Background
Methods
Search procedure/methods
Eligibility criteria
Study selection
Data collection
Results
Selection of study
Study populations
Setting (Year / country) | Authors | CG sample | Needs assessment methods of the quantitative studies | |||||
---|---|---|---|---|---|---|---|---|
Administration | Aim of the instrument | Domains - scale | Specific cognitive impairment | validated instrument | Recipient | |||
1) In Mild Cognitive Impairment (MCI) | ||||||||
MCI and AD | ||||||||
2010/USA [21] | Ryan et al. | 80 informal CGs (25 MCI and 55 AD); 68.8% female; 75% spouse; mean age = 64.1 years | Self-administered | Support and service needs | List of 18 services: medical, social and community, mental health, and other. Three-point rating scale. | yes | No, questionnaire developed for the study | CG |
MCI and dementia | ||||||||
2005/ Canada [37] | Aminzadeh et al. | 141 informal CGs; 61.7% female; mean age = 60.1 years | Self-administered | CG’s needs, goals and outcomes | List of educational, support and care management needs (11 items). | yes | No, questionnaire developed for the study | CG |
2011/USA [38] | Johnston et al. | 15 CGS (8 dementia, 7 MCI) | By telephone | Patient’s and CG’s needs | 15 care recipient need domains (77 items) and 4 CGs need domains (12 items): safety, management of cognitive and noncognitive symptoms, medical comorbidities, daily activities, CG education and support needs. Three-point rating scale. | yes | Yes - The Johns Hopkins Dementia Care Needs Assessment. Psychometric properties not formally tested / concurrent validity with QOL measures [39]. | CG + patients |
2) In Alzheimer’s Disease and Related Disorders (ADRD) | ||||||||
2002/USA [40] | Wackerbarth et al. | 128 informal CGs; 74.6% female; 34.7% spouse; mean age = 78.5 years | Self-administered | Information and support needs | Needs assessment surveys based on the results of 28 previously conducted in-depth interviews with CGs. Three sections: 20 information needs, 19 support needs and information about the caregiving experience. Four-point rating scale. | yes | No, questionnaire developed for the study | CG |
AD | ||||||||
1987/ USA [41] | Simonton | No participant | Self-administered | Information needs | 15 questions with a five-point rating scale. | yes | No, questionnaire developed for the study | CG |
1990/USA [42] | Fortinsky et al. | 115 informal CGs (58 active CGs, 57 former CGs); 79.1% female; 47.8% spouse; mean age = 58 years | Self-administered | Information and service needs | Types of information and services desired and how much information was provided to them at the time of diagnosis. | yes | No, questionnaire developed for the study | CG |
1992/USA [43] | Francis et al. | 39 informal CGs; 72% female | By telephone | Service needs | 2 parts: measures functional status on five dimensions (social resources, economic resources, mental health, physical health, and activities of daily living); measures 24 generically defined services received (intensity, provider) as well as perceived need. | No (elderly) | Yes - The Older American Resources and Services Multidimensional Functional Assessment Questionnaire (OMFAQ). Validity and reliability tested in elderly [44]. | CG |
1996/USA [45] | Bowd et al. | 68 informal CGs (living in isolated communities); 73% female; 56% spouse; mean age = 64 years | Self-administered | Support needs | “Assessment of Perceived Needs of CGs»: 27 items (social and informal supports, the use of formal community services). | yes | No, questionnaire developed for the study | CG |
1999/ Italy [19] | Dello Buono et al. | 60 informal CGs; 50.6% female; 50% spouse; mean age = 76.83 years | Face-to-face interviews | service needs | A list of the local services (frequency of use, reason for non-use) and a list of ten interventions (choosing one or more which might be helpful). | No (elderly) | No, questionnaire developed for the study | CG |
2006/USA [46] | Edelman et al. | 100 informal CG living in rural communities; 61% female; 44% spouse; mean age = 61 years | Self-administered | information and service needs | A 22-item Checklist of Interest in Services and Information. Four areas: medical needs (6 items); care needs (5 items); coping needs (6 items); and service needs (3 items). | yes | No, questionnaire developed for the study | CG + patients |
2007/ Finland [47] | Raivio et al. | 1214 informal CGs; 63% female; 100% spouse; mean age = 78.2 years | Self-administered | service needs | 11 areas: support and services received, the CGs’ subjective needs and satisfaction with these services. | No (elderly) | No, questionnaire developed for the study | CG |
