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Erschienen in: coloproctology 4/2023

06.06.2023 | Enterostoma | Stoma- und Wundmanagement

Lebensqualität von Stomapatienten

verfasst von: Prof. Dr. med. Michael S. Kasparek

Erschienen in: coloproctology | Ausgabe 4/2023

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Zusammenfassung

Die Anlage eines Stomas führt häufig zu einer Verschlechterung der Lebensqualität. Verschiedene patienten-, krankheits- und stomaassoziierte Faktoren spielen hierbei eine Rolle, deren Kenntnis für die Identifizierung und Betreuung von Patienten notwendig ist, deren Lebensqualität durch die Anlage eines Stomas gefährdet ist. Andererseits kann die Stomaanlage in manchen Situationen auch zu einer Verbesserung der Lebensqualität führen. Diese Übersichtsarbeit gibt einen aktuellen Überblick über die Datenlage.
Literatur
1.
Zurück zum Zitat Pittman J, Kozell K, Gray M (2009) Should WOC nurses measure health-related quality of life in patients undergoing intestinal ostomy surgery? J Wound Ostomy Continence Nurs 36:254–265PubMed Pittman J, Kozell K, Gray M (2009) Should WOC nurses measure health-related quality of life in patients undergoing intestinal ostomy surgery? J Wound Ostomy Continence Nurs 36:254–265PubMed
2.
Zurück zum Zitat Krouse R, Grant M, Ferrell B et al (2007) Quality of life outcomes in 599 cancer and non-cancer patients with colostomies. J Surg Res 138:79–87PubMed Krouse R, Grant M, Ferrell B et al (2007) Quality of life outcomes in 599 cancer and non-cancer patients with colostomies. J Surg Res 138:79–87PubMed
3.
Zurück zum Zitat Siassi M, Weiss M, Hohenberger W et al (2009) Personality rather than clinical variables determines quality of life after major colorectal surgery. Dis Colon Rectum 52:662–668PubMed Siassi M, Weiss M, Hohenberger W et al (2009) Personality rather than clinical variables determines quality of life after major colorectal surgery. Dis Colon Rectum 52:662–668PubMed
4.
Zurück zum Zitat Morris A, Leach B (2017) A qualitative exploration of the lived experiences of patients before and after Ileostomy creation as a result of surgical management for Crohn’s disease. Ostomy Wound Manage 63:34–39PubMed Morris A, Leach B (2017) A qualitative exploration of the lived experiences of patients before and after Ileostomy creation as a result of surgical management for Crohn’s disease. Ostomy Wound Manage 63:34–39PubMed
5.
Zurück zum Zitat Kasparek MS, Glatzle J, Temeltcheva T et al (2007) Long-term quality of life in patients with Crohn’s disease and perianal fistulas: influence of fecal diversion. Dis Colon Rectum 50:2067–2074PubMed Kasparek MS, Glatzle J, Temeltcheva T et al (2007) Long-term quality of life in patients with Crohn’s disease and perianal fistulas: influence of fecal diversion. Dis Colon Rectum 50:2067–2074PubMed
6.
Zurück zum Zitat Kasparek MS, Jauch KW (2010) Stoma creation during low anterior resection: the cons. Chirurg 81:968–973PubMed Kasparek MS, Jauch KW (2010) Stoma creation during low anterior resection: the cons. Chirurg 81:968–973PubMed
7.
Zurück zum Zitat Sakai Y, Nelson H, Larson D et al (2001) Temporary transverse colostomy vs loop ileostomy in diversion: a case-matched study. Arch Surg 136:338–342PubMed Sakai Y, Nelson H, Larson D et al (2001) Temporary transverse colostomy vs loop ileostomy in diversion: a case-matched study. Arch Surg 136:338–342PubMed
8.
Zurück zum Zitat Tsunoda A, Tsunoda Y, Narita K et al (2008) Quality of life after low anterior resection and temporary loop ileostomy. Dis Colon Rectum 51:218–222PubMed Tsunoda A, Tsunoda Y, Narita K et al (2008) Quality of life after low anterior resection and temporary loop ileostomy. Dis Colon Rectum 51:218–222PubMed
9.
Zurück zum Zitat Neuman HB, Park J, Fuzesi S et al (2012) Rectal cancer patients’ quality of life with a temporary stoma: shifting perspectives. Dis Colon Rectum 55:1117–1124PubMed Neuman HB, Park J, Fuzesi S et al (2012) Rectal cancer patients’ quality of life with a temporary stoma: shifting perspectives. Dis Colon Rectum 55:1117–1124PubMed
10.
Zurück zum Zitat Herrle F, Sandra-Petrescu F, Weiss C et al (2016) Quality of life and timing of stoma closure in patients with rectal cancer undergoing low anterior resection with diverting stoma: a multicenter longitudinal observational study. Dis Colon Rectum 59:281–290PubMed Herrle F, Sandra-Petrescu F, Weiss C et al (2016) Quality of life and timing of stoma closure in patients with rectal cancer undergoing low anterior resection with diverting stoma: a multicenter longitudinal observational study. Dis Colon Rectum 59:281–290PubMed
11.
Zurück zum Zitat Camilleri-Brennan J, Steele RJ (2002) Prospective analysis of quality of life after reversal of a defunctioning loop ileostomy. Colorectal Dis 4:167–171PubMed Camilleri-Brennan J, Steele RJ (2002) Prospective analysis of quality of life after reversal of a defunctioning loop ileostomy. Colorectal Dis 4:167–171PubMed
12.
Zurück zum Zitat Siassi M, Hohenberger W, Lösel F et al (2008) Quality of life and patient’s expectations after closure of a temporary stoma. Int J Colorectal Dis 23:1207–1212PubMed Siassi M, Hohenberger W, Lösel F et al (2008) Quality of life and patient’s expectations after closure of a temporary stoma. Int J Colorectal Dis 23:1207–1212PubMed
13.
