Psychology, 20(2), 239–247.CrossRefPubMed Corrigan, P. W., Watson, A. C., & Miller, F. E. (2006). Blame, shame and contamination: The impact of mental illness and drug dependence stigma on family members. Journal of Family Psychology, 20(2), 239–247.CrossRefPubMed
Zurück zum Zitat Costello, E. J., Keeler, G. P., & Angold, A. (2001). Poverty, race/ethnicity, and psychiatric disorder: A study of rural children. American Journal of Public Health, 91(9), 1494–1498.CrossRefPubMed Costello, E. J., Keeler, G. P., & Angold, A. (2001). Poverty, race/ethnicity, and psychiatric disorder: A study of rural children. American Journal of Public Health, 91(9), 1494–1498.CrossRefPubMed
Zurück zum Zitat Dean, K. L., Wiens, B. A., Liss, H. J., & Stein, B. D. (2007). Violence exposure rates and trauma symptoms among rural youth. Paper presented at The 19th Annual Research Conference Proceedings, A System of Care for Children’s Mental Health: Expanding the Research Base, Tampa. Dean, K. L., Wiens, B. A., Liss, H. J., & Stein, B. D. (2007). Violence exposure rates and trauma symptoms among rural youth. Paper presented at The 19th Annual Research Conference Proceedings, A System of Care for Children’s Mental Health: Expanding the Research Base, Tampa.
Zurück zum Zitat Ekeland, T. J., & Bergem, R. (2006). The negotiation of identity among people with mental illness in rural communities. Community Mental Health Journal, 42(3), 225–232.CrossRefPubMed Ekeland, T. J., & Bergem, R. (2006). The negotiation of identity among people with mental illness in rural communities. Community Mental Health Journal, 42(3), 225–232.CrossRefPubMed
Zurück zum Zitat Erlandson, D. A., Harris, E. L., Skipper, B. L., & Allen, S. D. (1993). Doing naturalistic inquiry: A guide to methods. Newbury Park, CA: Sage. Erlandson, D. A., Harris, E. L., Skipper, B. L., & Allen, S. D. (1993). Doing naturalistic inquiry: A guide to methods. Newbury Park, CA: Sage.
Zurück zum Zitat Felton, B. J., & Shinn, M. (1992). Social integration and social supports: Moving “social support” beyond the individual level. Journal of Community Psychology, 20(2), 103–115.CrossRef Felton, B. J., & Shinn, M. (1992). Social integration and social supports: Moving “social support” beyond the individual level. Journal of Community Psychology, 20(2), 103–115.CrossRef
Zurück zum Zitat Gamm, L. G., Stone, S., & Pittman, S. (2003). Mental health and mental disorders—A rural challenge. Rural healthy people 2010: A companion document to healthy people 2010 (Vol. 1). College Station, TX: The Texas A&M University System Health Science Center, School of Rural Public Health, Southwest Rural Health Research Center. Gamm, L. G., Stone, S., & Pittman, S. (2003). Mental health and mental disorders—A rural challenge. Rural healthy people 2010: A companion document to healthy people 2010 (Vol. 1). College Station, TX: The Texas A&M University System Health Science Center, School of Rural Public Health, Southwest Rural Health Research Center.
Zurück zum Zitat Gilford, J. W., & Walrath, C. (2008). Disparities in need and disparities in outcome: What have we learned to date through the national evaluation? Paper presented at The 20th Annual Research Conference Proceedings, A System of Care for Children’s Mental Health: Expanding the Research Base, Tampa. Gilford, J. W., & Walrath, C. (2008). Disparities in need and disparities in outcome: What have we learned to date through the national evaluation? Paper presented at The 20th Annual Research Conference Proceedings, A System of Care for Children’s Mental Health: Expanding the Research Base, Tampa.
Zurück zum Zitat Goldman, S. K. (1999). The conceptual framework for wraparound: Definition, values, essential elements, and requirements for practice. In B. J. Burns & S. K. Goldman (Eds.), Promising practices in wraparound for children with serious emotional disturbance and their families (Vol. 4). Washington, DC: Center for Effective Collaboration and Practice, American Institutes for Research. Goldman, S. K. (1999). The conceptual framework for wraparound: Definition, values, essential elements, and requirements for practice. In B. J. Burns & S. K. Goldman (Eds.), Promising practices in wraparound for children with serious emotional disturbance and their families (Vol. 4). Washington, DC: Center for Effective Collaboration and Practice, American Institutes for Research.
Zurück zum Zitat Guba, E. G., & Lincoln, Y. S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage. Guba, E. G., & Lincoln, Y. S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
