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Zeitschrift

Pediatric Rheumatology

Pediatric Rheumatology 1/2019

Ausgabe 1/2019

Inhaltsverzeichnis ( 54 Artikel )

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Kawasaki disease shock syndrome: clinical characteristics and possible use of IL-6, IL-10 and IFN-γ as biomarkers for early recognition

Yandie Li, Qi Zheng, Lixia Zou, Jianqiang Wu, Li Guo, Liping Teng, Rongjun Zheng, Lawrence Kwok Leung Jung, Meiping Lu

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

The effectiveness of a multidisciplinary intervention strategy for the treatment of symptomatic joint hypermobility in childhood: a randomised, single Centre parallel group trial (The Bendy Study)

Peter Bale, Vicky Easton, Holly Bacon, Emma Jerman, Laura Watts, Garry Barton, Allan Clark, Kate Armon, Alex J. MacGregor

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

Coronary artery dilation associated with anti-synthetase syndrome in an adolescent

Karim Asi, Anand Gourishankar, Ankur Kamdar

01.12.2019 | Review | Ausgabe 1/2019 Open Access

The effects of TNF-alpha inhibitor therapy on the incidence of infection in JIA children: a meta-analysis

Arnold Nagy, Péter Mátrai, Péter Hegyi, Hussain Alizadeh, Judit Bajor, László Czopf, Zoltán Gyöngyi, Zoltán Kiss, Katalin Márta, Mária Simon, Ágnes Lilla Szilágyi, Gábor Veres, Bernadett Mosdósi

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

The pediatric rheumatology objective structured clinical examination: progressing from a homegrown effort toward a reliable and valid national formative assessment

Megan L. Curran, Emma E. Martin, Erin C. Thomas, Rashmi Singh, Saima Armana, Asnia Kauser, Eesha A. Zaheer, David D. Sherry

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Participation in school sports among children and adolescents with juvenile idiopathic arthritis in the German National Paediatric Rheumatologic Database, 2000–2015: results from a prospective observational cohort study

Florian Milatz, Jens Klotsche, Martina Niewerth, Nils Geisemeyer, Ralf Trauzeddel, Elisabeth Weißbarth-Riedel, Tilmann Kallinich, Joachim Peitz, Matthias Hartmann, Kirsten Minden

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Calm in the midst of cytokine storm: a collaborative approach to the diagnosis and treatment of hemophagocytic lymphohistiocytosis and macrophage activation syndrome

Olha Halyabar, Margaret H. Chang, Michelle L. Schoettler, Marc A. Schwartz, Ezgi H. Baris, Leslie A. Benson, Catherine M. Biggs, Mark Gorman, Leslie Lehmann, Mindy S. Lo, Peter A. Nigrovic, Craig D. Platt, Gregory P. Priebe, Jared Rowe, Robert P. Sundel, Neeraj K. Surana, Katja G. Weinacht, Alison Mann, Jenny Chan Yuen, Patricia Meleedy-Rey, Amy Starmer, Taruna Banerjee, Fatma Dedeoglu, Barbara A. Degar, Melissa M. Hazen, Lauren A. Henderson

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

Pediatric anti-NMDA receptor encephalitis with catatonia: treatment with electroconvulsive therapy

Taha Moussa, Khalid Afzal, Joseph Cooper, Ryan Rosenberger, Karyn Gerstle, Linda Wagner-Weiner

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Development and pilot testing of the treatment and education approach for childhood-onset lupus (TEACH): a cognitive behavioral treatment

Natoshia R. Cunningham, Lauren M. Fussner, Erin Moorman, Pinar O. Avar Aydin, Hermine I. Brunner, Susmita Kashikar-Zuck

01.12.2019 | Review | Ausgabe 1/2019 Open Access

Different histological classifications for Henoch-Schönlein purpura nephritis: which one should be used?