Zurück zum Zitat Keane C, Park J, Öberg S et al (2019) Functional outcomes from a randomized trial of early closure of temporary ileostomy after rectal excision for cancer. Br J Surg 106:645–652PubMed Keane C, Park J, Öberg S et al (2019) Functional outcomes from a randomized trial of early closure of temporary ileostomy after rectal excision for cancer. Br J Surg 106:645–652PubMed
14.
Zurück zum Zitat Vogel I, Reeves N, Tanis PJ et al (2021) Impact of a defunctioning ileostomy and time to stoma closure on bowel function after low anterior resection for rectal cancer: a systematic review and meta-analysis. Tech Coloproctol 25:751–760PubMedPubMedCentral Vogel I, Reeves N, Tanis PJ et al (2021) Impact of a defunctioning ileostomy and time to stoma closure on bowel function after low anterior resection for rectal cancer: a systematic review and meta-analysis. Tech Coloproctol 25:751–760PubMedPubMedCentral
15.
Zurück zum Zitat Keane C, Fearnhead NS, Bordeianou L et al (2020) International consensus definition of low anterior resection syndrome. Colorectal Dis 22:331–341PubMed Keane C, Fearnhead NS, Bordeianou L et al (2020) International consensus definition of low anterior resection syndrome. Colorectal Dis 22:331–341PubMed
16.
Zurück zum Zitat Park J, Danielsen AK, Angenete E et al (2018) Quality of life in a randomized trial of early closure of temporary ileostomy after rectal resection for cancer (EASY trial). Br J Surg 105:244–251PubMed Park J, Danielsen AK, Angenete E et al (2018) Quality of life in a randomized trial of early closure of temporary ileostomy after rectal resection for cancer (EASY trial). Br J Surg 105:244–251PubMed
17.
Zurück zum Zitat Lee KH, Kim HO, Kim JS et al (2019) Prospective study on the safety and feasibility of early ileostomy closure 2 weeks after lower anterior resection for rectal cancer. Ann Surg Treat Res 96:41–46PubMed Lee KH, Kim HO, Kim JS et al (2019) Prospective study on the safety and feasibility of early ileostomy closure 2 weeks after lower anterior resection for rectal cancer. Ann Surg Treat Res 96:41–46PubMed
18.
Zurück zum Zitat Park YY, Yang SY, Han YD et al (2019) Predictive factors for bowel dysfunction after sphincter-preserving surgery for rectal cancer: a single-center cross-sectional study. Dis Colon Rectum 62:925–933PubMed Park YY, Yang SY, Han YD et al (2019) Predictive factors for bowel dysfunction after sphincter-preserving surgery for rectal cancer: a single-center cross-sectional study. Dis Colon Rectum 62:925–933PubMed
19.
Zurück zum Zitat Keane C, Sharma P, Yuan L et al (2020) Impact of temporary ileostomy on long-term quality of life and bowel function: a systematic review and meta-analysis. ANZ J Surg 90:687–692PubMed Keane C, Sharma P, Yuan L et al (2020) Impact of temporary ileostomy on long-term quality of life and bowel function: a systematic review and meta-analysis. ANZ J Surg 90:687–692PubMed
20.
Zurück zum Zitat Clausen FB, Dohrn N, Hölmich ER et al (2021) Safety of early ileostomy closure: a systematic review and meta-analysis of randomized controlled trials. Int J Colorectal Dis 36:203–212PubMed Clausen FB, Dohrn N, Hölmich ER et al (2021) Safety of early ileostomy closure: a systematic review and meta-analysis of randomized controlled trials. Int J Colorectal Dis 36:203–212PubMed
21.
Zurück zum Zitat Hajibandeh S, Hajibandeh S, Sarma DR et al (2019) Meta-analysis of temporary loop ileostomy closure during or after adjuvant chemotherapy following rectal cancer resection: the dilemma remains. Int J Colorectal Dis 34:1151–1159PubMed Hajibandeh S, Hajibandeh S, Sarma DR et al (2019) Meta-analysis of temporary loop ileostomy closure during or after adjuvant chemotherapy following rectal cancer resection: the dilemma remains. Int J Colorectal Dis 34:1151–1159PubMed
22.
Zurück zum Zitat Collaborative DCR (2021) Factors impacting time to ileostomy closure after anterior resection: the UK closure of ileostomy timing cohort study (CLOSE-IT). Colorectal Dis 23:1109–1119 Collaborative DCR (2021) Factors impacting time to ileostomy closure after anterior resection: the UK closure of ileostomy timing cohort study (CLOSE-IT). Colorectal Dis 23:1109–1119
23.
Zurück zum Zitat Elsner AT, Brosi P, Walensi M et al (2021) Closure of temporary Ileostomy 2 versus 12 weeks after rectal resection for cancer: a word of caution from a prospective, randomized controlled multicenter trial. Dis Colon Rectum 64:1398–1406PubMedPubMedCentral Elsner AT, Brosi P, Walensi M et al (2021) Closure of temporary Ileostomy 2 versus 12 weeks after rectal resection for cancer: a word of caution from a prospective, randomized controlled multicenter trial. Dis Colon Rectum 64:1398–1406PubMedPubMedCentral
24.
Zurück zum Zitat Denost Q, Sylla D, Fleming C et al (2023) A phase III randomized trial evaluating the quality of life impact of a tailored versus systematic use of defunctioning ileostomy following total mesorectal excision for rectal cancer-GRECCAR 17 trial protocol. Colorectal Dis 25:443–452PubMed Denost Q, Sylla D, Fleming C et al (2023) A phase III randomized trial evaluating the quality of life impact of a tailored versus systematic use of defunctioning ileostomy following total mesorectal excision for rectal cancer-GRECCAR 17 trial protocol. Colorectal Dis 25:443–452PubMed
25.