Zurück zum Zitat Hartley, D., Agger, M., & Miller, M. (2002). Effects of managed mental health care on service use in rural areas. Working paper # 16. Maine Rural Health Research Center. Portland, MN: University of Southern Maine. Hartley, D., Agger, M., & Miller, M. (2002). Effects of managed mental health care on service use in rural areas. Working paper # 16. Maine Rural Health Research Center. Portland, MN: University of Southern Maine.
Zurück zum Zitat Hartley, D., Bird, D., & Dempsey, P. (1999). Mental health and substance abuse. In T. Ricketts (Ed.), Rural health in the United States. New York: Oxford University Press. Hartley, D., Bird, D., & Dempsey, P. (1999). Mental health and substance abuse. In T. Ricketts (Ed.), Rural health in the United States. New York: Oxford University Press.
Zurück zum Zitat Heflinger, C. A., & Christens, B. (2006). Rural behavioral health services for children and adolescents: An ecological and community psychology analysis. Journal of Community Psychology, 34(4), 379–400.CrossRef Heflinger, C. A., & Christens, B. (2006). Rural behavioral health services for children and adolescents: An ecological and community psychology analysis. Journal of Community Psychology, 34(4), 379–400.CrossRef
Zurück zum Zitat Hinshaw, S. P. (2005). The stigmatization of mental illness in children and parents: Developmental issues, family concerns, and research needs. Journal of Child Psychology and Psychiatry, 46(7), 714–734.CrossRefPubMed Hinshaw, S. P. (2005). The stigmatization of mental illness in children and parents: Developmental issues, family concerns, and research needs. Journal of Child Psychology and Psychiatry, 46(7), 714–734.CrossRefPubMed
Zurück zum Zitat Hodges, S. (2007). Challenges and opportunities in children’s mental health research. Journal of Behavioral Health Services & Research, 34(4), 357–360.CrossRef Hodges, S. (2007). Challenges and opportunities in children’s mental health research. Journal of Behavioral Health Services & Research, 34(4), 357–360.CrossRef
Zurück zum Zitat Hodges, S., Hernandez, M., Pinto, A., & Uzzell, C. (2007). The use of qualitative methods in systems of care research. Journal of Behavioral Health Services & Research, 34(4), 361–368.CrossRef Hodges, S., Hernandez, M., Pinto, A., & Uzzell, C. (2007). The use of qualitative methods in systems of care research. Journal of Behavioral Health Services & Research, 34(4), 361–368.CrossRef
Zurück zum Zitat Hoyt, D. R., Conger, R. D., Valde, J. G., & Weihs, K. (1997). Psychological distress and help seeking in rural America. American Journal of Community Psychology, 25(4), 449–470.CrossRefPubMed Hoyt, D. R., Conger, R. D., Valde, J. G., & Weihs, K. (1997). Psychological distress and help seeking in rural America. American Journal of Community Psychology, 25(4), 449–470.CrossRefPubMed
Zurück zum Zitat Lambert, D., & Agger, M. (1995). Access of rural Medicaid beneficiaries to mental health services. Health Care Financing Review, 17(1), 133–145.PubMed Lambert, D., & Agger, M. (1995). Access of rural Medicaid beneficiaries to mental health services. Health Care Financing Review, 17(1), 133–145.PubMed
Zurück zum Zitat McCabe, S., & Macnee, C. L. (2002). Weaving a new safety net of mental health care in rural America: A model of integrated practice. Issues in Mental Health Nursing, 23, 263–278.CrossRefPubMed McCabe, S., & Macnee, C. L. (2002). Weaving a new safety net of mental health care in rural America: A model of integrated practice. Issues in Mental Health Nursing, 23, 263–278.CrossRefPubMed
Zurück zum Zitat Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis (2nd ed.). Thousand Oaks, CA: Sage Publications. Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis (2nd ed.). Thousand Oaks, CA: Sage Publications.
Zurück zum Zitat Minkler, M., & Wallerstein, N. (Eds.). (2003). Community-based participatory research for health. San Francisco: Jossey-Bass. Minkler, M., & Wallerstein, N. (Eds.). (2003). Community-based participatory research for health. San Francisco: Jossey-Bass.
Zurück zum Zitat Nicholson, J., Hinden, B. R., Biebel, K., Henry, A. D., & Katz-Leavy, J. (2007). A qualitative study of programs for parents with serious mental illness and their children: Building practice-based evidence. Journal of Behavioral Health Services & Research, 34(4), 395–413.CrossRef Nicholson, J., Hinden, B. R., Biebel, K., Henry, A. D., & Katz-Leavy, J. (2007). A qualitative study of programs for parents with serious mental illness and their children: Building practice-based evidence. Journal of Behavioral Health Services & Research, 34(4), 395–413.CrossRef