2011/ France [48] | Coudin et al. | 74 informal CGs; 62% female; 74% spouse | Self-administered | difficulties, coping strategies and satisfaction | 3 Questionnaires CADI-CAMI-CASI: the Carers Assessment of Difficulties index (30 items) - Managing Index (38 items) - Satisfaction Index (30 items). | No(CG) | Yes - CADI-CAMI-CASI Psychometric properties tested in CG of older people [49]. | CG |
2012/ France [50] | Amieva et al. | 645 informal CGs; 61.1% spouse | Self-administered | CG’s needs | 28-item questionnaire. Four main needs: learning skills to improve daily life management of their relatives (7 items); information on the disease (7 items); improving CGs’ self-confidence (7 items); improving communication (7 items). | No (elderly) | Yes - Echelle d’attentes en matière de consultations (EAC) Psychometric properties tested in CGs of depressed elderly people (Cronbach’s alpha 0.89 to 0.95, intra-class coefficient 0.92) [51]. | CG |
Frontotemporal Dementia (FTD) | ||||||||
2011/ Canada [52] | Chow et al. | 79 informal CGs; 57% female; median age = 58 years | Web-based survey | CG’s needs | 9 questions with multiple choice responses.Areas: diagnosis, symptoms, the troublesome aspects of caregiving, resources/interventions, process of learning about FTD. | yes | No, questionnaire developed for the study | CG |
2013/ Germany [53] | Diehl-Schmid et al. | 94 informal CGs; 72% female; 80% spouse; mean age = 89.11 years | Self-administered | Support and service and intervention needs | List of 45 support services and interventions relating to the following domains: information, psychosocial support for relatives, care outside of home, support at home, financial support, safety issues, therapies for the patients, and raising awareness. CGs were asked to rate the helpfulness of the proposed services and interventions. | yes | No, instrument developed for the study | CG |
AD and FTD | ||||||||
2010 / Australia [54] | Nicolaou et al. | 30 FTD dyads; 93% female94% spouse; mean age = 58.5 years | Face-to-face interviews | Patient’s and CG’s needs | 24 areas and four categories: autonomy; physical needs; psychological, emotional and social needs; and CG’s needs. | No (elderly) | Yes - Camberwell Assessment of Need for the Elderly (CANE) Psychometric properties tested in PWD and CGs of PWD [55]. | CG |
Lewy Body Dementia | ||||||||
2011 / USA [56] | Galvin et al. | 962 CGs; 87,9% female; 40,6% spouse; mean age = 55.9 years | Web-based survey | Functional, behavioral and affective disturbances burden | Areas: ADL, IADL, paid services used and requested services by CGs. | yes | No, questionnaire developed for the study | CG |
2015/UK [57] | Killen et al. | 122 CGs; 89% female; 17.6% spouse | Web-based survey | Information and support needs | Ten short questions focused on past support and information experiences, difficulties encountered that could benefit from information and support, and appropriate topics for inclusion in future resource development. | yes | No, questionnaire developed for the study | CG + patients |
AD and vascular dementia | ||||||||
2001/ USA [58] | England | 92 filial CGs; 72.8% female; mean age = 53.45 years | Face-to-face interviews | Learning and resource needs | Checklist of learning and resource needs: prioritization of a list of 15 information requests and prioritization a list of ten resource requests. | yes | No, questionnaire developed for the study | CG |
3) Early-onset Dementia (EOD) | ||||||||
2012/ Norway [22] | Rosness et al. | 45 informal CGs68.9% female | Self-administered | Burden and needs | A 20-item questionnaire (Care-EOD) assessing the burden and needs. Six-point rating scale. | yes | No, questionnaire developed for the study | CG |
2014/ USA [59] | Gibson et al. | 81 CG; 76.5% female; 69.2% spouse | Web-based survey | Service and support needs | Areas: caregiving obligations, utilization of services, perceived importance of services, employment status, need for and access to financial services and benefits, and perceived understanding of the experiences of CGs by the public and by service providers. | yes | No, survey developed for the study | CG |
4) Dementia | ||||||||
1995/ UK [60] | Philp et al. | 114 informal CGs; 86% female; 22.8% spouse; mean age = 80.7 years | Face-to-face interviews | Service needs | List of locally available services: frequency of use, number of hours of support a week. | yes | No, instrument developed for the study | CG |