Zurück zum Zitat Huang MA‑O, Ye LA‑O, Yu KX et al (2023) Development of prediction model of low anterior resection syndrome for colorectal cancer patients after surgery based on machine-learning technique. Cancer Med 12(2):1501–1519. https://doi.org/10.1002/cam4.5041. Epub 2022 Jul 28 Huang MA‑O, Ye LA‑O, Yu KX et al (2023) Development of prediction model of low anterior resection syndrome for colorectal cancer patients after surgery based on machine-learning technique. Cancer Med 12(2):1501–1519. https://​doi.​org/​10.​1002/​cam4.​5041. Epub 2022 Jul 28
27.
Zurück zum Zitat He SA‑O, Zhang J, Wang R et al (2022) Impact of long-course neoadjuvant radiation on postoperative low anterior resection syndrome and stoma status in rectal cancer: long-term functional follow-up of a randomized clinical trial. BJS Open 6(6):zrac127. https://doi.org/10.1093/bjsopen/zrac127 He SA‑O, Zhang J, Wang R et al (2022) Impact of long-course neoadjuvant radiation on postoperative low anterior resection syndrome and stoma status in rectal cancer: long-term functional follow-up of a randomized clinical trial. BJS Open 6(6):zrac127. https://​doi.​org/​10.​1093/​bjsopen/​zrac127
28.
Zurück zum Zitat Varghese C, Wells CI, O’Grady G et al (2022) The longitudinal course of low-anterior resection syndrome: an individual patient meta-analysis. Ann Surg 276(1):46–54PubMed Varghese C, Wells CI, O’Grady G et al (2022) The longitudinal course of low-anterior resection syndrome: an individual patient meta-analysis. Ann Surg 276(1):46–54PubMed
29.
Zurück zum Zitat Kasparek MS, Hassan I, Cima RR et al (2011) Quality of life after coloanal anastomosis and abdominoperineal resection for distal rectal cancers: sphincter preservation vs quality of life. Colorectal Dis 13:872–877PubMed Kasparek MS, Hassan I, Cima RR et al (2011) Quality of life after coloanal anastomosis and abdominoperineal resection for distal rectal cancers: sphincter preservation vs quality of life. Colorectal Dis 13:872–877PubMed
30.
Zurück zum Zitat Cornish JA, Tilney HS, Heriot AG et al (2007) A meta-analysis of quality of life for abdominoperineal excision of rectum versus anterior resection for rectal cancer. Ann Surg Oncol 14:2056–2068PubMed Cornish JA, Tilney HS, Heriot AG et al (2007) A meta-analysis of quality of life for abdominoperineal excision of rectum versus anterior resection for rectal cancer. Ann Surg Oncol 14:2056–2068PubMed
31.
Zurück zum Zitat Pachler J, Wille-Jorgensen P (2012) Quality of life after rectal resection for cancer, with or without permanent colostomy. Cochrane Database Syst Rev 12:CD4323PubMed Pachler J, Wille-Jorgensen P (2012) Quality of life after rectal resection for cancer, with or without permanent colostomy. Cochrane Database Syst Rev 12:CD4323PubMed
32.
Zurück zum Zitat Algie JPA, van Kooten RT, Tollenaar R et al (2022) Stoma versus anastomosis after sphincter-sparing rectal cancer resection; the impact on health-related quality of life. Int J Colorectal Dis 37:2197–2205PubMedPubMedCentral Algie JPA, van Kooten RT, Tollenaar R et al (2022) Stoma versus anastomosis after sphincter-sparing rectal cancer resection; the impact on health-related quality of life. Int J Colorectal Dis 37:2197–2205PubMedPubMedCentral
34.
Zurück zum Zitat Krogsgaard M, Kristensen HO, Furnee EJB et al (2022) Life with a stoma across five European countries—A cross-sectional study on long-term rectal cancer survivors. Support Care Cancer 30:8969–8979PubMed Krogsgaard M, Kristensen HO, Furnee EJB et al (2022) Life with a stoma across five European countries—A cross-sectional study on long-term rectal cancer survivors. Support Care Cancer 30:8969–8979PubMed
35.
Zurück zum Zitat Kent DJ, Arnold Long M, Bauer C (2015) Revisiting colostomy irrigation: a viable option for persons with permanent descending and sigmoid colostomies. J Wound Ostomy Continence Nurs 42:162–164PubMed Kent DJ, Arnold Long M, Bauer C (2015) Revisiting colostomy irrigation: a viable option for persons with permanent descending and sigmoid colostomies. J Wound Ostomy Continence Nurs 42:162–164PubMed
36.
Zurück zum Zitat Boutry E, Bertrand MM, Ripoche J et al (2021) Quality of life in colostomy patients practicing colonic irrigation: An observational study. J Visc Surg 158:4–10PubMed Boutry E, Bertrand MM, Ripoche J et al (2021) Quality of life in colostomy patients practicing colonic irrigation: An observational study. J Visc Surg 158:4–10PubMed
37.
Zurück zum Zitat Jansen F, van Uden-Kraan CF, Braakman JA et al (2015) A mixed-method study on the generic and ostomy-specific quality of life of cancer and non-cancer ostomy patients. Support Care Cancer 23:1689–1697PubMed Jansen F, van Uden-Kraan CF, Braakman JA et al (2015) A mixed-method study on the generic and ostomy-specific quality of life of cancer and non-cancer ostomy patients. Support Care Cancer 23:1689–1697PubMed
38.
Zurück zum Zitat Abdalla MI, Sandler RS, Kappelman MD et al (2016) The impact of ostomy on quality of life and functional status of Crohn’s disease patients. Inflamm Bowel Dis 22:2658–2664PubMed Abdalla MI, Sandler RS, Kappelman MD et al (2016) The impact of ostomy on quality of life and functional status of Crohn’s disease patients. Inflamm Bowel Dis 22:2658–2664PubMed
39.