Marija Jelusic, Mario Sestan, Rolando Cimaz, Seza Ozen

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Efficacy and cost savings with the use of a minimal sedation / anxiolysis protocol for intra-articular corticosteroid injections in children with juvenile idiopathic arthritis: a retrospective review of prospectively collected data

Rotem Elitsur, April Hollenbeck, Laura Tasan, Kathryn S. Torok, Elaine Cassidy, Brian Blasiole, Erika Parsons, Chelsea Acock, Joseph Angelelli, Isabela-Cajiao Angelelli

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Screening of asymptomatic rheumatic heart disease among refugee/migrant children and youths in Italy

Fortunata Condemi, Gabriele Rossi, Miguel Lupiz, Antonio Pagano, Federica Zamatto, Stefano Marini, Francesco Romeo, Gianfranco De Maio

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Increase expression of CD177 in Kawasaki disease

Ying-Hsien Huang, Mao-Hung Lo, Xin-Yuan Cai, Shih-Feng Liu, Ho-Chang Kuo

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Measurement properties and performance of an eight-minute submaximal treadmill test in patients with juvenile idiopathic arthritis: a controlled study

Kristine Risum, Elisabeth Edvardsen, Anne M. Selvaag, Hanne Dagfinrud, Helga Sanner

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Clinical features and characteristics of uveitis associated with juvenile idiopathic arthritis in Japan: first report of the pediatric rheumatology association of Japan (PRAJ)

Junko Yasumura, Masato Yashiro, Nami Okamoto, Kosuke Shabana, Hiroaki Umebayashi, Naomi Iwata, Yuka Okura, Tomohiro Kubota, Masaki Shimizu, Minako Tomiita, Yasuo Nakagishi, Kenichi Nishimura, Ryoki Hara, Mao Mizuta, Takahiro Yasumi, Fumiya Yamaide, Hiroyuki Wakiguchi, Masao Kobayashi, Masaaki Mori

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

A qualitative study examining the validity and comprehensibility of physical activity items: developed and tested in children with juvenile idiopathic arthritis

August Flodén, Eva W. Broström, Johan von Heideken, Sara Rostlund, Rikard Nilsson, Kristina Löwing, Maura D. Iversen

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Intravenous abatacept in Japanese patients with polyarticular-course juvenile idiopathic arthritis: results from a phase III open-label study

Ryoki Hara, Hiroaki Umebayashi, Syuji Takei, Nami Okamoto, Naomi Iwata, Yuichi Yamasaki, Yasuo Nakagishi, Toshitaka Kizawa, Ichiro Kobayashi, Tomoyuki Imagawa, Noriko Kinjo, Norihito Amano, Yoko Takahashi, Masaaki Mori, Yasuhiko Itoh, Shumpei Yokota

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

Disease course and treatment effects of a JAK inhibitor in a patient with CANDLE syndrome

M. Boyadzhiev, L. Marinov, V. Boyadzhiev, V. Iotova, I. Aksentijevich, S. Hambleton

01.12.2019 | Review | Ausgabe 1/2019 Open Access

Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Michelle M. A. Kip, Gillian Currie, Deborah A. Marshall, Luiza Grazziotin Lago, Marinka Twilt, Sebastiaan J. Vastert, Joost F. Swart, Nico Wulffraat, Rae S. M. Yeung, Susanne M. Benseler, Maarten J. IJzerman, on behalf of the UCAN CAN-DU Health Economics Working Group

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Patient-proxy agreement on health-related quality of life in juvenile fibromyalgia syndrome

Sabrina Gmuca, Rui Xiao, David D. Sherry

01.12.2019 | Review | Ausgabe 1/2019 Open Access

Periodic fever syndromes: beyond the single gene paradigm

Clara Westwell-Roper, Iwona Niemietz, Lori B. Tucker, Kelly L. Brown

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Development of a benchmarking toolkit for adolescent and young adult rheumatology services (BeTAR)

Ran A. Cai, Hema Chaplin, Polly Livermore, Martin Lee, Debajit Sen, Lucy R. Wedderburn, Nick Wilkinson, Rachel Jeffery, Andrea Kempa, Imogen Norton, Rachel Tattersall, Yiannis Ioannou, Despina Eleftheriou