1999/ UK [61] | Turner et al. | 30 CGs; 60% female; 37% spouse; 2/3 < 65 years | Face-to-face interviews | Training needs | Four areas (19 items): practical advice, information, coping with caring, coping with the person with dementia. | yes | No, survey developed for the study | CG |
2004/USA [62] | Gaugler et al. | 694 informal CGs (344 community PWD, 144 institutional PWD, 216 deceased PWD); 70.9% female;37.8% spouse; mean age = 61.17 years | Self-administered | Unmet needs | 7 items, 34 questions: help with ADL tasks, help with IADL tasks, dementia symptoms, timing of care, formal support, information and confidante/family support. Yes/no questions. | yes | No, questionnaire developed for the study | CG |
2005/ Austria [16] | Wancata et al. | 45 informal CGs73% female46% spousemean age = 60.9 years | Interview | CG’s needs | 18 problem areas with several possible interventions (+ an optional area for additional problems). Five-point rating scale. | yes | Yes - Carers’ Needs Assessment for Dementia (CNA-D) Psychometric properties tested in CGs of PWD [16]. | CG |
2008/ UK [63] | Orrell et al. | 81 informal CGs | Face-to-face interviews | Patient’s and CG’s needs | 24 areas and four categories: autonomy; physical needs; psychological, emotional and social needs; and CG’s needs. | No (elderly) | Yes - Camberwell Assessment of Need for the Elderly (CANE) Psychometric properties tested in PWD and CGs of PWD [55]. | CG + patients + professionals |
Van der Roest et al.(2 studies) | 322 informal CGs; 68.6% female; 54.3% spouse; mean age = 65.4 years | Face-to-face interviews | Patient’s and CG’s needs | 24 areas and four categories: autonomy; physical needs; psychological, emotional and social needs; and CG’s needs. | No (elderly) | Yes - Camberwell Assessment of Need for the Elderly (CANE) Psychometric properties tested in PWD and CGs of PWD [55]. | CG + patients | |
2009/ UK [64] | Selwood et al. | 113 informal CGs; 67.9% female; 33.9% spouse; mean age = 61.2 | Self-administered | Strategies to reduce abusive behavior | List of 14 strategies which had either helped them already or that they thought would have the potential to help them avoid the abusive behaviors. Rating of the most helpful and the second most helpful strategies. | yes | No, instrument developed for the study | CG |
2008/ USA [65] | Nichols et al. | 165 informal CGs; 78.4% female; 50.3% spouse; mean age = 64.7 years | Selection of a topic to discuss by CG | Behavior, stress and coping pressing concerns | 25 pamphlets addressing particular behaviors and 12 pamphlets on CG stress/coping and improving the CG’s own well-being. | yes | No, instrument developed for the study | CG |
2010/ Netherlands [66] | Peeters et al. | 984 informal CGs; 71.6% female; 50.8% spouse; mean age = 62.8 years | Self-administered | Professional support needs | 2 parts: 14 areas (30 items) on problems that are faced by persons with dementia and problems experienced by CGs; 56 items about the needs for additional professional support. | yes | No, questionnaire developed for the study | CG |
2010/Italy [17] | Rosa et al. | 112 informal CGs; 69% female; mean age = 55 years. | Self-administered | CG’s needs | “Questionnaire assessing the CGs’ needs”. Four areas (22 items): need of medical relevance, educational needs, need of emotional and psychological support, need of services. | yes | No, questionnaire developed for the study | CG |
Koenig et al. Steiner et al. | 33 informal CGs; 29 female; 11 spouse; mean age = 62.2 years | Face-to-face interviews | information needs | List of 48 items: 25 items related to needing help for the care recipient +23 items related to needs of the CG. Participants were asked to choose their top ten needs. | yes | No, instrument developed for the study | CG | |
2012/ USA [68] | Li | 208 informal CGs; 57.7% female; mean age = 49.7 years | By telephone | unmet service needs | 14-service item survey about self-care, coping, decision making, CG training and others. Yes/no questions. | No (CGs) | No, instrument developed for the study | CG |
2013/USA [20] | Black et al. | 246 informal CGs; 74,8% female; 41,5% spouse; mean age = 66,1 years | Face-to-face interviews | Patient’s and CG’s needs | 15 care recipient need domains (77 items) and 4 CGs need domains (12 items): safety, management of cognitive and noncognitive symptoms, medical comorbidities, daily activities, CG education and support needs. Three-point rating scale. | yes | Yes -The Johns Hopkins Dementia Care Needs Assessment. Psychometric properties not formally tested / concurrent validity with QOL measures [39]. | CG + patients |