Zurück zum Zitat Bianchi R, Mamadou-Pathe B, von Kanel R et al (2022) Effect of closed and permanent stoma on disease course, psychological well-being and working capacity in Swiss IBD cohort study patients. PLoS ONE 17:e274665PubMedPubMedCentral Bianchi R, Mamadou-Pathe B, von Kanel R et al (2022) Effect of closed and permanent stoma on disease course, psychological well-being and working capacity in Swiss IBD cohort study patients. PLoS ONE 17:e274665PubMedPubMedCentral
40.
Zurück zum Zitat Mahadev S, Young JM, Selby W et al (2012) Self-reported depressive symptoms and suicidal feelings in perianal Crohn’s disease. Colorectal Dis 14:331–335PubMed Mahadev S, Young JM, Selby W et al (2012) Self-reported depressive symptoms and suicidal feelings in perianal Crohn’s disease. Colorectal Dis 14:331–335PubMed
41.
Zurück zum Zitat Knowles SR, Wilson J, Wilkinson A et al (2013) Psychological well-being and quality of life in Crohn’s disease patients with an ostomy: a preliminary investigation. J Wound Ostomy Continence Nurs 40:623–629PubMed Knowles SR, Wilson J, Wilkinson A et al (2013) Psychological well-being and quality of life in Crohn’s disease patients with an ostomy: a preliminary investigation. J Wound Ostomy Continence Nurs 40:623–629PubMed
42.
Zurück zum Zitat Donnelly M, Ryan OK, Ryan ÉJ et al (2023) Comparison of restorative proctocolectomy with and without defunctioning loop ileostomy in patients with ulcerative colitis—A systematic review and meta-analysis. J Crohns Colitis. J Crohns Colitis jjad021. https://doi.org/10.1093/ecco-jcc/jjad021. Online ahead of print Donnelly M, Ryan OK, Ryan ÉJ et al (2023) Comparison of restorative proctocolectomy with and without defunctioning loop ileostomy in patients with ulcerative colitis—A systematic review and meta-analysis. J Crohns Colitis. J Crohns Colitis jjad021. https://​doi.​org/​10.​1093/​ecco-jcc/​jjad021. Online ahead of print
43.
Zurück zum Zitat Heikens JT, de Vries J, Goos MR et al (2012) Quality of life and health status before and after ileal pouch-anal anastomosis for ulcerative colitis. Br J Surg 99:263–269PubMed Heikens JT, de Vries J, Goos MR et al (2012) Quality of life and health status before and after ileal pouch-anal anastomosis for ulcerative colitis. Br J Surg 99:263–269PubMed
44.
Zurück zum Zitat Koerdt S, Jehle EC, Kreis ME et al (2014) Quality of life after proctocolectomy and ileal pouch-anal anastomosis in patients with ulcerative colitis. Int J Colorectal Dis 29:545–554PubMed Koerdt S, Jehle EC, Kreis ME et al (2014) Quality of life after proctocolectomy and ileal pouch-anal anastomosis in patients with ulcerative colitis. Int J Colorectal Dis 29:545–554PubMed
45.
Zurück zum Zitat Kuruvilla K, Osler T, Hyman NH (2012) A comparison of the quality of life of ulcerative colitis patients after IPAA vs ileostomy. Dis Colon Rectum 55:1131–1137PubMed Kuruvilla K, Osler T, Hyman NH (2012) A comparison of the quality of life of ulcerative colitis patients after IPAA vs ileostomy. Dis Colon Rectum 55:1131–1137PubMed
46.
Zurück zum Zitat Nessar G, Fazio VW, Tekkis P et al (2006) Long-term outcome and quality of life after continent ileostomy. Dis Colon Rectum 49:336–344PubMed Nessar G, Fazio VW, Tekkis P et al (2006) Long-term outcome and quality of life after continent ileostomy. Dis Colon Rectum 49:336–344PubMed
47.
Zurück zum Zitat Ecker KW (1999) The continent ileostomy. Current indications, techniques and results. Chirurg 70:635–642PubMed Ecker KW (1999) The continent ileostomy. Current indications, techniques and results. Chirurg 70:635–642PubMed
48.
Zurück zum Zitat Angistriotis A, Shen B, Kiran RP (2022) Construction of and conversion to continent Ileostomy: a systematic review. Dis Colon Rectum 65:S26–S36PubMed Angistriotis A, Shen B, Kiran RP (2022) Construction of and conversion to continent Ileostomy: a systematic review. Dis Colon Rectum 65:S26–S36PubMed
49.
Zurück zum Zitat Risto A, Hallböök O, Andersson P et al (2021) Long-term follow-up, patient satisfaction, and quality of life for patients with Kock’s continent Ileostomy. Dis Colon Rectum 64:420–428PubMed Risto A, Hallböök O, Andersson P et al (2021) Long-term follow-up, patient satisfaction, and quality of life for patients with Kock’s continent Ileostomy. Dis Colon Rectum 64:420–428PubMed
50.
Zurück zum Zitat Deputy M, Worley G, Patel K et al (2021) Long-term outcome and quality of life after continent ileostomy for ulcerative colitis: A systematic review. Colorectal Dis 23:2286–2299PubMed Deputy M, Worley G, Patel K et al (2021) Long-term outcome and quality of life after continent ileostomy for ulcerative colitis: A systematic review. Colorectal Dis 23:2286–2299PubMed
51.
Zurück zum Zitat Salusjärvi JM, Koskenvuo LE, Mali JP et al (2023) Stoma reversal after Hartmann’s procedure for acute diverticulitis. Surgery 173:920–926PubMed Salusjärvi JM, Koskenvuo LE, Mali JP et al (2023) Stoma reversal after Hartmann’s procedure for acute diverticulitis. Surgery 173:920–926PubMed
52.
Zurück zum Zitat Katsura M, Fukuma S, Chida K et al (2023) Which factors influence the decision to perform Hartmann’s reversal in various causative disease situations? A retrospective cohort study between 2006 and 2021. Colorectal Dis 25:305–314PubMed Katsura M, Fukuma S, Chida K et al (2023) Which factors influence the decision to perform Hartmann’s reversal in various causative disease situations? A retrospective cohort study between 2006 and 2021. Colorectal Dis 25:305–314PubMed
53.