Zurück zum Zitat Ricketts, T. C. (1999). Rural health in the United States. New York, NY: Oxford University Press. Ricketts, T. C. (1999). Rural health in the United States. New York, NY: Oxford University Press.
Zurück zum Zitat Roberts, L. W., Battaglia, J., & Epstein, R. S. (1999). Frontier ethics: Mental health care needs and ethical dilemmas in rural communities. Psychiatric Services, 50(4), 497–503.PubMed Roberts, L. W., Battaglia, J., & Epstein, R. S. (1999). Frontier ethics: Mental health care needs and ethical dilemmas in rural communities. Psychiatric Services, 50(4), 497–503.PubMed
Zurück zum Zitat Rueter, M. A., Holm, K. E., Burzette, R., Kim, K. J., & Conger, R. D. (2007). Mental health of rural young adults: Prevalence of psychiatric disorders, comorbidity, and service utilization. Community Mental Health Journal, 43(3), 229–249.CrossRefPubMed Rueter, M. A., Holm, K. E., Burzette, R., Kim, K. J., & Conger, R. D. (2007). Mental health of rural young adults: Prevalence of psychiatric disorders, comorbidity, and service utilization. Community Mental Health Journal, 43(3), 229–249.CrossRefPubMed
Zurück zum Zitat Starr, S., Campbell, L. R., & Herrick, C. A. (2002). Factors affecting the use of the mental health system by rural children. Issues in Mental Health Nursing, 23, 291–304.CrossRefPubMed Starr, S., Campbell, L. R., & Herrick, C. A. (2002). Factors affecting the use of the mental health system by rural children. Issues in Mental Health Nursing, 23, 291–304.CrossRefPubMed
Zurück zum Zitat Stroul, B. A., & Friedman, R. (1986). A system of care for children and youth with severe emotional disturbances (Revised 1994 ed.). Washington, DC: Georgetown University Child Development Center, CASSP Technical Assistance Center. Stroul, B. A., & Friedman, R. (1986). A system of care for children and youth with severe emotional disturbances (Revised 1994 ed.). Washington, DC: Georgetown University Child Development Center, CASSP Technical Assistance Center.
Zurück zum Zitat Thomlinson, P., Maples, C., & Rimel, A. (2005). Differences between urban and rural cultural competency issues in Missouri. Paper presented at The 17th Annual Research Conference Proceedings, A System of Care for Children’s Mental Health: Expanding the Research Base, Tampa. Thomlinson, P., Maples, C., & Rimel, A. (2005). Differences between urban and rural cultural competency issues in Missouri. Paper presented at The 17th Annual Research Conference Proceedings, A System of Care for Children’s Mental Health: Expanding the Research Base, Tampa.
Zurück zum Zitat United States Census Bureau. (2006). United States Census Bureau State and County Quickfacts. Available at www.census.gov. United States Census Bureau. (2006). United States Census Bureau State and County Quickfacts. Available at www.​census.​gov.
Zurück zum Zitat Walrath, C., Miech, R., Holden, E. W., Manteuffel, B., Santiago, R., & Leaf, P. (2003). Child functioning in rural and nonrural areas: How does it compare when using the service program site as the level of analysis? Journal of Behavioral Health Services and Research, 30(4), 452–461.CrossRefPubMed Walrath, C., Miech, R., Holden, E. W., Manteuffel, B., Santiago, R., & Leaf, P. (2003). Child functioning in rural and nonrural areas: How does it compare when using the service program site as the level of analysis? Journal of Behavioral Health Services and Research, 30(4), 452–461.CrossRefPubMed
Zurück zum Zitat Wang, P. S., Lane, M., Olfson, M., Pincus, H. A., Wells, K. B., & Kessler, R. C. (2005). Twelve-month use of mental health services in the United States: Results from the national comorbidity survey replication. Archives of General Psychiatry, 62, 629–640.CrossRefPubMed Wang, P. S., Lane, M., Olfson, M., Pincus, H. A., Wells, K. B., & Kessler, R. C. (2005). Twelve-month use of mental health services in the United States: Results from the national comorbidity survey replication. Archives of General Psychiatry, 62, 629–640.CrossRefPubMed
Metadaten
Titel
Barriers to and Supports of Family Participation in a Rural System of Care for Children with Serious Emotional Problems
verfasst von
Michael D. Pullmann
Sarah VanHooser
Cheri Hoffman
Craig Anne Heflinger
Publikationsdatum
01.06.2010
Verlag
Springer US
Erschienen in
Community Mental Health Journal / Ausgabe 3/2010
Print ISSN: 0010-3853
Elektronische ISSN: 1573-2789
DOI
https://doi.org/10.1007/s10597-009-9208-5