2013/ UK [69] | Miranda-Castillo et al. | 128 informal CGs; 71.1% female; 64.1% spouse | Face-to-face interviews | Patient’s and CG’s needs | 24 areas and four categories: autonomy; physical needs; psychological, emotional and social needs; and CG’s needs. | No (elderly) | Yes - Camberwell Assessment of Need for the Elderly (CANE) Psychometric properties tested in PWD and CGs of PWD [55]. | CG + patients + professionals |
2013/ Netherlands [70] | Zwaanswijk et al. | 1494 informal CGs (caregiving <1 year =89, 1-4 years =744 and >4 years =661); 71.7% female; 58.2% spouse. | Self-administered | Professional support needs | 35 problems and 59 needs for additional support (currently received and needs). | yes | No, questionnaire developed for the study | CG |
2015/ USA [23] | Jennings et al. | 307 informal CGs; 64% female; 41% spouse | Self-administered | Care needs and self-efficacy | Nine-item scale with three domains: perception of the primary care provider, advice on dementia-related topics and self-efficacy for caring and for accessing help. Five-point rating scale. | yes | No, scale developed for the study | CG + professionals |
2015/ USA [30] | Sadak et al. | Baseline: 130 CGs; 80% female; 63% spouse; mean age = 66 years. Re-test: 79 CGs | Self-administered | Knowledge and skills | 35 items (23 “knowledge” and 12 “skills” items). 5-level Likert type response scale. | yes | Yes - Partnering for Better Health - Living with Chronic Illness: Dementia (PBH-LCI:D) Psychometric properties tested in CGs of PWD (Cronbach’s alpha 0.95) [30]. | CG |
Setting (Year / country) | Authors | CG sample | Needs assessment methods of the qualitative studies |
---|---|---|---|
1) In Alzheimer’s Disease and Related Disorders (ADRD) | |||
AD | |||
1997/ USA [71] | Beisecker et al. | 104 informal CGs; 70.2% female61.5 spouse; mean age = 63.6 years | Semi-structured interview by telephone. Topics: physician-patient-CG interactions, informational needs and advance directives. |
1999/ USA [72] | Loukissa et al. | 34 CGs; 74% female 42% spouse; 68% african-american CGs | 5 focus groups. The open-ended interview began with: “If you were to write a book for persons in similar situations to yours, what would you want them to know?”. |
2001/ USA [73] | Smith et al. | 45 informal CGs; 87% female51% spouse | Semi-structured intensive interview. Nine questions about needs, changes, experiences, skills and assistance. |
2003/ USA [74] | Farran et al. | 177 informal CGs | Semi-structured interviews and open-ended group discussion (during group session). Topics: care recipient issues and concerns expressed by CGs; specific skills needed by CGs to address key care recipient issues. |
2004/ USA [75] | Farran et al. | 177 informal CGs | Semi-structured interviews and open-ended group discussion (during group session). Topics: CG issues and concerns discussed by CGs; specific skills needed by CGs to address key CG issues and concerns. |
FTD | |||
2013/ Canada [76] | Nichols et al. | 14 young CGs (ten female, aged 11-18). | 2 focus groups using a semi-structured interview guide. Topics: experiences and needs of young CG at various points in the patient’s diagnostic process and course of illness (to create a relevant support website). |
2) Early-onset Dementia (EOD) | |||
2010/ Netherlands [77] | Bakker et al. | 1 informal CG; female; spouse; 46 years | A single case study design (qualitative interviews with the CG). Topics: experiences and needs during period prior to diagnosis, diagnosis, period after diagnosis, caring, transitions in care and future perspective. |
2014/ The Netherlands [78] | Millenaar et al. | 14 children CGs; eight female; mean age = 21.0 years | Semi-structured interviews. Topics: the children’s reactions to the diagnosis, the help they received after the diagnosis, and the resulting changes in their lives. Topics focused on the children’s needs. |
2015/ Netherlands [79] | Boots et al. | 28 informal CGs; 75% female; 78% spouse; mean age = 63.6 years | 4 focus group interviews using context-mapping approach. Topics: needs and wishes to prevent overburdening, need for care and need for communication of care. |
2017/Canada [80] | Wawrziczny et al. | 40 spouses of persons with EOD and 38 spouses of persons with late-onset dementia; 23 and 20 female; mean age = 57.4 and 77.0 | Semi-structured interviews based on the French version of the Carers Outcome Agreement Tool. Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance. |
3) Dementia | |||
1986/ Sweden [81] | Brâne | 56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards) | Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. |