Zurück zum Zitat Kohl A, Rosenberg J, Bock D et al (2018) Two-year results of the randomized clinical trial DILALA comparing laparoscopic lavage with resection as treatment for perforated diverticulitis. Br J Surg 105(9):1128–1134PubMed Kohl A, Rosenberg J, Bock D et al (2018) Two-year results of the randomized clinical trial DILALA comparing laparoscopic lavage with resection as treatment for perforated diverticulitis. Br J Surg 105(9):1128–1134PubMed
54.
Zurück zum Zitat Colquhoun P, Kaiser R Jr., Efron J et al (2006) Is the quality of life better in patients with colostomy than patients with fecal incontience? World J Surg 30:1925–1928PubMed Colquhoun P, Kaiser R Jr., Efron J et al (2006) Is the quality of life better in patients with colostomy than patients with fecal incontience? World J Surg 30:1925–1928PubMed
55.
Zurück zum Zitat Norton C, Burch J, Kamm MA (2005) Patients’ views of a colostomy for fecal incontinence. Dis Colon Rectum 48:1062–1069PubMed Norton C, Burch J, Kamm MA (2005) Patients’ views of a colostomy for fecal incontinence. Dis Colon Rectum 48:1062–1069PubMed
56.
Zurück zum Zitat Scarpa M, Barollo M, Polese L et al (2004) Quality of life in patients with an ileostomy. Minerva Chir 59:23–29PubMed Scarpa M, Barollo M, Polese L et al (2004) Quality of life in patients with an ileostomy. Minerva Chir 59:23–29PubMed
57.
Zurück zum Zitat Hamashima C (2002) Long-term quality of life of postoperative rectal cancer patients. J Gastroenterol Hepatol 17:571–576PubMed Hamashima C (2002) Long-term quality of life of postoperative rectal cancer patients. J Gastroenterol Hepatol 17:571–576PubMed
58.
Zurück zum Zitat Sideris L, Zenasni F, Vernerey D et al (2005) Quality of life of patients operated on for low rectal cancer: impact of the type of surgery and patients’ characteristics. Dis Colon Rectum 48:2180–2191PubMed Sideris L, Zenasni F, Vernerey D et al (2005) Quality of life of patients operated on for low rectal cancer: impact of the type of surgery and patients’ characteristics. Dis Colon Rectum 48:2180–2191PubMed
59.
Zurück zum Zitat Kement M, Gezen C, Aydin H et al (2014) A descriptive survey study to evaluate the relationship between socio-demographic factors and quality of life in patients with a permanent colostomy. Ostomy Wound Manage 60:18–23PubMed Kement M, Gezen C, Aydin H et al (2014) A descriptive survey study to evaluate the relationship between socio-demographic factors and quality of life in patients with a permanent colostomy. Ostomy Wound Manage 60:18–23PubMed
60.
Zurück zum Zitat Mahjoubi B, Mirzaei R, Azizi R et al (2012) A cross-sectional survey of quality of life in colostomates: a report from Iran. Health Qual Life Outcomes 10:136PubMedPubMedCentral Mahjoubi B, Mirzaei R, Azizi R et al (2012) A cross-sectional survey of quality of life in colostomates: a report from Iran. Health Qual Life Outcomes 10:136PubMedPubMedCentral
61.
Zurück zum Zitat Schiergens TS, Hoffmann V, Schobel TN et al (2017) Long-term quality of life of patients with permanent end Ileostomy: results of a nationwide cross-sectional survey. Dis Colon Rectum 60:51–60PubMed Schiergens TS, Hoffmann V, Schobel TN et al (2017) Long-term quality of life of patients with permanent end Ileostomy: results of a nationwide cross-sectional survey. Dis Colon Rectum 60:51–60PubMed
62.
Zurück zum Zitat Baldwin CM, Grant M, Wendel C et al (2009) Gender differences in sleep disruption and fatigue on quality of life among persons with ostomies. J Clin Sleep Med 5:335–343PubMedPubMedCentral Baldwin CM, Grant M, Wendel C et al (2009) Gender differences in sleep disruption and fatigue on quality of life among persons with ostomies. J Clin Sleep Med 5:335–343PubMedPubMedCentral
63.
Zurück zum Zitat Ma N, Harvey J, Stewart J et al (2007) The effect of age on the quality of life of patients living with stomas: a pilot study. ANZ J Surg 77:883–885PubMed Ma N, Harvey J, Stewart J et al (2007) The effect of age on the quality of life of patients living with stomas: a pilot study. ANZ J Surg 77:883–885PubMed
64.
Zurück zum Zitat Verweij NM, Bonhof CS, Schiphorst AHW et al (2018) Quality of life in elderly patients with an ostomy—a study from the population-based PROFILES registry. Colorectal Dis 20:O92–o102PubMed Verweij NM, Bonhof CS, Schiphorst AHW et al (2018) Quality of life in elderly patients with an ostomy—a study from the population-based PROFILES registry. Colorectal Dis 20:O92–o102PubMed
65.
Zurück zum Zitat Wong SK, Young PY, Widder S et al (2013) A descriptive survey study on the effect of age on quality of life following stoma surgery. Ostomy Wound Manage 59:16–23PubMed Wong SK, Young PY, Widder S et al (2013) A descriptive survey study on the effect of age on quality of life following stoma surgery. Ostomy Wound Manage 59:16–23PubMed
66.
Zurück zum Zitat Kristensen HO, Thyo A, Christensen P (2019) Systematic review of the impact of demographic and socioeconomic factors on quality of life in ostomized colorectal cancer survivors. Acta Oncol 58:566–572PubMed Kristensen HO, Thyo A, Christensen P (2019) Systematic review of the impact of demographic and socioeconomic factors on quality of life in ostomized colorectal cancer survivors. Acta Oncol 58:566–572PubMed
67.