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

The PRINTO evidence-based proposal for glucocorticoids tapering/discontinuation in new onset juvenile dermatomyositis patients

Gabriella Giancane, Claudio Lavarello, Angela Pistorio, Sheila K. Oliveira, Francesco Zulian, Ruben Cuttica, Michel Fischbach, Bo Magnusson, Serena Pastore, Roberto Marini, Silvana Martino, Anne Pagnier, Christine Soler, Valda Staņēvicha, Rebecca Ten Cate, Yosef Uziel, Jelena Vojinovic, Elena Fueri, Angelo Ravelli, Alberto Martini, Nicolino Ruperto, for the Paediatric Rheumatology International Trials Organisation (PRINTO)

01.12.2019 | Short Report | Ausgabe 1/2019 Open Access

An unusual presentation of purine nucleoside phosphorylase deficiency mimicking systemic juvenile idiopathic arthritis complicated by macrophage activation syndrome

Alessia Arduini, Emiliano Marasco, Giulia Marucci, Manuela Pardeo, Antonella Insalaco, Ivan Caiello, Gian Marco Moneta, Giusi Prencipe, Fabrizio De Benedetti, Claudia Bracaglia

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

A delayed diagnosis of eosinophilic granulomatosis with polyangiitis complicated with extensive artery occlusion of lower extremities in children: case report and literature review

Xiaoliang Liu, Lin Wang, Kaiyu Zhou, Yimin Hua, Xiaoqing Shi, Chuan Wang

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Efficacy and safety of duloxetine versus placebo in adolescents with juvenile fibromyalgia: results from a randomized controlled trial

Himanshu P. Upadhyaya, Lesley M. Arnold, Karla Alaka, Meihua Qiao, David Williams, Renata Mehta

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Relapsing periodic arthritis, palindromic rheumatism and MEFV gene-related variants alleles in children

Farhad Salehzadeh, Manuchehr Barak, Roghayeh Nematdoust Haghi

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

Early administration of adalimumab for paediatric uveitis due to Behçet’s disease

Tomona Hiyama, Yosuke Harada, Takehiko Doi, Yoshiaki Kiuchi

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Being on the juvenile dermatomyositis rollercoaster: a qualitative study

Polly Livermore, Suzanne Gray, Kathleen Mulligan, Jennifer N. Stinson, Lucy R. Wedderburn, Faith Gibson

01.12.2019 | Review | Ausgabe 1/2019 Open Access

Hallmark trials in ANCA-associated vasculitis (AAV) for the pediatric rheumatologist

Jennifer J. Y. Lee, Alhanouf Alsaleem, Grace P. K. Chiang, Elizaveta Limenis, Watchareewan Sontichai, Rae S. M. Yeung, Jonathan Akikusa, Ronald M. Laxer

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Research priorities in childhood-onset lupus: results of a multidisciplinary prioritization exercise

Stacy P. Ardoin, R Paola Daly, Lyna Merzoug, Karin Tse, Kaveh Ardalan, Lisa Arkin, Andrea Knight, Tamar Rubinstein, Natasha Ruth, Scott E. Wenderfer, Aimee O. Hersh, on behalf of the Childhood Arthritis and Rheumatology Research Alliance and Lupus Foundation of America

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Heavy metals in fish and its association with autoimmunity in the development of juvenile idiopathic arthritis: a prospective birth cohort study

Erik Kindgren, Carlos Guerrero-Bosagna, Johnny Ludvigsson

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

A low-frequency IL4R locus variant in Japanese patients with intravenous immunoglobulin therapy-unresponsive Kawasaki disease

Yuji Amano, Yohei Akazawa, Jun Yasuda, Kazuhisa Yoshino, Katsuhiko Kojima, Norimoto Kobayashi, Satoshi Matsuzaki, Masao Nagasaki, Yosuke Kawai, Naoko Minegishi, Noriko Ishida, Noriko Motoki, Akira Hachiya, Yozo Nakazawa, Masayuki Yamamoto, Kenichi Koike, Toshikazu Takeshita

