Introduction
Methods
Questionnaire construction
Statistical analyses
Participants
Results
Cohort 1 | Cohort 2 | P value | |||
---|---|---|---|---|---|
n
|
n
| ||||
Age in months; median (P25–75) | 660 | 30 (7–114) | 539 | 36 (7–120) | 0.59a
|
Length of stay in days; median (P25–75) | 656 | 3 (2–7) | 537 | 3 (2–7) | 0.42a
|
PICU admission | 662 | 546 | 0.61b
| ||
Unplanned | 365 | 55.1% | 293 | 53.7% | |
Planned | 297 | 44.9% | 253 | 46.3% | |
Type of admission | 652 | 534 | 0.65b
| ||
Surgical | 359 | 55.1% | 301 | 56.4% | |
Medical | 293 | 44.9% | 233 | 43.6% | |
Mechanical ventilation required | 661 | 541 | 0.77b
| ||
Yes | 405 | 61.3% | 336 | 62.1% | |
No | 256 | 38.7% | 205 | 37.9% | |
Family culture | 664 | 551 | 0.33b
| ||
Dutch | 576 | 86.7% | 487 | 88.4% | |
Other | 88 | 13.3% | 64 | 11.6% |
Domains | No. of statements |
n
| Chi-square test of model fit | ||||||
---|---|---|---|---|---|---|---|---|---|
Value | df | P value | CFI | TLI | RMSEA | WRMR | |||
Information | 9 | 667 | 83.60 | 17 | <0.01 | 0.97 | 0.99 | 0.08 | 0.82 |
Care and cure | 30 | 667 | 454.74 | 99 | <0.01 | 0.95 | 0.98 | 0.07 | 1.09 |
Parental participation | 8 | 667 | 55.64 | 12 | <0.01 | 0.99 | 0.99 | 0.07 | 0.75 |
Organization | 6 | 655 | 18.50 | 8 | 0.02 | 0.99 | 1.00 | 0.05 | 0.46 |
Professional attitude | 12 | 667 | 141.26 | 27 | <0.01 | 0.98 | 0.99 | 0.08 | 0.94 |
\( \hat{\mu } \)
|
\( \hat{\sigma } \)
| Standardized factor loadings | |
---|---|---|---|
Information | |||
We were always informed right away when our child’s physical condition worsened | 5.60 | 0.86 | 0.63 |
We had daily talks about our child’s care and treatment with the nurses | 5.50 | 0.95 | 0.69 |
Our questions were clearly answered by the nurses | 5.48 | 0.88 | 0.72 |
Our questions were clearly answered by the doctors | 5.42 | 1.00 | 0.78 |
The doctor clearly informed us about the consequences of our child’s treatment | 5.33 | 1.13 | 0.75 |
We received clear information about the examinations and tests | 5.32 | 1.03 | 0.84 |
We were given clear information about our child’s disease | 5.30 | 1.20 | 0.61 |
We received understandable information about the effects of the drugs | 5.06 | 1.29 | 0.66 |
We had daily talks about our child’s care and treatment with the doctors | 4.87 | 1.56 | 0.63 |
Care and cure | |||
When our child’s condition worsened, action was immediately taken by the doctors | 5.79 | 0.56 | 0.65 |
When our child’s condition worsened, action was immediately taken by the nurses | 5.79 | 0.59 | 0.70 |
During acute situations there was always a nurse to support us | 5.64 | 0.82 | 0.67 |
The team was alert to the prevention and treatment of pain in our child | 5.60 | 0.76 | 0.73 |
The doctors and nurses are real professionals; they know what they are doing | 5.59 | 0.72 | 0.78 |
Our child’s comfort was taken into account by the nurses | 5.58 | 0.81 | 0.80 |
The team had a common goal: the best care and treatment for our child and ourselves | 5.56 | 0.76 | 0.91 |
Our child’s needs were well responded to by the nurses | 5.55 | 0.83 | 0.78 |
Attention was paid to our child’s developmental level by the nurses | 5.53 | 0.94 | 0.78 |
The team was helpful to our child and to us | 5.52 | 0.88 | 0.89 |
Our own needs were well responded to by the nurses | 5.49 | 0.86 | 0.80 |