Weitere Artikel der Ausgabe 3/2010

Community Mental Health Journal 3/2010 Zur Ausgabe

Hörschwäche erhöht Demenzrisiko unabhängig von Beta-Amyloid

29.05.2024 Hörstörungen Nachrichten

Hört jemand im Alter schlecht, nimmt das Hirn- und Hippocampusvolumen besonders schnell ab, was auch mit einem beschleunigten kognitiven Abbau einhergeht. Und diese Prozesse scheinen sich unabhängig von der Amyloidablagerung zu ereignen.

So wirken verschiedene Alkoholika auf den Blutdruck

23.05.2024 Störungen durch Alkohol Nachrichten

Je mehr Alkohol Menschen pro Woche trinken, desto mehr steigt ihr Blutdruck, legen Daten aus Dänemark nahe. Ob es dabei auch auf die Art des Alkohols ankommt, wurde ebenfalls untersucht.

„Übersichtlicher Wegweiser“: Lauterbachs umstrittener Klinik-Atlas ist online

17.05.2024 Klinik aktuell Nachrichten

Sie sei „ethisch geboten“, meint Gesundheitsminister Karl Lauterbach: mehr Transparenz über die Qualität von Klinikbehandlungen. Um sie abzubilden, lässt er gegen den Widerstand vieler Länder einen virtuellen Klinik-Atlas freischalten.

ADHS-Medikation erhöht das kardiovaskuläre Risiko

16.05.2024 Herzinsuffizienz Nachrichten

Erwachsene, die Medikamente gegen das Aufmerksamkeitsdefizit-Hyperaktivitätssyndrom einnehmen, laufen offenbar erhöhte Gefahr, an Herzschwäche zu erkranken oder einen Schlaganfall zu erleiden. Es scheint eine Dosis-Wirkungs-Beziehung zu bestehen.

Update Psychiatrie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.