2001/ USA [82] | Lampley-Dallas et al. | 13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years | 2 focus group. 3 questions about needs, the health care system (help and interaction) and stress. |
2003/ India [83] | Shaji et al. | 17 informal CGs; 76% female | Semi-structured interviews. Topics: demographic data, level of knowledge about AD, the practical and psychological problems of CGs and their attitudes towards caring. |
2005/ UK [84] | Innes et al. | 30 informal CGs (rural CGs); 22 female | 16 semi-structured interviews and three focus group. Topics: services used, perceived benefits and drawbacks of each service, alternative sources support, views on the impact of geographical location and service use and support. |
2009/ Netherlands [85] | de Jong et al. | Nine informal CGs; five female; four spouse | Semi-structured interviews in their home or by telephone. Topics: needs and wishes of CGs using a skilled psychogeriatric day-care facility; functioning of the CGs and the PWD, health care, knowledge about dementia and CGs’ experience. |
2011/ Australia [86] | Shanley et al. | 15 CGs; eight female; ten spouse; mean age = 64 years | Semi-structured interviews. Topics: history of caregiving experience; ‘quality of life’ and ‘quality of care’; particular challenges encountered; sources of advice and support; the needs of CGs; and the positive and negative aspects of formal service provision. |
2012/ USA [87] | Samia et al. | Survey: 168 informal CGs; 84.5% female; 45.2% spouse; mean age = 66,6 yearsFocus group: 26 family CGs; 84.6% female; 60% spouse | A multi-stage qualitative descriptive study: open-ended survey and five focus group. Topics: ongoing training needs and preferences of previously trained CGs. |
2013/ Australia [88] | Low and White et al. | 31 CGs; 27 female; 21 spouse; mean age = 63 years | Face-to-face, telephone or group interviews. Topics: characteristics of an ideal dementia-specific community care service, the ideal outcomes or achievements of a dementia-specific community care service. |
2013/ Singapor [89] | Vaingankar et al. | 63 informal CGs; 60% female20% spouse; mean age = 52.9 years | Ten focus group and 12 semi-structured interviews (funnel approach). Topics: experiences and discussion focused on each identified unmet needs or challenges. |
2014/ Germany [90] | Muders et al. | 85 CGs | Questionnaire with two open-ended questions. Topics: exploration and documentation of the CG’s needs and identification of the healthcare professionals to adequately support them. |
2015/ USA [91] | Meyer et al. | Ten vietnamese informal CGs; seven female; two spouse; mean age = 55 | Semi-structured interviews (n = 10 CGs). Topics: family structure and immigration, beliefs about dementia, experiences with caregiving, coping strategies, help-seeking and service utilization.1 Focus group (n = 5 CGs). Topics: helpful interventions or other treatments to reduce CG distress, sources of stress and coping/management strategies. |
2016/Thailand [92] | Griffiths et al. | 30 CGs; 24 female; 12 spouse | Semi-structured interviews. Topics: problems and needs of CGs who help older people with dementia to do activities of daily living. |
2016/USA [93] | Peterson et al. | 27 CGs; 19 female; eight spouse; mean age = 58.5 | Semi-structured interviews. Topics: caregiving characteristics, care recipient symptoms, information regarding diagnosis, care issue and strategies (trigger, previous sources, most helpful sources, barriers, expectations and preferences), preferred learning methods and setting, and the use of technology. |
2016/USA [94] | Samson et al. | 32 African American CGs; 28 female | 4 focus group. Topics: examination of the concerns and experiences of the African American CGs (differences with other racial or ethnic groups) + identification of the information needs and preferences for information, education and support. |
2016/USA [95] | Jennings et al. | 36 CGs; 26 female; 24 spouse; mean age = 63 | 4 Focus group with CGs. Topics: goals in dementia care relating to specific domains, including medical care, social functioning, safety, and end-of-life care. |
Setting (Year / country) | Authors | CG sample | Needs assessment methods of the mixed method studies | |||||
---|---|---|---|---|---|---|---|---|
Administration | Aim of instrument | Domains | Specific cognitive impairment | Validated instrument | Recipient | |||
Cognitive impairment (MCI, dementia and other) | ||||||||