Zurück zum Zitat Lundy JJ, Coons SJ, Wendel C et al (2009) Exploring household income as a predictor of psychological well-being among long-term colorectal cancer survivors. Qual Life Res 18:157–161PubMedPubMedCentral Lundy JJ, Coons SJ, Wendel C et al (2009) Exploring household income as a predictor of psychological well-being among long-term colorectal cancer survivors. Qual Life Res 18:157–161PubMedPubMedCentral
68.
Zurück zum Zitat Horner DJ, Wendel CS, Skeps R et al (2010) Positive correlation of employment and psychological well-being for veterans with major abdominal surgery. Am J Surg 200:585–590PubMed Horner DJ, Wendel CS, Skeps R et al (2010) Positive correlation of employment and psychological well-being for veterans with major abdominal surgery. Am J Surg 200:585–590PubMed
69.
Zurück zum Zitat Geng Z, Howell D, Xu H et al (2017) Quality of life in Chinese persons living with an ostomy: a multisite cross-sectional study. J Wound Ostomy Continence Nurs 44:249–256PubMed Geng Z, Howell D, Xu H et al (2017) Quality of life in Chinese persons living with an ostomy: a multisite cross-sectional study. J Wound Ostomy Continence Nurs 44:249–256PubMed
70.
Zurück zum Zitat Maydick D (2016) A descriptive study assessing quality of life for adults with a permanent ostomy and the influence of preoperative stoma site marking. Ostomy Wound Manage 62:14–24PubMed Maydick D (2016) A descriptive study assessing quality of life for adults with a permanent ostomy and the influence of preoperative stoma site marking. Ostomy Wound Manage 62:14–24PubMed
71.
Zurück zum Zitat Su X, Qin F, Zhen L et al (2016) Self-efficacy and associated factors in patients with temporary ostomies: a cross-sectional survey. J Wound Ostomy Continence Nurs 43:623–629PubMed Su X, Qin F, Zhen L et al (2016) Self-efficacy and associated factors in patients with temporary ostomies: a cross-sectional survey. J Wound Ostomy Continence Nurs 43:623–629PubMed
72.
Zurück zum Zitat Symms MR, Rawl SM, Grant M et al (2008) Sexual health and quality of life among male veterans with intestinal ostomies. Clin Nurse Spec 22:30–40PubMed Symms MR, Rawl SM, Grant M et al (2008) Sexual health and quality of life among male veterans with intestinal ostomies. Clin Nurse Spec 22:30–40PubMed
73.
Zurück zum Zitat Ayik C, Ozden D, Cenan D (2019) Relationships among spiritual well-being, adjustment, and quality of life in patients with a stoma: a cross-sectional, descriptive study. Wound Manag Prev 65:40–47PubMed Ayik C, Ozden D, Cenan D (2019) Relationships among spiritual well-being, adjustment, and quality of life in patients with a stoma: a cross-sectional, descriptive study. Wound Manag Prev 65:40–47PubMed
74.
Zurück zum Zitat Rafiei H, Naseh L, Hosseinabadi-farahani M et al (2018) Spiritual wellbeing and quality of life in stoma patients. Gastrointest Nurs 16:27–31 Rafiei H, Naseh L, Hosseinabadi-farahani M et al (2018) Spiritual wellbeing and quality of life in stoma patients. Gastrointest Nurs 16:27–31
75.
Zurück zum Zitat Antoniadis D, Giakoustidis A, Paramythiotis D et al (2022) Mental health well-being and functional adjustment in colorectal cancer patients: a prospective cohort study. Acta Chir Belg 11;1–24. Online ahead of print Antoniadis D, Giakoustidis A, Paramythiotis D et al (2022) Mental health well-being and functional adjustment in colorectal cancer patients: a prospective cohort study. Acta Chir Belg 11;1–24. Online ahead of print
76.
Zurück zum Zitat Diniz IV, Pereira da Silva I, Silva RA et al (2023) Effects of the quality of life on the adaptation of people with an intestinal stoma. Clin Nurs Res 32:527–538PubMed Diniz IV, Pereira da Silva I, Silva RA et al (2023) Effects of the quality of life on the adaptation of people with an intestinal stoma. Clin Nurs Res 32:527–538PubMed
77.
Zurück zum Zitat Foster C, Haviland J, Winter J et al (2016) Pre-surgery depression and confidence to manage problems predict recovery trajectories of health and wellbeing in the first two years following colorectal cancer: results from the CREW cohort study. PLoS ONE 11:e155434PubMedPubMedCentral Foster C, Haviland J, Winter J et al (2016) Pre-surgery depression and confidence to manage problems predict recovery trajectories of health and wellbeing in the first two years following colorectal cancer: results from the CREW cohort study. PLoS ONE 11:e155434PubMedPubMedCentral
78.
Zurück zum Zitat Black P, Notter J (2021) Psychological issues affecting patients living with a stoma. Br J Nurs 30:S20–S32PubMed Black P, Notter J (2021) Psychological issues affecting patients living with a stoma. Br J Nurs 30:S20–S32PubMed
79.
Zurück zum Zitat Nam KH, Kim HY, Kim JH et al (2019) Effects of social support and self-efficacy on the psychosocial adjustment of Korean ostomy patients. Int Wound J 16(Suppl 1):13–20PubMedPubMedCentral Nam KH, Kim HY, Kim JH et al (2019) Effects of social support and self-efficacy on the psychosocial adjustment of Korean ostomy patients. Int Wound J 16(Suppl 1):13–20PubMedPubMedCentral
80.
Zurück zum Zitat Zhang Y, Xian H, Yang Y et al (2019) Relationship between psychosocial adaptation and health-related quality of life of patients with stoma: A descriptive, cross-sectional study. J Clin Nurs 28:2880–2888PubMed Zhang Y, Xian H, Yang Y et al (2019) Relationship between psychosocial adaptation and health-related quality of life of patients with stoma: A descriptive, cross-sectional study. J Clin Nurs 28:2880–2888PubMed
81.