Our child’s needs were well responded to by the doctors | 5.49 | 0.90 | 0.70 |
Attention was paid to our child’s developmental level by the doctors | 5.47 | 1.03 | 0.68 |
Every day we knew who was responsible for our child, regarding the nurses | 5.46 | 1.10 | 0.58 |
Our child’s comfort was taken into account by the doctors | 5.44 | 0.91 | 0.71 |
The correct medication was always given on time | 5.39 | 1.03 | 0.70 |
We were well supported emotionally by the nurses | 5.38 | 1.07 | 0.69 |
Our own needs were well responded to by the doctors | 5.37 | 1.00 | 0.71 |
At admission our child’s medical history was known by the doctors | 5.37 | 1.25 | 0.39 |
The doctors and nurses worked closely together | 5.34 | 0.93 | 0.66 |
Transferral of care from the PICU staff to colleagues in the pediatric ward had gone well | 5.17 | 1.30 | 0.58 |
We were well prepared for our child’s discharge by the nurses | 5.14 | 1.30 | 0.56 |
At admission our child’s medical history was known by the nurses | 5.12 | 1.41 | 0.41 |
We were well prepared for our child’s admission by the nurses | 5.11 | 1.47 | 0.41 |
We were well supported emotionally by the doctors | 5.07 | 1.32 | 0.62 |
We were well prepared for our child’s admission by the doctors | 5.04 | 1.49 | 0.42 |
We were well prepared for our child’s discharge by the doctors | 4.87 | 1.53 | 0.50 |
During our child’s stay we were assigned to a first responsible nurse | 4.77 | 1.76 | 0.47 |
Every day we knew who was responsible for our child, regarding the doctors | 4.62 | 1.72 | 0.53 |
During our child’s stay we were assigned to one and the same doctor | 4.25 | 1.96 | 0.36 |
Parental participation | |||
We had confidence in the doctors | 5.63 | 0.75 | 0.63 |
We had confidence in the nurses | 5.58 | 0.85 | 0.63 |
Even during intensive procedures we could always stay close to our child | 5.57 | 0.94 | 0.65 |
We were encouraged to stay close to our child | 5.35 | 1.09 | 0.77 |
Before discharge the care for our child was once more discussed with us by the nurses | 5.15 | 1.29 | 0.62 |
We were actively involved in decision-making on care and treatment of our child | 5.14 | 1.22 | 0.76 |
Before discharge the care for our child was once more discussed with us by the doctors | 4.91 | 1.54 | 0.58 |
During our stay the staff regularly asked for our experiences | 4.52 | 1.59 | 0.60 |
Organization | |||
The IC unit could easily be reached by telephone | 5.63 | 0.77 | 0.70 |
The visiting hours were flexible | 5.60 | 0.96 | 0.50 |
The team worked efficiently | 5.54 | 0.74 | 0.86 |
There was enough space around our child’s bed | 5.39 | 0.99 | 0.80 |
The IC unit was clean | 5.39 | 1.00 | 0.73 |
Noise in the IC unit was muffled as well as possible | 4.95 | 1.37 | 0.64 |
Professional attitude | |||
Our child’s health always came first for the nurses | 5.68 | 0.70 | 0.74 |
Our child’s health always came first for the doctors | 5.68 | 0.72 | 0.71 |
At admission we felt welcome | 5.61 | 0.83 | 0.74 |
The team showed respect for our child and for us | 5.58 | 0.76 | 0.89 |
There was a pleasant atmosphere among the staff | 5.54 | 0.73 | 0.86 |
The team worked hygienically | 5.52 | 0.86 | 0.70 |
We received sympathy from the nurses | 5.50 | 0.87 | 0.74 |
In spite of the workload, sufficient attention was paid to our child and to us by the nurses | 5.49 | 0.87 | 0.78 |