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Efficacy of pamidronate in children with chronic non-bacterial osteitis using whole body MRI as a marker of disease activity

C. S. Bhat, M. Roderick, E. S. Sen, A. Finn, A. V. Ramanan

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Retrospective case series describing the efficacy, safety and cost-effectiveness of a vial-sharing programme for canakinumab treatment for paediatric patients with cryopyrin-associated periodic syndrome

Abdulkadir A. Elmi, Karen Wynne, Iek L. Cheng, Despina Eleftheriou, Helen J. Lachmann, Philip N. Hawkins, Paul Brogan

01.12.2019 | Review | Ausgabe 1/2019 Open Access

Scoping review of biological treatment of deficiency of interleukin-36 receptor antagonist (DITRA) in children and adolescents

Toni Hospach, Fabian Glowatzki, Friederike Blankenburg, Dennis Conzelmann, Christian Stirnkorb, Chris Sandra Müllerschön, Peter von den Driesch, Lisa Maria Köhler, Meino Rohlfs, Christoph Klein, Fabian Hauck

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

Whole exome sequencing approach to childhood onset familial erythrodermic psoriasis unravels a novel mutation of CARD14 requiring unusual high doses of ustekinumab

S. Signa, E. Campione, M. Rusmini, S. Chiesa, A. Grossi, A. Omenetti, R. Caorsi, G. M. Viglizzo, M. Galluzzo, L. Bianchi, M. Talamonti, A. Orlandi, A. Martini, I. Ceccherini, M. Gattorno

01.12.2019 | Case Report | Ausgabe 1/2019 Open Access

Testicular ischemia in deficiency of adenosine deaminase 2 (DADA2)

Katherine Clarke, Cathy Campbell, Ebun Omoyinmi, Ying Hong, Muthana Al Obaidi, Neil Sebire, Paul A. Brogan

01.12.2019 | Review | Ausgabe 1/2019 Open Access

Defining outcome measures in juvenile idiopathic arthritis associated uveitis by a systematic review analysis: do we need a consensus?

Greta Mastrangelo, Ivan Foeldvari, Jordi Anton, Gabriele Simonini

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Plasma exosomes from children with juvenile dermatomyositis are taken up by human aortic endothelial cells and are associated with altered gene expression in those cells

Kaiyu Jiang, Rie Karasawa, Zihua Hu, Yanmin Chen, Lucy Holmes, Kathleen M. O’Neil, James N. Jarvis

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Retrospective review of immobilization vs. immediate resumption of activity in patients with Oligoarticular juvenile idiopathic arthritis following knee injections

Elaine R. Flanagan, Heather Benham, Janet Figueroa, Janille Diaz, Jenna Tress, David D. Sherry

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study

Suzanne C. Li, Robert C. Fuhlbrigge, Ronald M. Laxer, Elena Pope, Maria F. Ibarra, Katie Stewart, Thomas Mason II, Mara L. Becker, Sandy Hong, Fatma Dedeoglu, Kathryn S. Torok, C. Egla Rabinovich, Polly J. Ferguson, Marilynn Punaro, Brian M. Feldman, Tracy Andrews, Gloria C. Higgins, For the CARRA Registry Investigators

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Participation in school and physical education in juvenile idiopathic arthritis in a Nordic long-term cohort study

Ellen Nordal, Veronika Rypdal, Ellen Dalen Arnstad, Kristiina Aalto, Lillemor Berntson, Maria Ekelund, Anders Fasth, Mia Glerup, Troels Herlin, Susan Nielsen, Suvi Peltoniemi, Marek Zak, Nils Thomas Songstad, Marite Rygg, for the Nordic Study Group of Pediatric Rheumatology (NoSPeR)

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Physical activity and health-related quality of life in chronic non-bacterial osteomyelitis

Nentwich Julia, Ruf Katharina, Girschick Hermann, Holl-Wieden Annette, Morbach Henner, Hebestreit Helge, Hofmann Christine

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Association between maternal age and outcomes in Kawasaki disease patients