Zurück zum Zitat Jin Y, Wang Y, Ma H et al (2022) The efficacy and mechanism of positive psychological intervention on well-being for colostomy patients: a randomized controlled trial. Support Care Cancer 30:5747–5757PubMed Jin Y, Wang Y, Ma H et al (2022) The efficacy and mechanism of positive psychological intervention on well-being for colostomy patients: a randomized controlled trial. Support Care Cancer 30:5747–5757PubMed
82.
Zurück zum Zitat Knowles SR, Tribbick D, Connell WR et al (2017) Exploration of health status, illness perceptions, coping strategies, psychological morbidity, and quality of life in individuals with fecal ostomies. J Wound Ostomy Continence Nurs 44:69–73PubMed Knowles SR, Tribbick D, Connell WR et al (2017) Exploration of health status, illness perceptions, coping strategies, psychological morbidity, and quality of life in individuals with fecal ostomies. J Wound Ostomy Continence Nurs 44:69–73PubMed
83.
Zurück zum Zitat Iqbal F, Batool Z, Varma S et al (2014) A survey to assess knowledge among international colorectal clinicians and enterostomal therapy nurses about stoma-related faith needs of Muslim patients. Ostomy Wound Manage 60:28–37PubMed Iqbal F, Batool Z, Varma S et al (2014) A survey to assess knowledge among international colorectal clinicians and enterostomal therapy nurses about stoma-related faith needs of Muslim patients. Ostomy Wound Manage 60:28–37PubMed
84.
Zurück zum Zitat Iqbal F, Kujan O, Bowley DM et al (2016) Quality of life after ostomy surgery in muslim patients: a systematic review of the literature and suggestions for clinical practice. J Wound Ostomy Continence Nurs 43:385–391PubMed Iqbal F, Kujan O, Bowley DM et al (2016) Quality of life after ostomy surgery in muslim patients: a systematic review of the literature and suggestions for clinical practice. J Wound Ostomy Continence Nurs 43:385–391PubMed
85.
Zurück zum Zitat Kuzu MA, Topçu O, Uçar K et al (2002) Effect of sphincter-sacrificing surgery for rectal carcinoma on quality of life in Muslim patients. Dis Colon Rectum 45:1359–1366PubMed Kuzu MA, Topçu O, Uçar K et al (2002) Effect of sphincter-sacrificing surgery for rectal carcinoma on quality of life in Muslim patients. Dis Colon Rectum 45:1359–1366PubMed
86.
Zurück zum Zitat Gu J, Valente MA, Remzi FH et al (2015) Factors affecting the fate of faecal diversion in patients with perianal Crohn’s disease. Colorectal Dis 17:66–72PubMed Gu J, Valente MA, Remzi FH et al (2015) Factors affecting the fate of faecal diversion in patients with perianal Crohn’s disease. Colorectal Dis 17:66–72PubMed
87.
Zurück zum Zitat Gooszen AW, Geelkerken RH, Hermans J et al (2000) Quality of life with a temporary stoma: ileostomy vs. colostomy. Dis Colon Rectum 43:650–655PubMed Gooszen AW, Geelkerken RH, Hermans J et al (2000) Quality of life with a temporary stoma: ileostomy vs. colostomy. Dis Colon Rectum 43:650–655PubMed
88.
Zurück zum Zitat Silva MA, Ratnayake G, Deen KI (2003) Quality of life of stoma patients: temporary ileostomy versus colostomy. World J Surg 27:421–424PubMed Silva MA, Ratnayake G, Deen KI (2003) Quality of life of stoma patients: temporary ileostomy versus colostomy. World J Surg 27:421–424PubMed
89.
Zurück zum Zitat Kumano K, Kitaguchi D, Owada Y et al (2023) A comparative study of stoma-related complications from diverting loop ileostomy or colostomy after colorectal surgery. Langenbecks Arch Surg 408:139PubMed Kumano K, Kitaguchi D, Owada Y et al (2023) A comparative study of stoma-related complications from diverting loop ileostomy or colostomy after colorectal surgery. Langenbecks Arch Surg 408:139PubMed
90.
Zurück zum Zitat Boutry E, Bertrand MM, Ripoche J et al (2021) Quality of life in colostomy patients practicing colonic irrigation: An observational study. J Visc Surg 158:4–10PubMed Boutry E, Bertrand MM, Ripoche J et al (2021) Quality of life in colostomy patients practicing colonic irrigation: An observational study. J Visc Surg 158:4–10PubMed
91.
Zurück zum Zitat Makela JT, Turku PH, Laitinen ST (1997) Analysis of late stomal complications following ostomy surgery. Ann Chir Gynaecol 86:305–310PubMed Makela JT, Turku PH, Laitinen ST (1997) Analysis of late stomal complications following ostomy surgery. Ann Chir Gynaecol 86:305–310PubMed
92.
Zurück zum Zitat Shabbir J, Britton DC (2010) Stoma complications: a literature overview. Colorectal Dis 12:958–964PubMed Shabbir J, Britton DC (2010) Stoma complications: a literature overview. Colorectal Dis 12:958–964PubMed
93.
Zurück zum Zitat Maydick-Youngberg D (2017) A descriptive study to explore the effect of peristomal skin complications on quality of life of adults with a permanent ostomy. Ostomy Wound Manage 63:10–23PubMed Maydick-Youngberg D (2017) A descriptive study to explore the effect of peristomal skin complications on quality of life of adults with a permanent ostomy. Ostomy Wound Manage 63:10–23PubMed
94.
Zurück zum Zitat Osborne W, White M, Aibibula M et al (2022) Prevalence of leakage and its negative impact on quality of life in people living with a stoma in the UK. Br J Nurs 31:S24–S38PubMed Osborne W, White M, Aibibula M et al (2022) Prevalence of leakage and its negative impact on quality of life in people living with a stoma in the UK. Br J Nurs 31:S24–S38PubMed
95.