2010/ Netherlands [96] | Wolfs et al. | 252 informal CGs; 62.7% female; 45.2% spouse; mean age = 61.9 years | By telephone | care needs and satisfaction | Semi-structured interviews by telephone including quantitative and qualitative data. Eight areas: informal caregiving and burden; inventory of the utilized care and treatment and satisfaction; inventory of the non-utilized reasons for non-utilizing care and treatment option; needs to improve care and treatment; the choice and the transparency of the care and treatment option. | yes | No, instrument developed for the study | CG |
AD | ||||||||
1998/ USA [97] | Kuhn et al. | 20 informal CGs; 11 female 14 spouse; mean age = 60 years | Self-administered | topic of interest | 16-item survey (learning needs in relation to the disease). Three-point rating scale. + Semi-structured interviews. Seven areas, 20 open-ended questions: symptoms of AD and initial perception, CG reaction to diagnosis and beliefs about AD, needs, changes, coping, use of formal and informal resources, future planning and advice. | yes | No, instrument developed for the study | CG |
2005/ USA [98] | Habermann et al. | 20 informal CGs; 16 female; 12 spouse; mean age 60.9 years | Face-to-face interviews | CG’s needs | 16-item survey with three areas (Caregiver Assistance Measure): caregiving knowledge and skills, community resources, self-care. Three-point rating scale. + Open-ended questions: most difficult aspects of the caregiving situation, type of assistance perceived as important. | yes | No, instrument developed for the study | CG |
EOD | ||||||||
2014/ Canada [99] | Ducharme et al. | 32 informal CGs; 75% female78% spouse; mean age 54,28 years | Face-to-face interviews | unmet support needs | Questionnaire FCSA (4 areas, 38 items) + semi-structured interview. Topics: identification of other needs not covered by the tools and other types of useful help, improvement and quality expectation of help. | No(CG) | Yes - Family CGs Support Agreement (FCSA) tool | CG |
Dementia | ||||||||
2001/ Australia [100] | Leong et al. | Survey: 94 CGs; over 2/3 were female; mean age = 65.5 yearsQualitative interviews: 10 CGs; five female | Self-administered | CG’s needs | Questionnaire FCNS. Eight areas, 42 items: information, household, spiritual, Respite, personal, psychological, legal and financial, and physical care/ skills needs. + Semi-structured interviews. Topics: the nature of family caring and gather a more complete picture of experiences, feelings, perceptions and needs of CGs) | yes | No, Family Carer Need Survey (FCNS).This instrument draws on the Home Carer Need Survey, with modifications to suit Australian respondents caring for a family member with dementia. | CG |
2010/ Australia [101] | Stirling et al. | 20 informal CGs; 18 female 14 spouse | By telephone | services needs | Community service use measured explored by the final domain of the Carer’s checklist + 3 semi-structured interviews. Topics: CG interaction with community service providers, CG experiences, CG socio-economic circumstances, felt needs for services. | No(CG) | Yes - The Carer’s checklist | CG |
Methodologies to identify the needs of informal caregivers
Quantitative studies
Qualitative studies
Mixed method studies
Main topics of needs explored in the quantitative and mixed method studies
Items | No. of instruments who reported the item -n (%)
n = 36 instruments | References of the instruments who reported each item |
---|---|---|
Information needs | ||
On the disease (e.g., cognition, behavioural disorders, dementia) | 28 (78) | |
On the pharmacological treatment | 17 (47) | |
On the non-pharmacological treatment | 3 (8) | |
On the available services | 10 (28) | |
Psychological needs | ||
Support for the caregiver (psychological and emotional support) | 23 (64) | |
Support for the patient (psychological and emotional support) | 8 (22) | |
Social interactions, company | 11 (31) | |
Time for themselves | 9 (25) | |
Social needs | ||
Institutionalization | 9 (25) | |
Financial issue | 18 (50) | |
Legal issue | 14 (39) | |
Respite, Day care | 14 (39) | |
Community services: | 8 (22) | |
related to home support (meal, housework, transport) | 15 (42) | |
related to patient care | 18 (50) | |
Psycho educational needs | ||
Coping with behavioural disorders | 16 (44) | |
Coping with cognitive disorders | 13 (36) | |
Coping with patient feelings | 8 (22) | |
Coping for caring | 20 (56) | |
Communication with patient | 12 (33) | |
Stimulating/appropriate activities | 13 (36) | |
Caregiver training | 16 (44) | |
Other needs | ||
Environmental Safety (material, device), supervision | 18 (50) | |
Incontinence | 6 (17) | |
Caregiver general health | 8 (22) | |
Medication management | 7 (19) | |
Sexuality/Intimacy | 5 (14) |