The team respected the privacy of our child and of us | 5.30 | 1.05 | 0.69 |
Nurses and doctors always introduced themselves by name and function | 5.26 | 1.20 | 0.68 |
In spite of the workload, sufficient attention was paid to our child and to us by the doctors | 5.25 | 1.05 | 0.66 |
We received sympathy from the doctors | 5.21 | 1.18 | 0.58 |
Domains (statements) | Cohort 1 (n = 667) | Cohort 2 (n = 551) | Levene’s test differences on variances | T test differences on means | |||||
---|---|---|---|---|---|---|---|---|---|
\( \hat{\mu } \)
|
\( \hat{\sigma } \)
|
α
|
\( \hat{\mu } \)
|
\( \hat{\sigma } \)
|
α
|
F
| P value | P value | |
Information (9) | 5.32 | 0.72 | 0.84 | 5.33 | 0.68 | 0.81 | 1.19 | 0.28 | 0.84 |
Care and cure (30) | 5.32 | 0.60 | 0.92 | 5.35 | 0.61 | 0.93 | 1.19 | 0.28 | 0.35 |
Parental participation (8) | 5.23 | 0.73 | 0.77 | 5.30 | 0.71 | 0.76 | 0.11 | 0.73 | 0.13 |
Organization (6) | 5.42 | 0.63 | 0.73 | 5.47 | 0.61 | 0.73 | 1.56 | 0.21 | 0.19 |
Professional attitude (12) | 5.47 | 0.58 | 0.88 | 5.50 | 0.57 | 0.88 | 0.94 | 0.33 | 0.30 |
n
| Would suggest PICU to others | Would come back again if needed | Overall satisfaction with physicians | Overall satisfaction with nurses | |
---|---|---|---|---|---|
Information | 650 | 0.435 | 0.422 | 0.504 | 0.364 |
Care and cure | 642 | 0.522 | 0.527 | 0.542 | 0.472 |
Parental participation | 651 | 0.478 | 0.475 | 0.465 | 0.423 |
Organization | 651 | 0.523 | 0.508 | 0.392 | 0.401 |
Professional attitude | 651 | 0.588 | 0.583 | 0.575 | 0.519 |
Yes | No | Cohen’s d
| P value | |||||
---|---|---|---|---|---|---|---|---|
n
|
\( \hat{\mu } \)
|
\( \hat{\sigma } \)
|
n
|
\( \hat{\mu } \)
|
\( \hat{\sigma } \)
| |||
Mechanical ventilation | ||||||||
Information | 397 | 5.27 | 0.76 | 251 | 5.40 | 0.65 | −0.18 | 0.07 |
Care and cure | 391 | 5.31 | 0.62 | 249 | 5.34 | 0.55 | −0.05 | 0.83 |
Parental participation | 397 | 5.23 | 0.75 | 251 | 5.24 | 0.70 | −0.02 | 0.91 |
Organization | 396 | 5.41 | 0.67 | 252 | 5.42 | 0.57 | −0.01 | 0.53 |
Professional attitude | 397 | 5.48 | 0.60 | 251 | 5.45 | 0.56 | 0.05 | 0.32 |
Unplanned admission | ||||||||
Information | 358 | 5.28 | 0.73 | 289 | 5.37 | 0.71 | −0.13 | 0.06 |
Care and cure | 354 | 5.30 | 0.60 | 286 | 5.35 | 0.60 | −0.07 | 0.24 |
Parental participation | 357 | 5.25 | 0.73 | 291 | 5.21 | 0.73 | 0.06 | 0.38 |
Organization | 357 | 5.42 | 0.61 | 291 | 5.42 | 0.65 | 0.01 | 0.97 |
Professional attitude | 357 | 5.49 | 0.57 | 291 | 5.45 | 0.59 | 0.08 | 0.46 |
Admission for surgery | ||||||||
Information | 351 | 5.41 | 0.67 | 286 | 5.20 | 0.78 | 0.29 | <0.001 |
Care and cure | 348 | 5.35 | 0.60 | 284 | 5.28 | 0.60 | 0.11 | 0.11 |
Parental participation | 351 | 5.24 | 0.75 | 287 | 5.21 | 0.71 | 0.03 | 0.44 |
Organization | 352 | 5.42 | 0.64 | 287 | 5.42 | 0.62 | 0.00 | 0.92 |
Professional attitude | 352 | 5.47 | 0.61 | 286 | 5.47 | 0.55 | 0.00 | 0.39 |
Dutch culture | ||||||||
Information | 562 | 5.31 | 0.71 | 87 | 5.38 | 0.80 | −0.09 | 0.11 |
Care and cure | 558 | 5.32 | 0.57 | 83 | 5.33 | 0.77 | −0.01 | 0.09 |
Parental Participation | 563 | 5.23 | 0.70 | 86 | 5.27 | 0.88 | −0.06 | 0.07 |
Organization | 564 | 5.42 | 0.62 | 85 | 5.39 | 0.69 | 0.05 | 0.97 |
Professional attitude | 563 | 5.47 | 0.56 | 86 | 5.45 | 0.72 | 0.05 | 0.20 |