Zurück zum Zitat Arolfo S, Borgiotto C, Bosio G et al (2018) Preoperative stoma site marking: a simple practice to reduce stoma-related complications. Tech Coloproctol 22:683–687PubMed Arolfo S, Borgiotto C, Bosio G et al (2018) Preoperative stoma site marking: a simple practice to reduce stoma-related complications. Tech Coloproctol 22:683–687PubMed
96.
Zurück zum Zitat Person B, Ifargan R, Lachter J et al (2012) The impact of preoperative stoma site marking on the incidence of complications, quality of life, and patient’s independence. Dis Colon Rectum 55:783–787PubMed Person B, Ifargan R, Lachter J et al (2012) The impact of preoperative stoma site marking on the incidence of complications, quality of life, and patient’s independence. Dis Colon Rectum 55:783–787PubMed
97.
Zurück zum Zitat Forsmo HM, Pfeffer F, Rasdal A et al (2016) Pre- and postoperative stoma education and guidance within an enhanced recovery after surgery (ERAS) programme reduces length of hospital stay in colorectal surgery. Int J Surg 36:121–126PubMed Forsmo HM, Pfeffer F, Rasdal A et al (2016) Pre- and postoperative stoma education and guidance within an enhanced recovery after surgery (ERAS) programme reduces length of hospital stay in colorectal surgery. Int J Surg 36:121–126PubMed
98.
Zurück zum Zitat Cakmak A, Aylaz G, Kuzu MA (2010) Permanent stoma not only affects patients’ quality of life but also that of their spouses. World J Surg 34:2872–2876PubMed Cakmak A, Aylaz G, Kuzu MA (2010) Permanent stoma not only affects patients’ quality of life but also that of their spouses. World J Surg 34:2872–2876PubMed
99.
Zurück zum Zitat Fingren J, Lindholm E, Petersén C et al (2018) A prospective, explorative study to assess adjustment 1 year after ostomy surgery among Swedish patients. Ostomy Wound Manage 64:12–22PubMed Fingren J, Lindholm E, Petersén C et al (2018) A prospective, explorative study to assess adjustment 1 year after ostomy surgery among Swedish patients. Ostomy Wound Manage 64:12–22PubMed
100.
Zurück zum Zitat Huang Q, Zhuang Y, Ye X et al (2021) The effect of online training-based continuous nursing care for rectal cancer-patients undergoing permanent colostomy. Am J Transl Res 13:3084–3092PubMedPubMedCentral Huang Q, Zhuang Y, Ye X et al (2021) The effect of online training-based continuous nursing care for rectal cancer-patients undergoing permanent colostomy. Am J Transl Res 13:3084–3092PubMedPubMedCentral
101.
Zurück zum Zitat de Ponthaud C, Roupret M, Vernerey D et al (2023) StomaCare: quality of life impact after enhanced follow-up of ostomy patients by a home healthcare nursing service—a multicentre, randomized, controlled trial. Colorectal Dis 25:128–143PubMed de Ponthaud C, Roupret M, Vernerey D et al (2023) StomaCare: quality of life impact after enhanced follow-up of ostomy patients by a home healthcare nursing service—a multicentre, randomized, controlled trial. Colorectal Dis 25:128–143PubMed
102.
Zurück zum Zitat Krouse RS, Grant M, McCorkle R et al (2016) A chronic care ostomy self-management program for cancer survivors. Psychooncology 25:574–581PubMedPubMedCentral Krouse RS, Grant M, McCorkle R et al (2016) A chronic care ostomy self-management program for cancer survivors. Psychooncology 25:574–581PubMedPubMedCentral
103.
Zurück zum Zitat Su X, Zhen L, Zhu M et al (2017) Determinants of self-efficacy and quality of life in patients with temporary enterostomy: a cross-sectional survey. J Clin Nurs 26:477–484PubMed Su X, Zhen L, Zhu M et al (2017) Determinants of self-efficacy and quality of life in patients with temporary enterostomy: a cross-sectional survey. J Clin Nurs 26:477–484PubMed
104.
Zurück zum Zitat Khalilzadeh Ganjalikhani M, Tirgari B, Roudi Rashtabadi O et al (2019) Studying the effect of structured ostomy care training on quality of life and anxiety of patients with permanent ostomy. Int Wound J 16:1383–1390PubMedPubMedCentral Khalilzadeh Ganjalikhani M, Tirgari B, Roudi Rashtabadi O et al (2019) Studying the effect of structured ostomy care training on quality of life and anxiety of patients with permanent ostomy. Int Wound J 16:1383–1390PubMedPubMedCentral
106.
Zurück zum Zitat Soares-Pinto I, Braga AMP, Santos I et al (2023) ehealth promoting Stoma self-care for people with an elimination ostomy: focus group study. JMIR Hum Factors 10:e39826PubMedPubMedCentral Soares-Pinto I, Braga AMP, Santos I et al (2023) ehealth promoting Stoma self-care for people with an elimination ostomy: focus group study. JMIR Hum Factors 10:e39826PubMedPubMedCentral
107.
Zurück zum Zitat Wang QQ, Zhao J, Huo XR et al (2018) Effects of a home care mobile app on the outcomes of discharged patients with a stoma: A randomised controlled trial. J Clin Nurs 27:3592–3602PubMed Wang QQ, Zhao J, Huo XR et al (2018) Effects of a home care mobile app on the outcomes of discharged patients with a stoma: A randomised controlled trial. J Clin Nurs 27:3592–3602PubMed
Metadaten
Titel
Lebensqualität von Stomapatienten
verfasst von
Prof. Dr. med. Michael S. Kasparek
Publikationsdatum
06.06.2023
Verlag
Springer Medizin
Erschienen in
coloproctology / Ausgabe 4/2023
Print ISSN: 0174-2442
Elektronische ISSN: 1615-6730
DOI
https://doi.org/10.1007/s00053-023-00709-1

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