Wei-Dong Huang, Yu-Ting Lin, Zi-Yu Tsai, Ling-Sai Chang, Shih-Feng Liu, Yi-Ju Lin, Ho-Chang Kuo

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

TNF blockade contributes to restore lipid oxidation during exercise in children with juvenile idiopathic arthritis

Emmanuelle Rochette, Pierre Bourdier, Bruno Pereira, Eric Doré, Anthony Birat, Sébastien Ratel, Stéphane Echaubard, Pascale Duché, Etienne Merlin

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Physician practices for withdrawal of medications in inactive systemic juvenile arthritis, Childhood Arthritis and Rheumatology Research Alliance (CARRA) survey

Susan Shenoi, Kabita Nanda, Grant S. Schulert, John F. Bohnsack, Ashley M. Cooper, Bridget Edghill, Miriah C. Gillispie-Taylor, Baruch Goldberg, Olha Halyabar, Thomas G. Mason, Tova Ronis, Rayfel Schneider, Richard K. Vehe, Karen Onel, for the Childhood Arthritis and Rheumatology Research Alliance Systemic Juvenile Idiopathic Arthritis Workgroup

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Chronic non-bacterial osteomyelitis: a comparative study between children and adults

Andrea Skrabl-Baumgartner, Peter Singer, Theresa Greimel, Gregor Gorkiewicz, Josef Hermann

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

A prediction rule for lack of achievement of inactive disease with methotrexate as the sole disease-modifying antirheumatic therapy in juvenile idiopathic arthritis

Cecilia Bava, Federica Mongelli, Angela Pistorio, Marta Bertamino, Giulia Bracciolini, Sara Dalprà, Sergio Davì, Stefano Lanni, Valentina Muratore, Silvia Pederzoli, Silvia Rosina, Benedetta Schiappapietra, Chiara Suffia, Giulia Varnier, Sara Verazza, Gabriella Giancane, Alessandro Consolaro, Angelo Ravelli

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Demographic, clinical, and treatment characteristics of the juvenile primary fibromyalgia syndrome cohort enrolled in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry

Jenifer E. Weiss, Kenneth N. Schikler, Alexis D. Boneparth, Mark Connelly, For the CARRA Registry Investigators

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

Whole exome sequencing in childhood-onset lupus frequently detects single gene etiologies

Irit Tirosh, Shiri Spielman, Ortal Barel, Reut Ram, Tali Stauber, Gideon Paret, Marina Rubinsthein, Itai M. Pessach, Maya Gerstein, Yair Anikster, Rachel Shukrun, Adi Dagan, Katerina Adler, Ben Pode-Shakked, Alexander Volkov, Marina Perelman, Shoshana Greenberger, Raz Somech, Einat Lahav, Amar J. Majmundar, Shai Padeh, Friedhelm Hildebrandt, Asaf Vivante

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

The time option of IVIG treatment is associated with therapeutic responsiveness and coronary artery abnormalities but not with clinical classification in the acute episode of Kawasaki disease

Sama Samadli, Fei Fei Liu, Goshgar Mammadov, Jing Jing Wang, Hui Hui Liu, Yang Fang Wu, Huang Huang Luo, Yue Wu, Wei Xia Chen, Dong Dong Zhang, Wei Wei, Peng Hu

01.12.2019 | Letter to the Editor | Ausgabe 1/2019 Open Access

A UK study: vocational experiences of young adults with juvenile idiopathic arthritis

Laura E. Lunt, Ailsa Bosworth, Matthew Bezzant, Karen Walker-Bone, Kimme L. Hyrich, Wendy Thomson, Janet E. McDonagh, Suzanne M. M. Verstappen

01.12.2019 | Research article | Ausgabe 1/2019 Open Access

RAS-associated Autoimmune Leukoproliferative disease (RALD) manifested with early-onset SLE-like syndrome: a case series of RALD in Chinese children

Wei Wang, Yu Zhou, Linqing Zhong, Lin Wang, Xiaoyan Tang, Mingsheng Ma, Ji Li, Hongmei Song

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